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Medical Forum / Diseases and Disorders / Cancer / September 2006Upodate from Grandma Janet
Saw gastro folks on Tuesday and I don't need a feeding tube. The crazy nutritionists probably need one going to their brains. The nice nutritionist who is working with me now undrestands that there are differences in metablolisms. I have lost 3 pounds since my first day at radiation. I have only 9 days to go. Into the single digits!!! Hooray!! Saw the pain management people yesterday. They changed me from the non-working fentanyl patches and the "breakthrough" drugs that were 24 hours a day because the patches didn't work. I now have methedon which I take 3 times a day. keeps me at level 3 of 10. For the mouth burns I have xiloxilyn which is a swish and swallow preparation that needs to be refrigerated. This stuff helps with the mouth sores. I can use the old meds or a little more of the new meds if I need them. I'm feeling a lot better, still sleepy, but better. I saw the doctor this AM and he is pleased with my weight and everything else. He's even happy with my bowel functions! If you want to make an Oncologist happy, tell him or her that you have pooped that morning, The best part of today was our visit to the airport in Houston where we met our new Granddaughter. I have taken a page on my old unupdated web site (free so turn on your popup blockers) Here are some pictures of our new little girl, parents and grandparents. http://www.roadprincess.50megs.com/photo4_1.html Keeping all of you in my thoughts and prayers. Hugs, Grandma Janet  SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life She is beautiful with her large dark eyes!! Keep up the good work. You will be finished with treatments soon and can enjoy even more of your beautiful granddaughter!! Gail > Saw gastro folks on Tuesday and I don't need a feeding tube. The crazy > nutritionists probably need one going to their brains. The nice [quoted text clipped - 29 lines] > Hugs, > Grandma Janet Congrats, Granny Goodwitch! She is beautiful. Your son and daughter in law have to be in seventh heaven. Bless them all. I am looking forward to your trip here. SignatureBetsy http://sailuk420.tripod.com > Saw gastro folks on Tuesday and I don't need a feeding tube. The crazy > nutritionists probably need one going to their brains. The nice [quoted text clipped - 29 lines] > Hugs, > Grandma Janet What a wonderful post it sounds like you have turned the corner and on the road to recovery ( would that be the RV Road), Thank you for sharing this wonderful news. Marcella is gorgeous. I'm so glad you were able to get to the airport to meet her. Now you have something to keep you going through the rest of the treatment, knowing that you will be able to see her again. I hope she settles in well and that you are going OK. > Saw gastro folks on Tuesday and I don't need a feeding tube. The crazy > nutritionists probably need one going to their brains. The nice [quoted text clipped - 29 lines] > Hugs, > Grandma Janet Janet Wilder said... > The best part of today was our visit to the airport in Houston where we > met our new Granddaughter. [quoted text clipped - 4 lines] > > http://www.roadprincess.50megs.com/photo4_1.html Oh Janet, she's lovely! How old is she? What a blessing she's young enough not to retain many memories of the last few months - she won't remember anything except the loving family she's come to. Plenty of {{{{{hugs}}}}} for you this evening, so that you have some to share with your son, your daughter in law and their new daughter. SignatureEm >>http://www.roadprincess.50megs.com/photo4_1.html > [quoted text clipped - 4 lines] > Plenty of {{{{{hugs}}}}} for you this evening, so that you have some to > share with your son, your daughter in law and their new daughter. Thank you, Em. Marcella is 5 months old today, august 31. She had long day yesterday with all the traveling and changes. yet she downed 6 ounces of formula and slept 6 hours straight. All's well and Grandma is happy. New drugs are working well on my body. Brains are quite messed up. Hugs, Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life Janet Wilder said... > >>http://www.roadprincess.50megs.com/photo4_1.html > > [quoted text clipped - 9 lines] > ounces of formula and slept 6 hours straight. All's well and Grandma is > happy. New drugs are working well on my body. Brains are quite messed up. She's absolutely gorgeous, and I'm sure she'll have a ball over the next few months, settling in to her new home and discovering new people and all sorts of things to play with. I bet she's already helping your recovery - just being with her for a few minutes has perked you up no end. Don't worry about the brain being messed up - that's par for the course from what I can gather. You take care of yourself and get yourself well so that you can go home and play with Marcella. You're going to be so proud when you take her to the park to feed the ducks or whatever it is you like to do with small children. Now that's a thought - I haven't taken my youngest (6) to feed the ducks for ages. And I'd been wondering what we should do today... SignatureEm, hunting stale bread > I bet she's already helping your recovery - just being with her for a > few minutes has perked you up no end. Don't worry about the brain being [quoted text clipped - 5 lines] > feed the ducks for ages. And I'd been wondering what we should do > today... They are comming to visit us for Christmas. One of the things we have planned is a trip to the Gladys Porter Zoo in Brownsville. It's quite large,but not by San Diego or Staten Island size. The layout is by continents. The walkways are shaded planted with lush exotic species. Lots of baby animals in the