Does anyone know where I can obtain detailed information about the effects
of primary liver cancer, preferably from the early stages to the end. I
know the effects vary by person but if I knew the possible or range of them,
then, hopefully I could research and plan out what to do for my
father-in-law who has the disease but refuses treatment and wants to spend
the remainder of his time at his home. His doctor is not very helpful to
say the least, the Canadian Cancer Society has provided less information
than I have read in my Merck manual, I have been checking the internet for
days now, I have sent out numerous emails to various cancer organization et
cetera.
If you have any ideas, I would greatly appreciate it.
Thanks
Connor
Jan den Hollander - 29 Jan 2004 02:48 GMT
> Does anyone know where I can obtain detailed information about the effects
> of primary liver cancer, preferably from the early stages to the end.
did you look at the site of the National Cancer Institute,
http://www.cancer.gov/cancer_information/cancer_type/liver/ or OncoLink
http://www.oncolink.org/types/article.cfm?c=5&s=15&ss=113&id=1738
Mike Radcliffe - 29 Jan 2004 03:42 GMT
> Does anyone know where I can obtain detailed information about the effects
> of primary liver cancer, preferably from the early stages to the end. I
[quoted text clipped - 12 lines]
>
> Connor
You say yourself that the effects can vary by individual. No book or article
is going to tell you how any one person will go.
Instead of looking under primary liver cancer you should check out liver
failure generally because that is what is going to happen as the tumour
grows and spreads within the liver.
In the very early stages there may not be much in the way of symptoms,
possibly just a general malaise.
There is probably going to be some nausea, certainly loss of appetite and
as the liver swells and stretches the surrounding capsule there is likely o
be a fairly constant dull ache with occasional sharp severe pain as it gives
slightly or small blood vessels bleed into it.
The pain almost always responds well to analgesia and will probably not
present much of a problem.
Changes in the blood will probably cause some fluid to collect in the
lower limbs (oedema) and abdomen (ascites) as well as reduced clotting
ability and jaundice in the later stages.
Whether the tumour is primary or secondary makes no difference. Cirrhosis
from alcohol abuse or hepatitis, toxicity from paracetamol (acetomenaphen)
and other drugs or obstruction of the bile duct from outside causes will all
essentially do the same thing if untreated.
how well or not primary liver cancer responds to treatments is a question
for others but certainly the longer it has been there the (much) less likely
it will have any benefit.
MIKE
J - 29 Jan 2004 12:09 GMT
> Does anyone know where I can obtain detailed information about the effects
> of primary liver cancer, preferably from the early stages to the end. I
[quoted text clipped - 6 lines]
> days now, I have sent out numerous emails to various cancer organization et
> cetera.
Hello Connor,
I'm very sorry to hear about your father-in-law.
You sound very frustrated. I'm glad you found us.
You are correct, most cancer centres, societies, web sites focus on the
treatment angle.
To not do so, would perhaps be depressing/discouraging for those (with cancer)
who are treatable.
I see that the website that Jan posted says the following "Untreated patients
usually die in 3-4months".
That seemed to be true of a chap that I tried to help in his father's case (some
years ago on this newsgroup).
He was diagnosed in May and was awaiting referral to a cancer centre nearby here
to discuss treatment options.. and his son was frustrated at the wait. In the
meantime, he got jaundice and went into liver failure and died. (all within 3
months).
I suppose some depends on other health issues also. A younger man with no heart
condition, no diabetes and small tumour(s) might vary slightly from an older man
with a heart condition, and/or with heavy liver involvement on diagnosis
(cirrhosis), could slip away faster or even surprise everyone by passing away
from an undiagnosed heart condition or infection or pneumonia. All this to say,
(since he wants to die at home), your next move is to make sure that:
1) all his affairs are in order
There's some lists here (the last 2 sections)
http://www.cancer.gov/cancerinfo/advancedcancer
the tough issues are discussed there including section 5 - the "Choices for
Care" sections about living will, DNR, Power of attorney of care, funeral etc.
He may have signed a power of attorney of care at a cancer centre, but hospice
(below) might want to revisit that with him and family, to make sure most issues
have been put on paper. This relieves the carers of the burden of not knowing
which choice to make, as events occur.
2) You contact a palliative care service as soon as possible. (Hospice) - (maybe
in the yellow pages of your phone book or through the social services department
of your local cancer centre or general hospital). Hospice does come to the home
and along with caring for your father-in-law can be a tremendous source of
support for the carers and family members.
What you want is for your father-in-law not to suffer needlessly. Hospice is
excellent at that. Even if someone at home has nursing-type experience, pain
prescribing, medicating and tweaking requires an expert. Do not leave it in his
doctor's hands, because some medications might be beyond what (s)he is permitted
to prescribe.
Mike's an expert in palliative care in Australia, so he knows what he's talking
about.
.
We also currently have several "main carers" on the newsgroup.
If I can be of assist on any Ontario or Cdn issues, post anytime.
We can be here for you (or any member of your family) during the next difficult
months, on an ongoing and day-day basis.. and we will help you in any way that
we can whether it's practical issues, listening, caring.
Best,
J
Doug Eisele - 29 Jan 2004 17:53 GMT
Hi Michelle,
I am sorry to hear about your father-in-law. I am a cancer survivor.
Actually I am a chemo survivor.
I came very close to beating the cancer by natural means. It was the chemo
that almost killed me.
I can understand why your father-in-law is refusing treatment. Although this
is not a direct answer
to your I hope this will help. If I might be so bold as to say it 's not
near as important to know the the effects
as it might be to have some info on how how to help him. If he is not going
to do anything there is
a compound called hydrazine-sulphate that may bring some releif. Just type
it into any search engine
to find out more info.
Having been through this myself I am working hard to cancer proof my body.
If your father-in -law or
anyone else may be interested here is a web-site that may be helpful
http://www.2ndchance4me.com/cash.html.
Here are a few more urls that you might find helpful
http://www.goodbye2cancer.co.uk/
http://www.cancer-coverup.com/story/default.html
http://www.cancerchoices.com/apricot.htm
My best wishes,
Doug
> Does anyone know where I can obtain detailed information about the effects
> of primary liver cancer, preferably from the early stages to the end. I
[quoted text clipped - 12 lines]
>
> Connor
J - 29 Jan 2004 19:32 GMT
> Hi Michelle,
>
> I am sorry to hear about your father-in-law. I am a cancer survivor.
> Actually I am a chemo survivor.
Could a fooled us. The stench of spam and conspiracy theories fills your post.
And it's Connor, not Michelle.
Quack ! Quack !
http://www.quackwatch.org/00AboutQuackwatch/altseek.html
J