 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Cancer / September 2007Why don't you include breast cancer and leukemia
In a recent post, J indicated that this place is not for those two diseases. I have a question: why not?? I realize there is a specific group for breast cancer and that should be pointed out (and I assume there is one for leukemia?). But why would such a person be unwelcome here? I just don't get it. This is an unmoderated group. It would seem there might be issues aside from the specificity of the type of cancer that would be appropriate here. What am I missing? Did the group take a vote and decide all those folks were unwelcome? If so, did it take a majority vote or unanimous vote?? (I am only being a tad facetious) (Oh, and ditto for prostate cancer). Mel > In a recent post, J indicated that this place is not for those two diseases. > [quoted text clipped - 13 lines] > > Mel I get the point. My question too. Everyone weith cancer, or possible diagnosis of cancer, should be welcome here. At least I see it that way. > I realize there is a specific group for breast cancer and that should be > pointed out (and I assume there is one for leukemia?). [quoted text clipped - 7 lines] > > (Oh, and ditto for prostate cancer). Hi, MZB, You tweaked my curiosity. Each newsserver carries a somewhat different list of newsgroups. I just checked with mine (Giganews) and found newsgroups for breast cancer and prostate cancer, but not for leukemia or lung cancer. Us cancer victims need to stick together. This is as good a place as any. I don't know why any cancer victim would be made to feel unwelcome here (unless he was perhaps a head case, too, but that is not right either). I have lung cancer, you have interests in leukemia and breast cancer, perhaps we can be of help to each other anyway.  SignatureAndy -- The Cheerful Pickle as cheerful as ever Hi Andy: I just assumed there was one for leukemia because of a remark J made, but perhaps I'm mistaken. I THOUGHT she said this group is not for leukemia victims but I can't find it now. Mel >> I realize there is a specific group for breast cancer and that should be >> pointed out (and I assume there is one for leukemia?). [quoted text clipped - 21 lines] > I have lung cancer, you have interests in leukemia and breast cancer, > perhaps we can be of help to each other anyway. Oh, here is the remark from one of J's posts: Ask and we'll let you know where you'll be best served. Other examples of referrals: Different places for leukemias and lymphomas. So they can compare notes on types of, symptoms and treatments specific to their cancers. Or questions specific to those types of cancers. I might have read more into this than I should. Not sure if she is advising folks not to post here or merely suggesting that there may be better alternatives. I strongly disagree with the former if that is the case. I agree with the latter as merely an additional place to seek information. Andy, I first discovered this group when I ended up with superficial basal cell carcinoma. ie: the best kind to get. My family practice doctor was going to excise it and although I have a very high level of confidence in him, I posted asking if I should be referred to a surgeon. Steph said my local doctor if he is decent should easily be able to do the surgery. That was probably over 5 years ago. I took the advice and was cured by the 15-minute procedure. Still, it was a near-traumatic experience as just the mention of cancer certainly does make one confront his/her mortality. A few years later my Dad was dx. with Merkel Cell carcinoma. He passed away about 15 months later. This group was wonderfully supportive and as a result, I still lurk here. I've always appreciated the support of J and others. I don't know if I know qualify to even peruse this group -- except that of course I do as this is an UNMODERATED group. Mel >> I realize there is a specific group for breast cancer and that should be >> pointed out (and I assume there is one for leukemia?). [quoted text clipped - 21 lines] > I have lung