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Medical Forum / Diseases and Disorders / Cancer / July 2006

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maximising time left

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cyclone - 24 Jul 2006 08:01 GMT
Hi

My Mum is 65 was diagnosed with an inoperable cancer in between her lungs
about 4 months ago.

Secondary cancers had already occurred in a few other places like her spine
and neck.

She had sessions of radium therapy and then chemo.

Spent a couple of small periods in hospital because her blood count was low
prior to chemo

About 3 weeks ago she was given really positive news that the primary cancer
had reduced significantly in size.

Since then she has gone down hill at a rate of knots with symptoms including
extreme lack of appetite, vagueness, saying random things out of context,
drifting in and out of sleep/consciousness, muscle wastage to the point
where she can't really stand unassisted, can't shower unassisted, sometimes
can't feed herself etc and just recently fluid retention.  My father was
doing virtually everything for her and was in the process of arranging home
help..

She was hospitalised nearly a week ago in conjunction with 2 chemo sessions.

On the weekend they told us the chemo was not helping and that she was in
the advanced stages of the disease and palliative/hospice care was
recommended.

Today they told us she only has weeks left but I think I have known that in
my heart for a while.

My father, my sister and I are all terribly grief stricken at having to
confront that reality with no hope left be it false or otherwise.

Need advice on dealing with the grief, maximising the time we have left with
her...

She is a very proud person who keeps feelings inside, and does not like to
make a fuss...

I have been telling her how much she means to me, and that I love her and
that she can tell us what she is feeling without having to worry about us
and how we are coping - that her feelings and what makes her happy are the
most important thing.  I don't know whether my getting emotional in front of
her causes increased sadness for her or forces her to consider her
situation.  I have asked her if she thinks she might get better and she said
no.  I have told her the doctors say her chemo isn't working and should
stopped and asked how she feels about that and she says it is ok.  She seems
pleased at the prospect of moving to a hospice facility closer to Dad & my
sister and I have explained that palliative care means she will get more
care and attention than she has been getting in a general ward for the last
few days.

I have read that this next period prior to her passing is often a good time
to re-live memories, and learn more about the parts of their lives you do
not know about, but I don't want it to seem like I am pumping her for facts
for her eulogy.  I have broached some of her childhood memories and she
seems to enjoy remembering things and it seems to concentrate her
focus/lucidity but this was only briefly...

She has 3 grandchildren, 2 of them are fairly new additions - my son who is
6 months old and my sister's son who is 1 month old and she seems to enjoy
their visits...

I'm a blokey bloke and don't generally show emotion but I have been crying
quite a lot lately, including now just typing this....not sure if I should
talk to a free counselling service my work provides...

Thanks for reading this far and any advice or tips to help maximise the time
we have left with her would be greatly appreciated.

cheers
Tony (my Mum's name is Annette)
novik at tpg dot com dot au
alex - 24 Jul 2006 08:12 GMT
Sorry to hear about your mom,  you are helping her sort through her life
issues.
Does she have a clergy member to talk to? Just being available to your Mom
is the best thing you can do. Perhaps you could work on a scrap book
together of the important events in her life. Hospice usually does family
counseling too.

If you can take time off from work, and spend time with your mom that would
be great thing too.  Lung cancer is HORRIBLE and robs us of precious time
with family members.
Alex
> Hi
>
[quoted text clipped - 89 lines]
> Tony (my Mum's name is Annette)
> novik at tpg dot com dot au
J - 24 Jul 2006 10:06 GMT
> My Mum is 65 was diagnosed with an inoperable cancer in between her lungs
> about 4 months ago.
[quoted text clipped - 49 lines]
> quite a lot lately, including now just typing this....not sure if I should
> talk to a free counselling service my work provides...

Hello Tony,
I'm sorry to read about your mother.

Once in hospice, she may improve somewhat.  It's hard to know if what she's
experiencing is the pre-active stage of dying or the side effects of the chemo
and/or the cancer and decisions moving so fast.  Or everything combined.  You
seem to be doing all the right things.  Hospice will guide you, but do remember
to bring her favourite comfy robe and slippers and anything she's liked to eat
or drink.  Play it by ear, depending on how she feels.

