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Medical Forum / Diseases and Disorders / Prostate Cancer / May 2004

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Pain meds for advanced PCa???

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Linda Bloom - 03 May 2004 16:49 GMT
Hi -

My husband Merle went through treatment for PCa in 1996. He had Lupron for 6
months followed by seed implantation. Everything was fine until January
2004, when his annual PSA came back at 742. He now has advanced prostate
cancer throughout his skeleton.

We have no income, no savings, and no health insurance, so cost is,
unfortunately, a rather large issue for us.
We have applied for SSD, SSI, and Medicaid for him. SSI won't make its first
payment till August. SSI is still processing, and so is Medicaid. So, we're
on a very, ahem, tight budget right now.

My question is about pain medications. We've had people suggest that we go
to an oncologist, or a pain management specialist, but they won't even make
an appointment without either insurance or payment up front. (We're in Palm
Beach County, FL - it's ALL about money here, folks!)

The first thing he was given was percoset. That worked fine for about six
weeks, then it couldn't keep up any more. He was switched to morphine
sulfate. That was also fine for about six weeks, and then it didn't do it.

Our family doctor switched him to methadone; it was okay for the first
couple of days, then he started having hallucinations, which got steadily
worse and very physical. (He's a big guy, six foot and 300 pounds, and could
really hurt himself or someone else.) I called the doctor and she said to
try a smaller dose, so we did that for a couple of days. The hallucinations
got less physical, but they are still there. He hasn't had any rest in
nearly a week now because of them. 24 hours ago he stopped the methadone
altogether and switched back to morphine, but he's still hallucinating some
and the morphine doesn't kill the pain.

Our doctor is supposed to call us this afternoon, and I would love some
input from people who have been there...bearing in mind that whatever is
suggested has to be something for which we can raise the money. Thanks to
all of you for being there.

Linda
Bob and Kathy - 03 May 2004 17:13 GMT
As I also have advanced prostate cancer with bone mets. I can understand
about the pain. In my case I started out at PSA of 2540. I have gotten as
low as 45. Back to pain, I'm taking 80 mg of oxycontin twice a day.I have
taken as much as 400 mg twice a day. At the higher dose my thought processes
were impaired some i.e.:, confusion, sleepiness etc. Oxycontin is not cheap
but it works. I also take oxycodone for breakthrough pain. If I remember
what my oncologist told me the drug company may underwrite a portion of the
cost of the meds. I have not yet had to go that route. I would check with
your Dr. and see if he knows anything about getting a discount from the drug
manufacturer. When you finally get medicade and SSI straighten  out see if
anybody in your area is doing implantable pain pumps. They are expensive but
they WORK.
Claude - 03 May 2004 19:37 GMT
> As I also have advanced prostate cancer with bone mets. I can understand
> about the pain. In my case I started out at PSA of 2540. I have gotten as
[quoted text clipped - 8 lines]
> anybody in your area is doing implantable pain pumps. They are expensive but
> they WORK.

Linda's husband has used and developed a tolerance for Percocet, which is
oxycodone + tylenol.  Oxycontin is a time-release form of oxycodone.  I am
not a pharmacist or MD, but it appears as if these drugs would no longer be
of any help.  This is a field of medicine which has really expanded, and
methods of pain management have become very effective.  Hopefully, one of
the suggestions below will be able to get you to a pain management
specialist.
olfart - 03 May 2004 17:53 GMT
> Hi -
>
[quoted text clipped - 34 lines]
>
> Linda

Sorry your husband is going through this. There are 2 things that might help
with the costs.
1. Check the following websites. Manufacturers will supply meds free of
charge or with a small co-pay for low income patients. I am presently
getting meds under this program.
http://www.helpingpatients.org/index.cfm
www.needymeds.com

2. Contact your local State Health Dept. They might be able to give you some
help until his Mediciad is approved, or maybe grease a few wheels and speed
up the approval process.

My thoughts and prayers are with you both. Keep in touch. Maybe others in
the group can offer more suggestions.
George
c palmer - 03 May 2004 18:11 GMT
hi linda - contact me and i'll give you the information for bob dole's
people.  

i was informed that they couldn't help me with getting my claim but
after it is proven they can cut the red tape.  

yours sounds like you need help with the red tape and maybe they can
speed things up a lot.

also, contact you politicians and the news media.  the news love a human
interest type story and can sometimes push the issue for you.  nobody
wants a camera in their face when they are the bad guy keeping them from
getting help.

hope this helps.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
Gary Nichols - 03 May 2004 22:30 GMT
> Hi -
>
[quoted text clipped - 34 lines]
>
> Linda

Is your husband a veteran?  If so get him to the nearest VA hospital.  They
will act quickly and it is free or low cost depending on income no matter
how long he was in the service.  Hope this is helpful.

gn
MH - 04 May 2004 00:42 GMT
Hi, Linda.....
You've gotten some helpful suggestions from others here.  I would tell you
to check with charitable organizations in your area like Salvation Army,
Easter Seals, or Goodwill.  They may not be able to help directly, but if
you contact them, perhaps the workers there will know of programs available
to help people in need of meds.
I'm not up on the hormone treatments for advanced prostate cancer, but I
know there are some others here who are dealing with that.  Perhaps they
will be able to tell you what hormones are being used to treat them.

Best wishes to you and your husband!

Keep us posted!

Take care...... MikeH

> Hi -
>
[quoted text clipped - 34 lines]
>
> Linda
don_andon@yahoo.com - 04 May 2004 15:15 GMT
If I were faced with this situation, with obvious signs of severe
pain, I would go to the hospital ER,  By law, they cannot refuse you,
and with luck you may get a sympathtic ER crew that ill give a long
lasting shot, next time another hospital until other resources kicx-in
Luck
da

>Hi, Linda.....
>You've gotten some helpful suggestions from others here.  I would tell you
[quoted text clipped - 58 lines]
>>
>> Linda
Danny McCarty - 04 May 2004 16:59 GMT
>Subject: Pain meds for advanced PCa???
>From: "Linda Bloom" compumom@hotmail.com
[quoted text clipped - 39 lines]
>
>Linda

Radiation to the tumor sites can relieve pain for a while.
Lorelei - 05 May 2004 16:35 GMT
> >Subject: Pain meds for advanced PCa???
> >From: "Linda Bloom" compumom@hotmail.com
[quoted text clipped - 39 lines]
> >
> >Linda

Linda, My heart goes out to you. good luck.

Signature

Lori (38)
Devoted wife of Curtis, Stage 4 Prostate cancer at age 40
PSA 865    Dec 30,2003
         44     Feb  23,2004
         17.3  Mar 15,2004
         18.9 Apr 16, 2004
mets to bone and lymph
Lupron Q3months
Casodex 50 mg daily
http://community.webshots.com/user/lorismiller-date

 
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