cancer, you have interests in leukemia and breast cancer, > perhaps we can be of help to each other anyway. > Andy, I first discovered this group when I ended up with superficial basal > cell carcinoma. ie: the best kind to get. Hi, MZB, My first run in with cancer was also with basal cell carcinoma (of which I had dozens). As slow growing as basal cell carcinoma is and as likely as it is NOT to kill you I tend to call it ALMOST benign. My next run in with cancer was with squamous cell cancer (skin cancer), which is probably the second best kind to get. My last run in with cancer was with squamous cell carcinoma (lung cancer), which is one of the worst kinds to get. SignatureAndy -- The Cheerful Pickle > I have lung cancer, you have interests in leukemia and breast cancer, > perhaps we can be of help to each other anyway. Consider the source, a person who has never declared a cancer diagnosis. I know all cancer patients can learn from each other. This is an unmoderated group..... > In a recent post, J indicated that this place is not for those two diseases. > [quoted text clipped - 13 lines] > > Mel I don't believe J said that they were "not welcome here". She merely tells them that there is another newsgroup specifically for them and that they may find better information there - makes sense to me. If they choose to go there, sobeit, if not, I am sure they are welcome here. We all have a purpose here, especially J. She may not have good PR skills, but she certainly has a wealth of knowledge and her heart is definately in the right place. I think we need to be a family here and support each other. IMO, Tracey Tracy: J said: I would suggest that you post to alt.support.cancer.breast And provide the additional information. I will watch for your posts over there. If it is cancer, and breast cancer, you will be in the right place. If it is cancer, but one that is supported here, then The implication is that breast cancer is not supported here. Mel >> In a recent post, J indicated that this place is not for those two > diseases. [quoted text clipped - 33 lines] > IMO, > Tracey >I don't believe J said that they were "not welcome here". She merely tells >them that there is another newsgroup specifically for them and that they may >find better information there - makes sense to me. If they choose to go >there, sobeit, if not, I am sure they are welcome here. Reason why I recommend ACOR.ORG as a far better source of cancer information and support than found on an unmoderated Usenet newsgroup. Yes, the ACOR mailing lists are moderated, but that keeps noise (and spammers) to a minimum while providing access to many others going through the same things; both as patients and caregivers. Follows is a list of the active mail lists on ACOR and the number of subscribers as of February this year. The Public Mailing Lists at ACOR 2YOUNG-4GYN-CANCER 2young-4gyn-cancer (79 subscribers) 4YOUTH Support for youth with cancer (44 subscribers) ACINIC-CELL Acinic Cell Carcinoma (Cancer) Mailing List (115 subscribers) ACUP AdenoCarcinoma of Unknown Primary (152 subscribers) ADEN-CYST The Adenoid Cystic Carcinoma Support Group (169 subscribers) ALCL-KIDS Children with ALCL (Anaplastic Large Cell Lymphoma) (9 subscribers) ALERT Cancer Legislative Alert System (13 subscribers) ALL-KIDS Childhood Acute Lymphoblastic Leukemia (Cancer) (492 subscribers) ALL-KIDS-RELAPSED Children with relapsed ALL (107 subscribers) ALL-L Acute Lymphocytic Leukemia (214 subscribers) AML Acute Myelogenous Leukemia (474 subscribers) AMYLOID Amyloid Online Support (598 subscribers) ANGIOGEN Current Research on Angiogenesis (600 subscribers) BC-SUPPORTERS Support List for Partners of Breast Cancer Patients (114 subscribers) BLADDER-CANCER-CAFE The Bladder Cancer Support and Information eCommunity (635 subscribers) BMS-354825-CML BMS-354825 Trials for CML (1 subscribers) BMT-TALK Bone Marrow Transplant Online Communication Forum (1455 subscribers) BRCA Breast Cancer Electronic Support Group (303 subscribers) BREAST-ONC Current Advances in Breast Cancer Treatments (929 