Welcome to alt.support.cancer
If you've been diagnosed with cancer and want support or information, come
in and post.
Be sure to include symptoms, tumor locations, diagnosis, staging, grade,
and any other relative information that may help the group to understand
your post. If you're 99% sure you have cancer (bloodwork or biopsy), no
need to wait for all the outstanding information, like Stage. Come in and
post. Despite some questionable topics here, there are some of us here to
help and support you.
All advanced or end stage cancers and/or companion or caregiver or loved
ones (of same) are welcome on alt.support.cancer. (if it's breast or
prostate cancer, you may wish to compare ongoing chemos or hormone related
treatments on the breast or prostate cancer newsgroup).
Steph, seasoned clinical radiation oncologist is here for questions and to
discuss evidence based medicine.
(amongst other topics)
If you're a companion or caregiver or loved one of a current cancer
patient, you're welcome here as well. Supporters and caregivers are here
to lend support and share things, with you, that might help.
Please do not ask us to e-mail you for information; after all, this is a
newsgroup. If it can't be posted to the group, it won't pass the smell
test. (ie there's nobody to double-check the information being given if
it's emailed).
Patients and caregivers please do not post your (full) name, address, or
telephone number on this newsgroup. It is OK to remain anonymous. If you
use the same screen name as someone else here, you may be asked to
slightly change it, to differentiate one person from the other.
Please use good netiquette, trim quoted material (long messages) or
unnecessary cross posting in your replies.
Aoid top posting (put your reply below the other's and snip text out) and
SHOUTING (CAPS is shouting).
Don't assume that your message will be read at the same time as the post
you are replying to, and don't assume that all readers will be using a
threaded newsreader. By quoting the relevant parts of the message you are
replying to, it provides a context for your reply.
Your message will make more sense to readers if you reply below quoted
text. This is true if the reader has not seen the post to which you are
replying, or reads it out-of-order.
Some people may be referred elsewhere; for example, Cathy's EC Cafe
(esophageal) or stay here if they prefer
Referrals:
For example breast or prostate cancer: alt.support.cancer.breast and
alt.support.cancer.prostate (respectively)
So they can compare notes on treatments specific to their cancers.
Other examples:
The ACOR lists for Head and Neck, or for mesothelioma. Ask and we'll let
you know where you'll be best served.
Other examples of referrals: Different places for leukemias and
lymphomas. So they can compare notes on types of, symptoms and treatments
specific to their cancers. Or questions specific to those types of
cancers.
Your Outlook Express, combined with your ISP's instructions, can be used
to read and post to newsgroups.
Other newsreaders: Forte Agent, Netscape Communicator, Thunderbird, Xnews,
WebTV. The best newsreader is usually the one where you can filter
(block/.delete) poster's posts (aka bozo bin) and filter (block/delete)
threads (off topics). And which you can use to "munge" your email address.
Alternative ways to access newsgroups are:
Using Google and/or talkaboutsupport.com
Each has its pros and cons
Copy and paste, the one you wish to access, into your browser.
http://groups.google.com/group/alt.support.cancer
http://groups.google.com/group/alt.support.cancer.breast
http://groups.google.com/group/alt.support.cancer.prostate
and
http://talkaboutsupport.com/group/alt.support.cancer/
http://talkaboutsupport.com/group/alt.support.cancer.breast/
http://talkaboutsupport.com/group/alt.support.cancer.prostate/
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If your posts are more about medicines (in the news), clinical trial
results, the pros and cons of (your favorite) supplements, Medline
studies, post on sci.med.diseases.cancer (unless specifically requested by
a patient or caregiver).
http://groups.google.com/group/sci.med.diseases.cancer
I often post "new" medications or clinical trials, that might be of
interest, to sci.med.diseases.cancer as well.
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Some people have complained about too many "grieving" posts, so after
condolences, many posters are referred elsewhere. If they wish to stay,
as supporters, that's all right, as long as they can follow the
guidelines.
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If you think you have signs and/or symptoms of cancer (and never had
cancer), I encourage you to a) see your doctor and/or b) ask about it on
news:sci.med where there's several or more doctors. I watch that
newsgroup as well, for cancer patients.
Or on the breast or prostate cancer newsgroup (see above), whichever you
feel is relevant to your signs or symptoms.
----------------------------------------------------------------------
Repeat: there are some of us here to help and support you.
J
Steven Vaughan - 26 Sep 2007 05:48 GMT
> Welcome to alt.support.cancer
> If you've been diagnosed with cancer and want support or information, come
> in and post.
