Medical Forum / Diseases and Disorders / Cancer / January 2007
Roll Call - alt.support.cancer First/2007
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J - 06 Jan 2007 11:35 GMT Time for an update (from those who haven't posted in a while) or intro for those who've cancer and haven't introduced themselves yet. And those who are blessedly NED, who haven't come out of lurkdom for a while. type and stage - (where it has spread) please.
End stage (not on active cancer medications) welcome here. Breast and prostate cancer patients on active anti-cancer medications, best to share and compare on respective newsgroup alt.support.cancer.breast alt.support.cancer.prostate Breast and cancer patients - if you're a supporter here, please join in and intro.
I was hoping to hold this until after Angie's Nov 11th appointment, but by the time this gets going, we may be able scoop her results up in this anyway and Susan (pinkmoose) posted a test message on the wrong cancer newsgroup, so maybe she's waiting for an invite in. So come on in, Susan, unless it's breast cancer related. I posted instructions on the wrong newsgroup for news hosting services, in case that helps you..
So those who reply, please delete my text above), preferable to put your type of cancer in the subject line (replace the "alt.support.cancer First 2007" with your info. Thanks J
J - 06 Jan 2007 11:39 GMT All good news about Kili http://www.caringbridge.org/visit/kilikini "I go back next month for more liver tests and another CT scan. Then, if all goes well, I should have a reprieve until, April, I think. Yay!"
(since it's hard to drag her here). J
tanada - 06 Jan 2007 17:31 GMT > All good news about Kili http://www.caringbridge.org/visit/kilikini > "I go back next month for more liver tests and another CT scan. Then, if [quoted text clipped - 3 lines] > (since it's hard to drag her here). > J She's shy.
Pam S.
J - 26 Jan 2007 12:56 GMT > "J" <nexsw@nvalid,anon> wrote in message > > All good news about Kili http://www.caringbridge.org/visit/kilikini [quoted text clipped - 5 lines] > > Pam S. Well, I guess I'm mumbling to myself, unless she's reading here (because I'm not barging into her conversations elseswhere) ; but if she's smart she'll stay with Mayo despite minor aggravations. Of course she needs a gastro consult. J
alex - 06 Jan 2007 18:03 GMT > All good news about Kili http://www.caringbridge.org/visit/kilikini > "I go back next month for more liver tests and another CT scan. Then, if [quoted text clipped - 3 lines] > (since it's hard to drag her here). > j She doesn't need anymore treatment that is wonderful a surgical cure and surveillance. No fear of dying from the tumor. How wonderful!!!! She should be recovered in a couple of months and be able to move on with her life........that is so wonderful. No chemo or radiation. Her docs must be convinced she is all set....that is so great.
Peter Clarke - 06 Jan 2007 12:39 GMT Peter , North Wales UK back with the group ,reading mostly but sending warm hugs to all. Lung cancer from Nov 1999 , But three lots of chemo and two lots of Radio therapy later I am still keeping full of possitive thoughts as best that I can , Just wish the cancer specialist had the same thoughts, but what do they know anyway. hehe . All the best J regards Peter.
All the best wishes for the New Year and many thanks to all the staff at Glan Clwyd Hospital Cancer Unit.
Angie - 06 Jan 2007 13:14 GMT > Time for an update (from those who haven't posted in a while) or intro for > those who've cancer and haven't introduced themselves yet. And those who [quoted text clipped - 21 lines] > Thanks > J Greetings everyone. I am Angie :o) 45 yrs old. Diagnosed with cancer of unknown primary origin on 12/27/2005. It was found after I had squamous cell carcinoma in 4 areas (scalp, behind ear, back and leg) surgeon suggested a CAT scan - 3 small nodules were found in my lungs. Started 6 mos of Taxol and Carbo. Finished in June '06. Aug '06 I suffered a small stroke - went to hospital where they did a CAT scan of brain and an MRI the following day. It was determined that I once again had 3 small "spots" in the brain, so I had 15 WBRT's. Which brings me to today. Doing fairly well, having headaches and stiff neck again, so I have been worrying too much. Still unable to eat much as food seems to be repulsive to me and tastes bad. I have my check in with the onc on 1/18 (appt was changed) sooooo I imagine CAT or Pet scans will be ordered. The darn waiting game begins (the one that drives me insane) Anyone have any tips on how to stop stressing over the tests/results. I know stressing doesnt change the outcome etc but I still continue to do it.......... And I have been aching all over and have found a couple lumpy areas under the skin, one being by my hip and other 2 are about in identical areas around the sides by ribs (one on each side). I will keep you all posted. Happy New Year and thank you all for being here to lend and ear and encouraging words. You have all been a godsend to me.
