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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2004

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Another new guy on the block

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Larry and Monica - 24 Apr 2004 00:47 GMT
Historical perspective:

Went in for physical May 2003 on my 60th birthday. Blood test returned a PSA
of 12+
Follow-up free PSA about 1.3 (going from memory)
Skipping some details, I researched who I wanted my urologist to be.
Found Dr. Michael Brawer at the Northwest Prostate Institute in Seattle.
He ordered a biopsy after taking his own blood test - to establish a
baseline with his own lab. Results 14+.
Result of biopsy was negative - big sigh - researched what would cause a
high PSA but not have cancer. Rationalized that everything was OK.
Follow-up PSA tests on 3 month intervals showed slight reduction into the
12's. After the 2nd follow-up result, Dr. Brawer ordered a 2nd biopsy.
Cancer found in one sample on the left side. Gleason 3+4
Ordered bone scan - result clean.
Underwent a Pelvic Lymph node Dissection February 18, 2004 - found
microscopic cancer in one node.
Started me on Zoladex to get the process started while determining further
plan of action.
Referred to Dr. John Blasco at Seattle Cancer Institute at Swedish Hospital.
Decided I was a candidate for combination radiation therapy. I agreed that
was the course of action I wanted after much researching on the web.
Started External Beam Radiation Treatments on April 12, 2004 will run for
five weeks. Finished my 2nd week today! Few side affects so far. Complained
during my weekly consultation with Dr. Blasco of trouble peeing. Given a
prescription of Flomax. Fixed the problem after only 2 days.
Scheduled for brachytherapy (seed implants) on June 12.

Well, I did it.
No more lurking. :-)

Best wishes to all,
Larry
David  S. - 24 Apr 2004 02:33 GMT
Larry:
   Welcome to our little group.  My diagnosis was April 23, 2003, so I
guess this is my anniversary of membership here.  My surgery (RRP) was
August 1, 2003.  I am sure you will find people here who have or are
traveling the same path as you, and who can help answer questions and offer
support (on the ng and privately).  There are a great bunch of people here.
Do not be afraid to ask about anything that concerns you.
   Best of luck to you and to your family as you face this challenge.
   Thank you.
David S.

> Historical perspective:
>
[quoted text clipped - 29 lines]
> Best wishes to all,
> Larry
Steve Kramer - 24 Apr 2004 18:11 GMT
Wow!  Only a year?  Seems like you've been hear a lot longer.  Happy
anniversary!

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> Larry:
>     Welcome to our little group.  My diagnosis was April 23, 2003, so I
[quoted text clipped - 43 lines]
> > Best wishes to all,
> > Larry
Larry - 24 Apr 2004 21:19 GMT
Steve, David, et. al

I've been here only a day and it seems a lot longer

Thanks for your interest. I only hope I can contribute as much as I receive

Larry

> Wow!  Only a year?  Seems like you've been hear a lot longer.  Happy
> anniversary!
[quoted text clipped - 52 lines]
> > > Best wishes to all,
> > > Larry
jhlms - 24 Apr 2004 02:55 GMT
Larry..
Welcome to the group, and glad you made it thru the hurdle of joining.....
As my wife and I are not veterans to this NG, I can say this is the most
COMFORTABLE collection of people you might ever want to associate yourself
with.  HEY,  they don't even bitch when I ramble (like I do now).
Welcome, Larry.....grab a chair....Beer's in th' fridge, and there's a
couple of boxes o' wine over there on the counter.  Sit back, and join
in....

Jeff
> Historical perspective:
>
[quoted text clipped - 29 lines]
> Best wishes to all,
> Larry
philski - 24 Apr 2004 03:40 GMT
> Larry..
> Welcome to the group, and glad you made it thru the hurdle of joining.....
[quoted text clipped - 49 lines]
>>Best wishes to all,
>>Larry

HoHoooo....(in my best Franch Accente)  You obviously enjoy Chateau Le
Bocques!!!!

Philski
jhlms - 24 Apr 2004 17:32 GMT
Oui, Oui, Mssr. Philski....but keep in mind one thing.
Cheap wine ain't got no bouquet....it's got an odor!

