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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2004

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My recent surgery

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gerald rubackin - 27 May 2004 19:31 GMT
Howdy pardners! Here is the 1st e-mail i sent, on the 18th............
New post/member here. Name is Jerry, 55 YO, father of a 15
YO boy, & a 10 YO girl.
I found, in a DRE with my reg MD, that i had an enlarged prostate. Labs
showed a PSA of 4.3 . He sent me to a urologist, who ultimately wound up
doing a biopsy/scan, etc.The urologist, at the beginning,  put me on 2 wks
Bactrim DS, before the biopsy, to see if it made a difference, as we weren't
sure at that point, just where we stood. PSA, which was, as i mentioned
earlier, 4.3 , after the Bactrim regimen, dropped to 3.4. PSA Free was 25%.
Now, for the biopsy results........... Prostate was 61 grams with 1 of 8
samples coming back positive, with 25% of the pos sample as cancerous.Type
T1C, Gleason 6. The + sample is located in the apex region.

I am scheduled for surgery later this week at Mass Gen Hosp in Boston, with
Dr Alex Althausen. He is the MD who did Sen Kerry's biopsy. I guess Kerry
took in all of Walsh's glowing reports down in Md, for he had the
prostatectomy done down there. In any case, Althausen is a Harvard Med
School Professor of Surgery, who has written 50+ articles, & who does 100+
procedures a year (Radical Retropubic). I'm getting a bit "nudgy", as the
date rapidly approaches. At age 55, i feel that bottom line, the stats still
fall in favor of surgery, for potential positive outcomes,
especially...after 10 yrs out.

NOW>>>>>>>>>>Post Surgery. I was actually started at 2PM, after meeting with
the Surgeon, Anesthesiologist, etc. It lasted until 7PM! Guess that things
aren't as clearly delineated in reality, as they are in the book diagrams. I
remember vaguely being "active" in Recovery, where i was kept ftom 7-11PM.
They told me i was like a wild-man, & it took 4 people who hold me down.
This is as i was coming off of the anesthesia. Most people are fine, though.

Up in the ward, i was sore, & it took a major effort to move at all.
Obviously, no matter what you attempted, or how you moved, it centered
around that infernal incision. The surgeon visited with me at 7AM, on
Friday, & said that this nerve-sparing surgery went extremely well. Both
nerves were spared. As he knows my technical expertise level through prior
conversations, partly due to the fact that i have been a Pharmacist, for
years, i DON"T think he would say something like that unless he meant it. I
know this MD well, he is ALWAYS "to the point" .Fri & Sat were uneventful,
although i was lightheaded, with a pulse rate of 120 even after a little bit
of walking around the hospital ward. My crit was low! I had lost almost 2
liters of blood, & they just wanted to see 1st where i would stabilize. I
was around 25-26. I didn't donate ahead of time, so, Sun, when i decided to
go for a transfusion of 2 units, it took a while before things were thawed
out & brought to me to start to use. Obviously, By Mon AM, before release, i
felt better. I just hated getting up to walk though. They wanted you to do
it a few times a day. I was scheduled for release on Sat, if all went well,
when looking ahead to it. As you can see, i opted for 1 more, then 1 more
day, again, as i still had a lot of pain, & felt i wasn't stable yet. They
had no problem with that.

On going home, in my wife's new van, i had JUST gotten in & attempted to
adjust the power lever to put back the back of my seat, when...after a
backwards jerk, and a big abdominal pain outburst, i discovered that only
the driver seat was power...This one just mechanically moved into place. We
have met the enemy, & he is us!! Every curve, never mind, bump, was detected
by my abdomen. I've been home now, since Mon AM, & i find that the pain has
subsided somewhat, & only comes back "in full", when i cough, or laugh. When
you know you're going to do 1 of those things, Hold your incision in w/some
pressure, to counter the outward forces. 1st bowel movement was Wed AM, with
just a semi-solid-solid diet those few days preceding.

The catheter doesn't bother me much, other than the fact that "it's always
there". Sometimes, when carrying my 2 liter night bag, it swings, & slightly
pulls. You feel that pulling...not just at the tip...but at every mm up your
urethra! I find that any movement will cause out of catherer
dribbling/leakage...down the outer sides. Thus...washing, etc, i must stand
on a towel to catch the drips, that are unavoidable. I always wind up wet
when walking around the block, & must change the paper towels, etc
immediately, again, that are wrapped around me & the catheter, when i get
back in the house. I find i don't really need any insulated pads to lay on
in the bed, other than normal wetness precautions that you can buy for any
bed. My boxer shorts, are always moist/wet, & i have to change them 2-3
times a day, to handle the leaking & resulting wetness. If you're not
careful, you will leak onto the floor in the house, as you go around, so i
try & wrap myself well, & change frequently.