Angie
alex - 06 Jan 2007 18:05 GMT ave my check in with the onc on 1/18 (appt was changed)
> sooooo I imagine CAT or Pet scans will be ordered. The darn waiting game > begins (the one that drives me insane) Anyone have any tips on how to stop [quoted text clipped - 7 lines] > > Angie Hoping for a good appointment filled with good news. Alex
J - 07 Jan 2007 10:22 GMT > "J" <nexsw@nvalid,anon> wrote in message > [quoted text clipped - 24 lines] > > Angie Hello Angie, I'm sorry your appointment has been delayed. It must weigh heavily on your mind.
Have you access to massage therapy and/or aromatherapy? It would be nice if someone could whisk you away to a spa or retreat somewhere, where there's such services available, along with other activities, including walks with friends, if you're up to it. If you can't leave home, try to keep busy, one way or another and pamper yourself as much as possible. When you go to bed, think "I'll worry about it in the morning", so hopefully you'll sleep better. If you feel taking a break from this newsgroup would help, go for it and busy yourself with other activities. If you decide to stay and read or post, do so. I'll be here reading and caring. Watch for other replies, in case others have better ideas. Hugs J
Angie - 07 Jan 2007 15:45 GMT >> "J" <nexsw@nvalid,anon> wrote in message >> [quoted text clipped - 57 lines] > Hugs > J Thanks for the ideas. Guess I havent tried doing some of those to keep my mind off of things. I opt to stay here, I enjoy reading about everyone and it really helps on those "off" days. I reallllllllly think I do need to pamper myself more though, hot bubbly bath with candles would be nice - hmmmmmm think I will do that now :o)
Take care and thank you again.
Angie
J - 16 Jan 2007 08:00 GMT > "J" <nexsw@nvalid.anon> wrote in message > > [quoted text clipped - 36 lines] > pamper myself more though, hot bubbly bath with candles would be nice - > hmmmmmm think I will do that now :o) How's it going, Angie? I've been thinking of you. Just a few more days eh? Hugs J
Belle Gin - 06 Jan 2007 14:04 GMT > So those who reply, please delete my text above), preferable to put your > type of cancer in the subject line (replace the "alt.support.cancer First > 2007" with your info. > Thanks > J Hello all, I've been reading A.S.C. for about 2 years. You may remember me from my Dad, who passed away last year from a metastatic mesenteric tumor. A new bit of news: We learned in early December that my Mom has CLL, a version of leukemia (same as Ed Bradley had). Certainly this news was not expected as mom has always been healthy as a horse and from good strong stock (all her relatives lived well into their 90s). The news was a big blow to say the least. I've done a bit of research online and found an ACOR list and am getting up to speed. The good news is that she's fairly healthy other than tiring more easily and catching every bug that's in the air, but there are those who live with the disease for many years and I pray she is one of those people as I'm not ready to lost my other parent so soon.
Happy New Year to all of my friends on a.s.c., a wonderful group of people. Belle
J - 07 Jan 2007 09:34 GMT Belle, Gin, > wrote:
> I've been reading A.S.C. for about 2 years. You may remember me from my > Dad, who passed away last year from a metastatic mesenteric tumor. A [quoted text clipped - 11 lines] > Happy New Year to all of my friends on a.s.c., a wonderful group of people. > Belle Thanks luv and same to you and your mother. Sorry to hear of your mother's diagnosis. Here's hoping she'll stay fairly healthy for a long time. Please keep in touch and let us know how you're both doing. J
tanada - 06 Jan 2007 17:38 GMT Lets see. Rob is doing as well as can be expected. His days tend to be split between good, bad, and so-so. We got a letter from the VA last month admitting that Rob has brain cancer and wanting a copy of his treatment plan. I figure this is a big step forward. He sees his neurologist on the 24th to work out said treatment plan (he didn't have a neurologist until December, so this is a start. He sees his Neurosurgeon in Chapel Hill in February for a consult, and to see what the two specialists have come up with. His military oncologist is (wisely, I am afraid) getting out of the army. We'll miss him, but our loss is Louisville Kentucky's gain. He's a good man, and an excellent oncologist.
