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Medical Forum / Diseases and Disorders / Cancer / November 2007Roll Call (November/ 07)
Roll Call (November/ 07) Please join the roll call. You or a loved one has cancer. All types of cancer, including advanced breast or prostate cancer. Earlier stages of breast or prostate cancer see: alt.support.cancer.breast or alt.support.cancer.prostate (I'm sure they would be happy to have an update from you) Please: 1) delete my message, when you reply and 2) Please specify your type and stage of cancer 3) Introduce yourself (What's on your mind)- no full names please nor other personal information - remember this is a public place.. Regulars - please Update us, if you've not done so for a while. A lot of you have been quiet for quite a while. Look forward to hearing from you. (good or bad news - we're here for you) J > Roll Call (November/ 07) > [quoted text clipped - 21 lines] > you) > J Wanna guess? I have an appt today with my Onc Doc. So far I have had tumors in my right lung, 2 on the back of my esophagus, one above my left collar bone and one big momma on the head of my pancreas. All tumors responded well to a combination of radiation and chemo. The momma on the pancreas only shrunk it in half. Guess that is good. Now we are experiencing pains in the right and left kidney area. Scared silly. I am not sure why. Bad posture? Could be. Need to get a sturdier chair to sit at my computer? I guess I will have to let her know. I will chack back when I have some definite info. BetsyB >> Roll Call (November/ 07) >> [quoted text clipped - 34 lines] > > BetsyB One more try in a couple weeks. Got another mess to check while I am waiting. Get this darn wire removed from my belly. It's becoming a real pain. Betsy > "betsyb" <betsy958@TRASHoptonline.net> wrote in message > > "J" <nswex@nalid;non> wrote in message. [quoted text clipped - 17 lines] > > Betsy Phew! Another try with rads, Betsy? I'm sorry about the wire (don't know what it is). Did someone check your urine for infection? Worth a shot? Send a clean catch in sterile container to GP or onc? Has to be fresh or in fridge no more than 4 (or 6?) hours. Hang in there, pal. J >> "betsyb" <betsy958@TRASHoptonline.net> wrote in message >> > "J" <nswex@nalid;non> wrote in message. [quoted text clipped - 31 lines] > Hang in there, pal. > J No Rads, J, just another run at chemo. The wire is the T-tube they inserted to drain off the bile put out by my screwy liver. Been disconnected for three months and I seem to be passing everything just fine. > "J" <nswex@nalid;non> wrote in message > > [quoted text clipped - 37 lines] > disconnected for three months and I seem to be passing everything just > fine. Oh, I see.Thanks for explaining the wire, Betsy. Wear rubber soled footwear, in the interim, so you stay grounded if lightning strikes. :p J Guess it's about time to check in. I was diagnosed with SCLC May 29, 2003. No nodes affected, but some fluid in the lower lobe of my left lung. Pneumonia in the upper lobe. Aggressive treatment straightened out the lung problems. and got the cancer. It was no walk in the park, but I lived through it. Mets to my brain a few weeks after the chemo was over. Whole brain radiation got the mets, but one popped up a month later, and I went to Stanford for CyberKnife treatment. By Jan 2004 the cancers were gone and I've been NED since then For some unknown (to me) reason, I am in the 1% of people who make it this far out with SCLC. In a few months I will get another set of scans and if they are still clear, the doc said he may be tempted to use the "C" word (cured). Easy for him to say. He doesn't live with the dread that the next scan might find something. Reading this NG over the past years has shown me that there are folks out there who had it a lot worse than I did. My cancer was detected early, and dealt with very aggressively which I consider the reason I was allowed to be typing this so far out from my original dx. Tonight I am going to a Cherryholmes concert. <http://cherryholmes.musiccitynetworks.com/> I saw them on Leno a few months ago and loved 'em immediately. When I found out they were coming to Carmel, I got my tickets. But then, I am a sucker for fiddles and banjos.  