My wife was told two weeks ago that she had lung cancer, probably
carcinoids, which appeared to have spread to her liver.
Today we got good news that it has not spread to her liver, but she
still has cancer in her lung. It is not carcinoids but a rare form of
tumour they are unable to put a name to. The consultant said it looks
like the Salivary Gland Tumour, but is not it. Anyone know anything
about this??
She is going to have a PET Scan, CT Brain Scan and Differentiated
Proffusion Scan to check that the cancer has not spread, and then
surgery to remove a lung.
We are relieved today, but know we have now to continue to wait for
more scan results. At least the consultant was very positive and felt
that it is unlikely that the cancer has spread.
J - 04 May 2008 11:16 GMT
> My wife was told two weeks ago that she had lung cancer, probably
> carcinoids, which appeared to have spread to her liver.
[quoted text clipped - 12 lines]
> more scan results. At least the consultant was very positive and felt
> that it is unlikely that the cancer has spread.
Hello UK
(may we call you "UK" or is there another name you prefer?
I don't know what they're talking about. I don't recall someone describing
such here.
Maybe Steph would have an idea, but ultimately, the pathology report
(after the surgery) would be most helpful.
One of these is about carcinoids ((rarer types of lung tumors) and the
other about salivery gland tumors
http://www.cancer.org/docroot/CRI/content/CRI_2_4_1X_What_is_lung_carcinoid_tumo
r_56.asp
http://www.cancer.org/docroot/cri/content/cri_2_4_1x_what_is_salivary_gland_canc
er_54.asp
Hold on to these please, if for no other reason, but knowing how to spell
some of them. :)
It's good to read they're moving fast for your wife.
I encourage people awaiting surgery to start a walking program, if
possible and safe to do (or with some other person) as long she isn't
having severe breathing problems, but not overdo. I think it can help
with the stress of waiting and help the person breathe better (expand the
lung capacity). Double-check that with her doctor (GP or consultant first
- they know her better than I).
Please keep in touch and let us know how you're both doing.
As an aside, we have Marc here from Canada who is being treated for what
normally is a benign tumor. He's rare; so it will be interesting to hear
more about your wife's type.
J
xela56 - 04 May 2008 15:04 GMT
> Hold on to these please, if for no other reason, but knowing how to spell
> some of them. :)
[quoted text clipped - 6 lines]
> lung capacity). Double-check that with her doctor (GP or consultant first
> - they know her better than I).
Could you elaborate you experience with surgery ? Are you giving
information based on your clinical experience or personal experience?
When you say you encourage.....it speaks to your clinical or personal
experience. What is your rationale?
> Please keep in touch and let us know how you're both doing.
>
> As an aside, we have Marc here from Canada who is being treated for what
> normally is a benign tumor. He's rare; so it will be interesting to hear
> more about your wife's type.
> J
If it is not cancerous, the best case scenario, fortunately this person
would not belong in this "cancer" group.
Steph - 05 May 2008 07:33 GMT
> My wife was told two weeks ago that she had lung cancer, probably
> carcinoids, which appeared to have spread to her liver.
[quoted text clipped - 12 lines]
> more scan results. At least the consultant was very positive and felt
> that it is unlikely that the cancer has spread.
Is it adenoidcystic carcinoma?
tapyeno - 17 May 2008 12:31 GMT
An Update:
At the last appointment with the consultant my wife was told that she
had to have a lung removed but the cancer had not spread to her liver.
She was told she would need further tests to make sure it was nowhere
else in her body.
Since then Rose has had several scans. She was asked by the doctor
yesterday to go back to the hospital for another scan on her brain, an
MRI. We were told afterwards that there is a growth at the back of her
brain, but they don’t know yet what it is or how it got there. The
scan results are being sent to the neurological dept of another
hospital. We have been told that there is to be a meeting on Monday
morning of doctors, consultants, etc to see what happens next. It
could be that she will need to have a brain biopsy.
If it is a primary cancer it may be able to be removed surgically, but
if it is secondary, then there will be no operation on either lung or
brain, and Rose will have chemo and/ or radiotherapy.
The doctor said he was very confused by the MRI Scan results as Rose
seems in perfect health and is showing no symptoms of a Brain Tumour.
We are looking at this as a good sign!
Pat
> My wife was told two weeks ago that she had lungcancer, probably
> carcinoids, which appeared to have spread to her liver.
[quoted text clipped - 12 lines]
> more scan results. At least the consultant was very positive and felt
> that it is unlikely that thecancerhas spread.
J - 18 May 2008 07:58 GMT
> An Update:
>
[quoted text clipped - 21 lines]
>
> Pat
Hello Pat,
In addition to the possibles you mentioned, some people have benign brain
tumors, that are never a problem; so an inicidental finding when checking
for other things. It must be frustrating awaiting diagnosis and a plan of
action. If it's the type of lung cancer that Steph mentioned,
(adenoidcystic carcinoma), it's usually slower growing.
It's reassuring that a team will be consulting soon Rest assured they'll
do their best for your wife.
Take care of you as well.
We'll be here, awaiting your news.
Best regards,
J
.