I have a question that has been bothering me for a long time. Why is
there such a loooooooong time between diagnosis of CRC and treatment?
It seems to me that if the lymph nodes or blood system are involved,
then millions, perhaps billions of cancerous cells are circulating the
body. Wouldn't it be prudent to stop this ASAP?
How long was it before you started chemo after diagnosis? I was dxed
Oct 31 and chemo won't start til next week. I did have a resection in
Nov 23 (again a rather long wait), but recovered quickly.
It's probably all in my mind, but how can I describe it, except by
saying I've got this "icky" (now there's a thoroughly medical term)
feeling about all these cells circulating and recirculating in my body
look for places to set up shop.
I constantly worry that one day's delay now may make a year or 5
year's difference later on. There has to be a point-of-no-return when
no chemo drug is going to help.
I wonder how long it is between diagnosis and treatment, when an
oncologists gets cancer !!!
____________________________________
"Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:33 (adapted)
R. Martin - 09 Jan 2004 07:57 GMT
> I have a question that has been bothering me for a long time. Why is
> there such a loooooooong time between diagnosis of CRC and treatment?
*I also asked myself the same question as yours. I was diagnosed in 1998
with anal cancer ( which is treated only by radiotherapy and chemo, no
surgery ). The doctor who diagnosed me told me it was serious ( perirectal
lymphnode involved ) he rushed for me to have complementary exams, such as
endorectal sonogram and CT scan .... then told me that I would be put on a
WAITING LIST and that they would call me when there would be room for me in
the radiotherapy ward...
Of course, I got very mad, so did my husband and I eventually went to
another hospital where I received my first treatment after a week or so.
Apparently, waiting a couple of weeks is not dangerous. My step mother was
diagnosed with ovarian cancer in July. She told her surgeon she intended to
be away for vacation for one month and he agreed. She got her surgery only
in early September.
Don't worry anyway; it's like that for everyone .... It's probably a better
sign for you than if they had decided that you had to have your treatment
start within 24 hours of your diagnosis; this would have meant it was much
more serious than what you have.
Good luck for your journey with cancer.
Regine
J - 09 Jan 2004 09:18 GMT
> I have a question that has been bothering me for a long time. Why is
> there such a loooooooong time between diagnosis of CRC and treatment?
[quoted text clipped - 5 lines]
> Oct 31 and chemo won't start til next week. I did have a resection in
> Nov 23 (again a rather long wait), but recovered quickly.
Hi Joe,
Was the surgery open or laparoscopic ? If the former, I would expect a month's healing, the latter two
weeks at least, regardless of how you felt, then there was a PET scan in there and paperwork for the
clinical trial, and Christmas and New Year's..bureaucracy sometimes slows down a bit because of
holidays..
J-wondering
Joe-46er - 09 Jan 2004 14:12 GMT
>> I have a question that has been bothering me for a long time. Why is
>> there such a loooooooong time between diagnosis of CRC and treatment?
[quoted text clipped - 12 lines]
>holidays..
>J-wondering
J:
Yeah it was all those things. Add into the equation my employer's
change-over to a new insurance carrier Jan 1. All of these tests,
appointments, etc are incremental. They're often done at different
sites and they expand (I think unnecessarily) the wait time until
chemo begins. In the meanwhile I'm going crazy with every delay. I
don't buy in to the "it won't make that much difference" argument. My
onc said the same thing. It HAS to make a difference somewhere along
the line. I had my first CTScan the day after dx. It showed the tumor
and the radiological report said no other involvement noted. Most
recent scan shows mets in my liver and r lung. You can imagine what
I'm thinking -- that I've got a particularly virulent cancer and that
its moved from Stage III to Stage IV quickly and that the delay
allowed it to happen. If I was diagnosed with malaria, the doctor
would give me a shot within hours. If I sound panicky, it's because I
am.
_________________________________
"Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:33 (adapted)
J - 09 Jan 2004 14:45 GMT
> Yeah it was all those things. Add into the equation my employer's
> change-over to a new insurance carrier Jan 1. All of these tests,
[quoted text clipped - 11 lines]
> would give me a shot within hours. If I sound panicky, it's because I
> am.
Hi Joe,
Well I'm no expert, but seems to me if the chemo's going to work, it will.