SignatureAfter four decimal places, who cares? Bob in Central California > Guess it's about time to check in. > [quoted text clipped - 24 lines] > out they were coming to Carmel, I got my tickets. But then, I am a sucker > for fiddles and banjos. Kewl a bluegass band in Arizona. Lucky you ! Was it in an open venue? I hope you enjoyed it for me as well. :) J PS I lied last time. I wouldn't count chickens until late 2008. But if your onc declares a cure earlier, I'll raise a glass with you. Every day's a bonus as we get older. > Guess it's about time to check in. > [quoted text clipped - 28 lines] > > Bob in Central California Thanks for the wonderful update. It is good to hear about people who have stage IV cancer and are doing well. Glad you had the option to go to Stanford for treatment. You beat the odds and had to opportunity to get the cyberknife. J wrote in alt.support.cancer: > Roll Call (November/ 07) Melanoma with lung mets. Not much happening. Haven't had any treatment for about 4 months. I have an appt on Friday with a new onc, the last one told me there was nothing he can do. Not suggesting there is anyhting the new one can do either, but I think he might have some more treatment for me. > J wrote in alt.support.cancer: > [quoted text clipped - 4 lines] > me there was nothing he can do. Not suggesting there is anyhting the new > one can do either, but I think he might have some more treatment for me. Thinking of you, Jacques. How did things go, Friday? J J wrote in alt.support.cancer: > Thinking of you, Jacques. thanks > How did things go, Friday? Might be on the mdx-010 if I'm lucky. It seems to stabilise the disease in about 20% of patients, so I'll give it a try if it's offered. I'm starting to feel a bit like a football. Doctor 2 has referred me back to doctor 1, who has already told me he was raising the white flag and there was nothing more he could do. So this should be an interesting appt. Maybe Doctor 1 will give me the mdx-010. Maybe not. > J > J wrote in alt.support.cancer: > [quoted text clipped - 6 lines] > more he could do. So this should be an interesting appt. Maybe Doctor 1 > will give me the mdx-010. Maybe not. Hello Jacques, I forget if you've mentioned that one before. It seems to be called Ipilimumab It says it's ongong, but not recruiting http://clinicaltrials.gov/ct2/show/NCT00289640 I also found that the FDA has fast-tracked a combo of MDX-010 in combination with MDX-1379, a melanoma vaccine. W http://www.medarex.com/cgi-local/item.pl/20041005-623388 So I've been looking around clinical trials, whose front end has been changed, so took me longer, for MDX-010 in Australia and this is the other one I found http://clinicaltrials.gov/ct2/show/NCT00324155 Dacarbazine and Ipilimumab vs. Dacarbazine With Placebo in Untreated Unresectable Stage III or IV Melanoma This study is currently recruiting participants. So then I searched MDX-1379, and found this one http://clinicaltrials.gov/ct2/show/NCT00094653 MDX-010 Antibody, MDX-1379 Melanoma Vaccine, or MDX-010/MDX-1379 Combination Treatment for Patients With Melanoma This study is currently recruiting participants. But there's no location :Australia (that I could see(check me on that please) I can see why they'd want to compare one to the other and then to the cominatin, but if it's not in Australia, that leaves you out in the cold, on that one? If they're planning on have similar in Australia, or only in the US? Some food for thought or questions for the oncologist. Got to go now. Falling asleep :) J J wrote in alt.support.cancer: >> J wrote in alt.support.cancer: >> [quoted text clipped - 40 lines] > Got to go now. Falling asleep :) > J thanks. Looks like carbo & taxol. The MDX-010 is a bit of a worry apparently because of the number of perforated boels (also a potential side-effect of taxol btw). But standard risk management of course is to weigh up the danger of doing it versus the danger of not doing it. No contest really. Have to go ahead. > J wrote in alt.support.cancer: > [quoted text clipped - 34 lines] > weigh up the danger of doing it versus the danger