Medical Forum / Diseases and Disorders / Cancer / July 2006
maximising time left
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cyclone - 24 Jul 2006 08:01 GMT Hi
My Mum is 65 was diagnosed with an inoperable cancer in between her lungs about 4 months ago.
Secondary cancers had already occurred in a few other places like her spine and neck.
She had sessions of radium therapy and then chemo.
Spent a couple of small periods in hospital because her blood count was low prior to chemo
About 3 weeks ago she was given really positive news that the primary cancer had reduced significantly in size.
Since then she has gone down hill at a rate of knots with symptoms including extreme lack of appetite, vagueness, saying random things out of context, drifting in and out of sleep/consciousness, muscle wastage to the point where she can't really stand unassisted, can't shower unassisted, sometimes can't feed herself etc and just recently fluid retention. My father was doing virtually everything for her and was in the process of arranging home help..
She was hospitalised nearly a week ago in conjunction with 2 chemo sessions.
On the weekend they told us the chemo was not helping and that she was in the advanced stages of the disease and palliative/hospice care was recommended.
Today they told us she only has weeks left but I think I have known that in my heart for a while.
My father, my sister and I are all terribly grief stricken at having to confront that reality with no hope left be it false or otherwise.
Need advice on dealing with the grief, maximising the time we have left with her...
She is a very proud person who keeps feelings inside, and does not like to make a fuss...
I have been telling her how much she means to me, and that I love her and that she can tell us what she is feeling without having to worry about us and how we are coping - that her feelings and what makes her happy are the most important thing. I don't know whether my getting emotional in front of her causes increased sadness for her or forces her to consider her situation. I have asked her if she thinks she might get better and she said no. I have told her the doctors say her chemo isn't working and should stopped and asked how she feels about that and she says it is ok. She seems pleased at the prospect of moving to a hospice facility closer to Dad & my sister and I have explained that palliative care means she will get more care and attention than she has been getting in a general ward for the last few days.
I have read that this next period prior to her passing is often a good time to re-live memories, and learn more about the parts of their lives you do not know about, but I don't want it to seem like I am pumping her for facts for her eulogy. I have broached some of her childhood memories and she seems to enjoy remembering things and it seems to concentrate her focus/lucidity but this was only briefly...
She has 3 grandchildren, 2 of them are fairly new additions - my son who is 6 months old and my sister's son who is 1 month old and she seems to enjoy their visits...
I'm a blokey bloke and don't generally show emotion but I have been crying quite a lot lately, including now just typing this....not sure if I should talk to a free counselling service my work provides...
Thanks for reading this far and any advice or tips to help maximise the time we have left with her would be greatly appreciated.
cheers Tony (my Mum's name is Annette) novik at tpg dot com dot au
alex - 24 Jul 2006 08:12 GMT Sorry to hear about your mom, you are helping her sort through her life issues. Does she have a clergy member to talk to? Just being available to your Mom is the best thing you can do. Perhaps you could work on a scrap book together of the important events in her life. Hospice usually does family counseling too.
If you can take time off from work, and spend time with your mom that would be great thing too. Lung cancer is HORRIBLE and robs us of precious time with family members. Alex
> Hi > [quoted text clipped - 89 lines] > Tony (my Mum's name is Annette) > novik at tpg dot com dot au J - 24 Jul 2006 10:06 GMT > My Mum is 65 was diagnosed with an inoperable cancer in between her lungs > about 4 months ago. [quoted text clipped - 49 lines] > quite a lot lately, including now just typing this....not sure if I should > talk to a free counselling service my work provides... Hello Tony, I'm sorry to read about your mother.
Once in hospice, she may improve somewhat. It's hard to know if what she's experiencing is the pre-active stage of dying or the side effects of the chemo and/or the cancer and decisions moving so fast. Or everything combined. You seem to be doing all the right things. Hospice will guide you, but do remember to bring her favourite comfy robe and slippers and anything she's liked to eat or drink. Play it by ear, depending on how she feels.