subscribers) CA-PATIENTS Cancer Patients Forum (145 subscribers) CAM-ONC Integrating complementary & alternative cancer care with traditional approaches (197 subscribers) CANCER The General ACOR Cancer List (206 subscribers) CANCER-DE-MAMA Lista Electronica para Cancer de Mama (2 subscribers) CANCER-DEPRESSION Cancer-Depression (114 subscribers) CANCER-FATIGUE Fatigue Associated with Cancer and Cancer Treatments (161 subscribers) CANCER-FERTILITY Fertility Issues associated with Cancer (115 subscribers) CANCER-FINANCE Finance Issues Related to Cancer (172 subscribers) CANCER-FR La liste francophone de support et d'information sur le cancer (2 subscribers) CANCER-HOSPICE Hospice issues related to Cancer patients (103 subscribers) CANCER-MED Cancer Related Medical Discussion List (101 subscribers) CANCER-NEUROPATHY Neuropathy Induced by Cancer & Treatments (157 subscribers) CANCER-PAIN PAIN Associated with Cancer and cancer treatments (201 subscribers) CANCER-PARENTS Parents with cancer and the issues of raising children (56 subscribers) CANCER-SEIN (0 subscribers) CANCER-SEXUALITY Sexuality after a cancer diagnosis (167 subscribers) CARCINOID The Carcinoid Cancer Online Support Group (687 subscribers) CAREGIVERS Online Support Group (840 subscribers) CCC-NET Cyclists Combating Cancer (163 subscribers) CHF Congestive Heart Failure and Cancer Treatments (60 subscribers) CLAS Cancer Legislative Alert System (20 subscribers) CLINICAL-TRIALS Clinical Trials (383 subscribers) CLL Chronic Lymphocytic Leukemia (2618 subscribers) CLL-CN Canadian CLL List (157 subscribers) CLL-UK UK List (100 subscribers) CLUB-METS-BC Metastatic Breast Cancer Online Support Group (253 subscribers) CML Chronic Myelogenous Leukemia (Cancer) (477 subscribers) COAG-DISORDERS Coagulation Disorders Mailing List (13 subscribers) COLON Colorectal Cancer Discussion List (793 subscribers) CPCOS Cancer Patients Christian Online Support Group (100 subscribers) CRC-METS Group for Patients with Metastatic Colorectal Cancer (0 subscribers) CTCL-MF CTCL/Mycosis Fungoides information and support (1104 subscribers) CTCL-MF-PARENTS Parents of Children with Cutaneous T-Cell Lymphoma (35 subscribers) DESMOID The Desmoid Tumor eCommunity (401 subscribers) DOLOR-FORO (9 subscribers) E-SARCOMA The Ewing Sarcoma Online Support Group (cancer) (284 subscribers) E-SELF-HELP Electronic Self Help Communities (0 subscribers) EC-GROUP Esophageal Cancers Discussion List (2030 subscribers) EPID-BULL Epidermis Bullosa Online Support Group (4 subscribers) FACING-AHEAD F-Ahead Facing-Ahead: Helping to face the death of a loved one (225 subscribers) FAITH A Discussion List about Faith and Coping with Cancer (41 subscribers) FAP-GS Familial Adenomatous Polyposis & Gardner Syndrome Support Group (96 subscribers) GEN-ETHICS The Human Genome Project: Ethical, Legal & Policy Issues (131 subscribers) GENOMICS Discussion Group (144 subscribers) GTD Gestational Trophoblastic Disease (Cancer) Support List (13 subscribers) GVHD The Graft Versus Host Disease Online Support Group (361 subscribers) GYN-ONC The Gynecological Cancers Online Support Group (255 subscribers) HAIRY-CELL Hairy Cell Leukemia List (87 subscribers) HEAD-NECK-ONC The HEAD & NECK Cancers Online Support Group (460 subscribers) HEALTH-BRIDGE Partnerships for Quality Online Health Information Resources (140 subscribers) HEALTH-SEEKERS Online Health Seekers: Facts and Theories (0 subscribers) HEM-ONC Hematological Malignancies Support List (293 subscribers) HEM-ONC-FR Hem-Onc-FR Liste Francophone pour tous les cancers du sang (4 subscribers) HEMANGIOMA Hemangioma Information and Support Group (43 subscribers) HODGKINS Hodgkin's Lymphoma Mailing List (265 subscribers) IBC Inflammatory Breast Cancer Support Group (200 subscribers) IRESSA-NSCLC Discussion of Iressa used for Non-Small Cell Lung Cancer (27 subscribers) JP-NET Jewish Parents Network (7 subscribers) KAPOSI The Kaposi Sarcoma Online Support Group (125 subscribers) KELLY-TEAM Kelly's Team from the Kelly Davidson Foundation (13 subscribers) KIDNEY-ONC The Kidney Cancer Online