Medical Forum / Diseases and Disorders / Prostate Cancer / June 2004
Post-Brachy Side Effects
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Ron Carter - 30 May 2004 01:15 GMT There have been several threads recently about the side effects of surgery. Here's one about the side effects of brachy. I had a seed implant about three weeks ago and was doing fine until yesterday. I've been taking Flomax, pumpkin seed oil, Ibuprofen, and drinking lots of cranberry juice. Yesterday, urinary flow slowed to a trickle, especially bad at night. I live in fear of a shutdown and catheterization. (Had enough of that already for a lifetime.) Any other brachy patients out there with any similar experience and, hopefully, suggestions.
Ron C
Heather - 30 May 2004 04:27 GMT Ron....."my Ron" had HDR brachytherapy last summer. He had a bad reaction to Flomax so that was out of the question. All he took were painkillers for a couple of days. He never had your problem. But cranberry juice is something we women were told to use for bladder infections......it just plain doesn't work!! Never has, never will. You might as well drink water.
> There have been several threads recently about the side effects of > surgery. Here's one about the side effects of brachy. I had a seed [quoted text clipped - 7 lines] > > Ron C Tom C - 30 May 2004 14:07 GMT Ron, I'll follow this thread with interest as I'm scheduled for seeds on 6/2. My urologist has told me that he normally prescribes Flowmax following the procedure, I take Cardura (another alpha blocker) for BP and will not be prescribed the flowmax. He also plans to leave a Foley in place for a couple of days following the procedure, I hadn't read about that part and thought I was going to escape that aspect :-(
Tom
> Ron....."my Ron" had HDR brachytherapy last summer. He had a bad reaction > to Flomax so that was out of the question. All he took were painkillers for [quoted text clipped - 12 lines] > > > > Ron C Steve Kramer - 30 May 2004 16:04 GMT Two days? Following surgery? I think you can do that standing on your head. Two to four weeks of the damned snake is what gets on your nerves after awhile.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04
> Ron, > I'll follow this thread with interest as I'm scheduled for seeds on 6/2. My [quoted text clipped - 24 lines] > > > > > > Ron C jk - 30 May 2004 16:06 GMT > Ron, > I'll follow this thread with interest as I'm scheduled for seeds on 6/2. My [quoted text clipped - 5 lines] > > Tom This is only one of the reasons I eventually chose RP. My stream was not good well before the surgery, and I really was afraid that after radiation, it would be even worse for the rest for my life. Now I pee like a racehorse, and go through the entire night. What a great side benefit of the surgery, besides not having cancer anymore!
 Signature JK Sinrod Sinrod Stained Glass Studios www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories
dale.j. - 30 May 2004 17:41 GMT
> This is only one of the reasons I eventually chose RP. My stream was not > good well before the surgery, and I really was afraid that after radiation, > it would be even worse for the rest for my life. Now I pee like a racehorse, > and go through the entire night. What a great side benefit of the surgery, > besides not having cancer anymore! I'll second that for the above.
Dale J.
 Signature Email: dalej2@mac..com
Tom C - 30 May 2004 18:56 GMT Guys, My comment on the Foley was tongue in cheek, if that's the worst that happens, I hit a home run!
Tom
> > This is only one of the reasons I eventually chose RP. My stream was not > > good well before the surgery, and I really was afraid that after radiation, [quoted text clipped - 5 lines] > > Dale J. Ron Carter - 31 May 2004 14:42 GMT Hey, JK, no gloating, okay? Yeah, I'd like to be able to pee like a race horse, but that doesn't always happen, does it? Just look at the recent threads about incontinence. Side effects come with all treatments--RP, SI, EBRT, whatever. If you got off scot-free, more power to you. I chose SI partly because I felt I'd rather accept the risk of a weak urinary stream than the risk of having to wear pads for the rest of my life. So far, I'm satisfied. And I'm glad you're satisfied with your choice. But bragging about peeing like a race horse doesn't help me deal with my problem.
> > Ron, > > I'll follow this thread with interest as I'm scheduled for seeds on 6/2. [quoted text clipped - 14 lines] > and go through the entire night. What a great side benefit of the surgery, > besides not having cancer anymore! olfart - 30 May 2004 14:47 GMT > There have been several threads recently about the side effects of > surgery. Here's one about the side effects of brachy. I had a seed [quoted text clipped - 7 lines] > > Ron C Hi Ron, I was originally set up for 25 IMRT and then seed implants (also am on HT). About the 10th rad treatment I started getting the urine slowdown (much worse at night). I have been taking 2 Flowmax plus saw palmetto, advil and cran juice, etc. but there has been little improvement. The Drs now feel that seeds would be too risky for me so I am getting 42 IMRT instead (6 more to go). After the 10th treatment my URO did a cystoscopy and stretched the uretha a little. I peed like a horse for about 3 days and went right back to burning and dribbling again. I'm hoping it will ease up sometime after I complete IMRT. Don't know if you had Ext Radiation before the seeds. The Drs have told me that the effects of the radiation will continue for 4 - 6 months after the treatments are finished and during that time they don't recommend any surgery on the prostate to "open things up" for fear that scar tissue left will interfere with the action of the Rad treatments. My URO also said that he could not do any corrective surgery if I had a seed implant. I know this is not encouraging news, but hopefully as the radiation from the seeds decreases your flow will improve. The concentrated dose of RAD from the seeds can cause swelling and this is probably what is happeneing to you. I have started taking Pyridium 200mg 3 times a day and it seems to help the flow a little and relieves the burning. It makes you pee Red and causes a little dribble, but the stain comes out of clothing with a little bleach. You might ask about it. I'm doing much better during tha day now and only get up to dribble about 4 times instead of 6-8 times a night. Wish you luck and improvement. Age - 69 8/12/02 - PSA 3.7 10/13/03 - PSA 4.69 11/11/03 - PSA 4.8 11/18/03 - Biopsy - 10 cores one core-25% of core-Gleason 4+4=8 all other cores benign tissue 12/10/03 - Consult - Oncologist 12/16/03 - Consult - Radiation Oncologist Treatment Plan - Northeast Ga Cancer Center HT - started 12/17/03 - Eulixen & Lupron (2nd 4 mo Lupron-4/26) 2/10/04 - Started - Flowmax and Megastrol Radiation - IMRT to begin 3/30/04 - 42 treatments
Alan Meyer - 31 May 2004 05:27 GMT > There have been several threads recently about the side effects of > surgery. Here's one about the side effects of brachy. I had a seed [quoted text clipped - 7 lines] > > Ron C Here's one suggestion for night time use.