> > Larry..
> > Welcome to the group, and glad you made it thru the hurdle of joining.....
[quoted text clipped - 54 lines]
>
> Philski
Beverley - 25 Apr 2004 03:01 GMT
Gee, I was getting excited. I thought we had another real wine drinker. But
then it sunk in that you were drinking from boxes. Oh, well, that still
makes you part of an elite group (of less than 12% population) that actually
drinks wine. BTW, you can make some really good salad dressing with boxed
wine. LOL
Bev

> Larry..
> Welcome to the group, and glad you made it thru the hurdle of joining.....
[quoted text clipped - 42 lines]
> > Best wishes to all,
> > Larry
Larry - 25 Apr 2004 03:09 GMT
Can't wait for Jeff's reply to that one :-)

I have a preference for Italian wines myself - unboxed <g>

> Gee, I was getting excited. I thought we had another real wine drinker. But
> then it sunk in that you were drinking from boxes. Oh, well, that still
[quoted text clipped - 53 lines]
> > > Best wishes to all,
> > > Larry
Beverley - 25 Apr 2004 14:08 GMT
Oh, so we do have at least one serious wine drinker out here. Since I'm in
charge of the local wine competition I've had to really get into the wines.
Never was a very serious wine drinker I just enjoyed it. So I've had to
learn the different wines, grapes, processes, etc. So I've really gotten
into the Virginia wines and some of the NC wines. The closest winery to me
is in NC and they produce some of the best cabs I've ever tasted. Virginia
wines are now being recognized as some of the best USA produced wines. Most
are just small mom and pop places producing only a few barrels per year but
they are yummy!
Now if I could only figure out how to open a bottle without goofing up the
cork. I have to leave that job to my hubby. LOL
Bev

> Can't wait for Jeff's reply to that one :-)
>
[quoted text clipped - 65 lines]
> > > > Best wishes to all,
> > > > Larry
Larry - 25 Apr 2004 18:28 GMT
Nothing like a good Sangiovese. On our trip to Italy last September, we
brought back an I Balzini '97 Sangiovese/Cabernet Sauvignon for that special
occasion. That will be our grandson's christening date tbd.

For cheap, under $10, I like  a Colosi - for the price, can't be beat!

What I need to do now is decide what to purchase for the celebration ending
my EBRT, another for the end of my seed implant therapy, another for Woody's
grand return, another in honor of my tbd low PSA count, another for . . . .
.

> Oh, so we do have at least one serious wine drinker out here. Since I'm in
> charge of the local wine competition I've had to really get into the wines.
[quoted text clipped - 87 lines]
> > > > > Best wishes to all,
> > > > > Larry
Beverley - 25 Apr 2004 19:03 GMT
If you like a real nice oak flavor let me know and I'll send you to a
website for our favorite winery.
Bev

> Nothing like a good Sangiovese. On our trip to Italy last September, we
> brought back an I Balzini '97 Sangiovese/Cabernet Sauvignon for that special
[quoted text clipped - 108 lines]
> > > > > > Best wishes to all,
> > > > > > Larry
Steve Kramer - 25 Apr 2004 21:26 GMT
O.K.  I can't take it any longer.  The celebration of woody does not come in
a bottle.  It comes in a keg.  Personally, Amber Bach comes to mind.  But, a
good ale will do.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> Nothing like a good Sangiovese. On our trip to Italy last September, we
> brought back an I Balzini '97 Sangiovese/Cabernet Sauvignon for that special
[quoted text clipped - 108 lines]
> > > > > > Best wishes to all,
> > > > > > Larry
olfart - 25 Apr 2004 21:33 GMT
> O.K.  I can't take it any longer.  The celebration of woody does not come in
> a bottle.  It comes in a keg.  Personally, Amber Bach comes to mind.  But, a
[quoted text clipped - 12 lines]
> PSA  .1
> Lupron 7/03, 8/03, 12/03

I assume we are all invited
I'll bring some snacks
George
Age - 69
8/12/02 - PSA 3.7
10/13/03 - PSA 4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist
12/16/03 - Consult - Radiation Oncologist
Treatment Plan - Northeast Ga Cancer Center
HT - started 12/17/03 - Eulixen & Lupron
2/10/04 - Started - Flowmax and Megastrol
Radiation - IMRT to begin 3/30/04 - for 5 weeks
Theraseed implant after Radiation completed
Steve Kramer - 25 Apr 2004 21:36 GMT
You could die of thirst waiting for my next one.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> > O.K.  I can't take it any longer.  The celebration of woody does not come
> in
[quoted text clipped - 32 lines]
> Radiation - IMRT to begin 3/30/04 - for 5 weeks
> Theraseed implant after Radiation completed
Beverley - 26 Apr 2004 02:51 GMT
Never give up!!!
Bev

> You could die of thirst waiting for my next one.
>
[quoted text clipped - 36 lines]
> > Radiation - IMRT to begin 3/30/04 - for 5 weeks
> > Theraseed implant after Radiation completed
Larry - 26 Apr 2004 04:49 GMT
Point made! Did I mention I'm a beer drinker too?