I would encourage you (or a family member) to read Hospice's brochures or call and ask what's available at the facility. Some hospices in the US, also have onsite childcare. That would be if you want to spend long periods with your mother, but the kids get restless or need a break away.
Hospice possibly has a Chaplain. You and the family members may find that very comforting. When Dad was dying and one of us was choking up, we'd go out into the hallway and look out a window or on an outdoor porch or downstairs for a walk around the block. Let the tears flow. It's a very sad time, I know.
Our thoughts will be with you. Post anytime. J
Alayne - 24 Jul 2006 10:34 GMT > Hi > [quoted text clipped - 89 lines] > Tony (my Mum's name is Annette) > novik at tpg dot com dot au Hello Tony,
I am so sorry to hear about your mum and my heart goes out to you. There's no specific advice that one can give other than to do what you are doing now, you do whatever feels natural. Once your mum is in hospice her symptoms may improve a little and the hospice people are truly wonderful, they will take your whole family on board.
I lost my hubby to a GBM (brain tumour) nearly three years ago now and I recall vividly the emotions that a person feels, be with your mum as much as you can, if you wish to get things off your chest you can here, and also with a counsellor at the hospice.
It's a tough time for you and your family, we will be thinking of you.
Warm Hugs
Alayne
betsyb - 24 Jul 2006 14:27 GMT Go to the Library. Elizabeth Keebler-Ross On Death and Dying This is the best help you can get for yourself and family. I am so sorry to hear of your Mother's problems.
 Signature Betsy
> Hi > [quoted text clipped - 89 lines] > Tony (my Mum's name is Annette) > novik at tpg dot com dot au Bill - 24 Jul 2006 15:49 GMT Tony, there is no doubt in my mind that Annette will pass from this life knowing that she is loved. What more could one ask for? Your post shows that realistic love can be demonstrated in these circumstances. If you continue the thoughtful attitude, she and the rest of the family will be grateful. Not only will she benefit but readers of your message will benefit from knowing how to handle the passing of a loved one. I will in the not too distant future be in a similar situation with my wife's cancer and your words will help me get through. Best to you and add my love to Annette. Bill
Janet Wilder - 25 Jul 2006 01:49 GMT I know this might sound a little crass, however, you might want her to collaberate on her obituary. First, it will help the family learn somethings about her that they might have never known and that can be a nice thing to have to remember. Second, she gets to have the last word on her last word.
My uncle wrote his own obituary. He insisted that it be sent to the New York Times and it was published there. He got to be publicly remembered exactly as he wished.
My own son just asked me to write my own obituary. He said he doesn't want to be haunted by me for not spelling something correctly.
I think it's a great idea. It's time for me to reflect on my life, how I spent it and the many things I accomplished that I would want others to know.
Even if it's never published, it would be wonderful for her to share her life with her loved ones in such a way.
I hope this wasn't morbid. It was not meant to me.
Janet
 Signature ----------- Janet Wilder The Road Princess http://janetwilder.blogspot.com
Mike Radcliffe - 25 Jul 2006 03:13 GMT > Hi > [quoted text clipped - 91 lines] > >Tony It sounds like you are doing all the right things to me. Just keep doing it.......there are as many rules as there are people. MIKE
tony.mcevoy@gmail.com - 29 Jul 2006 03:16 GMT > Thanks for reading this far and any advice or tips to help maximise the time > we have left with her would be greatly appreciated. > > cheers > Tony (my Mum's name is Annette) > novik at tpg dot com dot au Thanks very much for the replies and caring thoughts.
Mum passed peacefully early this morning. She went knowing how much she was loved and meant to us all.
We will miss her.
