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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2004

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Spirited, Optimistic Group!

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cehlaw@webtv.net - 25 Mar 2004 05:06 GMT
As some of you may be aware from an earlier post of mine, I just found
this discussion group about 2 hours ago. I wish I had found it earlier!
I had radioactive seeds implanted into my prostate gland approximately
10 hours ago, and a ecstatic with my recovery to this point. I will not
go into detail here, realizing that I should wait and see what the next
few days and weeks bring to me. I am optimistic, however, and have noted
the spirit of helpful optimism that marks most of the posts in this
group. I applaud all of you!
Charlie

                                                                                   
                                                             

                                                                                                             
Heather - 25 Mar 2004 08:21 GMT
Welcome to the group.......I guess the others are asleep.  (G)

I am one of the few wives that post on here......but my husband had HDR
radiation (18 needles into the prostate for 9 minutes of high dose
radiation) last Fall and he couldn't be happier about it!!  He was 71 and in
excellent shape......and he recovered quickly.  You may feel a little tender
in that region for a few days, but we too believe that the outcome is the
same as surgery....but no nasty side effects.

However, this is at your ages.......those that are younger have different
choices to make, depending on the numbers.

Keep that optimistic attitude.  I am very happy for you.

Cheers.....Heather (and Ron)

> As some of you may be aware from an earlier post of mine, I just found
> this discussion group about 2 hours ago. I wish I had found it earlier!
[quoted text clipped - 5 lines]
> group. I applaud all of you!
> Charlie
c palmer - 25 Mar 2004 09:09 GMT
hi charlie - welcome to this club that nobody wants to join.  come on in
and pull up and chair and have a cold one.  

you will be around for quite some time and be able to wish others the
same toast when they arrive.

"cheers - here's to the death of prostate cancer and many years of life,
living and happiness."

~ curtis

ps. what were your stats?

knowledge is power - growing old is mandatory - growing wise is optional
Tom Cular - 25 Mar 2004 11:43 GMT
> hi charlie - welcome to this club that nobody wants to join.  come on in
> and pull up and chair and have a cold one.
[quoted text clipped - 10 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional

Hi Charlie,

Glad to hear your report of the immediate after effects of brachytheraphy,
I've got one more month of lupron (should be called limpron)  then seeds in
May.I'm 62 and also looked at the numbers and QOL issues before making my
decision. Keep us posted on your follow ups.

Tom
Beverley - 25 Mar 2004 15:25 GMT
Welcome, now stay quiet for the next couple of day no matter how good you
feel! Your greatest danger is to expel a seed and although the seed itself
is not dangerous that just means you have less coverage in the prostate.
48-72 hours of staying quiet because it this is when you are in the greatest
danger of expelling a seed. So stay quiet!!!
Hubby had brachytherapy May 2002
Bev

> As some of you may be aware from an earlier post of mine, I just found
> this discussion group about 2 hours ago. I wish I had found it earlier!
[quoted text clipped - 5 lines]
> group. I applaud all of you!
> Charlie
cehlaw@webtv.net - 25 Mar 2004 18:05 GMT
Bev and others: I appreciate your comments and advice, and promise to
keep quiet about my own experience unless I am reasonably confident of
making a helpful contribution. I am now 23 hours past brachytherapy, and
still think I am doing well, I realize that the warnings and advice
provided by the literature and medical staffs were well-founded and
based on experiences of many men! I'm having some (!) pain with
urination, which I understand is caused by catheter irritation, but
already it's getting better. Talk about mixed emotions! I was elated
when that same irritation woke me from a sound sleep and made me realize
that things were going to be okay, but I certainly was willing to settle
for that hopeful thought and go back to sleep!
Thanks again for all the great help this group provides! You're all
winners!
Charlie

                                                                                   
                                                             

                                                                                                             
olfart - 25 Mar 2004 19:32 GMT
> Bev and others: I appreciate your comments and advice, and promise to
> keep quiet about my own experience unless I am reasonably confident of
[quoted text clipped - 10 lines]
> winners!
> Charlie

Sounds great Charlie. Hope you keep us up to date - all contributions are
*helpful* and appreciated. I will be getting seeds in about a month. Have to
do 25 Radiation treatment first which will start on March 30th. Hope things
continue to lok up for you.
Age - 69
8/12/02 - PSA 3.7
10/13/03 - PSA 4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist
12/16/03 - Consult - Radiation Oncologist
Treatment Plan -
HT - started 12/17/03 - Eulixen & Lupron
2/10/04 - Started - Flowmax and Megastrol
Radiation - IMRT to begin 3/30/04 - for 5 weeks
Theraseed implant after Radiation completed
Heather - 25 Mar 2004 20:05 GMT
You are most welcome.  And listen to Bev.....she knows best.  (G)  You are
bound to be a bit irritated by the catheter.  Ron was and when we got home
after the first of two HDR treatments, it was quite painful for him to
urinate initially.......however, he passed two blood clots an hour or so
later and never looked back.

