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Medical Forum / Diseases and Disorders / Cancer / March 2008Glomus Jugulare - Metastatic malignant paraganglioma
Hey all; At J's suggestion: A new thread with more descriptive subject header (Hopefully of use for anyone else in the future trying to find past examples of this cancer) So I've finished transcribing the post-surgery pathology report. It can be found here: http://www.internalysis.com/cancer/pathology.html I could have just posted a copy of the PDF online, but I figured it was probably a good idea to just transcribe to keep some information private (patient numbers, etc) as well as actually getting a more thorough familiarity with the conent myself. Reading it through is one thing, transcribing (at least for me) made sure I read *every* word. Of course, I'm no oncology expert - I'm hoping a couple of you might be able to take a glance at it, but one thing popped out at me: Given that some of the bone samples were positive for malignant paraganglioma, it reenforces (to me) that radiation is the right way to go, at least as an insurance policy. Got a call from the cancer center today: I go in on the 4th for "markings" - which I understand from my reading online is the ink markings on my head for where the radiation is going to go into my head, or something like that. One thing my mother was absolutely right about: The people at the cancer center are a breed apart: So far, I haven't run into one person who was grumpy, abrupt or rude. I'm pretty sure everyone's laughed at my lame jokes, which they've probably heard a million times before, which is nice :) Given the cancer place is an hour and a half from home and we drive a gas- guzzler of a Suburban, my wife and I decided that I'd rent a car for the duration of the treatments: This leaves her a car for use at home and not as much spent on gas while I go back and forth. I've had quite a few friends and family in Ottawa say I could stay over if things get too tiring, which I have a feeling I'll take advantage of, as the process gets along. I also have a patient information session scheduled for the 14th, which I think is pretty much a "this is what to expect over the next few weeks" type of thing. So, it looks like things are speeding up a fair bit. My birthday's coming up on the 7th - not exactly what I wanted for a present, but I asked for a thermo nuclear device one year for my birthday and I'm pretty sure this is as close as I'll get, so maybe everything isn't so bad, after all :)  SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > Hey all; > [quoted text clipped - 18 lines] > reenforces (to me) that radiation is the right way to go, at least as an > insurance policy. Absolutely. Thanks Marc. Interesting read. I did not know that 2 lymph nodes were positive. I'm glad you're pleased with the Ottawa. I was just reading that another hospital there will also be treating cancer. < http://www.premier.gov.on.ca/news/Product.asp?ProductID=1962 > Families in the Ottawa area will soon get faster cancer treatment thanks to a new Cancer Clinic at Queensway Carleton Hospital." Ground-breaking was Feb 15th J > Given the cancer place is an hour and a half from home and we drive a gas- > guzzler of a Suburban, my wife and I decided that I'd rent a car for the [quoted text clipped - 3 lines] > tiring, which I have a feeling I'll take advantage of, as the process gets > along. Good thinking but check off all the others on the form. > I also have a patient information session scheduled for the 14th, which I > think is pretty much a "this is what to expect over the next few weeks" > type of thing. Not sure. - the 14th is a Friday. http://www.ottawahospital.on.ca/sc/cancer/resources/cal-mar-e.pdf Radiation Therapy Sessions: Held every Tuesday and Thursday in Conference Rooms A&B, 2nd floor, General Campus,TOHCC. These sessions are presented by a Radiation Therapist. Information followed by Q/A period on what to expect during your radiation treatment. You will be contacted by a Treatment Coordinator and given a date in which you should attend this session." > So, it looks like things are speeding up a fair bit. My birthday's coming > up on the 7th - not exactly what I wanted for a present, but I asked for a > thermo nuclear device one year for my birthday and I'm pretty sure this is > as close as I'll get, so maybe everything isn't so bad, after all :) :) Better in someone else's hands. Thanks for the update, Marc. To be continued... J >> Given the cancer place is an hour and a half from home and we drive a >> gas- guzzler of a Suburban, my wife and I decided that I'd rent a car [quoted text clipped - 19 lines] > contacted