Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Cancer / September 2006

Tip: Looking for answers? Try searching our database.

Cancer mailing lists

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Matti Narkia - 26 Sep 2006 21:54 GMT
If you don't want talk about your cancer publicly on usenet
newsgroups, you can have a little more privacy and probably get more
responses on cancer mailing lists. One popular organizion offering
free cancer mailing lists is ACOR (Association of Online Cancer
Resources, Inc.). You can subscribe to their mailing lists on their
web site

http://www.acor.org/

There are general, cancer type specific, and other kind of lists
available. There are also lists for caregivers, parents for children
with cancer, etc. After you have subscribed and obtained a password,
you can read postings either by email or by browsing the recent posts
or lists archive on ACOR's web site.

Signature

Matti Narkia

Matti Narkia - 27 Sep 2006 00:19 GMT
>If you don't want talk about your cancer publicly on usenet
>newsgroups, you can have a little more privacy and probably get more
[quoted text clipped - 10 lines]
>you can read postings either by email or by browsing the recent posts
>or lists archive on ACOR's web site.

Here's a partial list of cancer mailing lists, also some other than
ACOR's:

Cancer Email Discussion Lists and News Groups - CancerIndex
<http://www.cancerindex.org/clinks10.htm>

An article about how new subscribers use cancer related mailing lists:

Journal of Medical Internet Research - How New Subscribers Use
Cancer-Related Online Mailing Lists
<http://www.jmir.org/2005/3/e32/>

Signature

Matti Narkia

Matti Narkia - 27 Sep 2006 16:04 GMT
>If you don't want talk about your cancer publicly on usenet
>newsgroups, you can have a little more privacy and probably get more
[quoted text clipped - 4 lines]
>
>http://www.acor.org/

An additional advantage of cancer mailing lists is that that you don't
usually see advertisers or lunatic crossposters there. If they appear,
their accounts will be promptly terminated. Control freaks or
self-appointed net cops also will not be tolerated, the community will
quickly shut them up, if need arises.

Signature

Matti Narkia

J - 27 Sep 2006 16:39 GMT
> An additional advantage of cancer mailing lists is that that you don't
> usually see advertisers or lunatic crossposters there. If they appear,
> their accounts will be promptly terminated. Control freaks or
> self-appointed net cops also will not be tolerated, the community will
> quickly shut them up, if need arises.

So you're allowed to give out addresses of mexican clinics, there, like
you've done on newsgroup?
J
Matti Narkia - 27 Sep 2006 17:24 GMT
>> An additional advantage of cancer mailing lists is that that you don't
>> usually see advertisers or lunatic crossposters there. If they appear,
[quoted text clipped - 4 lines]
>So you're allowed to give out addresses of mexican clinics, there, like
>you've done on newsgroup?

If I remember correctly, the only Mexican clinics I have ever
mentioned were Gerson clinic and the clinic doing Hoxsey therapy in
Mexico (Bio-Medical Center), the latter only when someone specificly
asked for it, and these were at least 10 years ago or earlier. Gerson
therapy became later available also in USA (I don't know, if it still
is). These therapies may have had some limited use at that time for
the patients, whose conventional options had been exhausted. Since
then there have been vast improvements in conventional treatments, and
more are in the pipeline, so I don't think that there is much need for
this kind of treatments any longer, possibly excluding cancers like
advanced pancreatic cancer, where no effective conventional treatment
exists (angionesis inhibitors, gene therapy and other pending
treatments may change that). I have also criticized these treatments,
for example Gerson treatment being so hard to follow, that perhaps
only 1 in 500, who starts the treatment, will ever be able to finish
it.

I believe in the freedom of speech. Only in the dictatories and
socialist countries the freedom of speech is suppressed. According to
my understanding also the American law goes to great lengths to
guarantee the freedom of speeech. Any treatment, however crazy, should
be allowed to be talked about. The community will assess the the
treatments, and unworthy treatments will get proper criticism. If
freedom of speech is suppressed, the unworthy treatments will not come
up, and neither will their critique. Thus some people may left with
secretly held wrong ideas about efficacy of unworthy treatments.

In the cancer mailing lists the liars will also get the treatment they
deserve. Could you for example please kindly elighten us why you
decided to lie about the feedback I received in the prostate cancer
newsgroups?

Signature

Matti Narkia

J - 27 Sep 2006 17:47 GMT
> >> An additional advantage of cancer mailing lists is that that you don't
> >> usually see advertisers or lunatic crossposters there. If they appear,
[quoted text clipped - 6 lines]
> >
> Any treatment, however crazy, should be allowed to be talked about.