>
> Be sure to include symptoms, tumor locations, diagnosis, staging, grade,
> and any other relative information that may help the group to understand
<snip>
> Or on the breast or prostate cancer newsgroup (see above), whichever you
> feel is relevant to your signs or symptoms.
> ----------------------------------------------------------------------
> Repeat: there are some of us here to help and support you.
> J
You might also want to add that since this is an UNMODERATED newsgroup, the
above "guidelines" are merely a suggestion by a participant. Granted, some
come from the group Charter as written, but for the most part, the
"guidelines" as written are the creation of one fellow group participant.
Excluding people based on a particular diagnosis or a lack thereof is not
mentioned in the group charter.
IMHO: In every group, there is/are one or two folks who take it upon
themselves to "babysit" those who use the group. They start with good
intentions, and often contribute valuable information, but invariably fall
into the elitist, narcissistic trap of imagined power and superiority over
others. These folks would be better off, as another poster has suggested,
forming a Moderated discussion group where they have complete control over
users and content. Synopsis: Adults don't need net-nannies, thank you.
J - 26 Sep 2007 09:56 GMT
> > Welcome to alt.support.cancer
> > If you've been diagnosed with cancer and want support or information, come
[quoted text clipped - 14 lines]
> Excluding people based on a particular diagnosis or a lack thereof is not
> mentioned in the group charter.
alt.support.cancer
alt.support.cancer.breast
alt.support.cancer.prostate
J
xela56 - 26 Sep 2007 11:37 GMT
>> You might also want to add that since this is an UNMODERATED newsgroup,
>> the
>> above "guidelines" are merely a suggestion by a participant.
The funny thing is if J followed her own rules, she shouldn't post here
since she is not a cancer survivor or a present caregiver. Since many value
her posts that issue is ignored by all. I agree we do no need net nannies
and cancer does not abide by any rules. Perhaps these posts should take a
rest since the spammers ignore them and I think they frighten people off
with real cancer issues.
So I say if you have a cancer issue please feel free to post. Alex
J - 26 Sep 2007 12:44 GMT
> >> You might also want to add that since this is an UNMODERATED newsgroup,
> >> the
> >> above "guidelines" are merely a suggestion by a participant.
>
> The funny thing is if J followed her own rules, she shouldn't post here
> since she is not a cancer survivor or a present caregiver.
You don't have my medical file.
J
xela56 - 27 Sep 2007 02:44 GMT
>> >> You might also want to add that since this is an UNMODERATED
>> >> newsgroup,
[quoted text clipped - 6 lines]
> You don't have my medical file.
> J
I don't have your medical profile and don't want it...but you have been
very prolific over the years on other usenet groups about you ailments. And
if you do have a cancer diagonsis ( which I hope you don't ) take your own
advice and share.
Steven Vaughan - 26 Sep 2007 17:51 GMT
> All advanced or end stage cancers and/or companion or caregiver or loved
> ones (of same) are welcome on alt.support.cancer. (if it's breast or
So, if folks who come in here don't have 'end stage' or advanced cancer,
they aren't welcome to post in your opinion? Do you feel that they should
just 'suck it up', and aren't entitled to be part of the discussion, since
their cancer isn't 'advanced' enough for your liking? I don't recall seeing
'alt.support.advanced.cancer' in the title.
I've got a simple solution that may satisfy your judgemental desires, oh
great one- start a group entitled 'support.terminal.cancer', or
'support.advanced.cancer'. Those are exclusive topics. You seem to desire to
be 'exclusive'.
You need to think long and hard about what you've stated. Think about how
crass and uncaring it is to send someone away who is scared and uncertain
due to this disease. How dare you.
MZB - 26 Sep 2007 18:41 GMT
Most of all, J, quit treating this like a moderated group.
YOU should not be dictating who posts here (not that you could, anyway).
This has been an issue here for years. I think people tolerate this due to
J's prodigious contributions to this group.
Mel
>> All advanced or end stage cancers and/or companion or caregiver or loved
>> ones (of same) are welcome on alt.support.cancer. (if it's breast or
[quoted text clipped - 13 lines]
> crass and uncaring it is to send someone away who is scared and uncertain
> due to this disease. How dare you.
JOHN - 29 Sep 2007 16:27 GMT
> Welcome to alt.support.cancer
> If you've been diagnosed with cancer and want support or information, come
> in and post.
This will be just Allopathic support
see http://www.whale.to/a/cancer_c.html