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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2004

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Fred P - 26 Mar 2004 05:07 GMT
Hi,
I will be having surgery this April 17 after being diagnosed with prostate
cancer. My Gleeson score 6 (2+4). No symptoms it was picked up via a biopsy
after my PSA fluctuated from 5.2 then 4.7 then 5.7 last year. I will be 66
this June and had a TURP almost exactly 11 years ago.

My surgeon believes in keeping you in hospital for 7 to 8 days so that you
go home without any attachments - my Burmese cat will not be happy with
this!

Apart from this misadventure I am in general good health. As I live alone
what preparations should I be making for my return home (a number of friends
will be on hand and will stay with me for a few days)

cheers

Fred
Dave - 26 Mar 2004 08:24 GMT
Hi Fred,

I had my RRP on Mar 13 and was in hospital until Mar 18 and went home
with a catheter in place, to be removed next Monday, Mar 29, all going
according to plan.

You'll feel pretty knocked about for a few days after you get home and
need to rest more than anything.  A recliner is a useful thing to havce,
we rented one for a couple of weeks.  Also a supply of Depends or
similar will probably be required.

A chair next to the bed (turned round) is useful too not only as a
bedside table but as a support to help you out of bed.  Rest a lot, walk
when you can, relax, watch TV, rest.  Don't try lifting stuff either,
leave that to others.  Oh, and did I mention rest?

I wish you a sucessful surgery and apeedy recovery.

Dave
Age 52
Dx Jan T2a, Gleason 5, PSA 10.8
RRP Mar 13

> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred
Cox SMTP west - 26 Mar 2004 14:25 GMT
Fred,

Please take a look at the "Pre RP and Post RP shopping list" on the Phoenix
5 website http://www.phoenix5.org/Basics/treatsides/RPsuggestsJoe.html.
It's been posted here periodically, but I can't remember where it is.

I had my RP on 3-8-04 and came home 2 days later, and yes your Puma will
miss you and no doubt be angry with you for your absence. Perhaps a tuna
bribe will assuage the anger

In preparation I found Peggy Duddleston's "Prepare for surgery, Heal Faster"
book and relaxation tape to be most helpful in getting my mind ready for the
ordeal.  I found that I did not need any pain meds past the first night and
though uncomfortable at times, and tired - still, the surgery and recovery
have been not all that difficult.  I have come to look forward to and enjoy
daily naps and I truly need them and find that they help.

I have been most fortunate on the continence side of things, having been
bone dry since the Foley was removed Wednesday (2 days ago).  I believe that
having focused on controlling  my urination pre-op, i.e. starting stopping
mid stream on most trips to the bathroom helped me focus on and the control
mechanisms that deliver continence.  I believe your surgeon can help you
better understand what muscles to use.

There is a wealth of information and support here and please keep us updated
on your progress.  Your numbers look good too and should have a great go at
beating this disease.

Tony in Tucson

> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred
Joe \(Shaw\) - 26 Mar 2004 14:52 GMT
Hi
I last posted the list on 18/03/2004 under the subject "Post Prostatectomy
Paraphernalia".  It still shows up in my newsreader.
If it has scrolled off yours, you can probably find it using Google
newsgroups.  That archive goes back thousands of messages.

All the best.

JP

> Fred,
>
[quoted text clipped - 45 lines]
> >
> > Fred
jk - 26 Mar 2004 15:46 GMT
> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred

    I hope you're using a very experienced guy that does at least 100 of
these a year.  I can't believe any insurance will cover a weeks hospital
stay just for the inconvenience of a catheder? I, like most here that had
RP, was home in 2 days. Good luck with your surgery Fred!

Signature

JK Sinrod
Sinrod Stained Glass Studios
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

Fred P - 27 Mar 2004 06:59 GMT
I guess I'm lucky living in Australia where we have a national health scheme
and private insurance that works in tandem. Private insurance pays the
accommodation and theatre costs, NHS picks up about 60 to 70% the rest.
Although the systems has it's problems we still are a relatively net low
taxed country..