nursery too. My son was there before he met Randi and he's excited about taking her. Then there is the shallow beach on the Gulf of Mexico. She might be a little small to enjoy the giant sea turtle rescue facility. Wejust can't wait to see her again Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life Janet Wilder said... > > I bet she's already helping your recovery - just being with her for a > > few minutes has perked you up no end. Don't worry about the brain being [quoted text clipped - 5 lines] > > feed the ducks for ages. And I'd been wondering what we should do > > today... > They are comming to visit us for Christmas. One of the things we have > planned is a trip to the Gladys Porter Zoo in Brownsville. It's quite [quoted text clipped - 4 lines] > on the Gulf of Mexico. She might be a little small to enjoy the giant > sea turtle rescue facility. Wejust can't wait to see her again Sounds lovely :-) How are you feeling today? Any better? SignatureEm > How are you feeling today? Any better? Thanks for asking, Em. I'm counting down the 7 treatments left. The new drug, methadone, is keeping my pain under control. There is some other stuff to help with the burns inside my mouth, too. I'm very sleepy which probably isn't such a bad thing. Drinking water and Boost nutrition drink. Keeping my charts for fluids, medicines, exercises and pooping. If I survive the rest of the "cure" I will definitely survive the "disease" <g> Hugs to all. Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life Janet, When reading the Sunday paper, I saw a product advertised and thought of you http://www.oasisdrymouth.com/why.aspx You may already know about this. Araik had mentioned this in March, but the ad stated it was for people undergoing radiation therapy. Check with you doc, great news only 7 more, you can see the light at the end of the tunnel. Are you planning anything special after treatment? Alex > Janet, > > When reading the Sunday paper, I saw a product advertised and thought of you > > http://www.oasisdrymouth.com/why.aspx Thanks, Alex. I have a bottle of the spray. So far dry mouth hasn't been a big problem. I am still making saliva from the right side where the stent is supposed to shield the gland. > <snip> great news only 7 more, you can see the light at the end > of the tunnel. The end of the tunnel is all uphill, but I am crawling towards the light. > Are you planning anything special after treatment? For the near future, I just want to feel better. I don't know how long it will take for my mouth to heal. The burns are quite bad, especially to the parts of my tongue that were still a bit tender from the surgery. We had already planned an 11 day cruise to the Panama Canal with a group of friends for late January and I intend to keep those plans. I definitely plan to feel better than I do now! Hugs to you all, Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life Panama cruise sounds wonderful, something I would like to do one day. January sounds like perfect timing, hopefully you will be able to enjoy all the food on the cruise! > Panama cruise sounds wonderful, something I would like to do one day. > January sounds like perfect timing, hopefully you will be able to enjoy all > the food on the cruise! Oh, I do, too! Can't imagine going to the all chocolate midnight buffet and not being able to taste the chocolate. <g> Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life > For the near future, I just want to feel better. I don't know how long > it will take for my mouth to heal. The burns are quite bad, especially > to the parts of my tongue that were still a bit tender from the surgery. > We had already planned an 11 day cruise to the Panama Canal with a group > of friends for late January and I intend to keep those plans. I > definitely plan to feel better than I do now! I would think you'll be better by mid November, but don't know for sure. January, probably definitely. Hugs J > I would think you'll be better by mid November, but don't know for sure. > January, probably definitely. I'll even wait for December.<g> Glad I'm getting closer to the end. This has been a very bad day. Woke up in horrible pain and it took until almost 4:30 PM for me to gain control over it. I've taken to setting the alarm clock to not take my meds too far apart. Had no voice for several hours. ...and while I'm thinking about it, I want to say thank you all for being here for me. There are no words to express how grateful I am for all you have done to help me through this awful time. I love you all. Great big Texas-sized hugs, Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life > > I would think you'll be better by mid November, but don't know for sure. > > January, probably definitely. [quoted text clipped - 12 lines] > Great big Texas-sized hugs, > Janet Looks like there's a few people here who could use some of those hugs. How are you doing now, Janet? And where are we in the countdown? Hugs back to you. J >> > I would think you'll be better by mid November, but don't know for sure. >> [quoted text clipped - 19 lines] > Hugs back to you. > J I didn't sleep well last night but the radiation makes me extremely tired so I expect to feel better during the week. I get to take the Ativan during the week, too. It seems to me that the side effects get worse when I'm not having treatments. Like it's a cumulative effect. Counting today, 7 treatments left. 5 this week (doubling up on Thursday) and two next week. I just want to make it through the rest of this. It's not a long time, but it seems like an eternity. Thanks for asking and, even more, thanks for reading my whiney answer <g> Hugs, Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life Janet Wilder said... > I just want to make it