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Medical Forum / Diseases and Disorders / Cancer / January 2004Rob's Latest MRI results
I hesitated to post this because so many people were dealing with bad news at the time, but Rob got the latest results back from his MRI. To Recap for those who don't know: My husband Rob, was diagnosed and operated on for brain cancer on August 23, 2002. The cancer looked like stage 4 GBM at first, but the biopsy came back saying stage 3 Malignant Anaplastic Ogliodendroglioma. Rob was told that he had an "average" life expectancy of 2-15 years. We don't know as the chemo he was given has only been in use for 2 years. Rob has also received radiation therapy along with the chemo. Every three months, he is to have an MRI, along with regular monitoring of his body chemistry and so forth. The MRIs say that he's had no change in his tumors. This is great news for us, as the only other change would probably be to grow. So we're feeling a bit of relief until three months from now when the next MRI is due. I think I'm living on a roller coaster, but oh man, what a ride. Pam S. That's great news Pam, Please do not feel that you cannot post good news. We all need to hear good news even if it is not in our own life. It is still great to hear that someone else is able to fight and keep this disease under control. Please keep us up to date. Go out and have a nice dinner with your family, it is a time to enjoy the small miracles that life offers. Even if it is good news for the next three months, it can help with the nerves until the next set of tests, that we will pray turn out with good news as well. For now, enjoy. Keep us posted. Salisha > I hesitated to post this because so many people were dealing with bad > news at the time, but Rob got the latest results back from his MRI. [quoted text clipped - 14 lines] > > Pam S. Great to hear some good news for a change Pam, I bet you are both relieved. Life is one big roller coaster ride honey <g>. Hugs Alayne > I hesitated to post this because so many people were dealing with bad > news at the time, but Rob got the latest results back from his MRI. [quoted text clipped - 12 lines] > feeling a bit of relief until three months from now when the next MRI is > due. I think I'm living on a roller coaster, but oh man, what a ride. Hello Pam, I'm glad you posted. How's Rob doing? Your first description "brain was pushed clear over to the side of his head" was a little startling. Is he functional and able to enjoy life now? I'm still trying to find "timidar". Google's usually very good at taking a guess at a word, if it's not spelled correctly and I'm running into a lot of nothing on searches. If you find out more, do let us know. Now you've got me curious as to what this "new" chemo is. My thoughts are with you both and hope the next MRI is positive news. Hugs J > > I hesitated to post this because so many people were dealing with bad > > news at the time, but Rob got the latest results back from his MRI. [quoted text clipped - 26 lines] > Hugs > J It's Temodar. I have a friend who is currently taking it for tumors he has developed in his spine. It's working quite well for him right now. Cleared one of the three away completely and reduced the size of the other two. Kim C > I'm glad you posted. How's Rob doing? Your first description "brain was > pushed clear over to the side of his head" was a little startling. Is he [quoted text clipped - 8 lines] > Hugs > J Thanks J. Rob is amazing. If you didn't know what was wrong with him (and he's quite willing to tell anyone who's curious all about it), you'd think he'd cut his head in an accident. Not only is he functional, but he is busy putting his life back together. He has been taking his life back in a big way. He has memory lapses, some memory loss, and some personality changes, but one wouldn't know about the last, unless one knew him very well indeed. He had to relearn how to walk (he was walking in a couple of days and running within a week) and how to take care of himself after the operation. He recovered so quickly, that the doctors and staff at the rehabilitation center were impressed. Rob tends to spend his days, playing on the PS/2, reading, cleaning the house (or what he considers cleaning house), napping and making simple meals. The later is impressive to me, as he used to burn water. He takes walks on occasion (not enough to make me happy though) and rides a stationary bike while either watching TV or reading. He built an enclosure for our cats back in September, with the help of our kids, and did a fine job designing and putting it together. He misses working with and around helicopters, and his buddies from his old unit, the 57th Medical Company, which is currently deployed in Iraq and we hope will be home soon. Along with the slight personality changes, I've noticed that Rob needs more sleep. I was worried that it was a sign of depression, but his oncologist pointed out to me that this is part of the healing process and Rob needs that time out to help his brain re-connect. Basically, for me to leave the man alone. I had Rob look up the name of his Chemo, and he said it is Temodar (Temozolomide). His military oncologist is impressive and his civilian radiologist and the staff at the local hospital are totally awesome. They've been with us every step of the way. I just hope that he continues to have great people working with him as he does now. Pam S. > Thanks J. Rob is amazing. If you didn't know what was wrong with him > (and he's quite willing to tell anyone who's curious all about it), [quoted text clipped - 32 lines] > > Pam S. Thanks for the clarification Pam (and to Kim S also) I checked the archives and apparently Curly was the last mention of that med, (2001), so no wonder the name did not click ! I think he was taking it as 2nd or 3rd line treatment, which the FDA may have been initially approved it for. Perhaps they start new meds that way while they continue to make sure there's no adverse events? So the others before Rob have "crash-tested" the med for Rob..so he can now start it "first-line"? (question because I don't really know). He sounds very talented. You are all truly blessed to have such a full and interesting life. helicopters, designing cat enclosures, travel, camping, kids, computers, and cooking? Wonderful ! Hugs J tanada@NOSPAMearthlink.net said... > The MRIs say that he's had no change in his tumors. This is great news > for us, as the only other change would probably be to grow. So we're > feeling a bit of relief until three months from now when the next MRI is > due. I think I'm living on a roller coaster, but oh man, what a ride. I'm very glad to hear that. Here's hoping it continues to be good news for you both. Anytime I can hear good news abour a cancer patient ... I'd like to hear it. Makes me feel that somewhere ... in some way ... someone's winning the battle! Larry > I hesitated to post this because so many people were dealing with bad > news at the time, but Rob got the latest results back from his MRI. [quoted text clipped - 14 lines] > > Pam S. >Subject: Rob's Latest MRI results >From: Tanada tanada@NOSPAMearthlink.net >Date: 1/27/2004 >I hesitated to post this because so many people were dealing with bad >news at the time, but Rob got the latest results back from his MRI. >The MRIs say that he's had no change in his tumors. Thanks for posting Pam. Always nice to hear good news. Kathy J |
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