Put a urinal (or jar or whatever) next to the bed. If you get any urge during the night, get up and try. It may be less disruptive to your sleep to urinate right by the bed without having to walk over to the toilet. If you can dribble a little 6 or 8 times at night, that may be enough to drain you out even though you don't get a good satisfying rush of urine all at once. I was doing about 7 per night for a week or so. It was inconvenient, but bearable.
You may be facing the worst of it right now. I have read that the initial reaction of tissue to radiation is swelling, but that, over time, the swelling goes down even when the radiation continues.
If you got Iodine 125 seeds, the radiation you are receiving now is probably about 80-85% of what it was when the seeds were first implanted. In another 5 weeks it will be down to 50%. If you got Palladium seeds you're already below 50%. So the problem will get better.
You may have these problems for another 2 to 8 weeks. Hopefully they will ease up after that. I was told by my radiation oncologist that these problems do go away for all men.
If things get really bad, you may be able to get a self-catheter kit that you can put in, drain, and take out again in an emergency.
Another emergency treatment that worked for me was a steroid anti-inflammatory. You don't want to take steroids on a regular basis, but they might get you over a bad spot if necessary - without having to catheterize. You might ask your doctor if a prescription for some kind of high potency steroidal anti-inflammatory pills is okay for you if you only use it when you absolutely have to.
Alan
Ron Carter - 31 May 2004 14:45 GMT Thanks to those of you who offered helpful advice. There has already been some improvement, especially during the daytime. I'm hoping maybe it was a one-day aberration. I had palladium seeds implanted, so as Alan pointed out, half the dosage has been delivered. Ought to start letting up at least a little. I also managed to reach my rad onc who is looking at prescribing a more potent alpha blocker.
> There have been several threads recently about the side effects of > surgery. Here's one about the side effects of brachy. I had a seed [quoted text clipped - 7 lines] > > Ron C Hi Ho Silver - 01 Jun 2004 03:02 GMT I may have been fortunate, but I had virtually zero urination problems after my seeds in 1999. I did take my Flomax for the requisite number of weeks.
John Hanley Brachytherapy: October, 1999 98 I-125 Seeds Age at treatment: 62 Pretreatment PSA: 7.5 Gleason: 3+3 = 6 Most recent PSA: 0.2 ------------------------------------------
> There have been several threads recently about the side effects of > surgery. Here's one about the side effects of brachy. I had a seed [quoted text clipped - 7 lines] > > Ron C Ron Carter - 01 Jun 2004 22:01 GMT My radiation onc thinks it's probably a bladder infection and is putting me on an antibiotic. (Diagnosed by telephone; it's a long trip to his office.)
> There have been several threads recently about the side effects of > surgery. Here's one about the side effects of brachy. I had a seed [quoted text clipped - 7 lines] > > Ron C Heather - 02 Jun 2004 00:38 GMT Ouch!! I get those often and they have a distinctive burning pain. Good luck. I use Norfloxacin or Macrobid......sometimes they prescribe Cipro, but my doctor thinks the first one is the best. Will be tucking a bottle of it in my suitcase, rather than trying to find a doctor on my holiday.
All the best......Heather
> My radiation onc thinks it's probably a bladder infection and is > putting me on an antibiotic. (Diagnosed by telephone; it's a long [quoted text clipped - 11 lines] > > > > Ron C Tom C - 02 Jun 2004 02:09 GMT Heather and Ron,
Have a wonderful vacation (holiday as some say), we will all miss you while you're gone, you've been great. Tom
> Ouch!! I get those often and they have a distinctive burning pain. Good > luck. I use Norfloxacin or Macrobid......sometimes they prescribe Cipro, [quoted text clipped - 20 lines] > > > > > > Ron C Heather - 02 Jun 2004 04:18 GMT Thank you, Tom......what a lovely thing to say. I promise not to miss you folks for the 3 weeks......but will see you when we get back (VBG). Just behave yourselves.....OK?? Particularly *Little Stevie Wonder*, lol.
Cheers....Heather 8-)))
> Heather and Ron, > [quoted text clipped - 26 lines] > > > > > > > > Ron C Steve Kramer - 04 Jun 2004 18:27 GMT We'll do whatever we can to fill your mail box.
Hope you have a great trip. Sounds like a special one.
LSW
> Thank you, Tom......what a lovely thing to say. I promise not to miss you > folks for the 3 weeks......but will see you when we get back (VBG). Just [quoted text clipped - 37 lines] > > > > > > > > > > Ron C
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