by a Treatment Coordinator and given a date in which you > should attend this session." You're right: They called back today to confirm the skull mask and marking for the 4th and it turns out there's a patient information session at 3:00 PM that same day, so I'll go to a friend's place after the skull mask, then go back in the afternoon for the session. When I was talking to the lady on the phone, I couldn't help myself :) : Me: "Okay, so Tuesday afternoon is for any questions I might have, right?" Her: "Absolutely, anything you're curious about, worried about or just want to know more" Me: "Okay, this is a ***really*** stupid question, but my friend and I can't help but wonder..." Her: "There is absolutely no such thing as a stupid question - Ask away and I'll see if I can tell you" Me: "Wait till you hear the question :) We were wondering if you finished a radiation session and then went *immediately* to the airport to catch a plane, would you set off the radiation detectors? (laughing)" Her: "(laughing, as well) No, no - the amount of radiation you get per dose is very small - There will be some radioactivity in your body, but certainly nothing that would set off the detector. Now, if you were to drag the *machine* through the airport, they might ask a few questions..." Okay, so it wasn't all *that* serious, but we were wondering :) I had this vision of some poor sap (i.e. me) going through radiation therapy and getting tackled at the airport for suspicion of bringing radioactive devices through :) :) :) >> So, it looks like things are speeding up a fair bit. My birthday's >> coming up on the 7th - not exactly what I wanted for a present, but I [quoted text clipped - 5 lines] > Thanks for the update, Marc. > To be continued... Ah well, one can hope. I've put the "fully loaded and fueled AH-64 Apache Longbow" on my birthday list for the 16th year in a row now for my wife to consider. Do ya think playing the cancer card would (finally) get me my attack helicopter ? :) :) :) SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> So, it looks like things are speeding up a fair bit. My birthday's > >> coming up on the 7th - not exactly what I wanted for a present, but I [quoted text clipped - 9 lines] > to consider. Do ya think playing the cancer card would (finally) get me > my attack helicopter ? :) :) :) Dunno. But good thing you're not in BC - cruise missiles. :) We don't have to defend ourselves against Great Britain (eh, Alayne?) J - wondering if she's lurking. PS combining the days sounds good to me, as long as you're sure you'll have enough time for the mask and tattooing (etc). Did you ask them about the afternoon session? Or did they give you a guesstimate of how much time the morning stuff will require? Kingston says http://www.krcc.on.ca/patient_visitor/patient_visitor_radiationTherapyTreatment.asp "Please try not to arrange other appointments on the same day as your simulator visit." Or is simulation a different appointment? >> >> So, it looks like things are speeding up a fair bit. My birthday's >> >> coming up on the 7th - not exactly what I wanted for a present, [quoted text clipped - 27 lines] > > Or is simulation a different appointment? Dunno, to tell you the truth, though it was the same lady who booked the markings meeting as the patient info; Mask making is @ 9:45 AM, info session @ 3:00 PM, so here's hoping it's not all that long :) SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > Dunno, to tell you the truth, though it was the same lady who booked the > markings meeting as the patient info; Mask making is @ 9:45 AM, info > session @ 3:00 PM, so here's hoping it's not all that long :) Mask Making Takes about 8 min once they start. If you are in the waiting room for 6 hours you will miss the info session. Otherwise there should be plenty of time. The voice of experience is talking. I have 2 masks siting next to my computer. SignatureHey! It compiles. Ship it. Bob in Central California >> Dunno, to tell you the truth, though it was the same lady who booked >> the markings meeting as the patient info; Mask making is @ 9:45 AM, [quoted text clipped - 6 lines] > The voice of experience is talking. I have 2 masks siting next to my > computer. Hey, that's cool - I was wondering that - "Do I get to keep the mask when it's all done ?" (I couldn't see why not, since it's custom made) - Thanks! SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. >>> Dunno, to tell you the truth, though it was the same lady who booked >>> the markings meeting as the patient info; Mask making is @ 9:45 AM, [quoted text clipped - 10 lines] > it's all done ?" (I couldn't see why not, since it's custom