Pam S.
alex - 06 Jan 2007 18:10 GMT > Lets see. Rob is doing as well as can be expected. His days tend to be > split between good, bad, and so-so. We got a letter from the VA last [quoted text clipped - 8 lines] > > Pam S. Glad to hear that the VA is stepping up to the plate. My experiences with the VA have been the biggest battle is getting the patient into the system but once you are in the give wonderful care. Alex
J - 07 Jan 2007 07:16 GMT > Lets see. Rob is doing as well as can be expected. His days tend to be > split between good, bad, and so-so. We got a letter from the VA last month [quoted text clipped - 8 lines] > > Pam S. Hello Pam, it's good to hear the VA's working on the eligibility thing for you and Rob. Best wishes for new treatment plan. Hugs J
Janet Wilder - 06 Jan 2007 22:02 GMT Hi, I'm still lurking.
Had surgery to remove almost half of my tongue in June '06 followed by 30 radiation treatments just for precaution as there was NED on scans after the surgery and path report showed clear margins.
Burst my colon with 4 radiation treatments to go and had a colostomy. Finished the treatments on 9/13. Colostomy was reversed on 11/28.
The surgeries took a lot out of me and I'm very thin, but feeling better. (Yes, one CAN be too thin) I have to get a routine CT and blood work in mid-January and see the MO in charge of my case. I don't anticipate any problems.
Happy new year to everyone.
Janet
 Signature Janet Wilder Bad spelling. Bad punctuation Good Friends. Good Life
Bob - 07 Jan 2007 01:50 GMT Still here and still chugging along.
I am now 3 1/2 years from Dx and 2 years NED. Needless to say my RO called me the cancer center poster boy.
My next scan won't be until March.
If you go to <http://www.pbase.com/the_bobert/image/72663335/original> you will see a picture of me between The Lovely Barbara (my main squeeze) on my right and my sister Sharon on my left. The caption says it was Dec 26, 2004, but it was really 2006. I put a fresh battery in my camera and it changed the year but not the month or day. Ain't technology wonderful?
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bobert
J - 09 Jan 2007 09:23 GMT > Still here and still chugging along. > [quoted text clipped - 8 lines] > put a fresh battery in my camera and it changed the year but not the month or day. > Ain't technology wonderful? It's wonderful to see the loving people in your life. Thanks for sharing and for the smaller versions. Good luck with the scan, Bob. J
Bozz - 07 Jan 2007 16:49 GMT My 47 year old wife (who is a chemo specialist nurse) was diagnosed with inoperable stomach cancer in Jan 2006. Eighteen weeks of chemo (ECF) gave us three months symptom free in which we had a great time. Second line chemo (Irinotecan/5'FU) started October and is ongoing. Our main day to day problem is physically getting food down. It's heartbreaking to know that somebody is invariably always hungry but can only manage enough food and liquid to keep a mouse going. Chocolate and butter, where would we be without chocolate and butter. I am the king of high cal soups.
Ian
Bozz - 17 Jan 2007 18:38 GMT > My 47 year old wife (who is a chemo specialist nurse) was diagnosed with > inoperable stomach cancer in Jan 2006. Eighteen weeks of chemo (ECF) gave [quoted text clipped - 4 lines] > and liquid to keep a mouse going. Chocolate and butter, where would we be > without chocolate and butter. I am the king of high cal soups. Hi all,
We're now six eighths of the way through the second line chemo. Chemo is going well after a 20% dose reduction so that her neutrophils can keep up. Side effects have been minimal although the complete hair loss is a bummer after it grew back so nicely last time. Friday's CT was OK, no real changes from the last one in September.
The main battle so far is getting food down, soups and home made baby food are good. Strangely crackers and cheese or other little treats seem to go down well. We've also stated on the odd glucose energy drink, a little dodgey as she's diabetic, but calories are calories. Having said that, the first week after chemo plays the steroids play havoc with her blood glucose so a little care is needed. Oh, and then there is chocolate, thanks be to chocolate.
We thought it wise to look at any other treatment options as swallowing is getting progressively difficult so we went to see the gastro guy on Monday who did the origional endoscopy and asked if there was anything he could do to help. People moan about the NHS but he did a new endoscopy on Tuesday so we can't really complain about that. It seems that the lumen of the eosophagus is about the size of a Bic pen, a little smaller than the endoscope in fact so he couldn't get into the stomach itself. The conclusion was that a stent could be in order, depending on if the stomach itself can accomodate it, to which end we are due a barium swallow soon. We so hope it's not the same guy who misdiagnosed her cancer as a hiatus hernia at the end of '05.
