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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2004

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Post-Brachy Side Effects

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Ron Carter - 30 May 2004 01:15 GMT
There have been several threads recently about the side effects of
surgery.  Here's one about the side effects of brachy.  I had a seed
implant about three weeks ago and was doing fine until yesterday.
I've been taking Flomax, pumpkin seed oil, Ibuprofen, and drinking
lots of cranberry juice.  Yesterday, urinary flow slowed to a trickle,
especially bad at night.  I live in fear of a shutdown and
catheterization.  (Had enough of that already for a lifetime.)  Any
other brachy patients out there with any similar experience and,
hopefully, suggestions.

Ron C
Heather - 30 May 2004 04:27 GMT
Ron....."my Ron" had HDR brachytherapy last summer.  He had a bad reaction
to Flomax so that was out of the question.  All he took were painkillers for
a couple of days.  He never had your problem.  But cranberry juice is
something we women were told to use for bladder infections......it just
plain doesn't work!!  Never has, never will.  You might as well drink water.
> There have been several threads recently about the side effects of
> surgery.  Here's one about the side effects of brachy.  I had a seed
[quoted text clipped - 7 lines]
>
> Ron C
Tom C - 30 May 2004 14:07 GMT
Ron,
I'll follow this thread with interest as I'm scheduled for seeds on 6/2. My
urologist has told me that he normally prescribes Flowmax following the
procedure, I take Cardura (another alpha blocker) for BP and will not be
prescribed the flowmax. He also plans to leave a Foley in place for a couple
of days following the procedure, I hadn't read about that part and thought I
was going to escape that aspect :-(

Tom

> Ron....."my Ron" had HDR brachytherapy last summer.  He had a bad reaction
> to Flomax so that was out of the question.  All he took were painkillers for
[quoted text clipped - 12 lines]
> >
> > Ron C
Steve Kramer - 30 May 2004 16:04 GMT
Two days?  Following surgery?  I think you can do that standing on your
head.  Two to four weeks of the damned snake is what gets on your nerves
after awhile.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04

> Ron,
> I'll follow this thread with interest as I'm scheduled for seeds on 6/2. My
[quoted text clipped - 24 lines]
> > >
> > > Ron C
jk - 30 May 2004 16:06 GMT
> Ron,
> I'll follow this thread with interest as I'm scheduled for seeds on 6/2. My
[quoted text clipped - 5 lines]
>
> Tom

 This is only one of the reasons I eventually chose RP.  My stream was not
good well before the surgery, and I really was afraid that after radiation,
it would be even worse for the rest for my life. Now I pee like a racehorse,
and go through the entire night. What a great side benefit of the surgery,
besides not having cancer anymore!

Signature

JK Sinrod
Sinrod Stained Glass Studios
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

dale.j. - 30 May 2004 17:41 GMT

>   This is only one of the reasons I eventually chose RP.  My stream was not
> good well before the surgery, and I really was afraid that after radiation,
> it would be even worse for the rest for my life. Now I pee like a racehorse,
> and go through the entire night. What a great side benefit of the surgery,
> besides not having cancer anymore!

I'll second that for the above.

Dale J.

Signature

Email:  dalej2@mac..com

Tom C - 30 May 2004 18:56 GMT
Guys,
My comment on the Foley was tongue in cheek, if that's the worst that
happens, I hit a home run!

Tom

> >   This is only one of the reasons I eventually chose RP.  My stream was not
> > good well before the surgery, and I really was afraid that after radiation,
[quoted text clipped - 5 lines]
>
> Dale J.
Ron Carter - 31 May 2004 14:42 GMT
Hey, JK, no gloating, okay?  Yeah, I'd like to be able to pee like a
race horse, but that doesn't always happen, does it?  Just look at the
recent threads about incontinence.  Side effects come with all
treatments--RP, SI, EBRT, whatever.  If you got off scot-free, more
power to you.  I chose SI partly because I felt I'd rather accept the
risk of a weak urinary stream than the risk of having to wear pads for
the rest of my life.  So far, I'm satisfied.  And I'm glad you're
satisfied with your choice.  But bragging about peeing like a race
horse doesn't help me deal with my problem.

> > Ron,
> > I'll follow this thread with interest as I'm scheduled for seeds on 6/2.
[quoted text clipped - 14 lines]
> and go through the entire night. What a great side benefit of the surgery,
> besides not having cancer anymore!
olfart - 30 May 2004 14:47 GMT
> There have been several threads recently about the side effects of
> surgery.  Here's one about the side effects of brachy.  I had a seed
[quoted text clipped - 7 lines]
>
> Ron C

Hi Ron,
I was originally set up for 25 IMRT and then seed implants (also am on HT).
About the 10th rad treatment I started getting the urine slowdown (much
worse at night). I have been taking 2 Flowmax plus saw palmetto, advil and
cran juice, etc. but there has been little improvement. The Drs now feel
that seeds would be too risky for me so I am getting 42 IMRT instead (6 more
to go). After the 10th treatment my URO did a cystoscopy and stretched the
uretha a little. I peed like a horse for about 3 days and went right back to
burning and dribbling again. I'm hoping it will ease up sometime after I
complete IMRT. Don't know if you had Ext Radiation before the seeds. The Drs
have told me that the effects of the radiation will continue for 4 - 6
months after the treatments are finished and during that time they don't
recommend any surgery on the prostate to "open things up" for fear that scar
tissue left will interfere with the action of the Rad treatments. My URO
also said that he could not do any corrective surgery if I had a seed
implant.
I know this is not encouraging news, but hopefully as the radiation from the
seeds decreases your flow will improve. The concentrated dose of RAD from
the seeds can cause swelling and this is probably what is happeneing to you.
I have started taking Pyridium 200mg 3 times a day and it seems to help the
flow a little and relieves the burning. It makes you pee Red and causes a
little dribble, but the stain comes out of clothing with a little bleach.
You might ask about it. I'm doing much better during tha day now and only
get up to dribble about 4 times instead of 6-8 times a night.
Wish you luck and improvement.
Age - 69
8/12/02 - PSA 3.7
10/13/03 - PSA 4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist
12/16/03 - Consult - Radiation Oncologist
Treatment Plan - Northeast Ga Cancer Center
HT - started 12/17/03 - Eulixen & Lupron (2nd 4 mo Lupron-4/26)
2/10/04 - Started - Flowmax and Megastrol
Radiation - IMRT to begin 3/30/04 - 42 treatments
Alan Meyer - 31 May 2004 05:27 GMT
> There have been several threads recently about the side effects of
> surgery.  Here's one about the side effects of brachy.  I had a seed
[quoted text clipped - 7 lines]
>
> Ron C

