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Medical Forum / Diseases and Disorders / Cancer / July 2009

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Progress Update.

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bobert - 23 Jun 2009 07:55 GMT
6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
4 1/2 years of NED reports.  Next check in 6 months.

Life Is Good. Tomorrow Barb and I are going down the coast to visit some
friends who live off the grid in Big Sur. I'll take some photos and post
them on the web.
Signature

Eccentric is crazy with money.

Bobert
In Central California

CSM - 23 Jun 2009 16:31 GMT
>   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
> Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
[quoted text clipped - 8 lines]
> Bobert
> In Central California

Congrats, and keep it up.  Is it 5y of NED that's the big milestone,
or (5y > dx) & NED?  You're either almost there, or past---good either
way.  Going from a dx of sclc to "all clear" must feel wonderful.
Staying on the "all clear" for years should keep the smile on your
face.

---
CSM
J - 23 Jun 2009 22:08 GMT
> >   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
> > Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
> > 4 1/2 years of NED reports.  Next check in 6 months.
> >
> Congrats, and keep it up.  Is it 5y of NED that's the big milestone,
> or (5y > dx) & NED?

His 5-year milestone is from the date of his recurrence.
J
bobert - 25 Jun 2009 22:53 GMT
> > Congrats, and keep it up.  Is it 5y of NED that's the big milestone,
> > or (5y > dx) & NED?
>
> His 5-year milestone is from the date of his recurrence.
> J

Thanks to all for the nice words. When I was diagnosed in 2003, I read
on the net that 5 yr Dx was the normal period for cancer patients to
wait for the "Its gone" pronouncement, and for SCLC it's 6 yr. because
it is an aggressive type of cancer.  5 yr of NED also sounds reasonable,
too. What ever the number, it is great to have ANY NED report.  In my
mind I am celebrating Both numbers now.  I'll get my next scan at about
the 5 yr, NED mark.  

Still sleeping with one eye open so it can't sneak up on me. :=)

The trip down the coast was not  productive as far as photos were
concerned.  It was extremely foggy Tuesday with the fog rolling over the
highway.  It gave the illusion that we were driving in a tunnel through
the fog. The road heat and cars moving through the fog creates this
affect. It's a neat visual, but not good for photographs.  The coast was
largely obscured. That's not unusual for this coast.  The Central coast
is in the fog belt.  Our house seems to be overcast 2/3 of the time.  
It's only 1/2 crow mile from the beach. Go 5 miles inland and it could
be 100+ degrees in the summer and 60 at the coast. Oh, well I *could* be
in Phoenix. 103 at 1:30 am (I've seen it do that.)

We are going to have a 2 day heat wave this weekend. Predicted high 72
degrees
http://www.ksbw.com/weather/18647202/media.html?qs=;longname=7%20Day;shor
tname=7Day;days=&ib_wxwidget=true#HEARSTWX=http%3A//www.ksbw.com/weather/
811979/media.html%3Fqs%3D%3Bref%3D/weather/18647202/media.html%3Blongname
%3D7%2520Day

http://tinyurl.com/nttgjz   

After the June Gloom I will try to get some pics. I have many on my hard
drive.  I may put some on the web one of these days. I'll report when I
do.

All possible love to all,

bobert
Signature

Eccentric is crazy with money.

Bobert
In Central California

J - 26 Jun 2009 11:02 GMT
> IStill sleeping with one eye open so it can't sneak up on me. :=)
>
[quoted text clipped - 11 lines]
> We are going to have a 2 day heat wave this weekend. Predicted high 72
> degrees

Sorry to hear the weather didn't co-operate, .Bobert.
Another time...

What I'm getting is the coast is cooler?  72 a heatwave?
We're in a heatware 22 degrees C = 97F? (5 am)
Going up to  27C today (feels like 33 with the humidity)
= 117? (not sure I'm doing the math right)
Hot and sunny tumorrow, then 5 days of some sun and mostly showers. I like
when it's warm/hot.
Tornadoes ripped through part of our Province yesterday.
I don't have the full report but saw one tornado barrelling through a house -
it was totalled but she saved herself and one cat. Other cat unknown as of
last night.
J - with the weather report. :)
turtletrot1 - 27 Jun 2009 13:07 GMT
On Jun 26, 6:04 am, J ...

> What I'm getting is the coast is cooler?  72 a heatwave?
> We're in a heatware 22 degrees C = 97F? (5 am)
> Going up to  27C today (feels like 33 with the humidity)
> = 117? (not sure I'm doing the math right)

No, you are NOT doing the math right.  25C is 80F !   I don't do the
math, I use a dual thermometer and just look!  I have many friends  in
Europe I am looking many times.
J - 27 Jun 2009 23:44 GMT
> On Jun 26, 6:04 am, J ...
> >
[quoted text clipped - 6 lines]
> math, I use a dual thermometer and just look!  I have many friends  in
> Europe I am looking many times.