made) - > Thanks! Any of our patients who want to keep the mask, can do. >>>> Dunno, to tell you the truth, though it was the same lady who >>>> booked the markings meeting as the patient info; Mask making is @ [quoted text clipped - 13 lines] > > Any of our patients who want to keep the mask, can do. Woohoo! I figure I'm going to try to make the most out of this radiation thing, so souvenirs are a plus :) As soon as my shop warms up, I'm going to fire up the wood lathe and make a radiation hazard symbol out of a cherrywood log and hang it over my side of the bed };-)> SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> Hey, that's cool - I was wondering that - "Do I get to keep the mask > >> when it's all done ?" (I couldn't see why not, since it's custom [quoted text clipped - 10 lines] > radiation hazard symbol out of a cherrywood log and hang it over my side of > the bed };-)> Sounds cool. :) Busy working on it? J > As soon as my shop warms up, I'm going to fire up the wood lathe and make a > radiation hazard symbol out of a cherrywood log and hang it over my side of > the bed };-)> I wonder what that looks like? I was thinking burn; as in what they use to brand cattle. J >> As soon as my shop warms up, I'm going to fire up the wood lathe and >> make a radiation hazard symbol out of a cherrywood log and hang it >> over my side of the bed };-)> > > I wonder what that looks like? > I was thinking burn; as in what they use to brand cattle. I'll post a pic when I do it - Given the massive dumping of snow we just had, I don't think I'll be firing up the lathe in the next couple of days, though :) SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> As soon as my shop warms up, I'm going to fire up the wood lathe and > >> make a radiation hazard symbol out of a cherrywood log and hang it [quoted text clipped - 6 lines] > had, I don't think I'll be firing up the lathe in the next couple of days, > though :) I look forward to it, when the weather's better and treatment's over. J > The Bobert <nobody@nowhere.nowhow> fell face-first on the keyboard. This > was the result: That happened to me once, trying a new medication, which I subsequently dumped. So I moved the keyboard, under the desk. Keyboards are softer than desks. So now I have a soft furry thing on the desk. : ) J > > Dunno, to tell you the truth, though it was the same lady who booked the > > markings meeting as the patient info; Mask making is @ 9:45 AM, info [quoted text clipped - 6 lines] > The voice of experience is talking. I have 2 masks siting next to my > computer. Thanks Bob. I'm either remembering wrong or remembering the person who had high-anxiety and had to interrupt to go get a medicine prescribed. J > You're right: They called back today to confirm the skull mask and > marking for the 4th and it turns out there's a patient information > session at 3:00 PM that same day, so I'll go to a friend's place after > the skull mask, then go back in the afternoon for the session. In case the thought hasn't come to you, you may wish to record the information session. So you can relisten at home and have your wfe listen as well. I think it will empower her. If it's tape, take 3. One person's tape ran out. And a spare in case one breaks. J > You're right: They called back today to confirm the skull mask and > marking for the 4th and it turns out there's a patient information [quoted text clipped - 8 lines] > Her: "Absolutely, anything you're curious about, worried about or just > want to know more" Hi Marc, Most of the Head and Neckers, from this newsgroup are probably on the same list at ACOR http://www.acor.org/mlists/mlists.html Theres possibly other Canadians there as well. Bringing to your attention, in case you want to subscribe and see if they have a list of questions to ask. Or anything else you wish to talk about with others there. I was waiting to hear back that your paperwork's taken care of, but since you haven't and the session's coming up, letting you know about the list. HTH J > >> Given the cancer place is an hour and a half from home and we drive a > >> gas- guzzler of a Suburban, my wife and I decided that I'd rent a car [quoted text clipped - 8 lines] > session at 3:00 PM that same day, so I'll go to a friend's place after > the skull mask, then go back in the afternoon for the session. What's happening, Marc. Started RT or still waiting? J >> >> Given the cancer place is an hour and a half from home and we drive a >> >> gas- guzzler of a Suburban, my wife and I decided that I'd rent a car [quoted text clipped - 11 lines] > What's happening, Marc. > Started RT or still waiting? Yep, still waiting - Haven't called them on it - Have to make a presentation in front of a bunch of government types this week, which I didn't want to do with a radiation burn down one side, so the wait was a convenient one :) SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> >> Given the cancer place is an hour and a half from home and we drive a > >> >> gas- guzzler of a Suburban, my wife and I decided that I'd rent a car [quoted text clipped - 11 lines] > didn't want to do with a radiation burn down one side, so the wait was a > convenient one :) Hi Marc, Thanks for the update. It's good you've planned for overnight. I've just seen more prostate cancer patients mention fatigue after or during RT. It's been mentioned so often here, I have to think that the prostate cancer patient you spoke to was either just starting his treatment, was afraid of scaring you off or was exceptional in some way. I think I forgot to mention the ACOR mail list for head and neckers to you. So I thought I'd tell you while there's a lull in your schedule. There mighrt be others who've had similar tumors and surgeries and treatments there. What's for sure there, is you'll get more tips about RT and replies than here. http://www.acor.org/mlists/mlists.html If you click on the HEAD-NECK-ONC (name) and follow the instructions, it's set to "Digest (traditional)" which would be more convenient, I thnk, during treatment. It can be changed by you at any time and you can unsubscribe if you don't find it useful or no longer need it. I would create a different /throwaway Yahoo account, so that friends and family emails are kept separate from the HEAD-NECK-ONC'er messages - so you remain non-id'able with your posts here.. There might be a problem (or ID'ability) with using your signature. I see it as a valuable resource for Canadians. They may see it differently (ie spam). Anyhow, just so you know, the ACOR list is available if you're interested. Best wishes with the presentation. Keep in touch please, as you able and thanks for your reply. J >> >> >> Given the cancer place is an hour and a half from home and we >> >> >> drive a gas- guzzler of a Suburban, my wife and I decided that [quoted text clipped - 43 lines] > > Keep in touch please, as you able and thanks for your reply. Thanks, J; Found the list and joined. The prostate guy I spoke with was on his 28th treatment - He seemed pretty positive about it all. Another gentleman I spoke with was on his ninth treatment - Same thing, pretty upbeat. I'll call the ONC department on Wednesday to see what the status is - I'd like to get this radiation thing over and done with to start getting on with things. SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> >> >> Given the cancer place is an hour and a half from home and we > >> >> >> drive a gas- guzzler of a Suburban, my wife and I decided that [quoted text clipped - 31 lines] > > Thanks, J; Found the list and joined. More replies? Good reception? > [...fatigue] > > I'll call the ONC department on Wednesday to see what the status is - I'd > like to get this radiation thing over and done with to start getting on > with things. I'll be here watching for your updates. J >> >> >> >> Given the cancer place is an hour and a half from home and >> >> >> >> we drive a gas- guzzler of a Suburban, my wife and I decided [quoted text clipped - 36 lines] > > More replies? Good reception? So far, no traffic on the list - Waiting to read a few days before joining in... Will post update later. >> [...fatigue] >> [quoted text clipped - 3 lines] > > I'll be here watching for your updates. Will do. I suppose my respite from dealing with it all had to end sooner or later. Looking forward to my flight on Wednesday (I'm a kid when it comes to plane rides :) ) Booked on Westjet - In addition to being cheaper, their cabin crew tends to be funny as all hell. Last time I flew Westjet, the welcome announcement was along the lines of "Welcome aboard, ladies and gentlemen, we'll be taking off as soon as we can find the keys to this darned plane..." :) SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> >> >> >> Given the cancer place is an hour and a half from home and > >> >> >> >> we drive a gas- guzzler of a Suburban, my wife and I decided [quoted text clipped - 4 lines] > >> >> >> >> tiring, which I have a feeling I'll take advantage of, as > >> >> >> >> the process gets along. PS Sidle on over and say "hi" to Heather. She's from the other big Ontario city. J > >> > Anyhow, just so you know, the ACOR list is available if you're > >> > interested. Best wishes with the presentation. [quoted text clipped - 7 lines] > So far, no traffic on the list - Waiting to read a few days before > joining in... Will post