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Medical Forum / Diseases and Disorders / Cancer / August 2006Friend of friend with NSCLC
I just came home to a very sad email from a friend whose close friend was recently diagnosed. I'll copy/paste a little: He has been diagnosed with lung cancer. His wife is reluctant to talk about it because she is so angry about the whole thing. I was hoping that you could help me answer some questions about this, thought you might have some insight into some information. This is all that I know and it is vague: - He has "pleura (something), which I think means small cancer cells in the pleural cavity?? Do you have a clue as to what this means? - He has stage 3A, do you know what this means and how long he has to live? - Do you know of good resources where I can go look some of this stuff up? I have been to the American Cancer Society's web page, but was wondering if you had any other ideas? The email goes on about possible environmental causes tied to a former employer. I sent them in a different direction for that. I will point them here - waiting for clearer weather. I sent these links: http://www.oncologychannel.com/lungcancer/staging.shtml http://www.cancerhelp.org.uk/help/default.asp?page=6747#stage The pleura (something) - is that pleural effusion or something else (may not be enough info supplied). Is there any other link they should be looking at right away? I will look for Steph's questions - google/google. I should keep an emergency file for this sort of inquiry that I am getting far too often :-( Thanks for anything you can think of, Fig I found the list of ?s to ask doctor & Steph's list of treatment considerations & a few other things. Dang, I wish this would stop! Fig > I found the list of ?s to ask doctor & Steph's list of treatment > considerations & a few other things. Hi Fig, I don't bash people over the head (by presenting them) with Steph's "Questions to Ask" at diagnosis: unless they clearly are too advanced to consider treatment and/or when the patient has co-morbidities that risk their life, if they have treatment and/or when they spend more time in hospital (because of treatments) than quality of life, and/or when their cancer is advancing despite two lines of treatments and/or when Steph suggests it. J >> I found the list of ?s to ask doctor & Steph's list of treatment >> considerations & a few other things. [quoted text clipped - 8 lines] > advancing despite two lines of treatments and/or when Steph suggests > it. J Didn't mean to head bash. I didn't see it as discouraging, just a tool for sound decision-making. I was looking for the list of ?s to ask doc & found it, but I found the treatment decision-maker first & sent both. So I'll send on your comment in case they feel bashed. > J <macyinno@nospam.inv> wrote in news: > [quoted text clipped - 12 lines] > > > Didn't mean to head bash. Sorry Fig. I shouldn't have commented and should depend on your sound judgement. > I didn't see it as discouraging, just a tool for sound decision-making. I agree. Just not sure that everyone can cope with it, so early in diagnosis. I guess what I mean is some need to be "eased into" whether their cancer is curable (or not) - which is in one of the questions. But if she takes it to her oncologist, they can run through the questions with her. Hugs and my apology, Fig. J > I was looking for the list of ?s to ask doc & found > it, but I found the treatment decision-maker first & sent both. So I'll > send on your comment in case they feel bashed. > The pleura (something) - is that pleural effusion or something else (may > not be enough info supplied). Probably not enough information. In my own case, I was stage 1B and had involvement of the visceral pleura. Each lung has a visceral pleura, a sac surrounding it. There's also a parietal pleura which encloses both lungs and visceral pleura. Metastatic disease is one of the more common causes of pleural effusion.  SignatureMore abuse of eminent domain! http://www.villagelandgrab.com/ > I just came home to a very sad email from a friend whose close friend was > recently diagnosed. I'll copy/paste a little: > > He has been diagnosed with lung cancer. His wife is reluctant to talk > about it because she is so angry about the whole thing. Hello Fig, Help her to find the newsgroup. Setting up her newsreader for posting. (please, not Google, if possible) Munging her email address and setting up a "screen name". Teaching her how to use it and use the "block posters". Then we can all support her and find out more information. Thank you for helping her Hugs J >> I just came home to a very sad email from a friend whose close friend >> was recently diagnosed. I'll copy/paste a little: [quoted text clipped - 11 lines] > Hugs > J I don't think I know the person who was diagnosed, but sounds like my friend is gathering info for when he &/or his wife stop reeling & are ready for info & support. I will point them here & help all they'll allow. I remember how surreal we felt at the time. All of a sudden a