So, good news if it all works, bad if we are the width of a Bic pen from oblivion. At least we are still together in 2007 and she's doing pretty well with it.
To be continued.
Ian
Alayne - 18 Jan 2007 07:59 GMT >> My 47 year old wife (who is a chemo specialist nurse) was diagnosed with >> inoperable stomach cancer in Jan 2006. Eighteen weeks of chemo (ECF) gave [quoted text clipped - 40 lines] > > Ian Fingers crossed that it's good news and some progress can be made.
Warm Hugs
Alayne
J - 18 Jan 2007 12:16 GMT > We're now six eighths of the way through the second line chemo. Chemo is > going well after a 20% dose reduction so that her neutrophils can keep up. > Side effects have been minimal although the complete hair loss is a bummer > after it grew back so nicely last time. Friday's CT was OK, no real changes > from the last one in September. Hello Bozz, What's the chemo doing, please? Keeping her goo levels down?
> The main battle so far is getting food down, soups and home made baby food > are good. Strangely crackers and cheese or other little treats seem to go [quoted text clipped - 3 lines] > so a little care is needed. Oh, and then there is chocolate, thanks be to > chocolate. Well after considering dashing out for peaches and cream, followed by chocolate melting in my mouth, I decided to post GI anatomy instead. The cheese probably has fat in it, so it melts (in her mouth) and helps the (chewed/melted) crackers slide down? Then there's gravity (of the food and/or goo in the stomach) and incline, I imagine affects the muscle function and peristalsis of the esophagus.i guess I'd have to see her tumor and where the opening is to figure out if inclining to one side (or the other) would help the swallowing... I wonder if she could slurp some up into a straw, block the bottom, then incline one side, release a bit and see if it swallows better, then try the other side, the same way? Sure sounds like a small opening.
> We thought it wise to look at any other treatment options as swallowing is > getting progressively difficult so we went to see the gastro guy on Monday [quoted text clipped - 7 lines] > it's not the same guy who misdiagnosed her cancer as a hiatus hernia at the > end of '05. Well, hopefully if it is he, he's better at putting in stents than diagnosing. Good luck with the procedure. Keep in touch. Our thoughts are with you and your wife. J
Bozz - 19 Jan 2007 16:31 GMT >> We're now six eighths of the way through the second line chemo. Chemo is >> going well after a 20% dose reduction so that her neutrophils can keep [quoted text clipped - 6 lines] > > Hello Bozz, What's the chemo doing, please? Keeping her goo levels down? The "Goo" thing was a euphemism for what the onco suggested or we supposed might be nasty stuff all over the place. This seemed not really to be the case, at worst a few local lymph nodes were inflamed above and beyond the stomach itself and that was very much the case a year ago. Certainly liver and lungs are still clear and anything wrong with her brain I put down to the chemo. The main symptom at the end of the summer was the increasing dysphagia and the chemo does seem to improve that.
>> The main battle so far is getting food down, soups and home made baby >> food [quoted text clipped - 26 lines] > side, > the same way? Sure sounds like a small opening. Yep, small indeed. As long as she doesn't try anything silly like bread or meat, little things do go down. I occasionally have to "burp the baby" so to speak, a good rub seems to help some things on their way of air back up the other way. There is no great logic to what goes down, although there seems to be a preference for tasty expensive food!
>> We thought it wise to look at any other treatment options as swallowing >> is [quoted text clipped - 21 lines] > Our thoughts are with you and your wife. > J I just hope it's not the same guy. We are not the litigious type, but we do not suffer fools gladly and my wife would be unlikely to refrain from comment.
Ian
Bozz - 24 Jan 2007 23:10 GMT Hey, justy realised it was our one year cancervarsary yesterday. As the gastro consultant looked surprised to see my wife doing so well last week, we must be doing something right.
Ian
J - 24 Jan 2007 23:38 GMT > Hey, justy realised it was our one year cancervarsary yesterday. As the > gastro consultant looked surprised to see my wife doing so well last week, > we must be doing something right. > > Ian Right on, Ian ! How goes the search for a competent surgeon? J
Bozz - 25 Jan 2007 08:08 GMT >> Hey, justy realised it was our one year cancervarsary yesterday. As the >> gastro consultant looked surprised to see my wife doing so well last [quoted text clipped - 6 lines] > How goes the search for a competent surgeon? > J We are due a barium swallow next Tuesday to see if the stomach can accomodate a stent. Fingers crossed.