update later. Oh, I forgot. I think the condensed digest gets sent once a week? There's also archives, if you want to search on your tumor. > >> [...fatigue] > >> [quoted text clipped - 11 lines] > ladies and gentlemen, we'll be taking off as soon as we can find the keys > to this darned plane..." :) LOL, love their advertisements. I know a lot of people who fly Westjet. I've heard very few complaints. Going to the US? I meant to ask you, Marc. Do you wear that helmet most of the time? Do you have to explain often? (me picturing a store clearing out, thinking there's a fire) J >> >> > Anyhow, just so you know, the ACOR list is available if you're >> >> > interested. Best wishes with the presentation. [quoted text clipped - 10 lines] > Oh, I forgot. I think the condensed digest gets sent once a week? > There's also archives, if you want to search on your tumor. Nah, I'm not a fan of digests - I set mine to real-time mails. Saw a couple come in over the last day, so there is some activity :) >> >> [...fatigue] >> >> [quoted text clipped - 16 lines] > I've heard very few complaints. > Going to the US? No, just Toronto for the day - With the price of gas and a hotel stay, it was actually cheaper to fly down for the day that drive there, stay at a hotel, eat and drive back. That and it's an airplane ride :) > I meant to ask you, Marc. > Do you wear that helmet most of the time? > Do you have to explain often? (me picturing a store clearing out, > thinking there's a fire) Helmet ? I wear a fire helmet when I'm on a fire scene, as a firefighter, but other than that, no helmets for me :) The hole in my skull is just below and behind my ear, so as the doctor said, the natural shape of the skull is good enough protection for day- to-day stuff. If I go skiing or bike riding or play sports, etc, I should most definitely wear one, though. SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. > >> >> Thanks, J; Found the list and joined. > >> > [quoted text clipped - 8 lines] > Nah, I'm not a fan of digests - I set mine to real-time mails. Saw a > couple come in over the last day, so there is some activity :) kewl :) > > Going to the US? > > No, just Toronto for the day - With the price of gas and a hotel stay, it > was actually cheaper to fly down for the day that drive there, stay at a > hotel, eat and drive back. That and it's an airplane ride :) Yes, I love flying especially short hops. Next time, give me more notice, please. Could have cooked up reimbursement. > > I meant to ask you, Marc. > > Do you wear that helmet most of the time? [quoted text clipped - 3 lines] > Helmet ? I wear a fire helmet when I'm on a fire scene, as a firefighter, > but other than that, no helmets for me :) > The hole in my skull is just below and behind my ear, so as the doctor > said, the natural shape of the skull is good enough protection for day- > to-day stuff. If I go skiing or bike riding or play sports, etc, I should > most definitely wear one, though. My apology. You did explain in one of your initial posts. And here I was wondering how you slept with that thing on. lol or whether people had to call stores ahead of time and explain so people didn't panic. Hope you have a good day, Marc. J >> >> >> Thanks, J; Found the list and joined. >> >> > [quoted text clipped - 22 lines] > Next time, give me more notice, please. > Could have cooked up reimbursement. Will do, next time - Today was extremely productive and I may well be required to go down to T.O. for more related stuff in the near future :) >> > I meant to ask you, Marc. >> > Do you wear that helmet most of the time? [quoted text clipped - 15 lines] > > Hope you have a good day, Marc. I had an awesome day today - I got to have a say in upcoming legislation, got to play in a room full of people with more degrees and letters in their names and titles than I could shake a stick at *and* they wanted lil' ol' my opinions on several things :) I was *not* happy about Bell Canada's announcement that they are unilaterally imposing traffic shaping/throttling on all DSL ISPs in Ontario and Quebec, creating the dictionary definition of "abuse of monopoly powers", but that is sooooooo off-topic for this group :) SignatureMarc Bissonnette Looking for a new ISP? http://www.canadianisp.com Largest ISP comparison site across Canada. >> Yep, still waiting - Haven't called them on it - Have to make a >> presentation in front of a bunch of government types this week, which [quoted text clipped - 13 lines] > afraid of > scaring you off or was exceptional in some way. Hi J......coming out of lurk mode to say that with prostate cancer and radiation, the fatigue doesn't start right away. But it wouldn't