normal, healthy life is thrown into chaos. Wanting to know everything & at the same time put a wall between us & 'it.' Thank you, J, as always, Fig >>> I just came home to a very sad email from a friend whose close friend >>> was recently diagnosed. I'll copy/paste a little: [quoted text clipped - 22 lines] > Thank you, J, as always, > Fig Pass my blog onto them Fig, if you think it might help. hugs Penny >>>> I just came home to a very sad email from a friend whose close friend >>>> was recently diagnosed. I'll copy/paste a little: [quoted text clipped - 27 lines] > hugs > Penny Thanks, I will. They're not ready yet - very angry as this could be caused by plutonium from his work. There are a number of similar cases among his colleagues. I hear he has filed suit.. http://en.wikipedia.org/wiki/Rocky_Flats Sierra Club won a lawsuit there over the plutonium. It sucks. Hpeefully, though, they'll come to realize they want to make the most out of what is left. I will try to steer them here too. Thanks, Penny, It's a good thing that blog is virtual, not paper. We;d have worn it out already! Love, Fig Interesting, has anyone approach an epidemiologist to see if there is a relationship between the lung cancer and Rocky Flats. It seems I have been hearing about more young people under age 50 diagnosed with advanced lung cancer, and the sad part they are non smokers. I wonder if there is any common thread with all these new non smokers getting advanced lung cancer. You did a good thing helping to restrict smoking. The more people who quit the more chances of not getting cancer. Tell people you care about to quit smoking. Hi Fig, So sorry to hear of your friend's friend. My mother in law is a Lung Cancer survivor since March of 2004. A good resource to look at with all kind of information is www.lungblog.com . I hope it helps, D > I just came home to a very sad email from a friend whose close friend was > recently diagnosed. I'll copy/paste a little: [quoted text clipped - 36 lines] > Thanks for anything you can think of, > Fig > So sorry to hear of your friend's friend. My mother in law is a Lung > Cancer survivor since March of 2004. A good resource to look at with > all kind of information is www.lungblog.com . > I hope it helps, No, it doesn't . Bonnie's battle is not blogged there. If it is buried somewhere there in "news items", she'd better put it front and center, so there's something there of interest to readers here. Otherwise, we might come to the conclusion that you're just posting to try and get donations. Cancer patients have their own financial woes. "flogging for donations" here, is inappropriate. Fix the webpage and I'll check it after, on sci.med.diseases.cancer. Take your time, make the webpage right. then we'll see... J J...you seem hostile. The Lung Blog does have good information about Lung Cancer...did you click on the links on the side to see the info? I am confused at the hostility and think you are offbase. I actually was trying to help and give someone some hope and not at all asking for any donations. Believe it or not, a lot of people I have spoken with have been happy to see that things are being done to raise awareness and that there is information on the Lung Blog about Lung Cancer and News/Updates associated with...and not just about Bonnie. I believe the LungBlog is more about the news and inforamtion. Her website is about the Foundation and that was not the website I gave out. I was not at all asking for donations in this thread. I am sorry you seem to be having a terrible day. I honestly think that the LungBlog is a good source of information and have been told as much by others looking for info. Also, I another good resource for patients is www.carepages.com... for people who are truly interested. J...I think your comments were inappropriate. I am not in charge of the website either so I will not be "fixing" it for your approval. I think it is great and is updated daily about LUNG CANCER NEWS. It's not Bonnie's personal blog so her story would not be on it. She has been through just about everything...and is a fighter. I greatly admire her... and feel for her. She continues to fight - even though everyone on this group knows how hard the fight is. FYI, here is an article the paper wrote about her back in April 2005. So you can have a little insight if you would be interested. A cancer victim finds new hope Oakland Tribune, Apr 12, 2005 by Emily Fancher, STAFF WRITER SAN CARLOS -- Bonnie Addario felt uneasy about her doctors' plan to cut her open to determine if the suspicious mark on her left lung was cancer. If they found cancer while doing the biopsy, they wanted to operate immediately while she was still under anesthesia. "I just didn't feel comfortable going into surgery and not knowing how I was going to come out," she said. That's when Addario read about a new avenue for lung-cancer treatment. An article in the San Mateo County Times on Nov. 12, 2003, touted a first-of-its-kind collaboration between Sequoia Hospital and UC San Francisco for difficult