Interesting how the methods of treatment with brachytherapy are all
different.  Ron (71) had the two HDR treatments a week apart.....rested for
two weeks, and then had 25 EBRT ones.....which were a piece of cake!!  No
hormone therapy at all.  I asked the rad onc a month or so ago, and he was
of the opinion that Ron didn't need it.....and that the jury was still out
on whether it helped prior to surgery or radiation.

We are in just outside Toronto, Canada btw.  I would say the only 'bugbear'
was a daily 4 hour round trip for a few minutes of radiation......but it was
summer and not too bad at all.  The people at Sunnybrook's Regional Cancer
Centre were absolutely wonderful and did everything they could to make it
easier for Ron and myself.....emotionally and financially.

We don't pay for medical care, btw.  And this treatment is apparently about
$48,000 US, according to Fernando in California.  (Just over $67,000 Cdn)

Rest, take it easy for a few days and keep on posting.  There isn't a
question that these people can't answer......or direct you to a link that
answers it.

And it seems (to me, anyway) that more people are opting for radiation since
I joined here a year ago.  But if 70ish or over, you would have an equal
results choice.

I also am noticing a disproportionate number of 'under 50's' lately.  Or is
this because men are becoming more aware and getting a PSA test earlier??

Cheers.......Ron and Heather
His stats at age 71 were.....
PSA 10.7, June 2003 (down from 11.5 in Feb. 2003)
Gleason 4+3,
8 cores positive on the one side only.
Bone and CT scan clear.
PSA in Oct. '03 - 3.66
PSA in Feb. '04 - 3.7

> Bev and others: I appreciate your comments and advice, and promise to
> keep quiet about my own experience unless I am reasonably confident of
[quoted text clipped - 10 lines]
> winners!
> Charlie
Bob Oaks - 25 Mar 2004 22:01 GMT
> Bev and others: I appreciate your comments and advice, and promise to
> keep quiet about my own experience unless I am reasonably confident of
[quoted text clipped - 10 lines]
> winners!
> Charlie

Hi Charlie,

I too had brachytherapy, on January 6, and like you experienced little if
any problems.  I had bleeding for about 48 hours as a result of the
temporary catheter, but that was more of an annoyance than anything.  I
never had any pain or even discomfort, though the first few nights I did
have to get up several times.  Now, after nearly three months, it is usually
just once a night, but that's what it was before the brachytherapy, so I
guess I'm back to normal.  I will go for my first PSA test in a couple of
weeks, so I'll let you know how that turns out.

For the record, I'm 62, Gleeson 6, T1c, and PSA of 4.0 before.

Bob
Beverley - 26 Mar 2004 04:28 GMT
No, you can run your mouth all you want just be a couch potato for another
day or two.

Get on the phone with your doctor and ask about Hytrin or Flomax (pronounce
flow-max) as this will help with painful urination.

You can also email me directly with any questions.
Bev

> Bev and others: I appreciate your comments and advice, and promise to
> keep quiet about my own experience unless I am reasonably confident of
[quoted text clipped - 10 lines]
> winners!
> Charlie
cehlaw@webtv.net - 26 Mar 2004 05:53 GMT
Bev: I'm taking FloMax, but, of course, I don't know if it's helping. I
started Flomax the day before my surgery. The pain is not as sharp now
as it was last night, but it still makes me regret the experience! I do
understand the importance of drinking lts of clear liquids to keep the
urethre open, and I'm hopeful that it clears up SOON!
Thanks again!
Charlie

                                                                                   
                                                             

                                                                                                             
Ron Carter - 25 Mar 2004 17:52 GMT
> As some of you may be aware from an earlier post of mine, I just found
> this discussion group about 2 hours ago. I wish I had found it earlier!
[quoted text clipped - 5 lines]
> group. I applaud all of you!
> Charlie

Thanks for posting, Charlie.  I'm following hard on your heels.  I go
in next week for the preliminary stuff and get seeded mid-April.
Spring seems like an appropriate time to get seeded, doesn't it?
Please hang around here.  Brachytherapy patients are a little hard to
find on this NG.

Ron
 
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