Ian
J - 26 Jan 2007 11:16 GMT > "J" <nexsw@nvalid,anon> wrote in message > > [quoted text clipped - 11 lines] > We are due a barium swallow next Tuesday to see if the stomach can > accomodate a stent. Fingers crossed. Good luck with that, Ian. We'll be watching for your updates. J
Bozz - 31 Jan 2007 22:41 GMT > Good luck with that, Ian. > We'll be watching for your updates. > J Well, the barium swallow suggests that they could put a stent in is they need to. The doc suggested that if things were OK(ish) at the moment then carry on, use the stent as a last resort if swallowing gets too bad.
It's last chemo day tomorrow, the PICC line's coming out Monday (come hell or high water) and Paris (France) in the sports car beckons in a couple of weeks. Eyes of Lucy Jordan if you know the song, I don't know about the warm winds in her hair - It's February and my wife has very little hair, and she's got another 10 years on Lucy, but hey, apart from that!
We're working on having our marriage blessed on 4th March, didn't do the church thing first time around and it's a good excuse for a knees-up, probably the last chance for a big get-together that includes my wife (in vertical mode) and it gives us something to work towards. In case anybody thinks my post is a bit weird, I love her truly, madly, deeply.
Ian
J - 31 Jan 2007 23:42 GMT > Well, the barium swallow suggests that they could put a stent in is they > need to. The doc suggested that if things were OK(ish) at the moment then [quoted text clipped - 11 lines] > vertical mode) and it gives us something to work towards. In case anybody > thinks my post is a bit weird, I love her truly, madly, deeply. No doubt, Ian. May every day be a blessing with your lovely wife. Thanks for the update. J
turtletrot1 - 18 Jan 2007 19:41 GMT "At least we are still together in 2007"
I know exactly what this means. Blessings to you both.
maryanne kehoe - 08 Jan 2007 04:32 GMT Husband had GBM removed August, 2005. 36 radiation treatments followed. Then started 1 week per month chemo (pills taken at home.) Subsequent MRI's and blood work continue to be clear.
Upcoming scheduled MRI in the next several weeks. We're doing fine (except for the usual "crankies"! :)
Figgertoes - 10 Jan 2007 06:19 GMT Figgertoes here. Husband, Socks, died 9/7/05 from NSCLC at 52 followig 4+ mostly good years living with cancer. He was a frequent contributor here where he made a lot of friends & got information & support. He worked hard to get smoking banned in Colorado bars & restaurants. The law finally passed the session following his death, as he felt sure it would.
Like Penny, I was dismayed to learn how very little research is being done for lung cancer. The prevailing thought is that once people stop smoking, lung cancer will become insignificant. Well, it sure isn't now & people I love & care about continue to die of it..
A number of months ago, I became aware - from a post here - of a group in San Francisco raising significant sums & attacking lung cancer research & detection on several fronts. This board is not a forum for raising funds & I am not trying to do so. I just want people to be aware that they got 600 people to a $300/plate dinner in San Francisco in support of lung cancer research & have attracted a number of notables to the cause. I find this amazing. I hope it brings comfort & a measure of hope to some readers here. You can read more at abreathawayfromthecure.org. There is some information there that might interest you if you or someone you know suffers from lung cancer.
This is a wonderful forum for people with cancer & those who support them. If you have been lurking & haven't posted before, this is an invitation to introduce yourself. I hope you do.
Fig
DLU - 10 Jan 2007 19:58 GMT > Figgertoes here. Husband, Socks, died 9/7/05 from NSCLC at 52 followig 4+ > mostly good years living with cancer. He was a frequent contributor here [quoted text clipped - 6 lines] > lung cancer will become insignificant. Well, it sure isn't now & people I > love & care about continue to die of it.. although smoking has been the most prevalent case for lung cancer, there are other environmental factors. However in the 1930s when Dr. Dubakey was doing his residency in England, he and another Dr. studied lung cancer victims. All of them were smokers, 100%, so the medical profession know as far back as then that smoking causes lung cancer. Secondly, although one has stopped smoking for several years, they still have a chance of developing lung cancer. The tissues in the lungs have been destroyed by the particles from the smoke. That said, diesel exhaust also emits particles less than 2.5 microns in diameter which have the same effect as cigarette smoke. 93% of diesel exhaust is carcinogenic.