I think I read where some cancers can become chemo specific resistant
So perhaps we could think..some delay will allow some cells to spread, but more to zapparoo
(hit it hard at the beginning)
then maybe drop down (for the longer haul) to something gentler like Genzar ?
OR this has been a "dry run" so you can anticipate future problems and
nip them early.
OR keep your eye on the prize, if not cure, extending your quality life.
OR maybe trying one set of chemos and if they fail, will allow you to enter the
lottery for Erbitux? Or it will be on the market, by the time you've done the current course?
Don't mnd me, maybe I'm just making stuff up to help you feel better.
Hope you get the port sorted out soon. Go get 'em, Tiger !
J
Joe-46er - 10 Jan 2004 02:48 GMT
>> Yeah it was all those things. Add into the equation my employer's
>> change-over to a new insurance carrier Jan 1. All of these tests,
[quoted text clipped - 30 lines]
>Hope you get the port sorted out soon. Go get 'em, Tiger !
>J
Yeah! I see your point. That the cancer is either gonna get zapped or
not. The amount of cancer cells in my bod is not the issue, but rather
the effectiveness of this or that chemical on my kind of cancer cells.
Had not thought of that. Thanks.
_________________________________
"Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:33 (adapted)
Peter L - 09 Jan 2004 17:10 GMT
> I have a question that has been bothering me for a long time. Why is
> there such a loooooooong time between diagnosis of CRC and treatment?
[quoted text clipped - 17 lines]
> I wonder how long it is between diagnosis and treatment, when an
> oncologists gets cancer !!!
I think it depends. I was dx in October, 2002. Did not have the surgery
until dec. 20. In between there were a number of tests. My GI doc said
that colon cancer is typically very slow growing.
> ____________________________________
>
> "Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:33 (adapted)
Emily - 09 Jan 2004 22:48 GMT
nobody@nospam.com said...
> I have a question that has been bothering me for a long time. Why is
> there such a loooooooong time between diagnosis of CRC and treatment?
Probably because the symptoms that are first noticed could be due to
a number of things. Can you imagine going to a doctor with
something and him saying to you "Well it could be cancer" straight
off? Can you imagine what that would do to some people? It's such
a serious diagnosis that I would think the medics would want to rule
out every other possibility first. Rectal bleeding can be a sign of
inflammatory bowel disease, or haemorrhoids, or even just a small
cut or scratch. And yes, it can also be a sign of cancer. But can
you imagine being told you might have cancer when all the time it is
just piles? I think it's much better for the medics to be certain
of their diagnosis before dropping such a bombshell, especially as
the word 'cancer' still carries such an awful stigma with some
people. I am not a doctor, so I don't *know* - but FWIW I'd be
prepared to take a bet (except that I don't do betting) that it's
not far from the truth. Certainly I would expect a GP to go through
several options before referring to an oncologist unless he was sure
in his own mind right from the start that cancer was a possibility.
J - 10 Jan 2004 00:42 GMT
> [snip] Rectal bleeding can be a sign of
> inflammatory bowel disease, or haemorrhoids, or even just a small
> cut or scratch. And yes, it can also be a sign of cancer.
There's a younger lady on another NG who has
"Unexplained nocturnal rectal bleeding with no obvious cause"
Scratchng my head over that one. - J
alexk - 10 Jan 2004 12:59 GMT
You had surgery at the end of Novernber, most oncologists like to wait at
least 6 weeks for healing to complete. Surgery is a major stress on your
body it takes awihile for your body to get back to a good baseline. The
majority of the tumor ( I assume ) was removed with the surgery and the
chemo is just cleaning up the rest of the cancer. I agree the wait is
horrible!
In answer to some other of your questions, chemo needs to be given in a vein
that is large and stable....the veins in your legs tend to be very difficult
to access and unstable for infusion. The chemo nurses are experts in this
area if their is a vein they will find it but your port will eliminate that.
As far as the power of positive thinking it has been proven people who have
a good attitude have better outcomes. I am a member of the Wellness
Community
http://www.thewellnesscommunity.org/about/about.htm I find this a wonderful
organization which believes in patient empowerment.
Alex
> I have a question that has been bothering me for a long time. Why is
> there such a loooooooong time between diagnosis of CRC and treatment?
[quoted text clipped - 21 lines]
>
> "Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:33 (adapted)