hurt if Marc went for a nap or to bed an hour earlier. Steve has often mentioned that he did that during radiation treatments. My husband got hit the hardest with fatigue about 2 weeks after finishing 25 IMRT treatments. He had HDR(adiation) before that. Btw.....I stay in lurk mode because you have some pretty bizarre wierdos on this group!! Some of whom I recognize from other ng's that are not related to illness. I think these weirdos just plain suck, as the kids would say. Not to forget the Laetrile idiots and that ferrous idjit and his l-o-n-g, boring copy and paste posts. Sure is a diverse lot of characters on here. Tis a shame for those who are truly ill. Happy Bunny Day......Heather PS.....My best friend went to Mexico for Laetrile treatments for lung cancer about 30 years ago (same old apricot pit treatment)......she died a year later. It is a total crock!! Along with Essiac and other homeopathic treatments. > "J" <nswex@nalid;no> wrote in message > > Hi Marc, [quoted text clipped - 25 lines] > a year later. It is a total crock!! Along with Essiac and other > homeopathic treatments. Hi Heather, You nailed it. The fatigue and your assessment of this newsgroup. Actually some of your assessment gave me the best laugh I've had all week, so thanks a lot. :) I'd forgotten, to be honest, that you were coming to lurk, until yesterday, when I was doing a newsgroup comparison between the 2. And wishing this one was as busy with patients as yours is. Join in anytime. Have a happy bunny day (whenever that is). :) J >> Btw.....I stay in lurk mode because you have some pretty bizarre >> wierdos [quoted text clipped - 27 lines] > Join in anytime. > Have a happy bunny day (whenever that is). :) Hi J...... Glad you had a laugh....the weirdos on this group could drive you to drink!! OTOH, perhaps a glass or two would not be a bad idea. Hey...you can have the current troll on our group as well. He is now pretending to live in Toronto and that he knows our oncologist at Sunnybrook......bwa ha ha. I caught a tiny goof that only someone who lives in Toronto would realize. Btw....not sure what you are using to read and post to the news groups, but do change your Time Zone to GMT minus 4 hours. It is most disconcerting to read your post an hour before you wrote it.....or some such, LOL. Cheers....Heather PS....I am most intrigued by the poster "Figgertoes"......not sure if you know that my nickname is "Figgs". Due to a totally unpronounceable surname. Wonder if hers is the same?? > Hi J...... > [quoted text clipped - 15 lines] > you know that my nickname is "Figgs". Due to a totally unpronounceable > surname. Wonder if hers is the same?? Hello Heather, Well, I'm not laughing anymore. Looks like a newsgroup takeover from the regulars on misc.health.alternative. So i plonked a bunch of threads in order to refind people I was wanting to reply to. I pity Google and webtv people who can't filter I suppose new people might be interested. I find them boring since they've been discussed here so many times, over the years. Some may learn from it; others, like john the whaleto are deeply embedded in conspiracy theories and hate's of conventional medicine. On the other hand, they can see these same discussions on m.h.a. If it's not one thing, on this newsgroup, it's another. Does that mean you wouldn't want to be a supporter here? <g> Yes, I saw you mention Figgs on the prostate cancer newsgroup. I'm not sure I remember the story about Figgertoes. She ad/or her husband explained it, - might be about their pet cat - more toes than usual (?) Maybe Fig could come over and explain it to you. Withholding comment about s*afire. Have to review his posts again and comments may follow on that newsgroup. If I recall correctly he's "preaching" watchful waiting. Sorry about my clocks. There's 2 on this computer and two times show in my headers. NNTP-Posting-Date: Sun, 23 Mar 2008 20:18:02 -0500 Date: Sun, 23 Mar 2008 21:07:36 -0500 From: J <nswex@nalid;no> X-Mailer: Mozilla 4.8 [en] (Win98; U) GMT minus 4 hours says Atlantic Time. They're an hour ahead of me. I think the problem is that my clock did not change in march. I manually changed it. It will change the first Sunday in April, as it always did, so I will let it, then adjust it back. I think that will solve the problem. J I will get back to you, but there is a little program, called "TZEdit" I believe, that one of the Microsoft MVP's told me to get and it automatically adjusts for the NEW DST dates. I will hunt it down for you, if you wish. As for people taking over ng's.....happens more often than one would wish. I just killfile the foul-mouthed idiots on the antivirus groups until the