 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Cancer / January 2008Hi All, Hope your Holidays have been great......
I am checking in. It has been a long time I know, but we have been busy with the new Grandson and holidays and all. Hubby is stillhanging in there, but getting more tired much easier. He has accepted that this thing isn't going to go away, and told his Hospice Nurse the other day, "I am not afraid to die, I just don't want to leave everyone". He has a raspy voice now and spends more time in bed on the oxygen than he does up. His mind isn't good some days and he tends to be forgetful and easily distracted. We are enjoying every visit with the baby as much as possible and that is the thing I think that keeps Grandpa going. Take care all, Husband has Stage 4 NSCLC with metastases to the brain, multiple lesions. Diag 10/30/2006 Becky > I am checking in. It has been a long time I know, but we have been > busy with the new Grandson and holidays and all. Hubby is stillhanging [quoted text clipped - 13 lines] > Diag 10/30/2006 > Becky Hello Becky, Thank you for the update. It's good to see that grandpa's made it through to the joys of Christmas and still looking forward to making more memories. Blessings to you all. I'll be thinking of you. J Beckys883 <beckys_883@yahoo.com> wrote in news:8bb30038-70b8-41df-bd22- c80927d8bc79@x69g2000hsx.googlegroups.com: > I am checking in. It has been a long time I know, but we have been > busy with the new Grandson and holidays and all. Hubby is stillhanging [quoted text clipped - 13 lines] > Diag 10/30/2006 > Becky Becky, It's great to hear from you & to hear that you & Craig enjoyed another Christmas together with little Daniel. We all know the bittersweet quality of these occasions & how special the simple things can be. Are you still able to work from home? Hoping for lots more quality time for all of you. Thanks for checking in. Fig > Beckys883 <beckys_...@yahoo.com> wrote in news:8bb30038-70b8-41df-bd22- > c80927d8b...@x69g2000hsx.googlegroups.com: [quoted text clipped - 18 lines] > > Hi Fig, Same to you! I hope you had a good holiday. Yes still working from home. I work for a wonderful company and my manager is top notch. I discussed FMLA with the hospice nurse last week and she said I should probably look into my options. Mainly because as the days go on, I am increasingly tired and seem to be busy with work, house work, dinner dishes etc. Craig isn't up to helping out to much any more. They have started Craig on Haldol because he is getting anxious very easliy. So he has been having some weird dreams this week. I think their thought is to keep him in bed, but he wants to get up and do stuff so it will take a whole lot of something to keep him from doing that. It was a wonderful christmas, and while I know it is probably not going to be, I am hoping for another year. It has been 14 months. At times it seems like forever, and others not so long ago. Take care, Becky > Fig- Hide quoted text - > > - Show quoted text - > > > Husband has Stage 4 NSCLC with metastases to the brain, multiple > > > lesions. [quoted text clipped - 17 lines] > Take care, > Becky Hello Becky, It does sound like time for FMLA soon. You've been running high-paced for quite a while now. I'm sure you'll appreciate having more time with Craig and time to relax and catch your breath. My aunt stopped everything at my uncle's diagnosis; clubs, volunteering, committees and boards. Never regretted at all and picked up later where she'd left off. He had other thoughts about their thinking about keeping him in bed. Apparently he had several falls- nothing too damaging though. I can sure understand not wanting to spend a lot of time in bed; unless there was a wide-screen TV on the ceiling, for sports or movies and a roof window to visit with friends and relatives sun-bathing on the roof. <g> I wish I'd run that by my uncle at the time. I think he would have gotten a kick out of it. Wishing you many more sunshine, loving and laughing days together. Hugs J Beckys883 <beckys_883@yahoo.com> wrote in news:927d5eaa-a428-4139-888c- deea3a3cb7cd@n20g2000hsh.googlegroups.com: >> Beckys883 <beckys_...@yahoo.com> wrote in news:8bb30038-70b8-41df-bd22- >> c80927d8b...@x69g2000hsx.googlegroups.com: [quoted text clipped - 35 lines] > Take care, > Becky Hi, Becky, I'm with you all the way on FMLA. As you may know, it doesn't have to be either working or not. You can take off completely or just the hours you want. You could cut your schedule way back & still keep some of the work going. It wasn't an option for me as I was self-employed at the time, but I did start taking lots of Fridays off & I worked from home quite a bit. We'd go to ball games, out to eat &/or I could get caught up on chores/shopping. Stay in bed? Socks didn't until the final few days in the hospice facility & even then he'd sit in a chair sometimes. Toward the end I was concerned, but he promised not to climb stairs without calling me. I was amazed he still made it to the bathroom & would get himself to a recliner from his hospital bed at home. He mostly wanted to come upstairs at night & used the hospital bed during the day. He took a nasty fall on the stairs when his aunt was here with him, & I think that made him 'behave,' Make sure I hope Craig does OK on the Haldol. I understand some of those meds can cause some pretty frightening dreams, even waking dreams. If the dreams continue, maybe they could try some other med? Yeah, sometimes it seems liek you've been with us longer than that. Take good care, Fig >> Fig- Hide quoted text - >> >> - Show quoted text - > Beckys883 <beckys_883@yahoo.com> wrote in > [quoted text clipped - 20 lines] > you want. You could cut your schedule way back & still keep some of the > work going. I think she's already been doing that and is now wanting whole time devoted to Craig. > Stay in bed? Socks didn't until the final few days in the hospice > facility & even then he'd sit in a chair sometimes. Toward the end I [quoted text clipped - 8 lines] > cause some pretty frightening dreams, even waking dreams. If the dreams > continue, maybe they could try some other med? Thanks for replying, Fig. I meant to email you that Becky had posted, but i forgot. Sorry. J > > Beckys883 <beckys_...@yahoo.com> wrote in > > > > Same to you! I hope you had a good holiday. > > Thanks for replying, Fig. I meant to email you that Becky had posted, but i > forgot. Sorry. > J- Hide quoted text - Hi Fig and J, I went ahead with FMLA full time. The hospice nurse says that for the last several weeks she is seeing a steady decline. It is hard for me to see this because I am here everyday. But I have been reporting things to her like his feet being red, the nurse calls it dusky, his breathing seems to stop for several seconds and then starts again, he eats about 4 bites at meals and says he is stuffed, and he has lost weight to the tune of 10to 15 lbs every week or so. Judging by some of the things he says, the nurse and I both think the brain mets have started up again, she also thinks there is liver involvement. So....in my humble opinion, it was time for me to stop working to devote all my time to him. I think the nurse is very happy about it because she has been very worried about me over the last few weeks. She hasn't said, but FMLA is up to 12 weeks or 89 calendar days as our HR rep told me but I don't think I will use all of that up. The hospice social worker said that she had talked to the nurse and she agreed. It has been very hard the last couple of days because I am now seeing what has really been going on right in front of me but I didn't have time to stop and think about it. I see that we are headed to where we were last March. Sorry to go on and on. You guys are the best. Take Care, Becky > > > Beckys883 <beckys_...@yahoo.com> wrote in > > [quoted text clipped - 26 lines] > Take Care, > Becky Thanks for the update, Becky. I'll understand you wanting to be with Craig and family. Anytime (you feel like posting), I'm here reading and caring. Hugs J |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.