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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2004Injections
Does anyone use the injections? Does it hurt? What is the approximate cost for the medication used? Is it true that the injection has to be made on both sides of the penis? I have tried MUSE, costly and it did not work. The Viagra and Cialis does nothing except give me a stuffy nose and sick wallet. The pump works but I have never tried to use the rings/clips. Is that something one can do without some instruction? Thank you. David S. Not nearly as much as the ball vice... or what was it? I don't remember, but I remember almost a year ago I was laughing like hell at your expense. Sorry about that. I would say that shots are not painful. They feel weird. I always had to build up courage to do it, but each time it did not hurt. When you start, you will not know how much to use. So, if you are not successful with your first shot, you can take another, and you will want to take the 2nd in the other side of the penis. Later, when you know what you are doing, you'll take it in one side of the penis one night and the other side the next time you have sex and keep alternating sides.  SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03 > Does anyone use the injections? Does it hurt? What is the approximate > cost for the medication used? Is it true that the injection has to be made [quoted text clipped - 5 lines] > Thank you. > David S. Let's see...I think the first was the bladder spasms. Nobody told me about that at the doctor's office. Then there was the operating room table that bent in the middle. Still not sure what they do to you in there, but I do have visions of some Chevy Chase movie where the button sticks and the table keeps going up and down or some similar crazy thing. As I recall there was one guy who suffered a back injury from his RRP due to that table and being in the wrong position for too long. A real fun one was the penis being shorter than before, and the "turtle head" phenomenon. Then, let's see, there were of course several variations on the catheter. Crusty stuff accumulating at the end of the penis, the tube getting caught on something and pulling out the catheter, and so forth. Then there were stories about the drain, and the "funny feeling" when they pull that out. Finally, being told to "hold your breath" as the nice little girl pulls out the catheter. As I recall Curtis and I were the only ones to suffer agony at the catheter removal. Not sure why, but that was the second worse pain I experienced with the surgery and recovery. The worse was the peritoneal pain that I had which, as I recall, only one or two others experienced. That lasted several weeks. I still have the donut somewhere. All that and I never got the recliner. That was on the instructions from the doctor. Wonder if Blue Cross would have paid for that? I will ask the uro about the injections in the next visit. If that does not work, or the medication causes pain like the MUSE, then I will do the pump thing (or remain celibate). The other thing was that you told me that I worried too much. Hmmm. Uro visit in a week = PSA again = building anxiety. Guess the old horse doesn't change his spots..whatever. Thank you. David S. > Not nearly as much as the ball vice... or what was it? I don't remember, > but I remember almost a year ago I was laughing like hell at your expense. [quoted text clipped - 21 lines] > > Thank you. > > David S. Hello David, Can I ask you since I do not know, what kind of cancer treatment did you get, how many if any nerves were spared, and your age. I was 49 when dx with Prostate Cancer, and had an RP. I lost one set of nerves. The first year afterwards I was in great shape but did not have enough hydraulic pressure in the resevoir to make things move! Yes, I bought a pump for 149.00 (Rejoyn) It was kinda comical when I had to use it since you feel like you are inside a testube with everyone watching and waiting...Waiting for willy to arise! I used it and with the bands, and of course it works.....It has to...vacuum pressure sucks all the blood from your entire body and aims it at the weakest link! The sausage link! Anyway, I played with that, tried viagra and got a nasty headache........yeow.......and that was it! So a year goes by, the PSA is ok, I am fine, no peeing my pants.....my wife wondering if willy will awake. I asked the Dr. about injections.....hum.....Yeah he says..... I go and get a show and tell and I am afraid of needles. No more! Piece of cake...Yes, Prostaglandin works, and sometimes you have a dull pain afterwards...I used it about 36 times since I kept track of the shots. One shot, one side, only every 3 days allowed. It is not cheap either....You keep it in the frig. When relatives come over and see the shot stuff in the frig tell um its bee venum? I used about 70 mgs. Things were looking up, but the pain from the medicine and not the shot made me wonder. Well, I looked at porno stuff, tried all the avenues, viagra, injection, pump, and (even hand jive) Keep that "little guy alive" Going on 2 years. Well I be go to heck, if the dead does not arise! Things started to happen.....Yep! I was amazed.....Mr. limpy started to get Mr. stuffy.....hum. I tried viagra again and only used a little bit and voila......Things were standing up to attention. so, Yes, I did use injections, and yes it helps, and it helps to keep the blood flow into the unit and use it! I believe with the help of all the above and many folks on this News Group Giving encouragement......I made it through the hoop. I hope my little story helps you in a "Big Way" John Loomis 54 now, and have good use of all the parts still left on board. Good wishes to you my friend! > Does anyone use the injections? Does it hurt? What is the approximate > cost for the medication used? Is it true that the injection has to be made [quoted text clipped - 5 lines] > Thank you. > David S. John: I had RRP in August (age 55). The uro was a Walsh trained guy. On the nerve bundles though, he told me that he did the best for me that he could, but I was a difficult case. He told me that for some patients the nerves just peel off, but in my case that did not happen. As far as I know both nerve bundles were saved, but it sounded to me like there was damage, so only time will tell what happens. At this point I think I will ask the uro about the injections in my next visit, the week after next. If the medicine hurts like the MUSE, then I will settle in on the pump. Thank you for the information. Congratulations on Willie coming back to life! David S. > Hello David, > Can I ask you since I do not know, what kind of cancer treatment did you [quoted text clipped - 48 lines] > > Thank you. > > David S. Congrats on Willie!!! I have been having the same concerns. Not a blasted thing is happening. However, I am only 4 months out. Viagra and Cialas might as well be a sugar pill, Lavitra makes me wake up the next morning with a hangover like head; dopey brain-dead with a major headache. The pump works, only while it is in the pump. Then it fizzles out. I want to slap the guy around to get his attention, but then I get second thoughts. He may never wake up after scarin' him. Dr. says he saved 1 side. Since 12 core samples were taken, 6 from each side, the results were 5 positive on the right and 1 positive on the left. So 1 side was all he could save. One the positive side for the grounds of recovery, I am hoping 49 is a young age that there is still life down there. It is too early to put the soldier to bed. 2 years huh?? Well, I guess there is still hope. Thanks for posting so guys like me have something to look forward to. MrBill age at diagnosis 48 PSA 1.4 Gleason 3+3=6 T2a robotic RRP 12/15/03 PSA 4/2/04 = <.1 age 49 > Hello David, > Can I ask you since I do not know, what kind of cancer treatment did you [quoted text clipped - 48 lines] > > Thank you. > > David S. There are several guys who have posted here who are in their 60's and 70's and had a return to function a couple years after the surgery. I keep telling myself that...think positive, etc. Besides, at 49 it is entirely possible that before you are 55 they may come up with some treatment that will restore the nerves and get things working normally again (better yet, maybe they will find a cure for this damn disease). Good luck to you! > Congrats on Willie!!! I have been having the same concerns. Not a > blasted thing is happening. However, I am only 4 months out. Viagra [quoted text clipped - 73 lines] > > > Thank you. > > > David S. > Besides, at 49 it is entirely > possible that before you are 55 they may come up with some treatment that > will restore the nerves and get things working normally again (better yet, > maybe they will find a cure for this damn disease). Amen, to that brother. SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03 |
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