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Medical Forum / Diseases and Disorders / Cancer / July 2006My Cancer
J: and others: I was wondering How long do I have. Mycancer started out as rectral cancer advanced stage 3. had my entire rectum removed. Then fond out that I was 6 for 7 lymph nodes down in my rear was postive. Now a have cancer that is tunneling through My upper Left lobe of my liver. Now that I'm at stage IV. CHemo has done more harm then good. How long Do I have? Now one willl give me a deffinit Idea. a year +/- I'm in constant pain from the chemo. Take 300-360Mgs Morphine Sulfate for the pain, I take 2 or 4 Mgs adavan so I sleep, composine to keep my stomsch together enough so I can eat. So what Do think I got left. Soo, mush in 9 months. Ohh yea I have a colostemy too. Frank  SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > J: and others: > [quoted text clipped - 17 lines] > Dx'd 10/1/05 and Plan to be here > for a great while longer!! ;-) Well, Frank, I expect nobody knows for sure, whether there's cancer (or not) in the other part of your liver. J SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >> J: and others: [quoted text clipped - 30 lines] > J >J:\ what is the average life time expectancy for all of this? a more... less.. I need to know so if I have to make arrangemenets for my wife and family. Frank Frank you are asking the impossible from this group. No one really knows for sure. I made all my arrangements the week I was first told of my cancer. I wasn't willing to gamble and wanted my Husband and sons not to have to make any difficult decisions. You might consider your wife the same. I am sorry we had to chat this way. Safe trip. SignatureBetsy > >>> J: and others: [quoted text clipped - 35 lines] > > Frank Ihave asked my sister who's 1 yr younger than myself to do the arrangementsif something goes wrong. She took care of my mom's arrangements when she died in feb 99' from copd & and lung cancer. (she smoked for 40 yrs). SO Beth (my sister) said it would an honor for her and her husband to take care of me when this happens. It will to much for my wife. You have to understand. We have been together nearly 3 yrs. Married for 1 1/2 yrs. I don't even know If I will see my second wedding Aniv. Believe I would love top see it and more. Depends on what God has planned for me. SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > Frank you are asking the impossible from this group. No one really knows > for sure. I made all my arrangements the week I was first told of my [quoted text clipped - 42 lines] >> >> Frank >>> J: and others: >>> [quoted text clipped - 34 lines] > > Frank Median survival from the identification of metastatic disease is about a year. SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >>>> J: and others: [quoted text clipped - 42 lines] >J My liver was Dx's in april from a pet scan. Do you mean a yr from then >or from my surgery? > "Steph" <steph@vancouvers.island> wrote in message > > "Frank" <sharkeyfamily1@cox.net> wrote in message [quoted text clipped - 28 lines] > My liver was Dx's in april from a pet scan. Do you mean a yr from then > or from my surgery? Frank, Steph wrote that. Looks to me that it means from April. (when your liver mets was dx'd) The liver's a fairly large organ. I thiink when they go in for surgery, they try to have a good look and feel around, to see if there's any unforeseen trouble (that might change the prognosis). J > J: and others: > [quoted text clipped - 9 lines] > So what Do think I got left. Soo, mush in 9 months. Ohh yea I have a > colostemy too. I take it they have ruled out removal of the secondary -- presumably too advanced if it is causing so much pain. Patients with liver secondaries from colon cancer can survive for 18 months or more, and modern chemotherapy has improved lengths of survival, if not necessarily always quality of life. Perhaps yours is more advanced or aggressive, so that barring miracles or a spectacular response to chemo (they do occur) then you may have only a few months. It is hard enough to predict, however, even when following up one's own patients. A shame that you have had to go through all this. I feel for you. Colon cancer is one of the most often cured cancers, especially if found before there is lymph node spread.. Peter Moran > "Frank" <sharkeyfamily1@cox.net> wrote in message > > J: and others: [quoted text clipped - 23 lines] > cancer is one of the most often cured cancers, especially if found before > there is lymph node spread.. He's having half his liver removed, in August, Peter. "My liver surgery is Aug 11 at 11AM I will have nearly 50% removed due to my cancer has reached it." J Are any of you folks from the metro Phx area. so we couls sit down and talk with my wife? If something goes wrong on 8/8/06 My sister beth is to take care of the arrrangements and Nash (Nashira) my wife. A Beautiful Mecian woman Would be too shook up to do much of snything. Thank's again Ladies & Guys. SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >> J: and others: [quoted text clipped - 26 lines] > > Peter Moran > Are any of you folks from the metro Phx area. so we couls sit down and talk > with my wife? If something goes wrong on 8/8/06 My sister beth is to take > care of the arrrangements and Nash (Nashira) my wife. A Beautiful Mecian > woman Would be too shook up to do much of snything. I thnk I understand, Frank. It's not the kind of talk you would want to do at a support group. Any luck (did anyone email you?) or have you tried the colon ACOR list? http://www.acor.org/mailing.html?l=c There might be someone there caring and