Support Group (1730 subscribers) L-M-SARCOMA The leiomyosarcoma (cancer) Online Support Group (775 subscribers) L-SARCOMA The liposarcoma (cancer) Online Support Group (229 subscribers) LARYNX-C The Larynx Cancer Online Support Group (159 subscribers) LI-FRAUMENI Li-Fraumeni Syndrome Support Group (31 subscribers) LIVER-ONC The Liver Cancer Support Group (233 subscribers) LOWGRADE-BT Low Grade Brain Tumors (18 subscribers) LT-SURVIVORS Cancer Long Term Survivors Discussion Group (468 subscribers) LUNG-BAC Bronchioloalveolar Carcinoma (Lung Cancer) (221 subscribers) LUNG-NSCLC Non Small Cell Lung Cancer (368 subscribers) LUNG-ONC The Lung Cancer Online Support Group (273 subscribers) LUNG-SCLC Small Cell Lung Cancer (136 subscribers) LUPUS Discussions of Lupus and Related Diseases (273 subscribers) LYMPHEDEMA Online Support Group (366 subscribers) MALEBC MaleBC - A Male Breast Cancer Discussion List (21 subscribers) MANTLECELL Mantle Cell Lymphoma Discussion Group (249 subscribers) MEDWEBMASTERS-L Medical Webmaster Discussion Group (345 subscribers) MELANOMA Melanoma Support Group (218 subscribers) MEN1 (Multiple Endocrine Neoplasia Type 1) Wermer's Syndrome (77 subscribers) MESOTHELIOMA (Cancer) Support & Information (258 subscribers) METASTATIC Patients diagnosed with metastatic cancer (159 subscribers) MMATRIX-L Internet Medical Resources Announcement List (858 subscribers) MPD-NET Myeloproliferative Disorders Support List (2734 subscribers) MULTI-PRIMARIES Multiple Primary Cancers (48 subscribers) MYELOMA Multiple Myeloma Support List (1645 subscribers) N-BLAST-MED N-Blast-Med (32 subscribers) N-BLASTOMA The Neuroblastoma (Cancer) Online Support Group (600 subscribers) NHL Non-Hodgkin's Lymphomas Support Group (272 subscribers) OLLIER-MAFFUCCI Ollier's/Maffucci Disease Support Group (13 subscribers) ONCO-MEETINGS Oncology Meetings Announce List (23 subscribers) ONCO-NURSE Oncology Nurses Discussion List (6 subscribers) ONCONEWS The Oncology Electronic Newsletter (191 subscribers) ORAL-ONC The Oral Cancers Online Support Group (162 subscribers) OSTEO-P The Osteoporosis Online Support Group (93 subscribers) OSTEO-SARCOMA Osteosarcoma Support Group (177 subscribers) OVARIAN Ovarian Problems Discussion List (1387 subscribers) PAIN-CAREGIVERS Caregivers of patients suffering from cancer pain (41 subscribers) PANCREAS-ONC The Pancreatic Cancer Support & Information eCommunity (451 subscribers) PED-AIDS The Pediatric AIDS Online Support Group (41 subscribers) PED-ALL Pediatric Acute Lymphocytic Leukemia (Cancer) List (6 subscribers) PED-HOSPICE Hospice Care for Children (68 subscribers) PED-LYMPHOMA Parents of Children with Lymphoma (cancer) (48 subscribers) PED-ONC The Pediatric Cancers Online Support Group (305 subscribers) PED-ONC-SURVIVORS Ped-ONC Survivors (310 subscribers) PED-ONC-SURVIVORS Ped-ONC Survivors (310 subscribers) PETS-CANCER Discussion of pets with cancer and other pets/cancer issues. (25 subscribers) PJS ) Online Support Group (228 subscribers) POEMS Syndrome - Osteosclerotic myeloma (48 subscribers) POLYM-ADENO Polymorphous Low Grade Adenocarcinoma Support (6 subscribers) PROSTATE The Prostate Problems Mailing List (1331 subscribers) R-BLASTOMA The Retinoblastoma (Cancer) Online Support Group (225 subscribers) RARE-CANCER The Rare Cancers Discussion Group (179 subscribers) RB-SURVIVORS Retinoblastoma Survivors Support Group (107 subscribers) RHABDO-KIDS Rhabdomyosarcoma (Cancer) Information and Support Group (270 subscribers) SARCOMA The General Sarcoma (Cancer) Online Support Group (390 subscribers) SARCOMA-MED Questions about Sarcomas (584 subscribers) SCAN-BC-LIST Scandinavian Language Breast Cancer List (4 subscribers) STI571-GIST The Life Raft Group (LRG): STI571 (Gleevec - Glivec) and GIST (Gastro Intestinal Stromal (564 subscribers) STOMACH-ONC The Stomach Cancer Online Support Group (291 subscribers) TC-NET The Testicular Cancer Online Support Group (701 subscribers) TC-SUPPORTERS Testicular Supporters List (221 subscribers) THYMOMA Malignant Thymoma Information Group (28 subscribers) THYROID-ONC