barrage blows over. I suppose one could answer these idiots but carefully leave out this group and hope they wouldn't notice. Yeah, and pigs fly too. 8-)) They will get tired of it and peter out, I should imagine. Cheers.....Figgs >> Hi J...... >> [quoted text clipped - 67 lines] > I think that will solve the problem. > J > Btw....not sure what you are using to read and post to the news groups, > but do change your Time Zone to GMT minus 4 hours. It is most > disconcerting to read your post an hour before you wrote it.....or some > such, LOL. I have other "computery" issues or work to do. So will work on this, as able and more information is incoming. Just wondering how the posting time presents an issue for you? Give me an example, Thread name or show header. There's several possible reasons why that's happened or is it all of them? No one else has mentioned a problem. Threading (from my view) looks fine. I see you're using aioe.org and Microsoft Outlook Express 6 Thanks J >> Btw....not sure what you are using to read and post to the news >> groups, [quoted text clipped - 6 lines] > So will work on this, as able and more information is incoming. > Just wondering how the posting time presents an issue for you? OK.....I happen to have a quirk or two and clocks being absolutely dead on is one of them. I even drive MYSELF nuts!! I will show you the headers from Sunday and I only happened to catch it because I read it *before you wrote it* according to the time on it. Date: Sun, 23 Mar 2008 ****20:49:00 -0500**** From: J <nswex@nalid;no> X-Mailer: Mozilla 4.8 [en] (Win98; U) Newsgroups: alt.support.cancer Subject: Re: Glomus Jugulare - Metastatic malignant paraganglioma OK......according to the above header and my ****, you posted this at 8:49 pm on Sunday (20:49 minus 12 hours). But the time on the actual post on the ng is "9.49". You can easily check this one cuz it is only 3 days old. You are showing a time difference to Greenwich/Zulu/Zero/whichever of 5 hours, but now that we are on DST, it is only 4 hours. It is difficult to explain, I guess. But one of the Microsoft MVP's told us about this new little program which would automatically change us over on the NEW proper time change day. So not everyone would either know about this or use it. If you check my headers, you will see mine says *minus 4 hours* because the program changed it internally. My time zone which is still set at 5 hours less than GMT, but the program reset the DST time. And I have now confused myself. But I did check some of the other *normal people* on this group and some are showing 4 hours (zela for instance)..... Normally one doesn't see when a time is wrong unless you happen to be on that news group and see that one or two posts are an hour ahead of the real time. Or it is a glaring error of a day or two. Not a big deal and as you say, your computer will change it on the old day. Antivirus people tend to be a bit persnickety (anal?)and will tell you when your clock is out of whack, LOL!! > Give me an example, Thread name or show header. > There's several possible reasons why that's happened or is it all of > them? > No one else has mentioned a problem. Threading (from my view) looks > fine. > I see you're using aioe.org and Microsoft Outlook Express 6 Hey, you are not just a pretty face, lol. Yes, I am using aioe.org for this group and a couple of antivirus ones. I also have Motzarella on here because for some bizarre reason, *aioe* will not show Steve K's posts. I do have one other that is *read only* in case the Motzarella doesn't work.....which happens the odd time with these free ones. You still have Windows 98?? Well, it is better than WinME. I had ME before and that is the MS news group I was volunteering my help on. Still do for the odd person that has that O/S. But we use it more for a chat group cuz we have known each other for eons!! So not to worry......it just surprised me because I knew it was really about half an hour before that time when I saw your post. I forgot that not many people know about TZEdit. Cheers.....Quirky. (only have one other, lol) >> I have other "computery" issues or work to do. >> So will work on this, as able and more information is incoming. >> Just wondering how the posting time presents an issue for you? > > OK.....I happen to have a quirk or two and clocks being absolutely > dead on is one of them. I even drive MYSELF nuts!! > But I did check some of the other *normal people* on this group and > some are showing 4 hours (zela for instance)..... WHOOPS!! I reread this and my apologies.....LOL. I didn't mean to infer that you were not normal......I was referring to the Laetrile weirdos and other assorted wingnuts on here. If I had the time and energy, there is a news program that allows you to cut out crossposting, but I just killfile the IP's & safires of this world. Bowing profusely.....