>> I've been reading up on Zeolites.
>> Anyone know anything about it?
[quoted text clipped - 6 lines]
> Stay with us and let us get to know you and support you.
> J
> J:
>
[quoted text clipped - 10 lines]
>
> Any advise or personal experiences would be appreciated.
Hello Dan,
Thanks for your reply and your question.
I'm not an expert; just a Canadian being here with cancer patients, during
their journey.
I searched the internet for "stomach cancer " and specialists" and quite a few
hospitals showed up.
What was on their "menus" of treatments seemed standard fare.
I was just reading that a Canadian Dr. Natalie Coburn of Princess Margaret
Hospital in Toronto used a federal cancer database for her study. Five-year
survival was more than twice as high in Hawaii than in Utah, where surgery was
poorest. Because Hawaii removes more lymph nodes.
<http://www.usatoday.com/news/health/2005-05-16-cancer-surprise_x.htm >
Late maybe for you, but I'd wonder what other info she's collected about
stomach cancer, if she's still there.
The highest incidences of oesophageal and gastric cancer are in Japan, South
America, Eastern Europe and the Middle East. Vietnam and Thailand are mentioned
as well elsewhere. I'm not suggesting you fly to Hawaii. I think I'd want to
go for a mulit-disciplinary consult at a hospital where a specialist of
Japanese or Hawaiian descent was taking a special interest in stomach cancer
and has his (or her) pulse on what is being done (stage per stage, grade per
grade) in other countries. And the numbers of successes (improvements in
survival) vs (and falures) for each.
This is one that caught my eye, a few years back
http://www.news-medical.net/?id=6500
not sure if Yang's still at cpmcnet.columbia.edu
Here's another with names at UMass
http://www.ncbi.nlm.nih.gov/pubmed/15567866
There's a Yang there, as well as 2 other Asian names and email address.
I don't know if the email is valid.
I would call the hospital and ask how to arrange for a consult and send a
followup package with details of my health history (and co-morbidties),
treatments already tried, some clinical trials, (see below) and ask them to do
the (above-mentioned) research first and be ready to answer my questtions and
with several potential plans of action which may include more surgery - next
stop for your cancer may be bone or liver (or both).
http://clinicaltrials.gov/ct2/show/NCT00098527
FR901228 in Treating Patients With Refractory Stomach Cancer or
Gastroesophageal Junction Cancer
http://clinicaltrials.gov/ct2/show/NCT00010270
LMB-9 Immunotoxin in Treating Patients With Advanced Pancreatic, Esophageal,
Stomach, Colon, or Rectal Cancer
http://clinicaltrials.gov/ct2/show/NCT00003524
Antineoplaston Therapy in Treating Patients With Stomach Cancer
http://clinicaltrials.gov/ct2/show/NCT00004988
Treatment of Patients With Cancer With Genetically Modified Salmonella
Typhimurium Bacteria
http://clinicaltrials.gov/ct2/show/NCT00358397
One Time Injection of Bacteria to Treat Solid Tumors That Have Not Responded to
Standard Therapy
For the ones that are Phase I, I'd want to know if there's Phase II's anywhere.
And why one was suspended.
There's probably lots more clinical trials for stomach cancer, but I picked
some of these because a head and neck cancer patient strongly believes in
something called Coley's toxins, which I believe is or was bacteria, so why not
try these under a controlled and safer environment, if the hospital is willing,
but would want to know if it's followed by chemo Or if the afore-said protocol
could be followed.
He went away, angry at me; I asked him to stop posting long unproven therapies,
but shortly after, I noticed they were working with same or similar in clinical
trials.
So here's his post, if you want to print it up for when discusssing with a team
of doctors, or if there's a hospital name that is more attractive to you.
< http://groups.google.com/group/alt.support.cancer/msg/cb9e1f38b4295761 >
There's almost 300 subscribers to the ACOR mail list for stomach cancer.
You could ask there as well. As to who is the longest survivor (or was) - stage
per stage, grade per grade, type per type) and what protocols he or she
followed. They may have better ideas, suggestions than I do.
Sorry, this post is so long.
Please keep in touch and let us know what you plan and how you're doing, as
able.
J
J - 29 Jan 2008 13:25 GMT
> > J:
> >
[quoted text clipped - 15 lines]
> per stage, grade per grade, type per type) and what protocols he or she
> followed. They may have better ideas, suggestions than I do.
