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Medical Forum / Diseases and Disorders / Cancer / May 2007Roll call to alt.support.cancer - May/2007
I think it's time for a roll call in case it draws some of you out. Recently diagnosed and/or treated (or loved ones, carers) in the past few years. Come in an update us. If you are so inclined, reply to my post (remove/ delete everything I type here), put your type and stage of cancer in the subject line and update us to how you are faring. Tell us what you've been up to, work, trips, new births in the family,moves, coping, laughs, worries, vents, challenges overcome. Obviously this call is for carers and relatives too. I can't promise that I can reply to everyone, but I care and perhaps others (reading) are waiting for updates also from you. So come on out and post. \Some of you are: Stew? Clifto? Bobert? Janet? Betsy? Peter L? Peter Clarke? Jan den Hollander Jane E. H - friend endometrial kili - recent scan - clear. next update 3 months. Larry M - NHL laura s. - ovarian Lee L - wife with Stage IV NSCLC Leo K - liver cancer Leslie - mother Stage IV lung cancer LetMae - inquiry about advanced colorectal cancer LippyLou - Mother-In-Law has colorectal cancer, cannot be operated on Jamo/Morgs/Baz Lisa - lmr4angels - Mom diagnosed with non-small adenocarcinoma w/mets Lori - husband AML Lorraine - ovarian cancer John (australia) - melanoma Lynn -father (glioma) Macy - thinking of you and your husband (lung cancer) Maria - rectal cancer Mark - mother-in-lax was dx'd in 10/2005 with stage IV NSCLC Mark F - SCLC Emily - oral cancer - how's your mother Eddie - what's new Allan M - thyroid? Una - how's the baby? JW - Jonboy CRC Frank S - how's it going? Frans (Douwe) - how about an update here? How are you? Miss Rizzi ? Susan (Texas) - how are you doing? Gail - melanoma Riana (MUSKA01) - husband advanced kidney cancer. Hugh - Advanced prostate cancer (sorry, if I've missed you, join in) Earlly stage breast cancer patients For your own issues ---> alt.support.cancer.breast (since it's best to share their types of issues and medications with others who are having the same ones) or via Google http://groups.google.com/group/alt.support.cancer.breast Early stage prostate cancer patients For your own issues ---> alt.support.cancer.prostate (since it's best to share their types of issues and medications with others who are having the same ones) or via Google http://groups.google.com/group/alt.support.cancer.prostate J PS if the troll/scammer "treatcancer.nl" replies, please put him in your filter (bozo) bin. >I think it's time for a roll call in case it draws some of you out. > [quoted text clipped - 76 lines] > PS if the troll/scammer "treatcancer.nl" replies, please put him in your > filter (bozo) bin. All right I will go first. SSDD. Just waiting for next Wednesday to get the results of my PET Scan, yesterday. Cripes I hate waiting fo rthis stuff. I want immediate answers. Wish I could have scheduled it better. I am volunteering at our local Library just to fill my days. Betsy > All right I will go first. SSDD. Just waiting for next Wednesday to get the > results of my PET Scan, yesterday. Cripes I hate waiting fo rthis stuff. I > want immediate answers. Wish I could have scheduled it better. > I am volunteering at our local Library just to fill my days. > > Betsy oh, same stuff, dfferent day (i had to look it up). I thought that might be an acronym for your type of cancer. <g> We'll hope the days will fly by for you, Betsy and it'll be good news. What exactly are you doing at the library? Tell us later, if you're too busy. I'm just curious. I'll be watching for your update. Hugs J >> All right I will go first. SSDD. Just waiting for next Wednesday to get >> the [quoted text clipped - 14 lines] > Hugs > J I am so glad you caught the meaning. I sure didn't want to explain it online? RE; the Library: I am the Craft book lady. I go in and straighten out the whole aisle and put the books back into numerical order. Not difficult, after 18 years in a warehouse, numbers come easy to me. I am seldom too busy for anything I am intrerested in. Betsy > >> All right I will go first. SSDD. Just waiting for next Wednesday to get > >> the [quoted text clipped - 22 lines] > > Betsy Guess I'll leave the (quoted) text or they won't make sense of it. laudible volunteering. You must one tough gal. I did similar for years but eventually found it too hard on the back and the knees. Interesting work though. Get to leaf through other people's choices and discover more books of interest Thanks for explaining, Betsy.. J > > >> All right I will go first. SSDD. Just waiting for next Wednesday to get > > >> the [quoted text clipped - 33 lines] > > - Show quoted text - I am still here too. Craig is doing so welll lately that we have been trying to do some of the things we have kept putting off. Hopefully he will kepp going and be here in September when our Grandbaby Boy gets here. Becky >> > >> All right I will go first. SSDD. Just waiting for next Wednesday >> > >> to