of not doing it. No > contest really. Have to go ahead. Hello Jacques, I'm glad they spared you that trouble. One of the above now says "closed", so the data must have just been compiled on in Australia. This seems to show the side effects of the combo they'll be giving you. http://www.cancernet.co.uk/chem-taxcar.htm You may wish to review the notes there, but I don't mean Premature menopause ;) J > J wrote in alt.support.cancer: > [quoted text clipped - 4 lines] > me there was nothing he can do. Not suggesting there is anyhting the new > one can do either, but I think he might have some more treatment for me. Hello Jacques, How did things go on Friday? Anything useful for you? J > Roll Call (November/ 07) > [quoted text clipped - 21 lines] > you) > J No deal getting this T-tube removed. Doc said it's best to hang onto it. No valid reasoning I can guess other than they'd have to surgically remove the french drain at the end of the wire. If I want to begin chemo in the next week or so that would be too much on my body. I guess I will have to get back with the original surgeon in Dec to see what he thinks. BetsyB > No deal getting this T-tube removed. Doc said it's best to hang onto it. > No valid reasoning I can guess other than they'd have to surgically > remove the french drain at the end of the wire. If I want to begin chemo > in the next week or so that would be too much on my body. I guess I will > have to get back with the original surgeon in Dec to see what he thinks. I see. Thanks for the update, Betsy. Still feeling crummy? If not, go out and blow some money tomorrow, before the chemo and crowds of thanksgiving. Buy a new outfit, something to make you feel better. (easy for me to say eh?) J Elsie here, Diagnosed with stage III rectal cancer in 2003. I was 38 at time of diagnosis. Doing well today, It's been almost 5 years. I have a feeling (knock on wood) that in Spetember of 2008, there will be a celebration :-) Had a colonoscopy and CT scan recently. Both were unremarkable. Kids are gowing up. My son is a freshman in High school, my daughter is a senior. I'm taking her to college visits these days - what a trip :-) Other than that, I'm still divorced, still single.... I am almost done with the MS degree that I interrupted when I was diagnosed. Life is good - cancer is not necessarily a death sentence!!!! Hang in there, Elsie > Elsie here, > [quoted text clipped - 16 lines] > > Hang in there, Elsie Thanks Elsie, Keep us posted so Bob and many others here can join in your 5-year celebration. J > Roll Call (November/ 07) > [quoted text clipped - 19 lines] > Look forward to hearing from you. (good or bad news - we're here for you) > J Peter from North Wales UK . still fighting my lung cancer from 1999 , I need to write but I have only been out of hospital two days so I must rest up for now . Take care and my thoughts are with the group , Peter > "J" <nswex@nalid;non> wrote in message > > Roll Call (November/ 07) [quoted text clipped - 5 lines] > up for now . > Take care and my thoughts are with the group , Peter And you, Peter. Thanks for checking in. J > Roll Call (November/ 07) > [quoted text clipped - 21 lines] > you) > J I go for bloodwork next Monday and Chemo on Tuesday. I forgot to ask what was being given, will get details Monday. Betsy > "J" <nswex@nalid;non> wrote in message > [quoted text clipped - 4 lines] > > Betsy Good luck, Betsy. I hope it works well for you. J >> "J" <nswex@nalid;non> wrote in message >> [quoted text clipped - 8 lines] > I hope it works well for you. > J Not expecting a cure, just comfort. My kids are my primary reason. If I can hang on for just awhile longer and give them more time to adjust, I will feel better. If it gets to be too much on me, I will quit in a New York Heartbest and they know this. BetsyB > "J" <nswex@nalid;non> wrote in message > > [quoted text clipped - 16 lines] > too much on me, I will quit in a New York Heartbest and they know this. > BetsyB It's okay Betsy. Thanks for explaining. I wasn't judging. Just keeping it short. Are you having a get-together for Thanksgiving? Time for a hug for you. ( ( ( Betsy ) ) ) J >> "J" <nswex@nalid;non> wrote in message >> > [quoted text clipped - 27 lines] > ( ( ( Betsy ) ) ) > J Of course we are having company for Thanksgiving. Should have done this when the whole crew was here a couple months ago. If I had known they all were coming I would have. Just Butch this time. Hope he loves turkey. Someone gave hubby an 18 lb turkey and we already have one in the freezer. I will have to cook this monster since it has set in the car hoping to find someone who could use it. Friends of our's were going after one that size so he took it for them. In the meantime they got another. Butch will have plenty of leftovers. forever, I bet. Betsy > >> "J" <nswex@nalid;non> wrote in message > [quoted text clipped - 42 lines] > > - Show quoted text - Socks liked <me> making turkey enchiladas the day after, but there are lots of other things that use up more turkey than they do. Enjoy your bird! Hope chemo goes well. Fig > "J" <nswex@nalid;non> wrote in message > >> "J" <nswex@nalid;non> wrote in message [quoted text clipped - 39 lines] > > Betsy Yummy turkey. :) Ours was October. All set for chemo tomorrow, Betsy? J >> "J" <nswex@nalid;non> wrote in message >> >> "J" <nswex@nalid;non> wrote in message [quoted text clipped - 53 lines] > All set for chemo tomorrow, Betsy? > J Wrong Tuesday, not that I didn't try. Next one. Betsy > "J" <nswex@nalid;non> wrote in message > > [quoted text clipped - 48 lines] > > > Wrong Tuesday, not that I didn't try. Next one. Just as well, with Thanksgiving. Wishing you love, peace and foods you enjoy, Betsy. J > "J" <nswex@nalid;non> wrote in message > >> >> >> I go for bloodwork next Monday and Chemo on Tuesday. I forgot [quoted text clipped - 23 lines] > > Betsy Long time, no hear, Betsy. My thoughts will be with you today. J >> "J" <nswex@nalid;non> wrote in message >> >> >> >> I go for bloodwork next Monday and Chemo on Tuesday. I [quoted text clipped - 31 lines] > My thoughts will be with you today. > J And mine with us all, hoping we all get some relief. Betsy > Roll Call (November/ 07) > Regulars - please Update us, if you've not done so for a while. My uncle (cancer of unknown primary) passed away last week. It was diagnosed in late April or May, due to fracture of femur at the knee. A pin was put in and he had 2 or 3 sessions of RT, adjusted to using a crutch to hop around or wheelchair, had some physio, then was released home (had help from homecare and hospice). He and the ortho doc decided on another surgery (late Aug/early Sept) - the goal was so that he could be more independent and put his weight on his leg. After healing, he was to start physio, but the surgeon was away for a few weeks, so that delayed his stay in hospital. Finally that got started. [He had had chronic pain in his spine for several years and they could not find the cause. Sometime in summer he told his wife he did not know if he wanted to continue surviving] However, after the 2nd surgery he enthusiastically did the physio and exercise on his bed. I spoke with him about a month ago and he was upbeat and looking forward to go home. He failed to wake up and nobody knew why. They did an autopsy, still no sign of cancer elsewhere; he died of pneumonia. (nobody knew had it) He was cremated and will be buried in his family's plot next Spring. An adult child is staying longer with the aunt. Close family will continue to monitor her as she wishes to stay in the home and continue her regular activiites. Volunteering and bridge club. He was 82. She's around the same age and health is good. That's my update. J >> Roll Call (November/ 07) >> Regulars - please Update us, if you've not done so for a while. [quoted text clipped - 37 lines] > That's my update. > J Sorry to hear about your Uncle, did he have the Macmillian Nurses in? I ask since they could support your Aunt. Pneumonia is a common cause of death in Cancer patients. >> Roll Call (November/ 07) >> Regulars - please Update us, if you've not done so for a while. [quoted text clipped - 28 lines] >That's my update. >J So sorry about your uncle, J. Carla > >My uncle (cancer of unknown primary) passed away last week. > >It was diagnosed in late April or May, due to fracture of femur at the knee. [quoted