Incisional area is still tender & i sometimes cheat & have my son or wife
pull me up to a sitting position, so i can roll off the bed more easily.
That initial getting up/rolling, ia a pain indeed! My catheter will be
removed next Wed 6/2, and i will get the official pathology verdict at that
time also. My surgeon is confident, from "how it went"..."what he saw"...how
it felt"...etc, that the capsule was intact. Lymph nodes BTW, were all
negative. So...for the next week, it's a game of...WHAT IF!?!?. I'm gonna
think positive. I trust his impressions. He is the most highly regarded
urlogical surgeon in the Boston area, & he was mentioned, as such, in Boston
magazine in their "Best MD's & Hosp's" yearly survey..

Lastly, he mentioned that i shouldn't lose "anything", that i had before,
lengthwise, due to the surgery. I'll find out more about his optimism on
that one later. In any case, from my "point of view", it looks like he's
still there, as before. Surgery, given my parameters, was a no-brainer.I'd
rather take 1 step backwards now, to get to a "cured" position, with long
term...documented...positive outcomes, than take the "easier", but
nebulous/unsure route of radiation now,  a less guaranteeing cure method of
treatment that doesn't give me data 10+ years out. LASTLY...from what i
understand, aside from age & stage, prostate size has a maximum size limit
on it , where they feel that Brachy just won't do the job. I believe that
point is at 60gms. Hope that helps.I WILL get back to all of you after next
Wed. All the best to you, my friends. I DO wish you well!!...........Jerry
jimhoney - 27 May 2004 21:58 GMT
Jerry,

Great post.

For those who are still facing surgery, I want to assert that your post-op
pain (and mine too; morphine did nothing for me) was at the far end of the
scale.  Judging by the posts I've seen here, it is not as bad as that for
most people.  But if so, you just gut it out and keep thinking "I'm cured!"

jimhoney
dale.j. - 27 May 2004 22:49 GMT
> Howdy pardners! Here is the 1st e-mail i sent, on the 18th............
> New post/member here. Name is Jerry, 55 YO, father of a 15

> Wed. All the best to you, my friends. I DO wish you well!!...........Jerry

Good to hear you're getting along so well Jerry.  Keep up the good work
and before you know it the whole thing will be in the rear view mirror
fading rapidly.

Dale J.

Signature

Email:  dalej2@mac..com

al1096@loud.bellsouth.net> - 28 May 2004 00:09 GMT
<snip>

I believe that
*point is at 60gms. Hope that helps.I WILL get back to all of you
after next
*Wed. All the best to you, my friends. I DO wish you
well!!...........Jerry

Great progress! And may your follow ups be just as good!!

Al

Please be quiet if replying via email,
flames will be deleted promptly.
I won't even read the whole message...
ronju99 - 28 May 2004 00:52 GMT
Congradulations on your successful surgery Jerry,

I think you made a wise decisions in getting it removed while it was still
contained. After a few nervous PSA's you will soon be able to relax and
not have to worry anymore about recurrence. I'm sure they probably got it
all. The success rate is much higher than some seem to think. With a
surgeon like you had, the survival rate after 15 years is over 98%.
Now all you have to do is keep blood flowing to your penis until the
nerves heal. That could take anywhere up to a couple years. However, by
saving both nerve bundles,it quite well could be less than a year.
Good luck, Ron Spane
gerald rubackin - 28 May 2004 02:19 GMT
Hello again! I would like to thank all those who have answered, made
comments. It truly is a "brotherhood", backed up by a lot of good women. I
salute you all!!!!
Jerry
> Congradulations on your successful surgery Jerry,
>
[quoted text clipped - 7 lines]
> saving both nerve bundles,it quite well could be less than a year.
> Good luck, Ron Spane
David  S. - 28 May 2004 02:14 GMT
Jerry:
   I am sorry to hear that you had pain at the incision.  I could never
figure out why I did not have pain there.  I am out of shape and fat in the
belly, so it sure was not due to my excellent physical conditioning.  Maybe
one of the doc's will comment?
   Best of luck to you for a speedy recovery.
   Thank you.
David S.

> Howdy pardners! Here is the 1st e-mail i sent, on the 18th............
> New post/member here. Name is Jerry, 55 YO, father of a 15
[quoted text clipped - 95 lines]
> point is at 60gms. Hope that helps.I WILL get back to all of you after next
> Wed. All the best to you, my friends. I DO wish you well!!...........Jerry
MH - 28 May 2004 02:23 GMT
Congrats on having the surgery behind you, Jerry!!
Hope you continue to have a speedy recovery!
Sounds like you need to be making plans for what to do with the next 40-50
years of your life!