The Thyroid Cancer Online Support Group (402 subscribers) TRIALS-C225 Clinical Trials for the Investigational Drug C225 (1 subscribers) TUBER-SCLER Tuberous Sclerosis Electronic Support Group (8 subscribers) WILMS-KIDS Children with Wilms' Tumor (143 subscribers) WSMG-NET The Waldenstrom's Macroglobulinemia Cancer Online Discussion List (259 subscribers) XERODERMA-ES (0 subscribers) ZOLLINGER-ELLISON Zollinger-Ellison Syndrome (ZES) Support Group (23 subscribers) > >I don't believe J said that they were "not welcome here". She merely tells > >them that there is another newsgroup specifically for them and that they may [quoted text clipped - 558 lines] > > read more ? ACOR is a great place, I don't like getting lots of emails. But thanks for posting to remind us all. > In a recent post, J indicated that this place is not for those two > diseases. [quoted text clipped - 12 lines] > > (Oh, and ditto for prostate cancer). I have no idea either. This is a generic group and should be all encompassing for those with any type of cancer. They can always seek out a more specific group if they want to. > In a recent post, J indicated that this place is not for those two > diseases. [quoted text clipped - 14 lines] > > Mel Let's not make a big deal of this. People with leukemia, breast & prostate cancers have specific issues that other specialized groups are much more fmiliar with. I can't see anyone being driven out of here - all are welcome - but people with certain cancers are better served in groups dealing with their cancers. Msny of the treatments for these cancers are different & specific. People here tend to cluster around lung, oral & bowel cancers with occasional others. If you want to 'compare notes' with others, best with birds of a feather. Fig > In a recent post, J indicated that this > place is not for those two diseases. > > I have a question: why not?? Because a particular person has AML and he is being harassed by Keith Exford and Affinity Homes Group. Since no one especially not "J" aka "Steph" has the courage to stand up to Keith Exford and his Affinity Homes Group, the "we don't do AML excuse" was invented, > [ . . . ] (and I assume there is one for leukemia?). Don't think so. > But why would such a person be unwelcome here? Well you can't disobey Keith Philip Exford can you? > This is an unmoderated group. So it is moderated by abuse. Just as blocking someone's access to medicine is unlawful, so abusive litigation is used to achieve and conceal that. > (Oh, and ditto for prostate cancer). I don't have pc. Signaturehttp://broomleigh.com/ > In a recent post, J indicated that this place is not for those two diseases. > [quoted text clipped - 4 lines] > > But why would such a person be unwelcome here? They are welcome here. If one or two people say someone *isn't* welcome here because they have the wrong kind of cancer, too bad--- others here will welcome them regardless. They may be better served in another ng, so it can help them to be directed there. If they don't have access to the more specific group, or simply would rather visit here, they're welcome here. In fact, such a patient is welcome to crosspost to this group and the more specific group. That's what crossposting was invented for. You said it, I said it, others have said it---this is an unmoderated group, so nobody has the right to restrict access. --- CSM I agree. It is sad when I see that someone is made to feel unwelcome either directly or perhaps in a more insidious manner by the tone of a post. Especially when the post is written in the guise of a moderator, when no such moderator exists. I don't post much and I mostly lurk, but I would urge those of you that do participate more than I do to quickly make such folks feel welcome here while also pointing out that there are additional groups more specifically devoted to the particular cancer (if it is is bc or pc). Mel >> In a recent post, J indicated that this place is not for those two >> diseases. [quoted text clipped - 19 lines] > --- > CSM |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.