Here's one suggestion for night time use.

Put a urinal (or jar or whatever) next to the bed.  If you
get any urge during the night, get up and try.  It may be
less disruptive to your sleep to urinate right by the bed
without having to walk over to the toilet.  If you can
dribble a little 6 or 8 times at night, that may be enough
to drain you out even though you don't get a good
satisfying rush of urine all at once.  I was doing about
7 per night for a week or so.  It was inconvenient, but
bearable.

You may be facing the worst of it right now.  I have
read that the initial reaction of tissue to radiation is
swelling, but that, over time, the swelling goes down
even when the radiation continues.

If you got Iodine 125 seeds, the radiation you are
receiving now is probably about 80-85% of what it
was when the seeds were first implanted.  In another
5 weeks it will be down to 50%.  If you got Palladium
seeds you're already below 50%.  So the problem
will get better.

You may have these problems for another 2 to 8
weeks.  Hopefully they will ease up after that.  I
was told by my radiation oncologist that these problems
do go away for all men.

If things get really bad, you may be able to get a
self-catheter kit that you can put in, drain, and take
out again in an emergency.

Another emergency treatment that worked for me
was a steroid anti-inflammatory.  You don't want to
take steroids on a regular basis, but they might get
you over a bad spot if necessary - without having
to catheterize.  You might ask your doctor if a
prescription for some kind of high potency steroidal
anti-inflammatory pills is okay for you if you only use
it when you absolutely have to.

   Alan
Ron Carter - 31 May 2004 14:45 GMT
Thanks to those of you who offered helpful advice.  There has already
been some improvement, especially during the daytime. I'm hoping maybe
it was a one-day aberration.  I had palladium seeds implanted, so as
Alan pointed out, half the dosage has been delivered.  Ought to start
letting up at least a little.  I also managed to reach my rad onc who
is looking at prescribing a more potent alpha blocker.

> There have been several threads recently about the side effects of
> surgery.  Here's one about the side effects of brachy.  I had a seed
[quoted text clipped - 7 lines]
>
> Ron C
Hi Ho Silver - 01 Jun 2004 03:02 GMT
I may have been fortunate, but I had virtually zero urination problems after
my seeds in 1999.  I did take my Flomax for the requisite number of weeks.

John Hanley
Brachytherapy: October, 1999
98 I-125 Seeds
Age at treatment: 62
Pretreatment PSA:  7.5
Gleason: 3+3 = 6
Most recent PSA: 0.2
------------------------------------------

> There have been several threads recently about the side effects of
> surgery.  Here's one about the side effects of brachy.  I had a seed
[quoted text clipped - 7 lines]
>
> Ron C
Ron Carter - 01 Jun 2004 22:01 GMT
My radiation onc thinks it's probably a bladder infection and is
putting me on an antibiotic.  (Diagnosed by telephone; it's a long
trip to his office.)

> There have been several threads recently about the side effects of
> surgery.  Here's one about the side effects of brachy.  I had a seed
[quoted text clipped - 7 lines]
>
> Ron C
Heather - 02 Jun 2004 00:38 GMT
Ouch!!  I get those often and they have a distinctive burning pain.  Good
luck.  I use Norfloxacin or Macrobid......sometimes they prescribe Cipro,
but my doctor thinks the first one is the best.  Will be tucking a bottle of
it in my suitcase, rather than trying to find a doctor on my holiday.

All the best......Heather

> My radiation onc thinks it's probably a bladder infection and is
> putting me on an antibiotic.  (Diagnosed by telephone; it's a long
[quoted text clipped - 11 lines]
> >
> > Ron C
Tom C - 02 Jun 2004 02:09 GMT
Heather and Ron,

Have a wonderful vacation (holiday as some say), we will all miss you while
you're gone, you've been great.
Tom
> Ouch!!  I get those often and they have a distinctive burning pain.  Good
> luck.  I use Norfloxacin or Macrobid......sometimes they prescribe Cipro,
[quoted text clipped - 20 lines]
> > >
> > > Ron C
Heather - 02 Jun 2004 04:18 GMT
Thank you, Tom......what a lovely thing to say.  I promise not to miss you
folks for the 3 weeks......but will see you when we get back (VBG).  Just
behave yourselves.....OK??  Particularly *Little Stevie Wonder*, lol.

Cheers....Heather 8-)))

> Heather and Ron,
>
[quoted text clipped - 26 lines]
> > > >
> > > > Ron C
Steve Kramer - 04 Jun 2004 18:27 GMT
We'll do whatever we can to fill your mail box.

Hope you have a great trip.  Sounds like a special one.

LSW

> Thank you, Tom......what a lovely thing to say.  I promise not to miss you
> folks for the 3 weeks......but will see you when we get back (VBG).  Just
[quoted text clipped - 37 lines]
> > > > >
> > > > > Ron C
 
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