Places like the port of Los Angeles have 33,000 trucks a day entering and leaving the port. The great majority of these are older due to the nature of the short haul truckers who are poorly paid and can not afford to buy newer cleaner trucks. In the San Joaquin Valley and particularly in the Fresno area, the rate of respiratory illness is one in six among children. Old farm machinery, tractors, pump motors, and other equipment contribute to this. Also, a 50 passenger bus emits as much pollution as the 50 cars it replaces. Trucks are even worse, the newer trucks have engines up to 650 HP, these emit the equivalent pollution of 250-300 cars. Then there are the rail road engines, the newer ones are are up to 7500 HP. They are much cleaner than the older engines but it is still diesel.
Fact is, particles lodging in the lungs cause lung cancer. There may be a slight component that could be prevented by some kind of drug therapy, but the best therapy is clean air.
Figgertoes - 10 Jan 2007 20:58 GMT > > Figgertoes here. Husband, Socks, died 9/7/05 from NSCLC at 52 followig 4+ > > mostly good years living with cancer. He was a frequent contributor here [quoted text clipped - 35 lines] > There may be a slight component that could be prevented by some kind of > drug therapy, but the best therapy is clean air. Yes, clean air indoors & out.
I saw on the abreathaway site a trial for adding an additional drug to standard chemo for those who never smoked (like Socks) or who smoked lightly. It seems to help those cases the most. I guess sometimes I almost forget it's too late for him, but there are so many others.
I was reading about the dual fuel vehicles & what a boon they are for the car manufacturers to be allowed to build more low mileage cars with no real advantage to have cars run on gas & ethanol. And my Prius did not get me to work during the recent storm. My neighbor's Explorer did. No one said this is easy...
Fig
Macy - 14 Jan 2007 07:40 GMT > > Figgertoes here. Husband, Socks, died 9/7/05 from NSCLC at 52 followig 4+ > > mostly good years living with cancer. He was a frequent contributor here [quoted text clipped - 35 lines] > There may be a slight component that could be prevented by some kind of > drug therapy, but the best therapy is clean air. clifto - 11 Jan 2007 07:25 GMT > Time for an update (from those who haven't posted in a while) or intro for > those who've cancer and haven't introduced themselves yet. And those who > are blessedly NED, who haven't come out of lurkdom for a while. > type and stage - (where it has spread) please. A little side journey: some may remember my father-in-law, who contracted bladder cancer and was treated a while back with chemo and radiation. He was presumed to have done well in treatment as regards the cancer, but he was never quite the same afterward. Monday he was found in bed, short of breath and not recognizing his wife of umpty-ump years; he was rushed to the hospital and passed away that morning. He would have been 84 this month.
 Signature Nazi: a person who is winning an argument with a liberal.
DLU - 12 Jan 2007 05:23 GMT >>Time for an update (from those who haven't posted in a while) or intro for >>those who've cancer and haven't introduced themselves yet. And those who [quoted text clipped - 8 lines] > to the hospital and passed away that morning. He would have been 84 > this month. Sorry to hear that Clifto. My sympathies to you and your wife.
irishfolker - 11 Jan 2007 15:21 GMT Still mainly lurking. Bonnie passed away in July from gallbladder cancer. I'm doing pretty well. In a support group, sailing in warmer weather, but the boat is winterized now. Just started fencing lessons. Met somebody in the group and we're seeing each other regularly. All in all, I'm coping pretty well.
I hang around in case anyone needs info on gallbladder cancer. It's rare, so any info I figure will be helpful.
Jeff
MZB - 13 Jan 2007 07:27 GMT > Time for an update (from those who haven't posted in a while) or intro for > those who've cancer and haven't introduced themselves yet. And those who [quoted text clipped - 21 lines] > Thanks > J Still lurking.