Locally, Thomas Kemper put out a tremendous Summer Ale this year.

I REALLY like Guinness though. It goes on sale every year around St. Pats
day and I stock up.

I've got about to cases left in the garage. Party anyone?

> O.K.  I can't take it any longer.  The celebration of woody does not come in
> a bottle.  It comes in a keg.  Personally, Amber Bach comes to mind.  But, a
> good ale will do.
jhlms - 25 Apr 2004 17:14 GMT
We tried the salad dressing thing, but my wife & I finally got tired of the
"Caesar Salad" hangovers in the mornings, and our lettuce bill was
approching that of our liquor bill.....PLUS, the added fibre was playing
havoc to our systems.....we just went back to drinking the damned stuff!  ;)
Jeff
> Gee, I was getting excited. I thought we had another real wine drinker. But
> then it sunk in that you were drinking from boxes. Oh, well, that still
[quoted text clipped - 53 lines]
> > > Best wishes to all,
> > > Larry
Beverley - 25 Apr 2004 19:20 GMT
Fortunately large amounts of wine do not like me so I drink it in
moderation. And fortunately a nice inexpensive blended Scotch doesn't both
me at all!
:-)
Ever notice when you go to a doctor's office they always ask if you drink
and if so how much? They always have those little check boxes for
special occasions
1-2 drinks per month
1-2 drinks a week
2-4 drinks a week
over 5 drinks a week
Then if you check the 5 and over box they act as if you have a big problem?
Yet all the studies show that a drink per day is good for you? Yes, it can
affect some medications but that has not become a problem in this household.
Bev

> We tried the salad dressing thing, but my wife & I finally got tired of the
> "Caesar Salad" hangovers in the mornings, and our lettuce bill was
[quoted text clipped - 66 lines]
> > > > Best wishes to all,
> > > > Larry
Alan Meyer - 25 Apr 2004 19:59 GMT
...
> Ever notice when you go to a doctor's office they always ask if you drink
> and if so how much? They always have those little check boxes for
[quoted text clipped - 7 lines]
> affect some medications but that has not become a problem in this household.
> Bev

I was once admitted to a doctor that I liked a drink before
dinner and he gave me the third degree - How big a drink?
What kind?  How many ounces?  Was I sure it was only one?
What about after dinner or other times of the day?  Did I
drink it alone or with others?

It took me a while to convince him I had a health problem
I wanted to consult him about, not a drinking problem.

Today however when you say you take a drink before
dinner the docs all seem to approve.  After all those
studies came out about how a few drinks a week is
protective for heart disease and Alzheimers, the doctors
are doing it too, or maybe now their just admitting that
they do it too.

   Alan
olfart - 25 Apr 2004 20:21 GMT
> I was once admitted to a doctor that I liked a drink before
> dinner and he gave me the third degree - How big a drink?
[quoted text clipped - 13 lines]
>
>     Alan

Thought I might share this for what it's worth. When I look for a Doctor I
check out licensing, experience,  disciplinary actions, etc on the internet.
A URO had just opened a practice in my town having come from another state.
He has  30 years experience and had come from a Cancer practice in NM. But
he had a license suspension about 15 years ago for alcohol abuse and had
been given a probationary license for 5 years and was then reinstated..
Since I am a recovering alcoholic(been sober for almost 19 years) I decided
to give him a try.
Going through the questions, he asked if I drank and how much. When I told
him about my history he grinned, shook my hand, gave me the big AA hug and
told me about his past.
So far he had been one of the best Drs I have ever had to use.
George
Age - 69
8/12/02 - PSA 3.7
10/13/03 - PSA 4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist
12/16/03 - Consult - Radiation Oncologist
Treatment Plan - Northeast Ga Cancer Center
HT - started 12/17/03 - Eulixen & Lupron
2/10/04 - Started - Flowmax and Megastrol
Radiation - IMRT to begin 3/30/04 - for 5 weeks
Theraseed implant after Radiation completed
Beverley - 26 Apr 2004 02:55 GMT
As was stated in another thread - doctors are human. I'm so glad you found
one that you like and one that understands.
Bev

> > I was once admitted to a doctor that I liked a drink before
> > dinner and he gave me the third degree - How big a drink?
[quoted text clipped - 41 lines]
> Radiation - IMRT to begin 3/30/04 - for 5 weeks
> Theraseed implant after Radiation completed
Beverley - 26 Apr 2004 03:34 GMT
I'm a night capper and so is my husband.

