To those looking for resources for PCa on the Web, these are some good ones.
This list is posted from time to time on a nother Yahoo list I belong to.
I'm sure others her probably read the same lists, but there may be some who
do not and who are not aware of some of these resources. I hope someone
here might find some of the information helpful.
MikeH
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Please note: These are simply pointers to Internet-based PCa
resources,
and should not be regarded as any sort of recommendation or
endorsement.
It's up to you to carefully weigh the information you find, and
discuss
it with your own physician.
====================
PROSTATE POINTERS BBS
Web-based discussion and information. To join, go to:
http://www.prostatepointers.org/phpBB2/
====================
MAILING LISTS
Physician To Patient
The purpose of the p2p mailing list is to provide the prostate
cancer
patient or other interested parties with information from
physicians
about the treatment of prostate cancer. This is a moderated list
without the high volume normally associated with mailing lists
or
the frequent off-topic questions. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe p2p
end
Within a few minutes, you should receive a confirmation message
from
majordomo. Please follow the instructions *exactly* in order to
activate
your subscription.
IMPORTANT:
Every message sent to p2p must contain a Prostate Cancer Digest.
Instructions for preparing your digest are in the first issue of
PCRI
Insights, which you can get in .pdf format here:
http://www.prostate-cancer.org/resource/insights.html
The same instructions are also available as a webpage:
http://www.prostatepointers.org/p2p/pcd.html
====================
NewDx
NewDx offers information and support to those newly diagnosed
with prostate
cancer. Experienced PCa patients who want to help the newly
diagnosed are
encouraged to join! To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/newdx
====================
The Circle
Support for wives, families, friends, and significant others of
men
with prostate cancer -- and, of course, the men themselves. To
subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/circle
====================
SeedPods
A mailing list for those interested in brachytherapy
(radioactive
seed implants) as a treatment for prostate cancer. To subscribe,
go to:
http://www.prostatepointers.org/mailman/listinfo/seedpods
====================
RP
A mailing list dedicated to the needs and concerns of radical
prostatectomy patients. The sole purpose of this list is to
narrowly
focus on the concerns of those who have already had an RP or
have
selected RP as their treatment. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/rp
====================
IceBalls
A mailing list offering information and support to those
interested
in cryosurgery for prostate cancer. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/iceballs
====================
CHB
CHB offers discussion and support for patients interested in any
form of
hormonal blockade. This includes: orchidectomy, medical hormonal
blockade
[lupron, flutamide, proscar, etc.] as well as food supplements
such as
PC-SPES. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/chb
====================
EBRT
EBRT offers discussion and support for patients interested in
any form of
radiation therapy for prostate cancer. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/ebrt
====================
WW
WW offers discussion and support for patients interested in
Watchful
Waiting as a strategy for the management of prostate cancer. To
subscribe,
go to:
http://www.prostatepointers.org/mailman/listinfo/ww
====================
Prostate Cancer and Intimacy
PCAI is a mailing list for frank and open discussion of the
sexual issues
surrounding PCa. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/pcai
====================
Spirit
Spirit is a mailing list for those who want to share spiritual
support as they live with prostate cancer. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/spirit
====================
Promise
A mailing list for those grieving a loss. Also offers help and
support to
those with a spouse, partner, or family member in the last
stages of life.
To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/promise
====================
Prostate Problems Mailing List (PPML)
An unmoderated forum which discusses problems and treatments
related
to men's prostate gland. Discussion includes symptoms,
diagnosis,
treatment alternatives, complications and personal impact. The
intent
is to help patients and their loved ones understand their
illness and
make informed treatment decisions; to encourage self-study of
the
effects and treatment of prostate diseases; and to support
research
into the cause and cure of prostate problems as well as
encourage
effective health care.