And so, your answer to my question is?
J
Matti Narkia - 27 Sep 2006 18:43 GMT
>> >> An additional advantage of cancer mailing lists is that that you don't
>> >> usually see advertisers or lunatic crossposters there. If they appear,
[quoted text clipped - 9 lines]
>And so, your answer to my question is?
>J
My reply gave all the answer you need. But you still haven't replied
to my question: Why did you decide to lie about the feedback I
received in the prostate cancer newsgroups? If you cannot reply
statisfactorily to this simple question there is nothing left from
your integrity as far as I am concerned.

Signature

Matti Narkia

J - 27 Sep 2006 18:57 GMT
> >> >> An additional advantage of cancer mailing lists is that that you don't
> >> >> usually see advertisers or lunatic crossposters there. If they appear,
[quoted text clipped - 14 lines]
> statisfactorily to this simple question there is nothing left from
> your integrity as far as I am concerned.

Steve's a very, very, very, nice guy. And a regular there for years.
I don't recognize the other you posted, as a regular there.
Nor 2 others who replied to you. One's name starts with "J', replied to you the
most.
People can have a look and decide themselves http://tinyurl.com/hd647
J
Matti Narkia - 27 Sep 2006 20:06 GMT
>> >> >> An additional advantage of cancer mailing lists is that that you don't
>> >> >> usually see advertisers or lunatic crossposters there. If they appear,
[quoted text clipped - 20 lines]
>most.
>People can have a look and decide themselves http://tinyurl.com/hd647

I'm afraid that link you gave will not safe your face, you still
remain a liar. If with a person, whose name starts with "J", you refer
to Juhana Harju, that was our usual academic debate, which we both
enjoy, and which seems to push both of us to further heights in trying
to collect enough facts and evidence to form an opinion about matters,
which have not yet been extensively enough researched. Juhana is not a
prostate cancer patient, and not a regular in prostate cancer
newsgroups. He is my countryman, a citizen of Finland just as I, and
we regulary have polite academic debates in a Finnish health related
newsgroup. There is actually not much difference in our opinions, we
agree about most things, and sometimes like to debate about finer tiny
details of nutrition and other health related issues. We even follow
very similar diets. Sometimes, like in threads in your link, he might
follow me to english language newsgroups, and we continue our debates
there, or sometimes I follow him and start a debate. Our debates
definitely did not and will not turn him off, as you claimed, he likes
to continue these debates, and would never consider killfiling me, and
I would never do that for him. Other people in the prostate cancer
newsgroup understood the academic nature of our debate as the
following message from the same thread proves:

<http://groups.google.com/group/alt.support.cancer.prostate/msg/cdd2c7df21e814d1?
&hl=en
>:

  "From:        I.P. Freely - view profile
   Date:        Fri, Aug 18 2006 7:56 pm

   "Steve Kramer wrote:

   > I really enjoy your posts and welcome the apparently educated
   > opinions. Just wondering if it is altruism or if someone you
   > know is a victim.

   Third option: a fondness for academic debate. Regardless of
   their motives, I enjoy the process, and although my head spins
   as I skim their debate, I hope to glean a bottom line consensus
   on these questions: Should we eat walnuts? Should we take flax
   seed oil?

   So far,  I THINK it's time I quit eating a handful of walnuts
   every day and take gamma tocopherol supplements instead, and
   just drop the flaxseed oil. Or are the effects so genuinely
   debatable that it's a tie and we may as well eat the dang
   walnuts if we like 'em? I eat bales of strawberries and bags of
   blueberries, but rutabagas or wine? No way (can't get past the
   taste). "

You must have read our debate like a devil reads the bible, or you
didn't read at all. You just made a lie from nothing.

I'm still waiting for you to provide proof of any negative feedback to
my posts in prostate cancer newsgroups and of the claim that it put
off people in those newsgroups. If your claim were true, you would
have no problem providing at least three messages proving your point,
but I know that you cannot provide even one.

The burden of proof is on you. Until such proof surfaces, you remain a
liar.

Signature

Matti Narkia

J - 27 Sep 2006 23:42 GMT
>  Other people in the prostate cancer
> newsgroup understood the academic nature of our debate as the
> following message from the same thread proves:

Then go ahead and flood them with more posts.
--->  alt.support.cancer.prostate
J
Matti Narkia - 28 Sep 2006 02:39 GMT
>>  Other people in the prostate cancer
>> newsgroup understood the academic nature of our debate as the
>> following message from the same thread proves:
>
>Then go ahead and flood them with more posts.
> --->  alt.support.cancer.prostate

It seems you are totally incapable to see and admit your own errors
and misbehavior, not mention to take reponsibility for them and
apologise, when that would be appropriate. Too bad for your own sake.

Signature

Matti Narkia

 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.