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Medical Forum / Diseases and Disorders / Cancer / March 2008Vidaza, sooner or later?
Hello, A family member has been diagnosed with CMML type of Myelodisplatic syndrome. We asked about Vidaza but the doctor said it is not available in this country (we are in Asia). I am wondering if anybody has experience with Vidaza: 1. Is Vidaza some kind of suppressant that will eventually lose is potency (I read it's only good for 1 year)? 2. I understand every individual's situation is different but generally speaking, (I assume Vidaza would be a kind of chemo) should we start this kind of chemo as soon as possible? Since currently the white blood cell count is still within normal range (while hemoglobin is really low); or if Vidaza is only good for a year, should we want till the situation has deteriorated first? I appreciate any information at all. > A family member has been diagnosed with CMML type > of Myelodisplatic syndrome. We asked about Vidaza [quoted text clipped - 14 lines] > > I appreciate any information at all. Hello, I would suggest that you ask your questons on the MPD list here http://www.acor.org/mlists/mlists.html Click on the (list) name and follow the instructions and they will get back to you as soon as possible. Best, J > Hello, > > A family member has been diagnosed with CMML type > of Myelodisplatic syndrome. We asked about Vidaza Spammer Brand names are not allowed in the newsgroup Natural product names are not allowed either > > Hello, > > [quoted text clipped - 4 lines] > Brand names are not allowed in the newsgroup > Natural product names are not allowed either There's no reason to believe he's a spammer. However: from the Charter. "If your post is more about medicine than cancer support, post to sci.med.diseases.cancer instead.." He was appropriately dealt with, by me. J >> > Hello, >> > [quoted text clipped - 11 lines] > He was appropriately dealt with, by me. > J This is Usenet free speech is allowed for better or worse. The Charter is meaningless, if it had any teeth the spaming that happen in January would not have happened. > "J" <nswex@nalid;no> wrote in message > > There's no reason to believe he's a spammer. [quoted text clipped - 7 lines] > January would > not have happened. What happened from mid- November through January was not spamming. J >> "J" <nswex@nalid;no> wrote in message >> > There's no reason to believe he's a spammer. [quoted text clipped - 11 lines] > What happened from mid- November through January was not spamming. > J I stand correct sporgery, any case it showed the total lack of control on a usenet group. > "J" <nswex@nalid;no> wrote in message > [quoted text clipped - 12 lines] > I stand correct sporgery, any case it showed the total lack of control on a > usenet group. Floods and sporges: Each person found a way to control the posts; with perhaps help from the tips by others. Stop the posts? Maybe, if the antagonist was lurking and noted that people were told to not abandon the newsgroup and were finding ways to get around them. Did the Chaerter/FAQ help with that? Only insofar as to instruct people to filter undesirable posts. And if people read it and checked their Help, in their software. A link to every type (and version) of newsreader has yet to be found, since versions are constantly evolving. J >> "J" <nswex@nalid;no> wrote in message >> [quoted text clipped - 29 lines] > versions are constantly evolving. > J I think Usenet is a dying breed, people are connecting using facebook, twitter, linked in, etc. The posts on this group is the lowest ever! People are getting internet savvy with web 2.0 programs, Usenet is ancient technology. >>> "J" <nswex@nalid;no> wrote in message >>> [quoted text clipped - 34 lines] > People are getting internet savvy with web 2.0 programs, Usenet is > ancient technology. Different strokes. Wonder why you stay if you think so little of it. Fig >> I think Usenet is a dying breed, people are connecting using facebook, >> twitter, linked in, etc. The posts on this group is the lowest ever! [quoted text clipped - 6 lines] > > Fig I didn't say I though little of usenet, Why do I stay? Basically it is a habit since I have been on usenet since the late 80's when I use to connect with 2400 bps modem thru a company called Channel 1 in Cambridge. Computers and Internet is involving and by the stats here you can see that participation is declining. The reason why I don't leave this group is for several reasons. One I have met many wonderful people. Second, I am a cancer survivor and refuse to be bullied out by non cancer survivors who don't like what I have to say. ( I am stubborn, but cancer has taught me to be a survivor and not a quitter.). Hope you had a Happy Easter. We had a glorious day, a wonderful dinner, my kids came home from medical school and college. It has been a great weekend, one I will always treasure. > >> I think Usenet is a dying breed, people are connecting using facebook, > >> twitter, linked in, etc. The posts on this group is the lowest ever! [quoted text clipped - 20 lines] > kids came home from medical school and college. It has been a great weekend, > one I will always treasure. In IT terms, Usenet *is* very old tech. This has both positive and negative aspects, and I suspect you will find people using it for years to come. This group, like many, is small enough that the volume can change dramatically from the behavior of just a few people (imagine if two of the three most prolific posters went on vacation w/ o access for two weeks), so short-term trends aren't very useful. One of the things I told my students is that prognostication about technology is easy, but seldom accurate. Good news on your Easter, xela---may next year be even better. I hope you stay stubborn, and don't bow to bullies. --- CSM |
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