F

> > Hi,
> > I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 27 lines]
> Coney Island Memories
> www.sinrodstudios.com/coneymemories
Dave - 27 Mar 2004 21:34 GMT
Fred,

Where in Oz are you? I'm in Nth Qld. If you want any info on the Aussie
experience please feel free to e-mail me.  I had my surgery on Mar 13
and am doing pretty good.  Like you I had no symptoms and was otherwise
fit and active.

Dave

> I guess I'm lucky living in Australia where we have a national health scheme
> and private insurance that works in tandem. Private insurance pays the
[quoted text clipped - 51 lines]
>>Coney Island Memories
>>www.sinrodstudios.com/coneymemories
MrBill - 26 Mar 2004 18:45 GMT
My PCa was diagnosed by the DRE, no other symptoms.  I had robotic RP
Dec 15th, 2003 and went home the next day.  Had the catheter for 7
days.  I agree, the recliner is wonderful. I spent almost the whole
week in the recliner, reading.  Keep an extra pillow handy for a cough
or sneeze.  These are painful without the extra abdominal support.  I
did not use Depends, but the large pads for men.  Kind of like an
extra large kotex.  As the leakage reduced I then went with the womens
overnight pads with wings.
Good luck with your surgery!

MrBill

age 48
Gleason 6 (3+3)
T2a
PSA 1.4

> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred
Steve Kramer - 26 Mar 2004 23:52 GMT
I was in the hospital from DEC 15 to DEC 23 and was constantly tired when I
went home, but otherwise fairly fit.  I think a good recliner is a must.
Someone recommended a straightback chair next to the bed and I think that's
a good idea.  Maybe a bucket by the side of the bed to throw your bag in.
Otherwise, you'll be up to moving about for meds and to and from bed, but
not for making meals.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred
dale.j. - 27 Mar 2004 01:12 GMT
> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred

Fred, I'm more worried about the cat than you!  We have one here, not
Brumese, just a alley cat, she's a good companion.

I hope everything goes good for you, I have great confidence it will.  
When you get home take it easy for a while, let your body dictate what
you do.  No need to rush anything.  After you feel up to it then try to
get out and walk a bit.  Be sure to ask questions, someone here will try
to answer as best we can.  Many here have had the same operation and
experence.

Here's wishing you a quick recovery.

Dale J.

Signature

Email:  dalej2@mac..com

Bill Denton - 27 Mar 2004 02:54 GMT
7-8 days?!? Forget about PCa - you will probably die of boredom!

Bill Denton
RP 2/12/02
Memphis
Fred P - 27 Mar 2004 07:09 GMT
many thanks for all of your comments - as a multi tasking hyper active soul
I will probably be very bored but somehow busy! I'm sure the outcome will be
worth it. I will keep a diary and post it latter.
The real bitch of this is my general health is very good, most people think
I'm 40 something and there have been no symptoms since my TURP (same
surgeon) 11 years ago. I do thank the Almighty for my blessings... and of
course my friends who will see me through this.
cheers
Fred P

> 7-8 days?!? Forget about PCa - you will probably die of boredom!
>
> Bill Denton
> RP 2/12/02
> Memphis
Ron Carter - 27 Mar 2004 15:02 GMT
> many thanks for all of your comments - as a multi tasking hyper active soul
> I will probably be very bored but somehow busy! I'm sure the outcome will be
[quoted text clipped - 11 lines]
> > RP 2/12/02
> > Memphis

You've put your finger on what is, for me, the most annoying part of
this disease.  Like you, I am feeling great, exercising, all bodily
functions in good order, no symptoms of any sort, and I'm dreading the
fact that treating this disease is going to mean that it will be quite
some time before I feel this good and function this well again (if
ever).  As you say, that's "the real bitch of this."
MH - 29 Mar 2004 01:57 GMT
Best of luck with your surgery and subsequent recovery, Fred!
This thing is beatable.... hang onto that thought!
Please keep us posted on how things go for you!
Take care,
MikeH

> Hi,
> I will be having surgery this April 17 after being diagnosed with prostate
[quoted text clipped - 13 lines]
>
> Fred
 
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