through the rest of this. It's not a long time, > but it seems like an eternity. You will do it Janet. Yes, it seems like an eternity; however in about three months' time you'll look back on this time and wonder what all the fuss was about. Janet, you WILL get through it. Hang in there. There's a lady (we'll call her M, but we know who she is, don't we) in the London (UK) area in her late 70s who knows how you feel and knows what you're going through. M knows exactly what it's like - but she's coming through it despite her age and all that goes with that age. If M can - and she can - so can you. {{{{{Hugs}}}}} from M and more {{{{{hugs}}}}} from me. SignatureEm > I didn't sleep well last night but the radiation makes me extremely tired > so I expect to feel better during the week. I get to take the Ativan [quoted text clipped - 6 lines] > I just want to make it through the rest of this. It's not a long time, but > it seems like an eternity. Hang in there sweetie, only a week to go. You'll make it then be able to help those who need to read about your experiences. We're thinking good thoughts for you and asking the cats to purr for your health. (An RPCA thing, you gotta be there) Pam S. >>I didn't sleep well last night but the radiation makes me extremely tired >>so I expect to feel better during the week. I get to take the Ativan [quoted text clipped - 13 lines] > > Pam S. I just came from clinic, All is set to have me finished on Tuesday.Then I get to go home and manage my pain for 6 weekd ando back. I'll need scrips for painkillers gotta have a nap SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life tanada said... > > I didn't sleep well last night but the radiation makes me extremely tired > > so I expect to feel better during the week. I get to take the Ativan [quoted text clipped - 11 lines] > thoughts for you and asking the cats to purr for your health. (An RPCA > thing, you gotta be there) I phoned mother earlier this evening and was told that she is out. Out? What time will she be back? He doesn't know. She's gone out for a meal. A meal? She's obviously feeling better :-) Hang in there Janet - it may get worse before it gets better, but it WILL GET BETTER. > I phoned mother earlier this evening and was told that she is out. Out? > What time will she be back? He doesn't know. She's gone out for a > meal. A meal? She's obviously feeling better :-) > > Hang in there Janet - it may get worse before it gets better, but it > WILL GET BETTER. They just told me today that I will be through on Thueday. I won't have to be back for 6 weeks. They said that I won't start to feel any better until after those 6 weeks. I'm having some problems geting meds, but we hope to work that out, too. Need to talk to the onco dentist who scheduled me on Sept 25 and I really don't want to make a trip just for him. Tomorrow is the day I double up on the radiation. Hugs, Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life >> I phoned mother earlier this evening and was told that she is out. Out? >> What time will she be back? He doesn't know. She's gone out for a meal. [quoted text clipped - 13 lines] > > Janet 2X Rad? Well, my friend nap well and we will look for you over the weekend. Sleep and rest is very important. Hope they get your meds squared away for you. Almost done. Betsy You are almost at the finish line, Janet. We all know that you will complete the treatments and do well. Gail >>> > I would think you'll be better by mid November, but don't know for >>> sure. [quoted text clipped - 36 lines] > Hugs, > Janet > I didn't sleep well last night but the radiation makes me extremely > tired so I expect to feel better during the week. I get to take the [quoted text clipped - 8 lines] > > Thanks for asking and, even more, thanks for reading my whiney answer <g> Please be assured, Janet, that, after following what you've been through, I rather doubt that anyone considers you to be whiney. Rest, (I saw your latest post) and we'll be here - caring. Hugs J Janet Wilder said... > If I survive the rest of the "cure" I will definitely survive the > "disease" <g> That was the impression I got from mother, to be honest. She seems to be surviving the treatment though, so I imagine you will as well. As I said before, you're younger and presumably fitter/healthier (cancer aside) so although it's tough now it will get better. Honest... SignatureEm > Janet Wilder said... > >>If I survive the rest of the "cure" I will definitely survive the >>"disease" <g> >> > That was the impression I got from mother, to be honest. I guess that's the nature of the beast. From talking to a lot of people at MDA and Camp Cancer, as well as from groups like asc, I've learned that radiation on mucos tissue (I'm sure I got that technically wrong) is a lot worse than it is on other skin. > She seems to > be surviving the treatment though, so I imagine you will as well. As I > said before, you're younger and presumably fitter/healthier (cancer > aside) so although it's tough now it will get better. Honest... I'm hoping that my other-than-cancer good health will speed my recovery. I have always had delicate skin and I think that may be why I'm suffering so many side effects. Tell your Mum I said hi. Hugs to you both, Janet SignatureJanet Wilder Bad spelling. Bad punctuation Good Friends. Good Life >>>http://www.roadprincess.50megs.com/photo4_1.html > [quoted text clipped - 4 lines] > Hugs, > Janet Janet, Marcella is one of the most beautiful babies I've ever seen. She's so sweet and has the most adorable smile. I can see why her Granny and Grandpa are totally taken with her. It's pictures like Marcella's that make me want grandkids too. Pam S. coming out of lurkdom |
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