get the [quoted text clipped - 41 lines] > > Becky Becky, Glad to hear things are still going so well. I hope you both enjoy a wonderful summer together, preparing for that grandson's arrival. Your first grandchild? Do the parents-elect live nearby? Fig > >> > >> All right I will go first. SSDD. Just waiting for next Wednesday > >> > >> to get the [quoted text clipped - 50 lines] > > - Show quoted text - Yes, our first. I think that is what is keeping him going. I only hope his health stays as strong as his will is right now. Our son and daughter in law are about 10 mins away. So Grandpa is already sending the kids home with train sets, car tracks etc.....I don't think our son or Craig have had this much fun together in a long time. Our Granson's name will be Daniel. We are really excited. It's hard sometimes to be excited but not really know, oh well we are trying to go by the minute and not worry about the rest till we have to. Our affairs are in good order so no worries there. Becky > > > I am still here too. Craig is doing so welll lately that we have been > > > trying to do some of the things we have kept putting off. Hopefully he [quoted text clipped - 19 lines] > > Becky That's so wonderful, Becky. Craig and his son getting together in a common interest in preparation for the grandchild. Are you getting videos of all this? I hope so. Daniel will so appreciate seeing them. Many hugs and thanks for sharing. J > > > > I am still here too. Craig is doing so welll lately that we have been > > > > trying to do some of the things we have kept putting off. Hopefully he [quoted text clipped - 27 lines] > > - Show quoted text - Not videos, Craig is a little camera shy right now, and we have lots of video from when our son was little and they played. We will when Craig feels good about it. Pictures however are another thing, thanks to digital photography, you can take pictures now that almost no one can hear unless it is very quiet in the room. :>) Our son didn't ever really say much about it till recently, both because of the situation and the baby, but he admitted he had tons of fun with his Dad. Right now I have fingers and toes crossed hoping all will continue on this path for a bit longer. Becky >>>>> I am still here too. Craig is doing so welll lately that we have been >>>>> trying to do some of the things we have kept putting off. Hopefully he [quoted text clipped - 35 lines] > > Becky I don't know if it will help Becky, but I'll cross my fingers and toes too. Best wishes to you both. Caz. Scott's mom > >>>>> I am still here too. Craig is doing so welll lately that we have been > >>>>> trying to do some of the things we have kept putting off. Hopefully he [quoted text clipped - 44 lines] > > - Show quoted text - I think anything helps right now, Thanks Caz. -b GBM caregiver. We had a few GBM folks in here----I've lost track of who they are J. > GBM caregiver. > > We had a few GBM folks in here----I've lost track of who they are J. My hubby Tony had one back in 2002/03 and I was his caregiver if I can ever be of any assistance Maryanne. Warm Hugs Alayne HI, I realize you can keep everyone straight all of the time but I never once did I say my dad had glioma. he has primary sarcoma in the brain. I might of mentioned they were thinking of going to use a chemo drug that primary is used for that form of brain cancer. they didn't. now he is looking at end of life chemo that might prolong his life another month or two but he doesn't was to go out being sick so I guess that is out. It is kind of funny cause dad looks better now than he ever did even tho he has only a short time left. He is even getting up and doing some light things ( like fishing) We noticed some changes in his personality and he is much quicker to anger now. :) Lynn <---- places noone in filters and doesn't like to be told who should go in there > Lynn -father (glioma) > :) Lynn <---- places noone in filters and doesn't like to be told who should > go in there This is another "trust me, it works" on most problem posters. J > HI, > I realize you can keep everyone straight all of the time but I never once [quoted text clipped - 9 lines] > We noticed some changes in his personality and he is much quicker to anger > now. Sorry about the mistake, Lynn. If you saw how I do it, you'd understand. I have 3+ years of posts, 50,214 posts. I sort them by poster name, then arrow down or up to get the names of people and types of cancer, until my arm gets tired. Some comes from memory. When you joined, you entered a thread of PL's whose relative had a glioma and that was your first post Hence how the mistake happened. My apology. I don't remember talking about chemo, but maybe you did mention it. I would think it would take a very high dose of more than one for the brain to have some effect. There's also carmustine wafers...inserted during surgery. I don't know of anyone whose had that done. Sounds like the wafers are impregnated with chemo and are placed around the outside of the brain and they release the chemo over a period