Can someone who has undergone radiation tell me what it is like?
Jackie
betsyb - 29 Jul 2006 21:20 GMT
I suppose I can. I had my right lung and esophagus radiated every day for
about 36 days. As for the amount, I have no idea. Was I scared, sure was.
Did it hurt, nope. After the first trip it was a cake walk. Takes longer to
take off your clothes and get on the gown than the proceedure takes. All I
had when I finished was a round circle on my back that reminded me of a
target without the circles and lines. That needed some ointment to prevent
peeling, like a bad sunburn.
Hope this helps.

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Betsy
> Can someone who has undergone radiation tell me what it is like?
> Jackie
Mark Farner - 30 Jul 2006 06:21 GMT
On 7/29/06 3:20 PM, in article eagftq026mt@news3.newsguy.com, "betsyb"
<betsy959@TRASHoptonline.net> wrote:
> I suppose I can. I had my right lung and esophagus radiated every day for
> about 36 days. As for the amount, I have no idea. Was I scared, sure was.
[quoted text clipped - 4 lines]
> peeling, like a bad sunburn.
> Hope this helps.
You didn't have a hard time swallowing? Did you ever get pneumonia? I must
be batting a million.
betsyb - 30 Jul 2006 15:04 GMT
Swallowing wasn't too difficult at all. I still have a sensation that there
is something in my throat when I swallow but the scopings say different,,
they tell me this will pass. No pneumonia.

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Betsy
> On 7/29/06 3:20 PM, in article eagftq026mt@news3.newsguy.com, "betsyb"
> <betsy959@TRASHoptonline.net> wrote:
[quoted text clipped - 13 lines]
> You didn't have a hard time swallowing? Did you ever get pneumonia? I must
> be batting a million.
Bobert - 29 Jul 2006 23:44 GMT
> Can someone who has undergone radiation tell me what it is like?
> Jackie
That depends a lot on where you are radiated. I have SCLC, so they got me
in the chest area. My esophagus was in the beam, so it got very irritated.
I envisioned it as similar to the "sunburn" on my chest. It peaked the
week after my last RT. Not a fun week. About all I could swallow without
pain was scrambled eggs and cold chocolate pudding. Could've been worse.
The biggest side effect (for me) was the fatigue. I couldn't walk 10 feet
without stopping to rest. That was true for the first round (chest/lung)
and the subsequent Whole Brain Radiation. The only positive thing I can say
about it is you will get better. Maybe not as soon as you want, but it will
pass. Took me about 4 months to get back to "normal"
Good luck and keep us posted.
Bob.

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Bob
in Carmel, CA
ipunty - 29 Jul 2006 23:45 GMT
Dear Jackie,
I knew someone once named Jackie Davidson! She worked in metals. But,
I digress which is easy for me to do. I would suggest that you tell us
what exactly your treatment is going to encompass. In that way we can
better respond because threre are such a wide variety of cancers and
radiation treatments for them.
If you are dealing with head and neck cancer including things like the
tongue, tonsils, throat, and so forth you can look for posts by ipunt
(me) cause that's what I have and have been treated for for the past 5
weeks. I have written the group about my experiences on a weekly
basis.
You do need to remember that everyone reponds to treatment differently,
so what you read is not set in stone by any means. I hope this has
been helpful and I look forward to being whatever assistance I can
given I have an idea what your needs are.
Remember, we're all in this together!
ipunty
> Can someone who has undergone radiation tell me what it is like?
> Jackie
ipunty - 29 Jul 2006 23:49 GMT
posts by ipunty not ipunt.
sorry
J. Davidson - 30 Jul 2006 00:14 GMT
Hi Ipunty!
It is not I for whom I ask about radiation. It is my dear sister, who has
Leukemia. She has been told she will be radiated to kill all her bone
marrow before the stem call transplant she will receive from my sister. We
are trying to keep her thinking in a positive direction. She is stuck on
the idea that the stem cell t. will not work.
She has no energy for this list, so I do all the asking for her.
She is AML-M0, diagnosed 8 Dec. 2004. Age 64.
Her husband died of CA prostate in Nov. 2005.
Jackie
> Dear Jackie,
>
[quoted text clipped - 17 lines]
> > Can someone who has undergone radiation tell me what it is like?
> > Jackie
J - 30 Jul 2006 01:02 GMT
> It is not I for whom I ask about radiation. It is my dear sister, who has
> Leukemia. She has been told she will be radiated to kill all her bone
[quoted text clipped - 5 lines]
> Her husband died of CA prostate in Nov. 2005.
> Jackie
Jackie,
Try the AML list at ACOR http://www.acor.org/mailing.html
it's probably under "L" or "A"
The site is down right now, but send a mesage to them later.
J
ipunty - 30 Jul 2006 01:06 GMT
Dear Jackie,
Well, that's outa my ballpark. I did a quick search on google and came
up with something to get you started: (read it through as it includes
chemo)
http://www.ucsfhealth.org/childrens/medical_services/cancer/bmt/conditioning.html
Hope it helps.
All the best to you and yours, Stay in touch.
ipunty
> Hi Ipunty!
> It is not I for whom I ask about radiation. It is my dear sister, who has
[quoted text clipped - 6 lines]
> Her husband died of CA prostate in Nov. 2005.
> Jackie
clifto - 30 Jul 2006 18:48 GMT
> Can someone who has undergone radiation tell me what it is like?
I had radiation to the throat, specifically the epiglottis. I needed
tranquilizers to withstand the mask they used to hold my head in place.
Other than that, I got a lumpy chin (lymphedema) and a little skin burn
that felt like sunburn after several treatments.

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Janet Wilder - 30 Jul 2006 20:59 GMT
> I had radiation to the throat, specifically the epiglottis. I needed
> tranquilizers to withstand the mask they used to hold my head in place.
> Other than that, I got a lumpy chin (lymphedema) and a little skin burn
> that felt like sunburn after several treatments.
They gave me Ativan (the generic). Wonderful stuff! Made it through the
mask-making and have my little bottle to get me through the treatments.
I doubt I could endure it without the drugs because when I think about
it, I start to get an anxiety reaction.
Janet, #1 fan of the pharma industry.

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The Road Princess
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clifto - 31 Jul 2006 23:09 GMT
>> I had radiation to the throat, specifically the epiglottis. I needed
>> tranquilizers to withstand the mask they used to hold my head in place.
[quoted text clipped - 5 lines]
> I doubt I could endure it without the drugs because when I think about
> it, I start to get an anxiety reaction.
I know whereof you speak. They made my mask (twice in the same hour) without
benefit of relaxants, and I endured one rad session without because of
some strange argument with the wife.
Right now I'm doing a tiny bit of Ativan as part of my anti-nausea regimen.
Helps but doesn't cure; I feel gassy and weird most of the time, not enough
to be called painful but definitely slightly uncomfortable.
Paraphrasing, "Looks like I picked a bad day to quit smoking dope." -- Steven
McCrosky (Lloyd Bridges) in "Airplane" :-)

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Frank - 31 Jul 2006 01:19 GMT

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Frank Sharkey
Stage IV Rectal Cancer Paitent
Dx'd 10/1/05 and Plan to be here
for a great while longer!! ;-)
> Can someone who has undergone radiation tell me what it is like?
> Jackie
[quoted text clipped - 4 lines]
>"zap" took about 1 minute. it took longer to set the machine up and
>position me than to get the radiation.