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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2004

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Made My Decision

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Glenn Enoch - 08 Jun 2004 02:14 GMT
After weeks of research, doctor's appointments and tests, I decided to
get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
It will be performed by Dr James Eastham.

I fully believe that any choice I made (surgery or radiation) would
have had equal curative value -- very high, in my case.  I decided to
make my decision on other factors.

- I like the fact that I will know soon after the surgery where I
stand, whether the surgery got it all, whether the nerves were spared
(likely), whether there was any escape from the capsule (not so
likely), whether any additional treatment is necessary.

- Permanent severe incontinence, at my age, is not likely.  This was
the major drawback of surgery vs radiation.

- On the other hand, I wasn't too happy with the risk of having the
opposite problem from prostate swelling as the result of radiation.
My flow rate is already poor.  Of course, this might not have
happened, but I saw this as a decision about what I was willing to
risk or tolerate.

- The doctors at MSKCC start working on impotence right away.  In
fact, I have volunteered for a clinical trial that may improve my
chances for post-surgical erectile function.  My sense was that
impotence was also a risk with radiation, but that it wouldn't show up
for some time.

My thanks to everyone who answered my posts, and emailed me, offering
your advice and personal experiences.  I'll let you know how it goes.

Age 46
PSA: 1.4 (12/2000), 2.0 (7/2002), 10.3 (3/2/04), 6.0 (retest 3/18/04)
Biopsy 4/5/04 cancer in 10% of one core
Gleason 6 (3+3); clinical stage T1c
Bone Scan negative
MH - 08 Jun 2004 03:40 GMT
> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
> It will be performed by Dr James Eastham.

Congrats on the decision, Glenn!  It's the right one *for you*!
Just keep looking forward!

> - The doctors at MSKCC start working on impotence right away.  In
> fact, I have volunteered for a clinical trial that may improve my
> chances for post-surgical erectile function.  My sense was that
> impotence was also a risk with radiation, but that it wouldn't show up
> for some time.

Could you share with us what regimen the docs are using to try and help with
this?

Thanks!
MikeH
jimhoney - 08 Jun 2004 03:43 GMT
Glenn,

Sounds like a recipe for success to me.

I took the same path, and got a one-time cure with no significant side
effects.  And your numbers are better than mine.  So be optimistic!

jimhoney
c palmer - 08 Jun 2004 03:47 GMT
hi glenn - it definitely sounds like you did your homework and you
weighed the pros and cons.  

now, all you have to do is set back and go with the flow of the
treatment.  from the sound of the post op erectile function treatment.
this is a first in this dept to where they are taking a more active role
of the patient.  

best of luck.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
Tom C - 08 Jun 2004 10:33 GMT
Hi Glenn,
Glad to hear that you've made a decision, it's likely the toughest decision
any of us have had to make, but you're over that hump now and on the road
towards recovery. The worst thing now that you've made a choice is the six
week wait.
Your stats. and mine are nearly identical except for age, I'm 62, if I were
your age I probably would have given more consideration to surgery. It sure
looks like you've got a winning combination of the Dr. and facility lined
up.

Wish you the best.

Tom

> hi glenn - it definitely sounds like you did your homework and you
> weighed the pros and cons.
[quoted text clipped - 11 lines]
> "Many more men die with prostate cancer than of it. Growing old is
> invariably fatal. Prostate cancer is only sometimes so."
Chuck McClellan - 08 Jun 2004 11:22 GMT
> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
[quoted text clipped - 32 lines]
> Gleason 6 (3+3); clinical stage T1c
> Bone Scan negative

Glen,
Your decision is the correct one for you.  Doing the home work, asking
questions and hearing testimonies really helps when it comes to
weighingthe options.  Your numbers are a lot like mine so I can
relate.  I just wanted "It" out of me.  Congratulations on your
decision and good luck.

Chuck McClellan
Ron Carter - 08 Jun 2004 12:04 GMT
Sounds like you went about this in the right way and made a solid,
rational decision.  I'm betting that by the end of August, you'll be
continent and cancer-free.  Keep us posted.

Ron Carter

> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
[quoted text clipped - 17 lines]
> happened, but I saw this as a decision about what I was willing to
> risk or tolerate.

