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Medical Forum / Diseases and Disorders / Cancer / October 2006

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Penny update

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J - 28 Sep 2006 17:34 GMT
betsyb wrote:

> "Figgertoes" <me@privacy.net> wrote in message
>
> > http://pensclc.blogspot.com/
>
> Checking up on Penny and Michael this morning and am I glad I did. Her
> surgery is over and I know how frightening this procedure is. My husband
> had
> one similar three years ago. Thank God both were sucessful.
> Maybe we will hear from Penny herself in a few days. I will let her
> explain.
>
> Maybe some good time ahead, huh. Pen?
> Prayers are still coming.
> Betsy

Yes, it does sound like there's been an improvement.
J - cautiously hopeful
Figgertoes - 29 Sep 2006 01:15 GMT
> betsyb wrote:
>
[quoted text clipped - 15 lines]
> Yes, it does sound like there's been an improvement.
> J - cautiously hopeful

I've had a similar procedure too but no wire.  And they were just
getting some gallbladder stuff the microsurgery missed.  I dreaded
swallowing that gizmo & having the tube down my throat.  Scared me to
death.  But mine wasn't so bad.  Penny's more involved.  Hope it helps
- sounds like maybe it did.  I had a sore throat afterwards - common.

It sounds like it was very rough but then she rallied.  Wouldn't it be
great to hear from our Penny again?  

Fig, hopeful
J - 29 Sep 2006 11:04 GMT
> > betsyb wrote:
> >
[quoted text clipped - 20 lines]
>
> Fig, hopeful

Was wonderful to read that she dressed in own nightie and relaxed in a reclining
chair.
I started a new thread in case it's easier for her to notice, in case she's
reading or wanting to post.
Maybe we'll get an update later today.
Hugs
J
Trish - 30 Sep 2006 17:26 GMT
I just talked to my sister Paula and when they were there yesterday, Penny
was up and my other sister was taking her for a wheel chair ride around the
unit.  :)  She was quite talkative and feeling well and had a fair number of
family visit her last night.

Today's she's having a bunch of tests done (Paula wasn't sure exactly what).
So it'll probably be a little tiring for her and she asked that she not
having a whole bunch of visitors.  And it sounds like she may be moved into
a hospice soon as well.

I'll be heading there tomorrow and will let you know how's she's doing.  But
hopefully, she'll be able to tell you herself soon!  :)

So things seem to be going well and that it was a good birthday!  :)

Trish
Alayne - 01 Oct 2006 16:24 GMT
>I just talked to my sister Paula and when they were there yesterday, Penny
>was up and my other sister was taking her for a wheel chair ride around the
[quoted text clipped - 12 lines]
>
> Trish

That is so good to hear.

Warm Hugs to all.

Alayne
J - 01 Oct 2006 22:37 GMT
> I just talked to my sister Paula and when they were there yesterday, Penny
> was up and my other sister was taking her for a wheel chair ride around the
[quoted text clipped - 10 lines]
>
> So things seem to be going well and that it was a good birthday!  :)

Thanks Trish,
How's Michael holding up?
All those emails sound like a big job and drain on his time, unless it helps him
to stay busy.

I think I'd put a message on blog, "no more emails please, until further notice"
and remove the email address shown there AND temporarily inactivate the ISP
email address (if possible, unless that one's not a problem) and create another
email address (same ISP) for close friends and family only.  Then if Penny
rallies and has more than a few hours of wakefulness every day and feels up to
(and has time on her hands) reading emails (or hearing each email read to her),
change the message on the blog to "restart emails".

Ignore me if that's not what they want; just trying to maximize their time for
close family and friends.
Hugs,
J
Trish - 01 Oct 2006 23:03 GMT
Thanks Trish,
> How's Michael holding up?
> All those emails sound like a big job and drain on his time, unless it
[quoted text clipped - 26 lines]
>He's been a rock and strong for her while he's there and very protective
>too.  I worry about how he will be once she's gone.

When I was there she was able to sit up and talk for about 20 minutes and
then slept the rest of the time.  She's quite nauseated and learned today
that she'll never be able to drink any liquids again.  The way she explained
it to me was that because the fluids from her liver had to go somewhere, her
stomach is full and should she drink she'll just vomit it up.  She told the
palliative nurse that she felt she had 3 weeks left.  And she said she's
ready to go "home".

Trish
alex - 01 Oct 2006 23:20 GMT
Trish,

Thanks for the update.
Hugs to Penney and Michael and YOURSELF.