To subscribe to the PPML:
Choice 1 - Easiest - Access this URL:
http://www.acor.org/prostate.html
and follow the instructions
Choice 2 - Send an email
To: LISTSERV@LISTSERV.ACOR.ORG
Subject: blank or dash
Message: SUB PROSTATE Firstname Lastname
(substitute your real name for Firstname Lastname)
For help with subscribing - email
PROSTATE-REQUEST@LISTSERV.ACOR.ORG
====================
Prostate-Help Mailing Lists
Master prostate cancer list (PHML) and specialty groups. To
subscribe,
go to:
http://www.prostate-help.org/cadisgr.htm
====================
C2P -- Coach-to-Player
PC-REF's mailing list where patients and family can ask PCa
questions
of Israel Barken and other doctors. To subscribe, go to
http://pcref.org/coach_to_player.htm
====================
Prostate Cancer Action Network
A forum for discussing important issues affecting the care and
treatment of prostate cancer survivors, and ways to bring about
needed change. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/pcan
====================
Veterans with Prostate Cancer -- Agent Orange, VA claims
To subscribe, go to:
http://lists.phcagroups.org/mailman/listinfo/veterans
====================
Prostate Cancer and Gay Men
To subscribe, go to:
http://health.groups.yahoo.com/group/prostatecancerandgaymen/
====================
Humor And Healing
HAH is a humor list for the online PCa community, more intimate
and friendly than the big Internet joke lists. To subscribe, go
to
http://www.prostatepointers.org/mailman/listinfo/hah
====================
PROSTATE CANCER WEB SITES
Prostate Pointers
http://www.prostatepointers.org
Information for the newly diagnosed
http://www.prostatepointers.org/newlydx.html
Us TOO
http://www.ustoo.org
Prostate Cancer Profiler
http://www.cancerprofiler.nexcura.com/Interface.asp?CB=66
Prostate Cancer Research Institute (PCRI)
http://www.prostate-cancer.org/
Prostate cancer acronyms and abbreviations:
http://www.prostatepointers.org/prostate/ed-pip/acronyms.html
Prostate cancer glossary of terms:
http://www.prostatepointers.org/prostate/ed-pip/glossary.html
Information provided by Nicholas Bruchovsky, MD
http://www.prostatepointers.org/bruchovsky
Information provided by Fernand Labrie, MD
http://www.prostatepointers.org/labrie
Information provided by Robert Leibowitz, MD
http://www.prostatepointers.org/prostate/leibowitz
Information provided by Charles Myers, MD
http://www.prostatepointers.org/cmyers
Information provided by Jonathan Oppenheimer, MD
http://www.prostatepointers.org/virtual_lab
Information provided by Israel Barken, MD
http://www.prostatepointers.org/barken
Physician to Patient
http://www.prostatepointers.org/p2p
SeedPods
http://www.prostatepointers.org/SeedPods/
IceBalls
http://www.prostatepointers.org/iceballs/
The PCAI list of ED specialists
http://www.prostatepointers.org/pcai/ed.html
The Circle
http://www.prostatepointers.org/circle/
Organize your PC digest:
http://www.prostatepointers.org/p2p/pcd.html
Tom Feeney's Watchful Waiting page:
http://www.prostatepointers.org/ww/
Search prostatepointers.org
http://www.prostatepointers.org/search_form.html
Prostate Cancer Stages
http://www.texascancercenter.com/prostate/stages.html
http://www.phoenix5.org/staging.html
"Comprehensive Management of Prostate Cancer" by
Charles E. Myers, MD -- PCa Medical Oncologist
http://www.hormonerefractorypca.org/myers425.htm
National Prostate Cancer Coalition
http://www.pcacoalition.org/
The Education Center for Prostate Cancer Patients
http://www.ecpcp.org
PAACT
http://www.paactusa.org/
Prostate Cancer Resource Guide
http://www.afud.org/pca/pcaindex.html
National Cancer Institute's Prostate Cancer Home Page
http://www.cancer.gov/cancerinfo/types/prostate
The Hypertext Guide to Prostate Cancer
http://www.hypertext.org
A Primer on Prostate Cancer
http://www.phoenix5.org/Basics/DPprimer0918.html
Phoenix5
http://www.phoenix5.org/
Prostate Cancer InfoLink Archive
http://www.phoenix5.org/Infolink/index.html
PPML website
http://listserv.acor.org/diseases/prostate
PPML archives
http://listserv.acor.org/archives/prostate.html
Urologychannel PCa resources
http://www.urologychannel.com/prostate/cancer/index.shtml
Prostate Cancer Research and Education Foundation (PC-REF)
http://www.pcref.org
MultiGraph: your medical history in graphic form, free from
PC-REF
Contact John Fistere at JFistere@cox.net
http://members.cox.net/jfistere/MultiGraphIntro.htm
WellnessWeb Prostate Cancer Center
http://www.wellnessweb.com/PROSTATE/prostate.htm
Center for Prostate Disease Research
http://www.cpdr.org/
Patients Helping Patients
http://www.prostate-help.org/
You Are Not Alone
http://www.yananow.net/
Malecare: lecture transcripts, English and Spanish NYC support
groups
http://www.malecare.com
Canadian Prostate Cancer Network
http://www.cpcn.org/
Florida Prostate Cancer Network
http://www.florida-prostate-cancer.org/
Prostate Cancer Coalition of New Jersey
http://www.pcc-nj.org/
Brotherhood of the Balloon -- Proton Treatment Info and Support
http://www.protonbob.com/homepage.asp
PSA Rising Magazine
http://www.psa-rising.com
Chemocare.com
http://www.chemocare.com/splash/splash.sps
Prostate Cancer Action Network
http://www.prostatepointers.org/pcan/
National Physician & Family Referral Project -- PCa in
African-American Men
http://npfr.50hoops.org
Powerful search engines and tools:
Pubmed search -- http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
http://www.google.com
http://www.copernic.com/
http://www.search.com/
Alan Meyer - 22 May 2004 22:12 GMT
> To those looking for resources for PCa on the Web, these are some good ones.
> This list is posted from time to time on a nother Yahoo list I belong to.
[quoted text clipped - 3 lines]
>
> MikeH
...
Mike,
This is a good listing to post.
I'd like to suggest that you add the following website to your
list:
http://cancer.gov/cancer_information/cancer_type/prostate/
It's the main web page for prostate cancer from the
National Cancer Institute. From there you can find the
latest NCI treatment guidelines, information on prevention,
screening, research and other topics, and a link to their
web page for finding clinical trials.
I work as a computer programmer on preparing data for
this site and it is a great one, if I do say so myself.
Alan
MH - 23 May 2004 01:55 GMT
> I'd like to suggest that you add the following website to your
> list:
[quoted text clipped - 6 lines]
> screening, research and other topics, and a link to their
> web page for finding clinical trials.
Thanks, Alan!!
MikeH