of 3 weeks. Some places say for inoperable tumors; some say for mets, some say only for high grade gliomas. I don't know the downsides; whether they have to be removed else somethiing negative happens... same for brachytherapy. Perhaps they're out of the question for any number of reasons. <http://www.tbts.org/itemDetail.asp?categoryID=368&itemID=16380> It's good to hear he's getting some fishing in and looking better. Hard to know if the anger is due to the effect, of the tumor, on the brain or coming to terms. Thanks for the update, Lynn. You'll all be in my thoughts. Hugs J CT scan in December, 2006 showed: 1) An unexpected increase in the volume of fluid/debris filling the left hemithorax - could be the result of hemorrhage from resection site or malignant effusion. 2) A 4 mm nodule in the right lung apex. 3) Thyroid goiter unchanged. 4) Left hepatic cyst - stable. (Note: I was very sick; bad cough, congestion, fever. I went to the ER on Xmas Eve hoping they would drain that fluid, but they admitted me. TX consisted of Solumedrol which I think worsened my breathing, etc., no improvement after 6 days, they actually thought I was having an asthma attack, discharged with home oxygen.) PET scan in January, 2007: 1) Rind of blood pool, irregular hypermetabolism at the periphery of the enlarging left pneumonectomy space suspicious for recurrence within the pneumonectomy space. 2) New 14 mm mildly hypermetabolic (SUV 2.4), 14 mm left supraclavicular lymph node also indeterminate but suspicious for recurrent/metastasis. 3) No evidence of mets below the hemidiaphragm. 4) Stable goiter. (Finally my pulmonolgist schedules a thoracentesis and I could breath again!!! No more oxygen). But on bronchoscopy the doc found that my trachea collapses and was very mushy on expiration and he could not get down to my stump. Says he wants to try again but I'm not sure about that. The biopsies he did get were benign, also the fluid 1.3 liters was all benign - YEAH! Chest x-ray showed that everything had moved back into position where it had been. To date I have been doing okay. Still messing around with anti-thyroid drug dose but at least it did not grow over the past six months. I think I have lost some ground as I get very fatigued if I do too much, strength loss, etc. I am no longer working because of my cough (very loud and frightening to some, sometimes quite painful to sternum area and surgical site), fibromyalgia, etc., and am applying for SS disability which is proving to be tiresome in itself, BUT the sun is shining - YEAH. Next CT in June. Thanks for being here! Tracey > CT scan in December, 2006 showed: 1) An unexpected increase in the volume of > fluid/debris filling the left hemithorax - could be the result of hemorrhage [quoted text clipped - 31 lines] > Thanks for being here! > Tracey Well ! You've had a very eventful year so far. I'm sorry to hear about the cough. Here's hoping things get better for you, Tracey. Good luck with the next scan and the SS disability. Thanks for joining the roll call. J >I think it's time for a roll call in case it draws some of you out. > [quoted text clipped - 76 lines] > PS if the troll/scammer "treatcancer.nl" replies, please put him in your > filter (bozo) bin. All done for a bit. I have a nodule that seems to be getting bigger. Right upper body behind my clavicle by the port a cath. It is 8mm and was barely showing three months ago. Cannot be felt thru my skin. I was raised in the USA and have no a clue about how large 8mm is? Nothing online tells me either. Another Pet Scan in three months and an appt with the Radiation Oncologist tomorrow. Check up Betsy > >I think it's time for a roll call in case it draws some of you out. > [quoted text clipped - 88 lines] > > - Show quoted text - Me too, Betsy and everytime we get new MRI results they change it from cm to mm. Here is a link I used. http://mdmetric.com/tech/cvtcht.htm Take Care, Becky BetsyB wrote : "All done for a bit. I have a nodule that seems to be getting bigger. Right upper body behind my clavicle by the port a cath. It is 8mm and was barely showing three months ago. Cannot be felt thru my skin. I was raised in the USA and have no a clue about how large 8mm is? Nothing online tells me either." Hi Betsy, 1 millimeters = 0.0393700787 inches. 8 millimeters = 0.3149606296 inches. So you might evaluate 8 mm. as being "close" to one-third of a inch, or, more accurately, as about 5/16th. of one inch. There are "loads" of conversion calculators on the web : http://www.google.com/search?hl=en&q=convert+millimeters+to+inches best, Uncle Sally > BetsyB wrote : > [quoted text clipped - 17 lines] > > best, Uncle Sally Thanks to you both. The only metic I know is converting weight of boxes for shipment out. At almost 69 I doubt there is a big demand for my talents? Betsy > BetsyB wrote : > [quoted text clipped - 3 lines] > USA and have no a clue about how large 8mm is? Nothing online tells me > either." Go to a bead shop or a craft store and find the 8mm beads. It should give you a perfect idea of the