Alex
> Thanks Trish,
>> How's Michael holding up?
[quoted text clipped - 38 lines]
>
> Trish
Emily - 01 Oct 2006 23:26 GMT
Trish said...
> When I was there she was able to sit up and talk for about 20 minutes and
> then slept the rest of the time.  She's quite nauseated and learned today
[quoted text clipped - 3 lines]
> palliative nurse that she felt she had 3 weeks left.  And she said she's
> ready to go "home".

No more drinking on her own?  That sounds truly awful.  Poor Penny - I
hope for her sake she doesn't have to endure that for another three
weeks.  I don't want to lose her, but at the same time I feel maybe it's
time to let go.

{{{{{Hugs}}}}} to you all Trish, and of course to Penny and Michael
especially.

Signature

Em, with heavy heart

betsyb - 02 Oct 2006 00:47 GMT
> Thanks Trish,
>> How's Michael holding up?
[quoted text clipped - 38 lines]
>
> Trish

No emails to read, just all the prayers we can muster for a speedy trip home
for a good friend.
Hugs all around
Betsy
starfleet - 02 Oct 2006 08:09 GMT
Trish schreef:

> When I was there she was able to sit up and talk for about 20 minutes and
> then slept the rest of the time.  She's quite nauseated and learned today
[quoted text clipped - 7 lines]
>
>  
That must be very hard for Penny. I hope for her sake it won't be that
long the situation being as it is and  Penny feeling she's ready to let go.

All the best,

Anne
J - 02 Oct 2006 09:47 GMT
> > Thanks Trish,
> > How's Michael holding up?
[quoted text clipped - 11 lines]
> He's been a rock and strong for her while he's there and very protective
> too.  I worry about how he will be once she's gone.

Yes, my brother was good at practical things, when Dad was dying, but didn't
want to discuss feelings or what could happen to Dad physically, until see
below.

> When I was there she was able to sit up and talk for about 20 minutes and
> then slept the rest of the time.  She's quite nauseated and learned today
[quoted text clipped - 3 lines]
> palliative nurse that she felt she had 3 weeks left.  And she said she's
> ready to go "home".

Water prolongs life.  I think they kept Dad on IV fluids, just so we could have
time to arrive and have some time with hiim.  The next day, if I recall
correctly, they withdrew IV fluids and that's when my brother (then me and my
sister also started to question) kicked up a fuss, but the doctor explained that
they couldn't find a place to poke more needles. So without vocalizing it, he
was saying that Dad would die of dehydration.
This is from a webpage and I hope it's accurate "There is a consensus that
Interrupting a person's supply of food and liquids causes death by dehydration
within about 15 days. Lack of fluid causes the kidneys to produce less urine.
Eventually, they completely stop filtering toxins from the body. Toxins build up
in the body. The body's chemical balances involving potassium, sodium and
calcium etc. are disrupted. This disrupts the electrical system that triggers
the action of muscles, including the heart. Eventually the heart stops beating,
and the patient dies.  There is no pain involved in dying of dehydration and/or
starvation.: Soon after nourishment is denied to the brain, it begins producing
chemicals that act as a natural anesthetic."

So don't be surprised if IV fluids are withdrawn once in hospice.  Dad died 3 or
4 days after they stopped the IV fluids.  He had no pain, so we requested that
pain medications be withdrawn. Some days I think we prolonged his life by making
such a request, but it gave us time to come to terms and do some "caring" for
him, since he'd been living so far away from 2 of us.  It was a gentle death.

I think it's good if she can get into hospice (ASAP) and the main thrust should
be keeping an IV going for pain relief for Penny. (is my opinion).  If IV fluids
will prolong her pain, then there's no point, but the pain must be palliated.

After Dad died, I suggested to each, that we spend some private time with Dad,
saying or doing whatever we wanted. It was after that, that my brother
crashed/cracked. He was waiting in the corridor for me and reached out and said
"what'll we do now?".  I said something stupid like "Are you serious?", then
reassured him that we would go back to Dad's home and help each other come to
terms.  And that our lives would go on, changed by the experience, changed by
the loss, but life (for us) wuold go on.

(sorry, I'm being wordy), my point is that Michael may be in a protective bubble
wrap of "doing" and "caring for" and "being strong" for the family and for
Penny,  but that could burst, once Penny passes away and each time he comes home
to the "no Penny" loneliness that nobody can fill.

Same for you, possibly Trish, ... and the rest of the family.  I hope you'll
have towers of strength for you as well, Trish.  We're here, but it's not the
same of having someone there to wrap their loving arms around you.
J
J - 02 Oct 2006 09:53 GMT
> I think it's good if she can get into hospice (ASAP) and the main thrust should
> be keeping an IV going for pain relief for Penny. (is my opinion).  If IV fluids
> will prolong her pain,

or cause more fluids to collect and vomiting.
J

> then there's no point, but the pain must be palliated.
 
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