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Medical Forum / Diseases and Disorders / Cancer / September 2006

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My Grandson.

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DLU - 22 Sep 2006 06:14 GMT
Obituary

http://online.statesmanjournal.com/obituaries/obituary.cfm?i=31177
clifto - 23 Sep 2006 03:11 GMT
> http://online.statesmanjournal.com/obituaries/obituary.cfm?i=31177

Wow. I don't know what to say. I'm sorry.

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DLU - 25 Sep 2006 01:01 GMT
>>http://online.statesmanjournal.com/obituaries/obituary.cfm?i=31177
>
> Wow. I don't know what to say. I'm sorry.

I appreciate that, I do not know what to say either.  It is one of lifes
disappointments that we have no control over, that is what is so
frustrating, and what seems so unfair.  We now that life is neither fair
or unfair, but when it happens to you, it is hard to accept anyway.
Polichanelle - 23 Sep 2006 14:52 GMT
DLU a écrit :

> Obituary
>
> http://online.statesmanjournal.com/obituaries/obituary.cfm?i=31177

So young !
I share your sorrow...
A new angel stays up you

I have a son who is fighting and we are so powerless.

Take care and keep faith !
usenetgirl@gmail.com - 23 Sep 2006 16:00 GMT
So sad, words seem inadequate. Alex
J. Davidson - 23 Sep 2006 18:59 GMT
Very sorry about his loss.
Jackie
> So sad, words seem inadequate. Alex
DLU - 25 Sep 2006 00:57 GMT
> Very sorry about his loss.
> Jackie
>
>>So sad, words seem inadequate. Alex

Thank you all for your support.  It is my daughter whom I cry for.
Her only child and she raised him mostly alone.  He was no indulged on
but she provided him with life's necessities and spent the last 15
months taking him to chemo, radiation, operations, and all the other
medical treatments that he needed.  It has left a real void in her life
which will never be filled.  I suppose she will get on with life
sometime in the future but in the meantime it will be really hard for
her to continue on.
DLU - 25 Sep 2006 01:05 GMT
> DLU a écrit :
>
[quoted text clipped - 9 lines]
>
> Take care and keep faith !

You do what you can an hope for the best.  May your son win his fight.
I know the feeling of hopelessness, it is one that no one should have to
suffer.  I certainly hope your son will make it.

Thank you for your thoughts.
Gail - 25 Sep 2006 01:34 GMT
I am so very sorry for your loss.
Gail

>> DLU a écrit :
>>
[quoted text clipped - 15 lines]
>
> Thank you for your thoughts.
DLU - 26 Sep 2006 02:45 GMT
Familial polyposis coli (familial adenomatous polyposis or FAP)

If we had known we would have started examinations at a young age.
Unfortunately his father was not there to tell us, and apparently he did
not know.
Brian's grand parents on his fathers side did not seem to know either.
This is a genetic disease.
J - 26 Sep 2006 11:56 GMT
> Familial polyposis coli (familial adenomatous polyposis or FAP)
>
[quoted text clipped - 3 lines]
> Brian's grand parents on his fathers side did not seem to know either.
> This is a genetic disease.

Hello DLU,
Planning colonoscopies at an earlier age for family?

I just posted a "news" article, on sci.med.diseases.cancer, a few days
before you told us about your grandson.
It was about genetic testing and said that not all who tested positive, get
the cancer.
The article leans towards being put on a liver transplant list.
http://www.guardian.co.uk/uklatest/story/0,,-6094927,00.html
I don't know that I"d go for (the idea of) a liver transplant for a child,
if there's no certainty that the child would get the cancer.  Your thoughts?

I'm still looking for the (childhood liver cancer) name. On search, I get
either "hepatoma" or hepatoblastoma".
J
DLU - 26 Sep 2006 18:52 GMT
>>Familial polyposis coli (familial adenomatous polyposis or FAP)
>>
[quoted text clipped - 19 lines]
> either "hepatoma" or hepatoblastoma".
> J

I do not know if early colonoscopies would have been planned or not.
However, Brian was not doing well in school his last year or so and it
may have been due to anemia caused by the FAP.  There may be other
symptoms also.
It was the liver cancer that was beyond treatment however that
eventually caused his death.  Unfortunately the doctors said they cold
not operate o the FAP until they removed the cancer.  In the fifteen
months after the cancer was discovered, it had spread to the rest of his
system and he did not have a chance beyond that.
Yes, I think if I was aware of the genetic aspect, I would be watching a
child from and early age.  If early colonoscopies are what it takes, I
would do so.
J - 28 Sep 2006 00:10 GMT
> >>Familial polyposis coli (familial adenomatous polyposis or FAP)
> >>
[quoted text clipped - 14 lines]
> child from and early age.  If early colonoscopies are what it takes, I
> would do so.

Do kids on Brian's father's side ( cousins) need to get checked as well?
J
DLU - 28 Sep 2006 03:39 GMT
>>>>Familial polyposis coli (familial adenomatous polyposis or FAP)
>>>>
[quoted text clipped - 17 lines]
> Do kids on Brian's father's side ( cousins) need to get checked as well?
> J

As I understand it I would think so.
As I said, I am not well versed in this and basically it is my daughter
who gave me most of the information.
 
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