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Medical Forum / Diseases and Disorders / Cancer / September 2006Need Advice / Support
My 61 year old father was diagnosed with CML in June 2006. Along with that diagnosis he also found out that he had diabetes,hypertension,bleeding behind the eyes & on top of all that he also needed hearing aids. This all came as a complete suprise since he has always been a very active,healthy man. He has been on Gleevec ( along with a bunch of other meds) and they have seemed to have been working. He just had lab work done last night ( in the ER) and everything seems to be in "normal" range as far as his platelets and blood pressure and so on, but he feels worse than ever. He has been in so much pain and discomfort and he told me that he has never been so tired in his whole life. He is being treated at a VA hospital about 3 1/2 hrs away from where we live and it is difficult keeping everything striaght because he has four doctors . It has been pretty confusing because there are so many things coming at once. I would really appreciate it if anyone that has been through or is going through something like this could give me some advice. I have so many questions that I haven't been able to get answers for. > My 61 year old father was diagnosed with CML in June 2006. Along > with that diagnosis he also found out that he had [quoted text clipped - 13 lines] > something like this could give me some advice. I have so many > questions that I haven't been able to get answers for. Hello, Sounds like your father is having a tough time of it. I'm sorry to hear that. You may or may not get other responses here. I usually refer leukemia patients (and/or loved ones) to the private ACOR mail/support lists. You can join by clicking on the appropriate named list here http://www.acor.org/mailing.html?l=c After "joining", the "list owner" aka moderator will email you fairly quickly as to when you can start sending and receiving messages (and access to their archives). In addition, I think that some of the resources here may be of help to you, so please bookmark this link. <http://www.leukemia-lymphoma.org/all_page?item_id=4591> Pam may have some helpful advice about VA hospitals, if you don't find answers on the ACOR list. In addition, some prostate cancer patients are experienced with same, on alt.support.cancer.prostate. So please don't hesitate asking, if you think they can assist, although most, if not all, probably know little about CML, so probably best to start with the ACOR list first. Best wishes. Your father and you and your family will be in my heart and thoughts during this difficult time. Let me know if I can be of further assist, anytime. I don't have all the answers, but i do try to help. J > > My 61 year old father was diagnosed with CML in June 2006. Along > > with that diagnosis he also found out that he had [quoted text clipped - 44 lines] > answers, but i do try to help. > J Thank You so much!! "phatmomma5" <phatmomma5@yahoo.com> wrote in news:1157069708.756303.44360 @m79g2000cwm.googlegroups.com: > My 61 year old father was diagnosed with CML in June 2006. Along > with that diagnosis he also found out that he had [quoted text clipped - 13 lines] > something like this could give me some advice. I have so many > questions that I haven't been able to get answers for. Hello, phatmomma, Annie's 22 year old son was diagnosed earlier this year. She & her husband are on a long motorhome trip where they're raising some money for research. I'm posting these links for the blog & other info. But if you email her your father's name, she'll be honored to add it to their RV so he can 'ride along.' Her son, Steven, is being seen by a specialist in Oregon 9/7. Annie has done a fine job of chronicling their journey with CML. Hope this helps. www.RoadrunnersUSA.com www.livingwithcml.blogspot.com I hope your father gets everything sorted out. That's a lot to get hit with all at once, but I'm glad to read he was active & healthy before. Maybe that will give him some reserves to draw on. Some hospitals have low cost or free apartments where you can stay while receiving treatment. Don't know about VA, but you could inquire. I'm guessing you're trying to group appointments/treatemnts to lessen the travel. Maybe overnight would make it easier sometimes? Fig |
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