size. Sorry I missed the original post. We are on the road in Lubbock, TX visiting museums. Hugs, Janet  SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life >> BetsyB wrote : >> [quoted text clipped - 15 lines] > Hugs, > Janet Have 6 flowers on the tomatoes waiting for you to arrive. You will probably be home before and fruit arrive. There is always Cracker Jacks. Let me know if he is open yet? I forgot about the beads I had. DUH! > All done for a bit. I have a nodule that seems to be getting bigger. Right > upper body behind my clavicle by the port a cath. It is 8mm and was barely [quoted text clipped - 3 lines] > Another Pet Scan in three months and an appt with the Radiation Oncologist > tomorrow. Check up 1 cm = 10 mm, so it's just under 1 cm. I have a ruler, shows inches and cm/mm. Thanks for the update, Betsy. Let us know what he says. J >> All done for a bit. I have a nodule that seems to be getting bigger. >> Right [quoted text clipped - 14 lines] > Let us know what he says. > J Radiation will begin next Tuesday. The Rad. Onc thinks it should go well since it is not huge. Betsy > >> All done for a bit. I have a nodule that seems to be getting bigger. > >> Right [quoted text clipped - 3 lines] > not huge. > Betsy Well, Pet's have false positive, but since it showed up twice, RT sounds reasonable to me. A few short bursts? Hope it goes well for you, Betsy. J > >> All done for a bit. I have a nodule that seems to be getting bigger. > >> Right [quoted text clipped - 18 lines] > since it is not huge. > Betsy- Hide quoted text - Good luck for Tuesday and the following treatments Betsy. All the best isi >> >> All done for a bit. I have a nodule that seems to be getting bigger. >> >> Right [quoted text clipped - 23 lines] > All the best > isi Thanks much I was raised in the > USA and have no a clue about how large 8mm is? Nothing online tells me > either. From my days with a VW (bug and Busses) 1/2 inch =about 12 mm 1/4 inch =about 6mm so 8mm would be about 3/8 inch bobert SignatureThere are very few personal problems that cannot be solved through a suitable application of high explosives. Bob in Central CA | [snip] | | | Another Pet Scan in three months and an appt with the Radiation Oncologist | tomorrow. Check up | | Betsy Hope things go well for you, Betsy luv. Old Bill. p.s. it's just under 3/8ths of an inch. A rough guide would be 1 inch equals 2 1/2 centimetres. > Clifto? Just had a CT Tuesday and didn't hear a peep out of the doc on Wednesday. (Saw doc Monday; should have had the scan done before that but scheduled things badly.) I'll be dropping by the facility to get my own copies of the radiologist's report and the pictures tomorrow or Friday. I'm too fat! I can't stop eating! Yarrrrrgh SignatureWe can't possibly imprison 300 million Americans for not paying their taxes, so let's grant all of them amnesty NOW! > > Clifto? > [quoted text clipped - 4 lines] > > I'm too fat! I can't stop eating! Yarrrrrgh Eat 3 bites; then wait 10 minutes. If the hunger's gone; save it for later. and/or have sex instead. :p I'll be watching for your update. Thanks clifto. J >> Just had a CT Tuesday and didn't hear a peep out of the doc on Wednesday. > > I'll be watching for your update. Got my copy of the report today. There's one lymph node that's still growing, and I don't like that. It was originally 4 mm, grew to 7 and now it's 12 mm. However, everything else is the same as it was last time. Time to talk to the doc. SignatureWe can't possibly imprison 300 million Americans for not paying their taxes, so let's grant all of them amnesty NOW! > >> Just had a CT Tuesday and didn't hear a peep out of the doc on Wednesday. > > [quoted text clipped - 4 lines] > However, everything else is the same as it was last time. Time to talk to > the doc. Thanks clifto, Would it be fair (good judgement) to try an antibiotic? J >>> Just had a CT Tuesday and didn't hear a peep out of the doc on >>> Wednesday. [quoted text clipped - 7 lines] > However, everything else is the same as it was last time. Time to talk to > the doc. I think you and I need to cut the fertilizer we are giving our bodies. Hell if I know what it's called. We got junk popping up all over. Darn right, call for an appt. if you haven't already. Betsy > I think it's time for a roll call in case it draws some of you out. > [quoted text clipped - 76 lines] > PS if the troll/scammer "treatcancer.nl" replies, please put him in your > filter (bozo) bin. hello J Sorry about not letting everyone know on how Michael is at the moment he is doing ok the bone scan showed no other cancers thank god. At the moment i am more worried about his heart. He is experiencing chest pains every night it last for a couple of minutes the cardio said that he has heart disease and that there is nothing to be done other than take betaloc,cartia and duride medications god when dose this end for him he gets over one hurdle and another one seems larger anyway we are at the moment doing fine. Cheers Riana |
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