& ROFL!! Heather > "J" <nswex@nalid;"no> wrote in message > > Just wondering how the posting time presents an issue for you? [quoted text clipped - 14 lines] > post on the ng is "9.49". You can easily check this one cuz it is only > 3 days old. Hello Heather, I just checked and it says 8:49 pm. Marc's is set to -500 (just like mine). I think yours is wrong, unless Toronto extends way out Eastward.. Do you find yourself getting to appointmenrts late? <g> Xela's in Boston which is probably Atlantic time. http://en.wikipedia.org/wiki/List_of_time_zones > You are showing a time difference to Greenwich/Zulu/Zero/whichever of 5 > hours, but now that we are on DST, it is only 4 hours. It is difficult [quoted text clipped - 10 lines] > > Cheers.....Quirky. (only have one other, lol) Sorry. I'm not changing mine. I'd be late for appointments. When it springs forward 1st Sunday in April, I'll change it back one hour. I hate to ask what your other quirk is. But Top posting, is like reading the page of a book backwards. (from the bottom of the page up). <g> J Inline for Madame "J"....grin. >> Date: Sun, 23 Mar 2008 ****20:49:00 -0500**** >> From: J <nswex@nalid;no> [quoted text clipped - 10 lines] > I think yours is wrong, unless Toronto extends way out Eastward.. > Do you find yourself getting to appointmenrts late? <g> Nope, grin. I am chronically late for everything, but usually only 5 or 10 minutes. Sorta doesn't go with a clock obsession, eh? > Xela's in Boston which is probably Atlantic time. > http://en.wikipedia.org/wiki/List_of_time_zones Xela is in the same time zone as you and me...Eastern Standard. Using the above page and going into it a bit further (UTC minus 5 to be exact) gives the following: http://en.wikipedia.org/wiki/North_American_Eastern_Time_Zone Note first paragraph on time zones. Hey, I taught astrology for kicks at night school for a couple of years, so do know my time zones pretty well. However, I use GMT rather than UTC as a point of reference. Military uses "Zulu or Zero Hour". > Sorry. I'm not changing mine. I'd be late for appointments. When it > springs > forward 1st Sunday in April, I'll change it back one hour. Hokay, Jose.....or Josette (giggling to myself because I am using the spanish pronunciation) > I hate to ask what your other quirk is. But Top posting, is like > reading > the page of a book backwards. (from the bottom of the page up). <g> > J Oh boy, now getting after me for top posting. The line forms behind me for that. I think I shall add "stubborn" to that short list of quirks, LOL!! I LIKE top posting. And on the Microsoft news groups, we give people hell who bottom post. (evil grin).... Have a good weekend, old sock.....Heather > Inline for Madame "J"....grin. > Nope, grin. I am chronically late for everything, but usually only 5 or [quoted text clipped - 7 lines] > gives the following: > http://en.wikipedia.org/wiki/North_American_Eastern_Time_Zone My apology. You're right. We're all in the same time zone according to a map I found at wikipedia. http://en.wikipedia.org/wiki/Image:Timezoneswest.PNG The mystery continues > Note first paragraph on time zones. Hey, I taught astrology for kicks > at night school for a couple of years, so do know my time zones pretty [quoted text clipped - 16 lines] > for that. I think I shall add "stubborn" to that short list of quirks, > LOL!! Le's leave this one for now. > I LIKE top posting. And on the Microsoft news groups, we give people > hell who bottom post. (evil grin).... > > Have a good weekend, old sock.....Heather Thanks Heather. If you took a break you missed all the fun. <rolls eyes> <g.> I hope you had a good one. J >> Have a good weekend, old sock.....Heather > > Thanks Heather. > If you took a break you missed all the fun. <rolls eyes> <g.> > I hope you had a good one. Had a good one, thanks. I am now designing jewellery and found the *perfect beads* on Saturday, so must get at that. However, I peeked in at the "certifiable lunatics/spammers/wingnuts" at least once a day. Where on earth did you pick these cretins up?? The odd one I recognize from other groups and their main goal is simply to disrupt and destroy. As you can't moderate an ALT group, all you can do is killfile them. OTOH, one could use a different name and drop this group off the list and say rude things to them.....ROFL!! Believe me, I have been VERY tempted. Cheers for now.....bedtime here in the GTA....(11:15 pm) Heather
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