text clipped - 4 lines] > > Carla Thanks Carla. I'm okay with it. He was old and I know they did the best they could for him. Thank you again, J >> Roll Call (November/ 07) >> Regulars - please Update us, if you've not done so for a while. [quoted text clipped - 37 lines] > That's my update. > J I'm sorry for your loss J, roses lose their petals this time of year but come the spring, beautufil buds are born again. Warm Hugs Alayne > "J" <nswex@nalid;non> wrote in message > > My uncle (cancer of unknown primary) passed away last week. [quoted text clipped - 6 lines] > > Alayne Right as rain, again, Alayne. Hugs J >> Roll Call (November/ 07) >> Regulars - please Update us, if you've not done so for a while. [quoted text clipped - 41 lines] > That's my update. > J I am so sorry to hear about your Uncle. That is so sad. I Hope his wife is coping and has enough family to help her thru this. Betsy > "J" <nswex@nalid;non> wrote in message > > [quoted text clipped - 7 lines] > > Betsy Yes, lots of people. Thanks Betsy J >> Roll Call (November/ 07) >> Regulars - please Update us, if you've not done so for a while. [quoted text clipped - 28 lines] > That's my update. > J Dear J, I am very sorry for your loss. May God be with your Aunt and comfort her. Belle Belle, Gin, > wrote: > >> Roll Call (November/ 07) > >> Regulars - please Update us, if you've not done so for a while. [quoted text clipped - 5 lines] > I am very sorry for your loss. May God be with your Aunt and comfort her. > Belle Thanks Belle, She'll be spending Christmas, on the other coast, with one of her adult sons and his family. J > Roll Call (November/ 07) > [quoted text clipped - 21 lines] > you) > J It's the end of the month and I have just begun the chemo. Gemzar is the choice of drugs this trip. Arrived right on time, got all set to begin and my nurse got NO blood return. Not after flushing, pouring in saline, nothing. Off to Rad. we go for a scan and sure enough the darn port was clogged. They injected some magic potion and the clog went away and back to chemo we go. Got the magic potion and left 3 hours after arrivaal. I am told this will happen sometimes and not to get rattled. When I am done I amy need the port removed or replaced. Depends on the advice of my Onc. And that is that. Betsy > "J" <nswex@nalid;non> wrote in message... > > Roll Call (November/ 07) [quoted text clipped - 12 lines] > > Betsy Hello Betsy, I'm glad you've started. I'm sorry there was some trouble at the beginning. Gemzar seems to be well tolerated by many people. And so, that's not that. :p Are you having some weekly? I have to know so I know when to nudge you to hear how it's going. :) Maybe we'll do a Yuletide Roll call next month and get you into that one. Fresh start and hopefully good news from Betsy. Thanks for the update, Betsy. J >> "J" <nswex@nalid;non> wrote in message... >> > Roll Call (November/ 07) [quoted text clipped - 34 lines] > Thanks for the update, Betsy. > J Tuesday is my weekly appt for this. With all the confusion yesterday I flat forgot to ask how long this continues. Till I yell Uncle or what? I will check with my Onc on Friday. So far so good on the side effects. Betsy Betsy wrote : "Till I yell Uncle or what?" Hi Betsy, If you yell "Uncle," I'll e-mail running :) Glad to hear you're okay with the side-effects so far of your new treatments ! take care, Uncle Sally > Betsy wrote : "Till I yell Uncle or what?" > [quoted text clipped - 7 lines] > > take care, Uncle Sally Thank you kindly for the nice thoughts. I will look for you to hop out of my monitor! That should be a sight for us both to laugh at! Betsy > > Roll Call (November/ 07) > [quoted text clipped - 32 lines] > my Onc. > And that is that. Sorry to hear of your port troubles. By the end of my treatment, they couldn't draw blood from my (double) port. They couldn't dissolve the blockage, so they used the port as a one-way and drew from a vein. It's good they were able to clear yours---maybe what was cleared took a long time to build up, and won't recur anytime soon. Three hours is no fun. I hope this is the last time that happens. --- CSM |
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