> - The doctors at MSKCC start working on impotence right away.  In
> fact, I have volunteered for a clinical trial that may improve my
> chances for post-surgical erectile function.  My sense was that
> impotence was also a risk with radiation, but that it wouldn't show up

> for some time.
>
[quoted text clipped - 6 lines]
> Gleason 6 (3+3); clinical stage T1c
> Bone Scan negative
al1096@loud.bellsouth.net> - 08 Jun 2004 13:07 GMT
*After weeks of research, doctor's appointments and tests, I decided
to
*get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.

*It will be performed by Dr James Eastham.
<snip>

*Age 46
*PSA: 1.4 (12/2000), 2.0 (7/2002), 10.3 (3/2/04), 6.0 (retest 3/18/04)
*Biopsy 4/5/04 cancer in 10% of one core
*Gleason 6 (3+3); clinical stage T1c
*Bone Scan negative

Very best wishes for a successful operation and recovery! Keep us
posted when you can upon recovery.

Al
Please be quiet if replying via email,
flames will be deleted promptly.
I won't even read the whole message...
Sandy K. - 08 Jun 2004 14:24 GMT
Glenn -

As we've discussed, it sounds like you've made the right decision.  Tomorrow
I go to MKSCC for my pre-op testing in anticipation of my procedure next
Thursday.  Once home I plan on posting about my progress.  I'm hopfull that
I'll be able to pass on positive info....

Good luck to you.

Sandy K.

> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
[quoted text clipped - 32 lines]
> Gleason 6 (3+3); clinical stage T1c
> Bone Scan negative
Larry - 08 Jun 2004 14:45 GMT
Congratulations Glenn on making your decision.

Good luck!

Larry

PS - to reiterate what has been stated many times on this thread: "don't
look back"
Steve Kramer - 08 Jun 2004 17:24 GMT
> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.

O.K., Glenn.  As we may have mentioned before, now is the time to put that
decision behind you.  Get some rest.  Get away if you can.  The operation,
for the prostate donor, is the easiest part of the whole process.  Don't
worry about it's approach.

Oh, and walk.  Or, if you're a runner, run.  The better you get your heart
pumping now, the better you'll be come game day.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04

jk - 08 Jun 2004 23:21 GMT
> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
[quoted text clipped - 26 lines]
> My thanks to everyone who answered my posts, and emailed me, offering
> your advice and personal experiences.  I'll let you know how it goes.

 Of course I'm predjudice, but it seems to me that most guys 50ish that
take the time to explore all possibilities, go for the surgery like me.
Glenn once it's over, you'll be ecstatic at peeing across the room on the
fly! Have a good one.

Signature

JK Sinrod
Sinrod Stained Glass Studios
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

Don Coon - 09 Jun 2004 00:07 GMT
<SNIP>

>   Of course I'm predjudice, but it seems to me that most guys 50ish that
> take the time to explore all possibilities, go for the surgery like me.
> Glenn once it's over, you'll be ecstatic at peeing across the room on the
> fly! Have a good one.

That's for sure!  Reminds me of my childhood.  Whoever could pee the
farthest off the 40 foot clifts near my home held bragging rights ; )

Now if I could only STOP peeing across the room.
Tom C - 09 Jun 2004 01:10 GMT
Don,
Times sure change, don't they;-))
Tom

> <SNIP>
>
[quoted text clipped - 7 lines]
>
> Now if I could only STOP peeing across the room.
chuck@bestofluck.com - 09 Jun 2004 00:00 GMT
Good decision.  Best of luck...

Chuck
DF - 09 Jun 2004 22:12 GMT
Very Cool!  You will be able to feel comfortable with you decision since you
investigated it.  Best of luck and LOW psa readings in the future.

Dwight

> After weeks of research, doctor's appointments and tests, I decided to
> get the RRP.  My surgery is scheduled for July 27 at Sloan-Kettering.
[quoted text clipped - 5 lines]
>
> SNIP
Beverley - 09 Jun 2004 22:36 GMT
I agree with Dwight. It has been your decision based on facts and your own
feelings. It is so important to follow your gut feelings. No matter what the
outcome you will feel as though you did the best for you. And I think given
your age it probably was an excellent decision. Also you are using one of
the big centers and that has to be in your favor. So hopefully in another 20
years you'll be smiling and still having undetectable PSA's knowing that you
beat the demon! Good luck and keep us posted!
Bev
 
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