For years he drank coffee until about 7 PM then he switched to beer to undo
the effects of the caffeine. Besides our beer bill began to equal our food
bill. Well, it took a while for him to understand what he was doing and why.
So now he quits drinking coffee by late afternoon and hardly ever drinks a
beer - but he does like O'Doul's (non-alcoholic). But he will occasionally
drink some wine with his dinner and then usually have a scotch on his way to
bed.

And after all the effects of radiation on his body began to drink more
water. (I made him do it! LOL) Now he drinks a cup of water for each cup of
coffee he drinks. He's drinking less alcohol and enjoying what he drinks
more. It's healthier for him.

Most of the doctors I personally know do drink. But there is only one doctor
I know who still smokes and does it openly. And his feeling is - there are
plenty of doctors out there and if you don't like the fact that he smokes -
then find another doctor. Like I said they are humans, too.

I grew up with a father who might have been an alcoholic. I know he was an
abusive, mean drunk! It's made me think about my drinking habits as they say
alcoholism runs in families. I think I could easily become an alcoholic.
It's something I've given a great deal of thought to over the years. They
say you break the cycle when you recognize the problem. So maybe I resist
temptation. I just keep my drinking to a nightcap (either a scotch or a
glass of sherry) and an occasional glass of wine with my meal. I don't have
to have it - I just enjoy it. And I look at it as something healthy, sort of
goes with the aspirin a day.

OTOH, I watched my grandfather drink a shot of whiskey every morning before
breakfast. He smoked a pipe, chewed tobacco, smoked unfiltered cigarettes,
ate 6 eggs,  a 1/2 pound of bacon and toast every morning for breakfast and
was probably 100-150 pounds overweight. He lived to be a 100. What killed
him? He fell down a flight of stairs. My gene pool is unreal, everybody on
both sides lives well into their 90's in spite of their habits.
Bev

> I was once admitted to a doctor that I liked a drink before
> dinner and he gave me the third degree - How big a drink?
[quoted text clipped - 13 lines]
>
>     Alan
Danny McCarty - 26 Apr 2004 04:04 GMT
>Subject: Re: Another new guy on the block
>From: "Beverley" beverly.brown28@verizon.net
[quoted text clipped - 38 lines]
>both sides lives well into their 90's in spite of their habits.
>Bev

Sounds like my grandfather, except he smoked cigaretts and died at 85.
Steve Kramer - 26 Apr 2004 11:02 GMT
I had a great uncle that lived across the street from us.  He was long
retired and his wife was long gone.  His kids had kids and those kids were
having kids.  Every morning, he would walk up a pretty steep hill and onto
the Haufbrau House about a mile away where he would dring a normal man's
fill of beer.  Then he'd come home for lunch.  Every afternoon, he would
make the trip again and come home for dinner.  One day, the weather was so
bad and the sidewalks were iced over, his daughter wouldn't let him make the
second trip.  He died at dinner.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> I'm a night capper and so is my husband.
>
[quoted text clipped - 51 lines]
> >
> >     Alan
philski - 26 Apr 2004 03:35 GMT
> ...
>
[quoted text clipped - 39 lines]
>
>     Alan

Like Me! I...uh....usually drink alone....or....uh....with somebody!

Philski
Danny McCarty - 26 Apr 2004 04:00 GMT
>Subject: Re: Another new guy on the block
>From: "Beverley" beverly.brown28@verizon.net
[quoted text clipped - 33 lines]
>> > wine. LOL
>> > Bev

 While I was visiting my brother-in-law in France we drank a glass or two at
every meal- breakfast, lunch, and dinner, and these were 8-ounce glasses.  
Danny McCarty - 26 Apr 2004 03:55 GMT
>Subject: Re: Another new guy on the block
>From: "Beverley" beverly.brown28@verizon.net
[quoted text clipped - 3 lines]
>Gee, I was getting excited. I thought we had another real wine drinker. But
>then it sunk in that you were drinking from boxes.