cases. Addario thought maybe this could save her life. So far, it has. "Had I gone the other route, I wouldn't be sitting here today," said Addario, a vibrant 57-year-old who walks briskly around her neighborhood every day. "There was a sense of urgency in (the Sequoia/UCSF) group of doctors. It was serendipity that article was in the San Mateo County Times." Addario is among a growing number of people who are surviving lung cancer, the most lethal form of cancer, and among those in the county benefiting from new partnerships among hospitals. > > So sorry to hear of your friend's friend. My mother in law is a Lung > > Cancer survivor since March of 2004. A good resource to look at with [quoted text clipped - 11 lines] > Take your time, make the webpage right. then we'll see... > J I have not yet posted anywhere, but I have to say that I think D seemed to have some good resources and not sure why he was attacked. I looked at the Lung Blog Site and thought it was interesting and had a lot of information - some of which I found previously searching the web although it is much easier and less time consuming to have it all on one site. Ms. Addario's story was pretty compelling and I congratulate her on her success with her own fight against this cancer. I have lost my father to it and it was so fast. I wish I knew more and I wish the doctors had better tools to help him live longer. I miss him very much. I do not know if the Care Pages are offered anywhere other than the U.S. From what I read, it sounds like a comforting way to deal with the questions and updates for patients and their families. That was one of the harder things for my own family. Telling the same sad story and taking so much time to keep people updated was a trying thing. Best of Luck to all of you with this terrifying disease and family members of those affected. It is certainly a tough fight. I thought I was a strong person, but my father showed me up in those last months. God Bless him. These Groups are helpful and if I only wish I would have been able to have more time to research all of the different options, but there was no time. I think the questions to know to ask are a good idea. My family and I could have used them. We would have had to call back to ask them due to the shock at first hearing the diagnosis but I believe knowing what to ask would help in any case. Cheers, W > J...you seem hostile. > [quoted text clipped - 71 lines] > > Take your time, make the webpage right. then we'll see... > > J W...I appreciate your comments and am so sorry to hear of your father's passing. Hugs to you and yours. Back to Fig, I hope your friend is doing as well as possible and I am, again, sorry that this has happened. (also sorry that this has gone a little off thread with the comments re:J) Penny's blog looks great too. There are some resources out there and I hope they can help you and your friend and anyone who needs it. Take care, D > I have not yet posted anywhere, but I have to say that I think D seemed > to have some good resources and not sure why he was attacked. I looked [quoted text clipped - 99 lines] > > > Take your time, make the webpage right. then we'll see... > > > J D I like the site too, I found it informative, Thanks for sharing Alex > I have not yet posted anywhere, but I have to say that I think D seemed > to have some good resources and not sure why he was attacked. I looked [quoted text clipped - 3 lines] > one site. Ms. Addario's story was pretty compelling and I congratulate > her on her success with her own fight against this cancer. Couldn't find it on the blog. If it's there, please advise where exactly. or link to it, on the blog. I had to find it esewhere and posted it here several weeks or a month ago. That's the point of a blog, isn't it? > I have lost > my father to it and it was so fast. I wish I knew more and I wish the [quoted text clipped - 5 lines] > story and taking so much time to keep people updated was a trying > thing. Sorry to hear about your father and thanks for your post. J J...her story (or at least the beginning of it) is in the reply I sent earlier...the article from the newspaper. :) > > I have not yet posted anywhere, but I have to say that I think D seemed > > to have some good resources and not sure why he was attacked. I looked [quoted text clipped - 21 lines] > Sorry to hear about your father and thanks for your post. > J > My mother in law is a Lung > Cancer survivor since March of 2004. A good resource to look at with > all kind of information is www.lungblog.com . > I hope it helps, Well, I misunderstood. I thought the blog was about your MIL. I see it's a collection of news articles. Thanks for having me take a 2nd look. J Hi J. Thanks for taking that second look ;) I do think it's a helpful site to find information. Have a good day! > > My mother in law is a Lung > > Cancer survivor since March of 2004. A good resource to look at with [quoted text clipped - 5 lines] > Thanks for having me take a 2nd look. > J |
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