> Familial polyposis coli (familial adenomatous polyposis or FAP)
>
[quoted text clipped - 3 lines]
> Brian's grand parents on his fathers side did not seem to know either.
> This is a genetic disease.
Hello DLU,
Planning colonoscopies at an earlier age for family?
I just posted a "news" article, on sci.med.diseases.cancer, a few days
before you told us about your grandson.
It was about genetic testing and said that not all who tested positive, get
the cancer.
The article leans towards being put on a liver transplant list.
http://www.guardian.co.uk/uklatest/story/0,,-6094927,00.html
I don't know that I"d go for (the idea of) a liver transplant for a child,
if there's no certainty that the child would get the cancer. Your thoughts?
I'm still looking for the (childhood liver cancer) name. On search, I get
either "hepatoma" or hepatoblastoma".
J
DLU - 26 Sep 2006 18:52 GMT
>>Familial polyposis coli (familial adenomatous polyposis or FAP)
>>
[quoted text clipped - 19 lines]
> either "hepatoma" or hepatoblastoma".
> J
I do not know if early colonoscopies would have been planned or not.
However, Brian was not doing well in school his last year or so and it
may have been due to anemia caused by the FAP. There may be other
symptoms also.
It was the liver cancer that was beyond treatment however that
eventually caused his death. Unfortunately the doctors said they cold
not operate o the FAP until they removed the cancer. In the fifteen
months after the cancer was discovered, it had spread to the rest of his
system and he did not have a chance beyond that.
Yes, I think if I was aware of the genetic aspect, I would be watching a
child from and early age. If early colonoscopies are what it takes, I
would do so.
J - 28 Sep 2006 00:10 GMT
> >>Familial polyposis coli (familial adenomatous polyposis or FAP)
> >>
[quoted text clipped - 14 lines]
> child from and early age. If early colonoscopies are what it takes, I
> would do so.
Do kids on Brian's father's side ( cousins) need to get checked as well?
J
DLU - 28 Sep 2006 03:39 GMT
>>>>Familial polyposis coli (familial adenomatous polyposis or FAP)
>>>>
[quoted text clipped - 17 lines]
> Do kids on Brian's father's side ( cousins) need to get checked as well?
> J
As I understand it I would think so.
As I said, I am not well versed in this and basically it is my daughter
who gave me most of the information.