I would encourage you (or a family member) to read Hospice's brochures or call
and ask what's available at the facility. Some hospices in the US, also have
onsite childcare.  That would be if you want to spend long periods with your
mother, but the kids get restless or need a break away.

Hospice possibly has a Chaplain.  You and the family members may find that very
comforting.
When Dad was dying and one of us was choking up, we'd go out into the hallway
and look out a window or on an outdoor porch or downstairs for a walk around the
block. Let the tears flow.  It's a very sad time, I know.

Our thoughts will be with you. Post anytime.
J
Alayne - 24 Jul 2006 10:34 GMT
> Hi
>
[quoted text clipped - 89 lines]
> Tony (my Mum's name is Annette)
> novik at tpg dot com dot au

Hello Tony,

I am so sorry to hear about your mum and my heart goes out to you.  There's
no specific advice that one can give other than to do what you are doing
now, you do whatever feels natural.  Once your mum is in hospice her
symptoms may improve a little and the hospice people are truly wonderful,
they will take your whole family on board.

I lost my hubby to a GBM (brain tumour) nearly three years ago now and I
recall vividly the emotions that a person feels, be with your mum as much as
you can, if you wish to get things off your chest you can here, and also
with a counsellor at the hospice.

It's a tough time for you and your family, we will be thinking of you.

Warm Hugs

Alayne
betsyb - 24 Jul 2006 14:27 GMT
Go to the Library. Elizabeth Keebler-Ross On Death and Dying
This is the best help you can get for yourself and family. I am so sorry to
hear of your Mother's problems.

Signature

Betsy

> Hi
>
[quoted text clipped - 89 lines]
> Tony (my Mum's name is Annette)
> novik at tpg dot com dot au
Bill - 24 Jul 2006 15:49 GMT
Tony, there is no doubt in my mind that Annette will pass from this life
knowing that she is loved. What more could one ask for?
Your post shows that realistic love can be demonstrated in these
circumstances.
If you continue the thoughtful attitude, she and the rest of the family will
be grateful.
Not only will she benefit but readers of your message will benefit from
knowing how to handle the passing of a loved one.
I will in the not too distant future be in a similar situation with my
wife's cancer and your words will help me get through.
Best to you and add my love to Annette.
Bill
Janet Wilder - 25 Jul 2006 01:49 GMT
I know this might sound a little crass, however, you might want her to
collaberate on her obituary. First, it will help the family learn
somethings about her that they might have never known and that can be a
nice thing to have to remember. Second, she gets to have the last word
on her last word.

My uncle wrote his own obituary. He insisted that it be sent to the New
York Times and it was published there. He got to be publicly remembered
exactly as he wished.

My own son just asked me to write my own obituary. He said he doesn't
want to be haunted by me for not spelling something correctly.

I think it's a great idea. It's time for me to reflect on my life, how I
spent it and the many things I accomplished that I would want others to
know.

Even if it's never published, it would be wonderful for her to share her
life with her loved ones in such a way.

I hope this wasn't morbid. It was not meant to me.

Janet

Signature

-----------
Janet Wilder
The Road Princess
http://janetwilder.blogspot.com

Mike Radcliffe - 25 Jul 2006 03:13 GMT
> Hi
>
[quoted text clipped - 91 lines]
>
>Tony
     It sounds like you are doing all the right things to me. Just keep
doing it.......there are as many rules as there are people.
MIKE
tony.mcevoy@gmail.com - 29 Jul 2006 03:16 GMT
> Thanks for reading this far and any advice or tips to help maximise the time
> we have left with her would be greatly appreciated.
>
> cheers
> Tony (my Mum's name is Annette)
> novik at tpg dot com dot au

Thanks very much for the replies and caring thoughts.

Mum passed peacefully early this morning.  She went knowing how much
she was loved and meant to us all.

We will miss her.

Tony
J - 29 Jul 2006 10:35 GMT
> > Thanks for reading this far and any advice or tips to help maximise the time
> > we have left with her would be greatly appreciated.
[quoted text clipped - 9 lines]
>
> We will miss her.