Yes, mine was wrong. I started from the right instead of the left (with
the formula)
F = 32 + (C*9/5)
So 22C = 71F
25C= 77F
and 25C = 91.4 F

European calculations might vary; but there's no mention of it in my
calculator's booklet (and buttons).
It does have different calculations/buttons for Imperial gals to litres,
Imperial t to kg and Imperial fl.oz to ml
J
turtletrot1 - 29 Jun 2009 13:54 GMT
"European calculations might vary........."
I believe that Celcius is Celcius the world over, and the same with
Fahrenheit!  There is no way that a Celcius reading would vary in
Europe as opposed to North America,.
Earle Jones - 29 Jun 2009 18:58 GMT
In article
<dc6a8058-22e1-4b1d-9e5e-be5d0bfd0ee0@l30g2000yqm.googlegroups.com>,

> "European calculations might vary........."
> I believe that Celcius is Celcius the world over, and the same with
> Fahrenheit!  There is no way that a Celcius reading would vary in
> Europe as opposed to North America,.

*
Celcius is Celsius the world over.

earle
*

  "Where smut's to be smitten, Smoot will smite,
   For God, for country, and Fahrenheit."

    --Ogden Nash (from his poem "Senator Smoot, Republican, UT."
J - 01 Jul 2009 10:26 GMT
> "European calculations might vary........."
> I believe that Celcius is Celcius the world over, and the same with
> Fahrenheit!  There is no way that a Celcius reading would vary in
> Europe as opposed to North America,.

So was that the humidity level you were reading on your dual thermometer,
eyesight problem or the thermometer needs replacing? 25C is not 80F !
J
-------- Original Message --------
Subject: Re: Progress Update.
Date: Sat, 27 Jun 2009 18:44:30 -0400
From: J <xyewsnswex@nalid;"no>
Newsgroups: alt.support.cancer

> On Jun 26, 6:04 am, J ...
> >
[quoted text clipped - 6 lines]
> math, I use a dual thermometer and just look!  I have many friends  in
> Europe I am looking many times.

Yes, mine was wrong. I started from the right instead of the left (with
the formula)
F = 32 + (C*9/5)
So 22C = 71F
25C= 77F
and 25C = 91.4 F
Earle Jones - 03 Jul 2009 05:31 GMT
> > "European calculations might vary........."
> > I believe that Celcius is Celcius the world over, and the same with
[quoted text clipped - 27 lines]
> 25C= 77F
> and 25C = 91.4 F

The last one is incorrect.

*
When my kids were studying all this stuff (conversion from Celsius to
Fahrenheit), I told them this.

Remember:  Celsius:  10, 20, 30.

10 is a cool day.
20 is a perfect day.
30 is a hot day.

10 C is 50 F.
20 C is 68 F.
30 C is 86 F.

I always remember 16 and 61 (16 C is the same as 61 F)
And remember 23 and 73 (23 C is the same as 73 F)

And if it's 40 below zero -- it doesn't make any difference -- Celsius
and Fahrenheit are exactly the same!)

earle
*
J - 03 Jul 2009 19:52 GMT
> In article , J <xyewsnswex@nalid;"no> wrote:
>
[quoted text clipped - 17 lines]
>
> The last one is incorrect.

mea culpa. I meant to write "and 33 C = 91.4 F"

> When my kids were studying all this stuff (conversion from Celsius to
> Fahrenheit), I told them this.
[quoted text clipped - 14 lines]
> And if it's 40 below zero -- it doesn't make any difference -- Celsius
> and Fahrenheit are exactly the same!)

Hopefully we'll never experience that, although colder temperatures are easier
to tolerate if the humidity is low.
I don't know the temperature these days except that it's been cool and rainy.
Thanks for your input, Earle.

I just looked up " Ano Nuevo State Reserve" and its "the site of the largest
mainland breeding colony of the northern elephant seal."  Very interesting, but
reminds me I meant to look up wild turkeys (in our Province). I don't know what
I'd do without the internet. It's sometimes better than an encyclopedia.  I've
just been reading about low E glass.  Got everything I wanted to know, on one
page (except pricing) of the 3 types.

Have a good day, Earle and take care,
J
J - 23 Jun 2009 22:04 GMT
>   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
> Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
[quoted text clipped - 3 lines]
> friends who live off the grid in Big Sur. I'll take some photos and post
> them on the web.

Great news Bobert,
Almost there to the 6-year (homefree) milestone.