Sorry. I forgot the ACOR url
http://www.acor.org/mlists/mlists.html
Click on S, then Stomach - Onc to join.
You can unsubscribe at any time.
Give it a whirl and see what's the buzz amongst them.
J
Dangerous_Dan - 30 Jan 2008 02:12 GMT
>> > J:
>> >
[quoted text clipped - 25 lines]
> Give it a whirl and see what's the buzz amongst them.
> J
Wow!! Your thorough.
Great info. It's going to take me some time to go through it all
A little more info on my case.
In August of 2007 I was told that I had cancer of the stomach.
The plan was to give me chemo to shrink the cancer as much as possible and
then remove the stomach with good intestinal parts.
So I was put through 6 treatments of chemo and with a change in diet, I
immediately started feeling better. I was able to start eating large
portions of food, and the pains went away(I also gained my weight back).
Another CTScan now in mid-January showed cancer retreating, however an
Intern comparing results from August-2007 CTScan vs. January-2008 CTScan
started telling me the cancer
was less now in the Limphnodes and lower intestine (for which I didn't know
it had spread).
When my oncologist came to talk to me, he admitted that there's no chance
for my
survival in 5 years. I don't blame him for not telling me the whole truth
at first,
he wanted to keep my hopes up.
Cleveland Clinic is #1 for Heart Disease, however they're not #1 for cancer
treatment.
Therefore I'm on a mission to find other hospitals/doctors/treatments with
better results.
Your info will help me greatly.
From the bottom of my heart
Thank you J
xela56 - 30 Jan 2008 04:03 GMT
>>> > J:
>>> >
[quoted text clipped - 54 lines]
> From the bottom of my heart
> Thank you J
Have you looked at US News and world report they give a list of the top
cancer hospitals.
http://health.usnews.com/usnews/health/best-hospitals/search.php?spec=ihqcanc&
Cleveland Clinic is listed as number 17 which is very good.
xela56 - 30 Jan 2008 04:09 GMT
>>> > J:
>>> >
[quoted text clipped - 54 lines]
> From the bottom of my heart
> Thank you J
Clevaland Clinic is listed Number 17 in US news and World report
http://health.usnews.com/usnews/health/best-hospitals/search.php?spec=ihqcanc&
also they are a NCI hospital. They should have a patient library staffed
with a person to assist you in searching.
The internet is great, but hospitals the size of Cleveland Clinic have
access to studies that have not made there way on to the internet for all to
see.
Best of luck on your quest.
Dangerous_Dan - 30 Jan 2008 15:07 GMT
>>>> > J:
>>>> >
[quoted text clipped - 70 lines]
>
> Best of luck on your quest.
Thanks for the info xela56
J - 31 Jan 2008 11:36 GMT
> "J" <nswex@nalid;non> wrote in message
>
[quoted text clipped - 33 lines]
> From the bottom of my heart
> Thank you J
You're welcome, Dan.
I wondered why they hadn't done surgery. it had spread too far.
Thank you for explaining.
We have to be careful when going for 2nd or 3rd opinions that others won't tell
us what we want to hear instead of being realistic. Same for suggestions; and/or
the clinical trials I posted; Don't want you to die trying a dangerous treatment
or getting false hope when the treatment hasn't panned out for others.
http://groups.google.com/group/alt.support.cancer/msg/cb9e1f38b4295761
This (above) worries me.
I think Matti had tonsil cancer but was a younger man, so could tolerate the
treatments.
I thought it was just one treatment, but I see he's mentioned "the next one".
Then it mentions a patient who had a sarcoma in the neck area - one tumor. You
probably have multiples?
He also mentioned Steve Dunn http://cancerguide.org/sdunn_story.html (his
story). I think he was "younger".
I think he spent a year in hospital during some of the toxic treatments, and
then had more. IL-2 (etc)
(check me though - for his age and "downtime")
There have been others here, just as determined, trying IL-2 and mostly "down"
during treatment, his age and some older, who could not tolerate the treatment's
had to be stopped or reduced in dose.
So while I celebrate the vitories, I also have to tell you that they're rare. I
worry I've leaned you toward something that might be life-ending.
Before you make any decision, make sure you know the goal and whether taking
chemo would negate the "Coley" or a clinical trial. And the trials were Phase I
and II (still checking for safety).
I have lots to say; more later.
Anything hopeful from the ACOR group?
Best,
J