understanding, from your area with whom you could speak with first by telephone, then if sounds like the right person, agree to meet somewhere quiet. Has the surgery date been changed? Earlier you mentioned the 11th. What are you hoping to accomplish? I worry because you mentioned your kidneys aren't the best and with scarring on the liver and the reactions you have to medications, have you discussed risks with surgeon? J Sorry a bit confused on date it's 8/8/06 at 11AM at Good Samaratin Hosp. Downtown Phx, az. SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >> Are any of you folks from the metro Phx area. so we couls sit down and [quoted text clipped - 22 lines] > with surgeon? > J > Sorry a bit confused on date it's 8/8/06 at 11AM > at Good Samaratin Hosp. Downtown Phx, az. [quoted text clipped - 6 lines] > discussed > > risks with surgeon? Thanks for clarifying the date, Frank, The medications must be contributing to the confusion. But could you please, "bottom post", post your reply, below ours. It turns into a confusing mess with some of the topic going upwards and some going downwards. Bottom posting is the (expected) standard on this newsgroup. I ask you again, what are you hoping surgery to accomplish? Pain relief from the liver tumor? If so, have you consulted with a radiation oncologist? Might be a way to shrink it and relieve some or all of that pain. J. SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >> Sorry a bit confused on date it's 8/8/06 at 11AM [quoted text clipped - 23 lines] > Might be a way to shrink it and relieve some or all of that pain. > J. To extend what life I have by about 25%. Per Dr. Brink. I have seen the high res scans my left lobe of my liver has been eaten up from the inside. The whole on the surface is about 1.25 Inches wide and inside over 3.0 wide. with moving nervrd, muscles, arteries, veins, we are looking at a 6-8+ Hr surgery. Plus starting this eweek I will be banking my own blood. hope to have 3 units rewady for thre surgery. "> To extend what life I have by about 25%. Per Dr. Brink. I have seen the high > res scans my left lobe of my liver has been eaten up from the inside. The > whole on the surface is about 1.25 Inches wide and inside over 3.0 wide. > with moving nervrd, muscles, arteries, veins, we are looking at a 6-8+ Hr > surgery. Plus starting this eweek I will be banking my own blood. hope to > have 3 units rewady for thre surgery. Your doctor can do a clinical exam and review you complete medical record. I would take their advice over any information anyone dispenses on the internet since you are a person not a stat. Good luck with surgery. Alex > "> To extend what life I have by about 25%. Per Dr. Brink. I have seen the > high [quoted text clipped - 8 lines] > internet since you are a person not a stat. > Good luck with surgery. Alex J advised Frank very sensibly. Before accepting any treatment, especially aggressive treatment, make sure you understand the rationale, the risks, and the likelihood of success. The best treatment is not always the most treatment >> Your doctor can do a clinical exam and review you complete medical >> record. [quoted text clipped - 7 lines] > the likelihood of success. The best treatment is not always the most > treatment J does not have all the facts, recently J suggested to Nana to get a wheelchair when in fact she may not have bone mets!! If I was Nana I would have been devastated if a credible person gave me that advice. Frank's doctor will provide him with an informed consent where all the risks and benefits will be described. I personally feel the clinician who has all the medical records and performed a clinical exam is the right person to advise. I don't remember Frank asking for advice, I think he is looking for support. This is a support group not a Medical Advice group. > J does not have all the facts, recently J suggested to Nana to get a > wheelchair when in fact she may not have bone mets!! Get your facts straight. Nana first mentioned wheelchair. Here's her post. J -------- Original Message -------- Subject: Re: Update: Bone mets now Date: Mon, 17 Jul 2006 17:38:02 -0400 From: "Nana23" <nana23@nothing.net> Organization: UseNetServer.com Newsgroups: alt.support.cancer References: <422d$44bbe8dc$d8a86e07$23571@NEXICOM.NET> <44BBF638.3354E51E@execulink.com> Yes I have been on Femara and 6-month infusions of Zometa. It's a study to see if the Zometa helps prevent osteoporosis. And the Femara took away all my oestrogen and gives unpleasant side effects from that, but it sure didn't stop me from getting bone mets. I absolutely cannot figure out how to just get on with living and forget cancer. I've been fighting that for 3 years and I'm not winning the battle. We need to move out of the country home we have because we are so isolated and have no nearby friends. I want to move close to my daughter and her kids, where I will also be close to the hospital where my onc is. Now that we are looking at houses, I look at everything from a cancer perspective. Example: if bones in my spine break and I eventually need a wheelchair, will I be able to manoeuvre. Is there a downstairs room that can convert into a bedroom for when I end up really sick. How many years do I have left? Will the cancer still metastasize to my brain or my lungs? This whole business really, really, sucks, big time. Nana > "J" <macyinno@nospam.inv> wrote in message > [quoted text clipped - 9 lines] > surgery. Plus starting this eweek I will be banking my own blood. hope to > have 3 units rewady for thre surgery. How did things go on Friday, Frank? J- thinking of you. SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >> "J" <macyinno@nospam.inv> wrote in message [quoted text clipped - 14 lines] > How did things go on Friday, Frank? > J- thinking of you. I can't give any blood. Reason being I'm highly alergic to alcohol. They don't have betadine to clean with. So I can't give any of my own bloood prior to surgery. By the way. My oncologist saw my pet and thought that the small glow on the scan was nothing to be concerned about. I have had pet's before. I disagreed with her and fired her. My colon surgeon found me a liver spec/seurgeoan. he ordered the high res cat scan and look what we found. He told me another 4-6 months I would have lost all of my liver and would be most likely dead. I'm curerently looking for a new oncologist. > >> "J" <macyinno@nospam.inv> wrote in message > >> > I ask you again, what are you hoping surgery to accomplish? [quoted text clipped - 17 lines] > found. He told me another 4-6 months I would have lost all of my liver and > would be most likely dead. I'm curerently looking for a new oncologist. Thanks for explaining, Frank. No thoughts of staying with the same oncologist ?; it's a learning lesson for her and she already knows your challenges. (or at least, part of them). J SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > >> >> "J" <macyinno@nospam.inv> wrote in message [quoted text clipped - 37 lines] >So, I did. And this one will extend my life. Instead of winding up possible >dead by my 2nd aniv. > "J" <macyinno@nospam.inv> wrote in message > [quoted text clipped - 20 lines] > >How can I trust someone who makes such a gross mistake. Her belief is chemo > >IS the ONLY ANSWER. I see your point now, Frank. I thought it was because she was unaware of the high res cat scan. > > I was taught by you folks look at all the alternatives. Absolutely. > >So, I did. And this one will extend my life. Instead of winding up possible > >dead by my 2nd aniv. I guess we won't know until the surgeon gets in there (to see what's happening and lab work) and gets you safely out of surgery. I have no doubt that there's many excellent gastro surgeons in your country. Another week to go and then you'll be in hospital being prepped. I do wish you all my best. J >> J: and others: >> [quoted text clipped - 25 lines] > > Peter Moran Peter the cancer was Rectal Never colon. It burst througth the outer wall into my rectum. It destroted my annus and the muscles and nerves that controlled it. Ah, Frank. Your post reflects the road taken by my husband. Even with his history I could not venture to guess as to time. Only that your time is limited. In his case, the Avastin did cause a perforation of the colon, and so he had TPN through a port for nourishment. And a massive infection behind the port seemed to be the last straw. Because of the Chemo his immune system was shot, and in spite of massive doses of assorted types and strengths of antibiotics, he lost the battle. He had skied the Swiss Alps in March. I lost him in September. I would advise that you get all your affairs in order while you can. I wish you well, I hope things are comfortable for you, and you get to stay with us for a long time. Blessings. FRom all of you thanks. In your posts have been more sinscere and acurate info in what I'm looking for. Doctors in general wouldn't give me any kind of time frame. As I have stated I'm the oldest living Klinefeleter Syndrome paitient here in N america. Most of US (KS'ers) die before 45. SO, I've bee prepaprred top some extinct of my own mortality. I promiss to keep you all informed of what's going on untill I can't type no more. Your Friend, Frank SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > Ah, Frank. Your post reflects the road taken by my husband. Even with > his history I could not venture to guess as to time. Only that your [quoted text clipped - 7 lines] > I wish you well, I hope things are comfortable for you, and you get to > stay with us for a long time. Blessings. Frank schreef: > FRom all of you thanks. In your posts have been more sinscere and acurate > info in what I'm looking for. Doctors in general wouldn't give me any kind > of time frame. > Your doctors are right. They can't give a real time frame. You can look a timeframe up on the internet, but that doesn't mean it will apply to you. If doctors give a timeframe there are always people that say: "I should be dead by now" or "doctor said 3 months and mom was dead within 2 weeks". There are always tails in statistics for median survival but the right time to take care of your affairs is now. Anne > FRom all of you thanks. In your posts have been more sinscere and acurate > info in what I'm looking for. Doctors in general wouldn't give me any kind [quoted text clipped - 5 lines] > Your Friend, > Frank Frank, You'll always have friends here, caring and thinking of you. We'll be watching for your updates. J SignatureFrank Sharkey Stage IV Rectal Cancer Paitent Dx'd 10/1/05 and Plan to be here for a great while longer!! ;-) > Ah, Frank. Your post reflects the road taken by my husband. Even with > his history I could not venture to guess as to time. Only that your [quoted text clipped - 7 lines] > I wish you well, I hope things are comfortable for you, and you get to > stay with us for a long time. Blessings. A few questions for you guys. Steph what kind of job do you do. Also "J" what's your field in cancer also>? Frank >> Ah, Frank. Your post reflects the road taken by my husband. Even with >> his history I could not venture to guess as to time. Only that your [quoted text clipped - 12 lines] > also>? > Frank I'm an oncologist |
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