Tony
J - 29 Jul 2006 10:35 GMT > > Thanks for reading this far and any advice or tips to help maximise the time > > we have left with her would be greatly appreciated. [quoted text clipped - 9 lines] > > We will miss her. I'm so very sorry, Tony. She's at peace now. This is for you and siblings, may help with dealing with the loss. May you go on with courage and always remember... J Your mother is always with you.
The young mother set her foot on the path of life. "Is this the long way?" she asked.
And the guide said "Yes, and the way is hard. And you will be old before you reach the end of it. But the end will be better than the beginning."
But the young mother was happy, and she would not believe that anything could be better than these years.
So she played with her children, she fed them and bathed them, and taught them how to tie their shoes and ride a bike and reminded them to feed the dog, and do their homework and brush their teeth.
The sun shone on them, and the young Mother cried "Nothing will ever be lovelier than this."
Then the nights came, and the storms, and the path was sometimes dark, and the children shook with fear and cold, and the mother drew them close and covered them with her arms, and the children said, "Mother, we are not afraid, for you are near, and no harm can come."
And the morning came, and there was a hill ahead, and the children climbed and grew weary, and the mother was weary. But at all times she said to the children, A little patience and we are there."
So the children climbed, and as they climbed they learned to weather the storms. And with this, she gave them strength to face the world. Year after year, she showed them compassion, understanding, hope, but most of all....unconditional love.
And when they reached the top they said, "Mother, we would not have done it without you."
The days went on, and the weeks and the months and the years, and the mother grew old and she became little and bent. But her children were tall and strong, and walked with courage. And the mother, when she lay down at night, looked up at the stars and said, "This is a better day than the last, for my children have learned so much and are now passing these traits on to their children."
And when the way became rough for her, they lifted her, and gave her their strength, just as she had given them hers.
One day they came to a hill, and beyond the hill, they could see a shining road and golden gates flung wide.
And mother said: "I have reached the end of my journey. And now I know the end is better than the beginning, for my children can walk with dignity and pride, with their heads held high, and so can their children after them."
And the children said, " You will always walk with us, Mother, even when you have gone through the gates."
And they stood and watched her as she went on alone, and the gates closed after her. And they said: "We cannot see her, but she is with us still. A Mother like ours is more than a memory. She is a living presence."
Your Mother is always with you. She's the whisper of the leaves as you walk down the street, she's the smell of certain foods you remember, flowers you pick and perfume that she wore, she's the cool hand on your brow when you're not feeling well, she's your breath in the air on a cold winter's day. She is the sound of the rain that lulls you to sleep, the colors of a rainbow, she is Christmas morning.
Your Mother lives inside your laughter. And she's crystallized in every tear drop. A mother shows every emotion..........happiness, sadness, fear, jealousy, love, hate, anger, helplessness, excitement, joy, sorrow..... and all the while, hoping and praying you will only know the good feelings in life. She's the place you came from, your first home, and she's the map you follow with every step you take.
She's your first love, your first friend, even your first enemy, but nothing on earth can separate you. Not time, not space...............not even death!
Emily - 29 Jul 2006 22:38 GMT tony.mcevoy@gmail.com said...
> > Thanks for reading this far and any advice or tips to help maximise the time > > we have left with her would be greatly appreciated. [quoted text clipped - 9 lines] > > We will miss her. {{{{{Hugs}}}}} to you and your family.
Janet Wilder - 30 Jul 2006 05:44 GMT >>Thanks for reading this far and any advice or tips to help maximise the time >>we have left with her would be greatly appreciated. [quoted text clipped - 11 lines] > > Tony My deepest condolences to you and your family.
Janet
 Signature ----------- Janet Wilder The Road Princess http://janetwilder.blogspot.com
tanada - 30 Jul 2006 18:39 GMT > Mum passed peacefully early this morning. She went knowing how much > she was loved and meant to us all. > > We will miss her. I'm so sorry Tony. I wish there was more we could do for you. I bet she was a wonderful woman and that she is free from pain now..
Pam S.
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