 My brother-in-Law bought a 5-liter box of wine in Lyon, France, as we were
driving from Paris to Marsailles, a few years ago.  Good red wine- we drank a
glass or two at every meal.  
 This post has more replies than I have seen in a long time.

>Oh, well, that still
>makes you part of an elite group (of less than 12% population) that actually
[quoted text clipped - 52 lines]
>> > Best wishes to all,
>> > Larry
philski - 24 Apr 2004 03:39 GMT
> Historical perspective:
>
[quoted text clipped - 29 lines]
> Best wishes to all,
> Larry

I am not sure Welcome is the word you were looking for  ;) but welcome
it is! There are some in the group who will identify closely with what
you are going through. I am fairly new to this group of great folks
having found that I had cancer this past January. I had an RRP in
January and to date am doing very well.

This group first had me settle down, not be so frightened and started me
in all the right places to getting myself educated on PCa.

I want to wish you the best of luck and courage. Many here will be able
to give you much better data than I - they are very knowledgeable. And
come back from time-to-time to give us updates and to rant/vent if you
want. You are welcome here as is your family....

Philski
Larry and Monica - 24 Apr 2004 03:48 GMT
Wow!
Thanks one and all for the *welcome* Not that we wouldn't all rather be
someplace else.

Great sunset now with the moon, Mars, Venus in a tight little group and
Saturn not too far away.

To be sure, the beer is cold - tried a new craft beer today from Portland,
OR. Pretty good.

Blessed with a new grandson last Sunday morning.

Life is good.

> I am not sure Welcome is the word you were looking for  ;) but welcome
> it is! There are some in the group who will identify closely with what
[quoted text clipped - 11 lines]
>
> Philski
c palmer - 24 Apr 2004 08:23 GMT
hi larry - now that you have had the welcomes to the club.  pull up that
beer, sit back and enjoy the cruise.  you've got a good attitude and
that is what it takes to get through this.   you got a good wife, and
new grandson.  so, let the surgeons do what they do best and get back to
making plans to be with your grandson when he grows up and living life
for it's fullest.  cheers........

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
Larry - 24 Apr 2004 15:03 GMT
You're good! :-)
I said nothing about my wife but you assumed from what you know so far. You
assumed right! 34 years as my soul mate - she's been absolutely incredible.
Assured me from the beginning she wants me, not *that thing*. Her first
reaction was that I should have it cut out. Get rid of that thing called a
prostate that's threatening to kill me. After things calmed down, we started
to explore the options. We settled on this plan of action after careful
consideration
of all the options and consultation with my urologist and oncologist.
Actually, events guided us to that conclusion including the discovery that
the cancer had been discovered in a lymph node. But, I digress . . .

When we would read statistics in the newspaper of levels of sexual activity
at various age groups, we would chuckle how we blow those statistics out of
the water at our age. Now, I hope we can match those numbers when we get
through this <very big sigh>

Larry

> hi larry - now that you have had the welcomes to the club.  pull up that
> beer, sit back and enjoy the cruise.  you've got a good attitude and
[quoted text clipped - 6 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
MH - 24 Apr 2004 03:49 GMT
Hi, Larry....

Glad you posted.  And glad to know that the group is proving helpful to you.
Lots of caring and supportive people here who have been there done that!

I had LRP on Nov. 21, 2002.  PSAs have been undetectable ever since.

Sounds like you have some great doctors working with you.... and are taking
the necessary steps to take care of this problem.  I wish you all the best!
And please feel free to ask any questions you like.

MikeH

> Historical perspective:
>
[quoted text clipped - 29 lines]
> Best wishes to all,
> Larry
Larry and Monica - 24 Apr 2004 04:14 GMT
Thanks MH,
I hope it stays low!
Larry
> Hi, Larry....
>
[quoted text clipped - 45 lines]
> > Best wishes to all,
> > Larry
Lillian - 24 Apr 2004 17:06 GMT
You have come to the right place, everyone here is so helpful and
caring, I would not have made it through without them.