Mel
sherry - 13 Jan 2007 23:46 GMT > Time for an update (from those who haven't posted in a while) or intro for > those who've cancer and haven't introduced themselves yet. And those who > are blessedly NED, who haven't come out of lurkdom for a while. > type and stage - (where it has spread) please. I had colon cancer in 1993 but was extremely lucky that it was found quite early - Dukes A. I had no symptoms whatsoever but my doctor thinks everybody over 50 should have a sigmoidoscopy so during that procedure, two small polyps were found in the sigmoid portion of the colon. This necessitated a colonoscopy to remove them, which it did but, more importantly, it found the big bad malignant polyp up under the liver. This, of course, required surgery to remove along with 18" of colon. I was so very lucky that it had not penetrated the wall of the colon and no lymph nodes were involved. So I am very thankful that I had those two small polyps in the sigmoid area - otherwise there would have been no reason to do the colonoscopy and the big bad cancer may not have been detected until much, much later when the outcome may not have been so good for me. I think that sigmoidoscopies should be done away with and only do colonoscopies. Sherry
Giuditta - 15 Jan 2007 15:10 GMT My husband was diagnosed with SCLC Nov. 7, 2006. He's in his fourth round of chemo, which the onc. said is doing it's job after he read the CT scan last week because the tumors (nodules?) showed "significant improvement."
His onc says something positive like that but then gives a prognosis that says my husband need not worry about applying for the 4-year special deal at the gym.
Until I saw the CT scan results, I didn't know how extensive his cancer was. We're all in shock.
This group has helped me a lot even though I haven't been a regular because of that other job, which I quit so now I hope to be here more to take advantage of your smarts and wisdom.
I don't know the correct lingo yet or abbreviations so hang with me on that.
Thanks for being here.
Giuditta
Bob - 15 Jan 2007 23:11 GMT > My husband was diagnosed with SCLC Nov. 7, 2006.
> His onc says something positive like that but then gives a prognosis that > says my husband need not worry about applying for the 4-year special deal at > the gym. Go ahead and get the 4 year deal. I was told that I could expect to survive for 6-12 months due to the fact that I had brain mets. Fooled them. That was back in Jan '04. These numbers are based on averages and medians. Remember that on average every person has one testicle.
> Until I saw the CT scan results, I didn't know how extensive his cancer was. > We're all in shock. Fortunately, SCLC responds "elegantly" to chemo and radiation. There is a treatment called Cyberknife <http://www.accuray.com/> that I received when my second brain met was found. I had already been zapped with my RDA of radiation and the met was in the interior of my brain (hipocampus)
> This group has helped me a lot even though I haven't been a regular because > of that other job, which I quit so now I hope to be here more to take > advantage of your smarts and wisdom. > > I don't know the correct lingo yet or abbreviations so hang with me on that. Here's a short list CT-you know this one. MRI another scan PET yet another scan NED-No Evidence of Disease CA-sometimes used as an abbreviation for cancer. Sometimes it means Canada, sometimes it means California.
Fig has a link to many acronyms that you may encounter. Maybe she'll read this and respond. I found that Googling the acronym will usually work too.
> Thanks for being here. > > Giuditta I had to chuckle at this. My spell checker guessed at your name as Guiltier. :=)
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bobert
Figgertoes - 16 Jan 2007 04:46 GMT > Fig has a link to many acronyms that you may encounter. Maybe she'll > read this and respond. I found that Googling the acronym will usually > work too. http://www.acronymfinder.com/
Just plug in your acronym. This is a fun site! Fig
J - 16 Jan 2007 07:51 GMT > I had colon cancer in 1993 but was extremely lucky that it was found quite > early - Dukes A. [quoted text clipped - 11 lines] > should be done away with and only do colonoscopies. > Sherry Thanks for sharing, Sherry. Dad was cured with surgery too. Take care, J
Macy - 14 Jan 2007 07:37 GMT Hi Everyone
Havent written for a long time. My husband has lung cancer. Approx. 8 months. Has had a round of chemo and radiation. Site has helped me tremendously with answers and support. Thanks to all of you!!!
Macy
betsyb - 16 Jan 2007 03:18 GMT Small as a gallbladder is, it didn't fit thru the mini incisions to come out easily. It is out and I am relieved and somewhat pain free. I am draging and will catch up in a couple days. Betsy
 Signature "Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, chocolate in one hand, Starbucks in the other, totally worn out and screaming,
"WOO HOO what a ride!"
> Time for an update (from those who haven't posted in a while) or intro for > those who've cancer and haven't introduced themselves yet. And those who [quoted text clipped - 21 lines] > Thanks > J J - 16 Jan 2007 07:39 GMT > Small as a gallbladder is, it didn't fit thru the mini incisions to come out > easily. It is out and I am relieved and somewhat pain free. > I am draging and will catch up in a couple days. > Betsy Good to hear from you, Betsy. Take care, J
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