I look forward to seeing the photos.
Off the grid is really interesting to me, so I hope you'll share details.
Have a wonderful, safe visit.
J
Janet Wilder - 23 Jun 2009 23:43 GMT
>   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
> Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
[quoted text clipped - 3 lines]
> friends who live off the grid in Big Sur. I'll take some photos and post
> them on the web.

Hooray for you Bobert!!

I saw my ENT on Friday and after 3 years I'm also NED. I got my checkups
reduced from every 3 months to every 6 months, too.

Signature

Janet Wilder
Way-the-heck-south Texas
Spelling doesn't count.  Cooking does.

bobert - 29 Jun 2009 00:12 GMT
> >   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
> > Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
> > 4 1/2 years of NED reports.  Next check in 6 months.
    <snip>
> Hooray for you Bobert!!
>
> I saw my ENT on Friday and after 3 years I'm also NED. I got my checkups
> reduced from every 3 months to every 6 months, too.

3 years is great. I requested (and got) a few extra 3 month checkups.
One found mets to my brain.  I'm  I've been on a 6 month cycle for the
last couple of years, and don't plan to change it any time soon.

Ain't it a great feeling to be upgraded? Or is it a downgrade?

OT: Whatever happened to The Road Princess?
Signature

Eccentric is crazy with money.

Bobert
In Central California

Janet Wilder - 29 Jun 2009 21:16 GMT
>>>   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
>>> Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
[quoted text clipped - 10 lines]
>
> Ain't it a great feeling to be upgraded? Or is it a downgrade?

It is better than great. It's super! I consider it an upgrade, though I
still have to get the snake stuffed up my nose twice a year.

> OT: Whatever happened to The Road Princess?

She is off the road. We bought a regular stuck to dirt house in 2005 and
continued to RV part time for a couple of years, but DH's health is not
good so we sold the last RV and now we travel like "normal" folks in a
Honda Civic, and airplane or a cruise ship.
Signature

Janet Wilder
Way-the-heck-south Texas
Spelling doesn't count.  Cooking does.

CSM - 29 Jun 2009 23:04 GMT
> > In article <00889927$0$11870$c3e8...@news.astraweb.com>,
>
[quoted text clipped - 15 lines]
> It is better than great. It's super! I consider it an upgrade, though I
> still have to get the snake stuffed up my nose twice a year.

Yikes!  That sounds a lot worse than being injected with radioactive
sugar and having to be still for an long while.  Does the snake do a
visual check of the insides of passages?

<snip>
---
CSM
Janet Wilder - 01 Jul 2009 05:41 GMT
>>> In article <00889927$0$11870$c3e8...@news.astraweb.com>,
>>>>>   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
[quoted text clipped - 14 lines]
> sugar and having to be still for an long while.  Does the snake do a
> visual check of the insides of passages?

It checks inside my nose and in my throat. They spray my nose with
numbing stuff but it doesn't work that great and I still feel that
sucker poking around.

I had the scan with the radioactive sugar. They gave me some really nice
 relaxation medicine. I wanted to know if they gave it as take-out.
That stuff was wonderful!

Signature

Janet Wilder
Way-the-heck-south Texas
Spelling doesn't count.  Cooking does.

CSM - 10 Jul 2009 02:05 GMT
> >>> In article <00889927$0$11870$c3e8...@news.astraweb.com>,
> >>>>>   6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
[quoted text clipped - 27 lines]
> Way-the-heck-south Texas
> Spelling doesn't count.  Cooking does.

Sorry for the slow reply---busy lately.
The nose probe sounds very unpleasant.  For that, I'd certainly want
relaxation meds, or more.  They don't give me anything for the PET/CT;
they just expect me to be still for a while on my own.  Being a bit of
a finger-tapper, that's an effort.

---
CSM
bobert - 30 Jun 2009 09:16 GMT
> > OT: Whatever happened to The Road Princess?
>
> She is off the road. We bought a regular stuck to dirt house in 2005 and
> continued to RV part time for a couple of years, but DH's health is not
> good so we sold the last RV and now we travel like "normal" folks in a
> Honda Civic, and airplane or a cruise ship.

Thanks for the update.

bobert
Signature

Eccentric is crazy with money.

Bobert
In Central California

redsurf - 24 Jun 2009 03:32 GMT
>  6 years, 3 weeks, 2 days ago, I was diagnosed with Small Cell Lung
>Cancer. Today I got the "Still Clear" from my Oncologist. It's now been
[quoted text clipped - 3 lines]
>friends who live off the grid in Big Sur. I'll take some photos and post
>them on the web.

Fantastic!  I love to hear stories like yours.  Life IS
good.  Enjoy your trip.

Carla
 
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