Husband DX age 55 Jan 2004
PSA 3.9
Gleason 6 (3+3)  
T1C
Robotic LRP 3-15-04
PSA 4/23/04 0
Steve Kramer - 24 Apr 2004 18:08 GMT
Damned shame about that lymph node.  But, it sounds like you still got it
early enough to expect an average lifespan.  Take care and please keep us
informed on your progress.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> Historical perspective:
>
[quoted text clipped - 29 lines]
> Best wishes to all,
> Larry
Beverley - 25 Apr 2004 03:09 GMT
Well, my husband received 25 EBRT on an IMRT and was followed by 121, Iodine
125, long lasting seeds in May 2002. So far so good. Feel free to ask any
questions. I'm just a wife (for 33 yrs.) whose been there for my husband.
Bev

> Historical perspective:
>
[quoted text clipped - 29 lines]
> Best wishes to all,
> Larry
Larry - 25 Apr 2004 03:18 GMT
Very interesting. Where and by whom? Is he on hormone treatments as well?
I'm projected to continue with Zoladex for two years!

"Just a wife who's been there"? Damn right you've been there!

Larry

> Well, my husband received 25 EBRT on an IMRT and was followed by 121, Iodine
> 125, long lasting seeds in May 2002. So far so good. Feel free to ask any
[quoted text clipped - 37 lines]
> > Best wishes to all,
> > Larry
Beverley - 25 Apr 2004 19:32 GMT
Let's see:
At age 56
PSA 4.9
fPSA 8.9
Gleason 6 (3+3)
Started EBRT in March 2002 for 5 weeks. Had about a week and a half off and
then had brachytherapy May 3, 2002.
His most recent PSA test 0.15 and probably still falling.
No hormone treatments.
Dr. Michael Hagan (radiation oncologist) at the Massey Cancer Center,
Medical College of Virginia, Virginia Commonwealth University, Richmond VA
How's that?
Bev

> Very interesting. Where and by whom? Is he on hormone treatments as well?
> I'm projected to continue with Zoladex for two years!
[quoted text clipped - 49 lines]
> > > Best wishes to all,
> > > Larry
Larry - 26 Apr 2004 04:54 GMT
Thanks. Taking notes. I thought I was lucky living in the Seattle area where
we pride ourselves in having great medical resources available but so many
other areas around the country can say the same thing.

I'm puzzled by the free psa score. Is that a percentage number?

> Let's see:
> At age 56
[quoted text clipped - 69 lines]
> > > > Best wishes to all,
> > > > Larry
Steve Kramer - 26 Apr 2004 21:37 GMT
Larry,

There are actually two types of PSA.  Actually, more than two, but there are
two major ones called complexed PSA and free PSA.  I don't believe either
has a direct causative function regarding PCa or any other prostate
problems, but the presence if them is predictive of such.  If there is a lot
of PSA (4.0 or greater) or a regular increase of PSA, then you pretty well
know something aint right in the prostate.  If the percentage of free PSA is
greater than 25% and complexed is less than 75%, the problem is probably
benign.  If your free PSA is less than 15%, you proably have cancer.  That
10% between 15 and 25 is a coin flip.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> Thanks. Taking notes. I thought I was lucky living in the Seattle area where
> we pride ourselves in having great medical resources available but so many
[quoted text clipped - 84 lines]
> > > > > Best wishes to all,
> > > > > Larry
David  S. - 27 Apr 2004 03:20 GMT
Just an observation:   this is the longest thread I have seen in months.  It
reminds me of you know which one....

> Larry,
>
[quoted text clipped - 103 lines]
> > > > > > Best wishes to all,
> > > > > > Larry
Beverley - 27 Apr 2004 03:05 GMT
Sorry, yes it was 8.9% a major indicator of cancer!
The free PSA or fPSA was taken about a week before his biopsy.

I think there are some wonderful doctors scattered all over. Many are tied
to big university hospitals but you could stumble upon a great doctor in a
little town with a little hospital. I think the trick is to find the ones
who are not just good but really outstanding.

When we started looking for a brachytherapy specialist we found lots of
doctors who do it. Then we stumbled onto Michael Hagan. We knew he wasn't
just good he was great! He's a quiet man, very dedicated. He did his thesis
for his PhD in something like bio-nuclear physics back in the late 60's on
brachytherapy. In 1989 he got his MD and has been with MCV since 1991(?). He
hasn't had a failure yet and he says he knows that is against all the odds
but he's not the only one with those stats. (His residents think he walks on
water. They'll tell you on a heartbeat how lucky they are to study under
him.) He's also very picky as to who gets brachytherapy.
Bev

> Thanks. Taking notes. I thought I was lucky living in the Seattle area where
> we pride ourselves in having great medical resources available but so many
[quoted text clipped - 84 lines]
> > > > > Best wishes to all,
> > > > > Larry
 
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