Take care!
MikeH

> Lastly, he mentioned that i shouldn't lose "anything", that i had before,
> lengthwise, due to the surgery. I'll find out more about his optimism on
[quoted text clipped - 8 lines]
> point is at 60gms. Hope that helps.I WILL get back to all of you after next
> Wed. All the best to you, my friends. I DO wish you well!!...........Jerry
Chuck McClellan - 28 May 2004 03:55 GMT
> Howdy pardners! Here is the 1st e-mail i sent, on the 18th............
> New post/member here. Name is Jerry, 55 YO, father of a 15
[quoted text clipped - 95 lines]
> point is at 60gms. Hope that helps.I WILL get back to all of you after next
> Wed. All the best to you, my friends. I DO wish you well!!...........Jerry

Jerry,
The pain I had was tolerable in comparison to the puking I did right
afetr surgery due to the anesthesia.  Thought I was going to ping
staples off my wife.  That pump they installed for the weeping in the
cavity and that silly Foley were the worst part for me.  Yikes!
Everytime I moved there was a yank and tug.  I consider myself
fortunate...but that Foley!!
My decision was based on the parameters you mentioned.  I was doing a
good 'John Wayne' when I told the Doc "Just get it out!"
Good luck to you.  Remember the power of the mind is yet vastly
unexplored.

Chuck McClellan
Trying to see the humor in all of it.
Alan Meyer - 28 May 2004 04:46 GMT
> NOW>>>>>>>>>>Post Surgery. I was actually started at 2PM, after meeting with
> the Surgeon, Anesthesiologist, etc. It lasted until 7PM! Guess that things
> aren't as clearly delineated in reality, as they are in the book diagrams.

Thanks for an excellent posting.

I think it's important for people to hear that treatment
doesn't always go smoothly.  It's good for them to know
that there can be some pain and some problems.  That
way if things go well, they'll be very pleased and if they
don't go so well, they'll be better prepared and understand
that sometimes s--t happens, but it doesn't mean that
they did the wrong thing or that they can't get past it.

I think that one of the benefits that people get from reading
this newsgroup is that are better prepared to deal with
their illness and their treatment, than people who go into
it with their eyes shut and their minds closed.

   Alan
gerald rubackin - 28 May 2004 08:10 GMT
Just a "thank you", again, to the members who posted after my 1st "thank
you"! .....Jerry

> > NOW>>>>>>>>>>Post Surgery. I was actually started at 2PM, after
> meeting with
[quoted text clipped - 19 lines]
>
>     Alan
Danny McCarty - 29 May 2004 19:54 GMT
>Subject: My recent surgery
>From: "gerald rubackin" jermyrauto@verizon.net
[quoted text clipped - 100 lines]
>point is at 60gms. Hope that helps.I WILL get back to all of you after next
>Wed. All the best to you, my friends. I DO wish you well!!...........Jerry

Fond memories!  I had forgotten how much that incision hurt, during the first
two weeks or so.  I had to roll off the bed, couldn't sit up.  And keep the
pillow handy, in case I had to cough.  whee.

Jan. 5, 2001,  PSA 5.2
Jan 10, 2001, PSA 10.4 (different lab).
Feb 20, 2001, cancer in 6 of 8 cores, Gleason 4 + 3 = 7
Apr. 25, 2001, a few PCa cells in seminal vesical, none in lymph nodes, margins
clear. Gleason 8 (9?).
Jul 9, 2001, PSA 10.5, began Casodex & Proscar.
Oct 10 to Dec 25, 2001, external beam radiation.
Jan 5, 2002, PSA 1.1
Jun 10, 2002, PSA 10.7, began Leukine injections.
Dec 12, 2002, PSA 12.5, added thalidomide tablets.
Aug 15, 2003, PSA 34.5, first Lupron injection.
Oct 17, 2003, began 24 week chemotherapy regime.
Dec 6, 2003, PSA 23.2
Feb 3, 2004, PSA 34.5, bone scan improved.
Feb 14, 2004, PSA 10.5
Feb 29, 2004, PSA 32.1
Mar 13, 2004, PSA 11.2, bone scan better than 3 Feb.
May 5, PSA 12.0, doc is pleased...
June 17, will have a bone scan.

Danny
jar - 22 Jun 2004 06:07 GMT
I am trying to find info on Boston area doctors who use color Doppler,
power Doppler, harmonic imaging, and other techniques in addition to grey
scale imaging for prostate biopsy. I understand that these imaging
techniques will provide superior diagnostic info in some situations. Any
info you have in this area would be appreciated.
Thanks.
gerald rubackin - 22 Jun 2004 10:07 GMT
Hello out there!
I had a RRP performed at MGH back in May. The surgeon i used is the same one
who did Senator Kerry's biopsy. You may want to give his office a buzz, as a
starting point.
His name is:
Alex Althausen
1 Hawthorne Place
Boston Ma.
If you go to Google, and punch in just his name, usually the 1st thing to
come up is a "bio" page about him, along with a photo. He was in BOSTON
magazine's "Best of..." articles under Urology. If you have ANY other
questions, just get in touch with me at "jermyrauto@verizon.net
I wish you well!!
Jerry R
> I am trying to find info on Boston area doctors who use color Doppler,
> power Doppler, harmonic imaging, and other techniques in addition to grey
> scale imaging for prostate biopsy. I understand that these imaging
> techniques will provide superior diagnostic info in some situations. Any
> info you have in this area would be appreciated.
> Thanks.
 
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