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Medical Forum / Diseases and Disorders / Cancer / May 2007Hi ALL
Hi All: Here's what's been going on. This past week I noticed my left leg swelling up and getting quite tight in the upper thigh. after talking to a friend who's a message therapist she told me to go to the hospital because of my backround with cancer and lymph node problems. It seemed my luphatic system wasn't drainging my leg properly and it was starting to hurt. I got to the hospital wife my wife nad the pain started to grow from under my left Butt check into my pelevis which has been having issues for the past few months. Last week we did the MRI of my pelvic region and found a new mass behind and below my bladder it is quite serious. my oncologist want's to start radiation and chemo followed by possible surgery to remve the mass. and the surgeries could be complex and legthly. I could loos my bladder, have it rebuiult and get a bag. Or if it reaches my spine I could loose booth of my legs and te end of my spine. Would this put me in a Catagory 5 cancer profile? Let me know what you think and what would be the right things to do. I want to be here for my wife. I will fight to be here for her. I made a promiss to her when we got married for 40 yrs of a happy marige. I don't want to go back on my word. I pray to god. I will survive this test and keep going on. Frank Sharkey > Hi All: > [quoted text clipped - 28 lines] > > Frank Sharkey Radiation makes sense. I'm not so sure about the other stuff >>Hi All: >> [quoted text clipped - 31 lines] > Radiation makes sense. > I'm not so sure about the other stuff Hi steph: Radiation and chemo seem to be right for now. The surgry is a possibility if things dom;t go as we planned. also my wife and I decided last night to change the way I eat. to use diets that will help fight the cancer and help the chemo do it's job better. Do beief a better diet cold help me fight this war? Frank > > Radiation makes sense. > > I'm not so sure about the other stuff [quoted text clipped - 6 lines] > Do beief a better diet cold help me fight this war? > Frank I think radio and chemo will knock you flat on your back (energy and/or physically), Frank. Could set you back a lot on energy and meals could be a problem. But you're one tough determined man, so it's hard to know how either will affect you. Your cancer is spreading despite having had most of your liver resected. Diet help fight your cancer? I don't think so. A balanced nutritious diet would maybe help keep your weight on and immune system up (so maybe you won't get an infection). I wish you well in your decision. And by the way, I've no idea what a" Catagory 5 cancer profile" is. Where do you get these things please or what do you mean by that, please? J > And by the way, I've no idea what a" Catagory 5 cancer profile" is. > Where do you get these things please or what do you mean by that, please? > J J, I think Frank is jesting with Category 5, implying he's inventing a new category :-) >>>Radiation makes sense. >>>I'm not so sure about the other stuff [quoted text clipped - 21 lines] > Where do you get these things please or what do you mean by that, please? > J J: I was talking with some peole from a cancer support group at my local Hospital. A lady said that she was told by her Dr's that her sevarity of her cancer was so great she was a Catagory 5 cancer Patient. That's where I got that Idea. As for radiation. I have had it before did very well 4700 Decigrays in 25 days with 5F-u on pump 5 days a week for 6 weeks. The chemo slowed me down more than the radiation. The only thing is some of me this time will get re-irradiated. Some of my entestine is not going to like that all to well. As for diest we thought (my wife and I) that the better Ieat the better I'll do. I have always had a very good ability to heal from sugeries and such. We thought if we could boost that ability some more I would go through this better. Frank >>>Hi All: >>> [quoted text clipped - 41 lines] > Do beief a better diet cold help me fight this war? > Frank I believe you should eat what you find appetising >>>>Hi All: >>>> [quoted text clipped - 44 lines] > > I believe you should eat what you find appetising Steph: That's about anything on this planet Ieat almost anything. And I mean anything. Rocky mountain Oysters anyone?, What I thought were glazed roasted dates were actually roated calves eyeballs. ( That was Turkey 1983 with my dad in the army trianing the turkish army in special weapons classes.) Liver only if my Dad prepares it. He doesn't cook much but what he does he's great at. A wide variety of seafood. Living in Maine for 10 yrs I ate more seafood then most average Americans probaly do in a normal lifetime. Veggies, fruit, nuts, the list goes on and on. However some of these likables are on the don't list when it comes to fighting cancer and disease. I'm trying to improve my chences to be around here next year for my 3rd wedding aniversary and hopefully my 42nd birthday. Frank > Let me know what you think and what would be the right things to do. I > want [quoted text clipped - 5 lines] > > Frank Sharkey Hi Frank, I don't have the knowledge to