I'm so very sorry, Tony. She's at peace now.
This is for you and siblings, may help with dealing with the loss.
May you go on with courage and always remember...
J
Your mother is always with you.

The young mother set her foot on the path of life.
"Is this the long way?" she asked.

And the guide said "Yes, and the way is hard. And you will be old before you reach
the end of it. But the end will be better than the beginning."

But the young mother was happy, and she would not believe that anything could be
better than these years.

So she played with her children, she fed them and bathed them, and taught them how
to tie their shoes and ride a bike and reminded them to feed the dog, and do their
homework and brush their teeth.

The sun shone on them, and the young Mother cried "Nothing will ever be lovelier
than this."

Then the nights came, and the storms, and the path was sometimes dark, and the
children shook with fear and cold, and the mother drew them close and covered them
with her arms, and the children said, "Mother, we are not afraid, for you are
near, and no harm can come."

And the morning came, and there was a hill ahead, and the children climbed and
grew weary, and the mother was weary. But at all times she said to the children, A
little patience and we are there."

So the children climbed, and as they climbed they learned to weather the storms.
And with this, she gave them strength to face the world. Year after year, she
showed them compassion, understanding, hope, but most of all....unconditional
love.

And when they reached the top they said, "Mother, we would not have done it
without you."

The days went on, and the weeks and the months and the years, and the mother grew
old and she became little and bent. But her children were tall and strong, and
walked with courage. And the mother, when she lay down at night, looked up at the
stars and said, "This is a better day than the last, for my children have learned
so much and are now passing these traits on to their children."

And when the way became rough for her, they lifted her, and gave her their
strength, just as she had given them hers.

One day they came to a hill, and beyond the hill, they could see a shining road
and golden gates flung wide.

And mother said: "I have reached the end of my journey. And now I know the end is
better than the beginning, for my children can walk with dignity and pride, with
their heads held high, and so can their children after them."

And the children said, " You will always walk with us, Mother, even when you have
gone through the gates."

And they stood and watched her as she went on alone, and the gates closed after
her. And they said: "We cannot see her, but she is with us still. A Mother like
ours is more than a memory. She is a living presence."

Your Mother is always with you. She's the whisper of the leaves as you walk down
the street, she's the smell of certain foods you remember, flowers you pick and
perfume that she wore, she's the cool hand on your brow when you're not feeling
well, she's your breath in the air on a cold winter's day. She is the sound of the
rain that lulls you to sleep, the colors of a rainbow, she is Christmas morning.

Your Mother lives inside your laughter. And she's crystallized in every tear drop.
A mother shows every emotion..........happiness, sadness, fear, jealousy, love,
hate, anger, helplessness, excitement, joy, sorrow..... and all the while, hoping
and praying you will only know the good feelings in life. She's the place you came
from, your first home, and she's the map you follow with every step you take.

She's your first love, your first friend, even your first enemy, but nothing on
earth can separate you. Not time, not space...............not even death!
Emily - 29 Jul 2006 22:38 GMT
tony.mcevoy@gmail.com said...

> > Thanks for reading this far and any advice or tips to help maximise the time
> > we have left with her would be greatly appreciated.
[quoted text clipped - 9 lines]
>
> We will miss her.

{{{{{Hugs}}}}} to you and your family.
Janet Wilder - 30 Jul 2006 05:44 GMT
>>Thanks for reading this far and any advice or tips to help maximise the time
>>we have left with her would be greatly appreciated.
[quoted text clipped - 11 lines]
>
> Tony

My deepest condolences to you and your family.

Janet

Signature

-----------
Janet Wilder
The Road Princess
http://janetwilder.blogspot.com

tanada - 30 Jul 2006 18:39 GMT
> Mum passed peacefully early this morning.  She went knowing how much
> she was loved and meant to us all.
>
> We will miss her.

I'm so sorry Tony.  I wish there was more we could do for you.  I bet she
was a wonderful woman and that she is free from pain now..

Pam S.
 
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