help you with this decision. But as a wife of a hubby-with-cancer, I know that Mrs Frank will want to make the right decisions for you both, balancing your comfort against that old promise you made. She knows you aren't going anywhere without a fight. All I can offer is my prayers for you both and hopes that the doctors can guide you to the right decision. Take care, HH Dear HH, Please forgive me if in my previous response to you I seemed "inquisitorial" or "challenging." I'm rather out-of-it right now on Fentanyl and Paracetimol+Codeine, and in quite a bit of pain, and I should have been much more gracious in writing to you, and explained that my questioning your reaction to the post on HPV and cancer comes from a place of deep curiousity about how people think and feel, not from a place where I am trying to judge or analyze anyone, or put you or anyone else "on the spot." I am a follower of that great Yogi, Berra, who said : "half this game is ninety-percent mental" :) But many times a rather lame follower.who drops the ball. take care, Uncle Sally > Dear HH, > [quoted text clipped - 18 lines] > > take care, Uncle Sally OOPS. Wish I'd seen your apologies before I'd replied! Yep, it came over rather strong and I responded in kind (will I ever learn to calm down before reacting?) Ho hum, shall we call a truce :-) H Heckenhocker wrote : "OOPS. Wish I'd seen your apologies before I'd replied! Yep, it came over rather strong and I responded in kind (will I ever learn to calm down before reacting ?)" Hi HH, As we say in Thai : "mai pen rai," (literally 'never mind') meaning : at the "big picture level" this is not so important ... has much the same idiomatic flavor as "don't sweat the small stuff." I'm sorry you thought I was attacking you, and you didn't see the humor in the phrase "recovering alpha male" which I meant to convey the self-deprecating idea that I am recovering "from" being raised as an alpha male :) take care, Uncle Sally >>Let me know what you think and what would be the right things to do. I >>want [quoted text clipped - 17 lines] > Take care, > HH Hi HH: Radiation and chemo seem to be right for now. The surgry is a possibility if things dom;t go as we planned. also my wife and I decided last night to change the way I eat. to use diets that will help fight the cancer and help the chemo do it's job better. What do you think about diet changes and the way we eat to fight cancer. I would like your input. Frank my wife and I decided > last night to change the way I eat. to use diets that will help fight the > cancer and help the chemo do it's job better. > What do you think about diet changes and the way we eat to fight cancer. I > would like your input. > Frank A healthy balanced diet with plenty of fresh fruit and veg has to be a good thing in helping your body fight off infections, cancers and deal with pain. No miracle cure, but at least it should allow the body to concentrate on the big stuff Take care, and give your wife a big hug! > Sunday May 20th > Radiation and chemo seem to be right for now. The surgry is a > possibility if things dom;t go as we planned. How's Frank doing? J > Hi All: > [quoted text clipped - 22 lines] > > Frank Sharkey Hi Frank, So sorry to read of your news. I am unable to advise you as to what to do. But I note that you write that your doc suggests > ...below my bladder it is quite serious. my oncologist want's to start > radiation and chemo followed by possible surgery to remve the mass. and the > surgeries could be complex and legthly. I could loos my bladder, have it... If I was you I would try to focus on the 'POSSIBLE' word about surgery, it's not written in gold. Now to focus on one step at a time, the radiation perhaps to hopefully reduce the mass. We can only live in the present. I am sure your wife knows that you are doing everything in your power live and be with her. isi >>Hi All: >> [quoted text clipped - 39 lines] > > isi Hi IsRadiation and chemo seem to be right for now. The surgry is a possibility if things dom;t go as we planned. also my wife and I decided last night to change the way I eat. to use diets that will help fight the cancer and help the chemo do it's job better. Could you tell me if you think a major change in my diet would be for the better. Would it help my body fight this cancer andgive me better chances of coming out better than I went in. Frank > >>Hi All: > >> [quoted text clipped - 48 lines] > chances of coming out better than I went in. > Frank Looks to me that you've had two chemo regimens. After diagnosis in Oct 2005 (high does RT and 5FU) 5 1/2 weeks, then the rectal surgery. In April, 2006, your liver tumor was discovered so you had 3 treatments of 5FU with platinum and your pain was getting worse, so you had the liver resection (a year ago?) (trying to keep track of your history, Frank) And now it's behind your bladder. You've had spine pain for at least a year? Have they checked your brain and spine for mets, Frank? Will you be able to get the pain pump procedure first, Frank? Seems to me it's best to get that (and where else it may be showing up) squared away before moving on to other treatments. Get the big picture first, frank. J >>>>Hi All: >>>> [quoted text clipped - 65 lines] > away before moving on to other treatments. Get the big picture first, frank. > J J: We can't do the pump because of this new cancer spread. it will have to wait. the funny thing is when I got home from the Pain pump trials. my pain levels dropped by 75% or so. until I went into the hospital a few days ago I was using less than 200Mgs of morphine daily. As of today I'm using around 250-300Mg's Plus Neutontin 200Mg's too boost the effiecency of the morphine and how it interacts with my nervous system. The Neutontin was given to me earlier this yr. But at the time didn't seem to work. Now I notice the differance. As for scan's I have had a total body scan in OCt, A whole bone scan in Oct, my 3rd Pet scan in April, This will be my 5th time on chemo and 2nd time on radiation. If you were to look at me today you couldn't imagine all the bad stuff going on with me. My friends says I "Look quite healthy" and I don't even look my age. I'll be 41 in Oct. I can pass for some one in their late 20's early 30's. In the past I have tried to take care of myself eating right and all. I have never drunk Alcohol. I'm allergic to It, Never smoked, never did illegal drugs. Have lived a pretty clean life until all of this started going awry in late Sept 05'. Frank > >>>>Here's what's been going on. This past week I noticed my left leg swelling > >>>>up and getting quite tight in the upper thigh. after talking to a friend [quoted text clipped - 73 lines] > > Frank Hello Frank, Thank you for the additional information. I hear you that you've taken care of yourselfr, but cancer happened, to you, anyway. I hear you that they've changed the pain medication regimen. It's good to read that's helping. I hear you that the pain pump's not possible at this time and I hear you that you've had more than enough scans. I hear you that you've had 5 chemo regimens and i hear you that the surgery would be too lengrthy and complex. I hear that chemo resistance usually sets in during the 3rd of 4th chemo regimen and you've had 5 regimens. I guess that's why your cancer's continued to spread. Multi-drug resistance. So why toxify your body with chemo, for no good reason, if radiotherapy will do the job? J >>>>>>Here's what's been going on. This past week I noticed my left leg swelling >>>>>>up and getting quite tight in the upper thigh. after talking to a friend [quoted text clipped - 89 lines] > job? > J I'm about to start my 5th on Tuesday. I'm not chemo resitant. it just makes me to ill to take it for a period of time. Secondly I want to be here as long as possible for my wife. I made a vow to her and God when we got married. I'm not going to break it for anything!!! Chemo is planned not tentative. Still waiting on that. My pain has gone down to using 200-300Mg's MS a day and some days I use even less than this. 1 or 2 8mg Dauldins. Frank > Re: tumor behind the bladder > ,> I hear you that you've had 5 chemo regimens and i hear you that the surgery would be [quoted text clipped - 14 lines] > even less than this. 1 or 2 8mg Dauldins. > Frank Hello Frank, It's good to read that the pain had lessened. As far as I know the only way to know if you are chemo resistant is if you're taking only chemo and the tumor does not shrink. Chemo potentiates the RT and you'll be taking both, so there's no way you can say that you're not chemo resistant. In any event, you've directed you're care with the advice of your experts and it's worked reasonably well for you so far. Maybe it's for the best and then you'll have no regrets. Best of luck with your treatments. I'll be thinking of you. I hope you'll keep in touch. J > islavision2...@yahoo.com wrote: > [quoted text clipped - 50 lines] > chances of coming out better than I went in. > Frank- Hide quoted text - Hi Frank, Happy to learn that you have decided on your path and not to worry about possibilities that may never come to pass. You ask " Could you tell me if you think a major change in my diet would be for > the better" Frank I am not an expert, I would think it's best if you consume as few chemicals and processed foods as possible. Avoid them completely if you can. Stick to 'Whole' freshly prepared foods that you enjoy, it will help to keep you healthy to get through your up coming treatment. If I had a wife I would eat better lol I have problems preparing and cooking foods, too tiring. I have an interest in nutrition, but as I say I am no expert. What I have noticed on my surfing trips around the web is that there are a lot of people trying to sell stuff, diets, supplements, books and so on to people who have cancer, as your learning about foods for cancer, you will see them too, they look like they have the answer - most don't offer any real proof of what they are selling, so be careful of those scam artists out there. A wide range of fresh whole food is what I would recommend. Aas i am sure you know, "Whole food", is food with nothing added and nothing taken away at any point during it's production from farm to market. If there is anything specific you want to ask, please do, I will help in any way I can. Bon Appétit, :-) isi isi |
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