Compiled from various sources (patients, webpages)
Check with your doctors
1) dry mouth
Dry mouth can be relieved in many patients by simple measures such as
frequent sips of cool drinks or sucking pieces of ice/chips or sugar-free
fruit pastilles (sugarless hard candy). chew (sugarless)gum, drink water
Biotene is for dry mouth, so if a person is sipping water and/or club
soda, they may not need as much Biotene.
http://www.dentist.net/biotene-oral-balance-gel.asp
http://www.just4teeth.com/s.nl/sc.5/category.17/ctype.KB/it.I/id.153629/KB.248/.f
Biotene Gum Dry Mouth FAQ - you might have to ask a pharmacist or local
Wal-Mart to order it. a box of 16 pieces for about $1.59 US
Biotene Dry Mouth Toothpaste FAQ's
Biotene Childrens Products FAQ's
Biotene Mouthwash Dry Mouth FAQ's
Biotene OralBalance Dry Mouth FAQ's
Biotene Dry Mouth Treatments
2) thick mucous
Cold fizzy club soda is one of many names for water that has been charged
with carbon
dioxide. It is also referred to as soda water, carbonated water, sparkling
water and Seltzer water. It's available in cans (maybe bottles) in grocery
stores. Swill it, gargle it, spit it out
3) pain
Steph's mix (for pain)
"liquid mixture of nystatin, viscous xylocaine and an anti-inflammatory "
(swish, gargle and/or swallow) If they don't mix it, ask them for
prescription and
find a compounding pharmacy.
You can also ask your doctor if he has some samples of Ulcerease or a
patient starter kit of Gelclair. Gelclair is expensive.
Ulcerease http://backupmd.com/uleasanmoutr.html
"an ideal treatment for those undergoing chemotherapy who have
significantstomatitis, painful tongues (glossodynia), mouth ulcers and
painful oral
sores." (says not to swallow)
Ulcerease A 6 oz. bottle was about $6 US. It goes a long way, you don't
need to use a lot of it to get the effect.
I liked Gelclair more but Biotene is more available.
Gelclair http://www.gelclair.com/ Pain relief from oral mucositis
http://www.gelclair.co.uk/
Gelclair is an oral gel that helps in the management of pain associated
with oral lesions.
4) thrush -
Nystatin is a broad spectrum antifungal agent - nystatin mouthwash for
thrush
Nystatin oral suspension 100,000 units/mL; pastilles 100,000 units:
100,000 units 4 times daily after food, usually for 7 days (continued for
48 hours after lesions have resolved); higher doses may be needed for
immunosuppressed patients. (e.g. 500,000 units 4 times daily).
* Nystatin is not absorbed from the gastro-intestinal tract.
* Good denture care is important. Nystatin may be used as a denture soak
for the duration of treatment.
5) tooth protection - Biotene mouthwash (and gum or pastilles for when
she's out).
fluoride rinse for use at night; Consumes sugar remaining on teeth (tooth
decay prevention)
Nose Congestion:
Ask doctor about using the 12-hour nasal spray; helps the nose, but it's a
vasoconstrictor and might affect healing if it hits the wrong places.
No matter how careful you are squirting this stuff up your nose, some of
it will trickle down the back of your nasopharynx. The cheaper versions
come in a squirt bottle that will give a stream of liquid.
Afrin brand offers an atomizer bottle that's somewhat reusable and gives a
better
dispersion, i.e. less medicine for the same coverage. If you want to try
this stuff, this is your best bet.
---------------------------------------------
http://www.ljf.scot.nhs.uk/exist/xmldb/db/ljf_v2/unified/unified12_3.xml
Scottish choices
---------------------------------------------
Artificial saliva
The four main saliva substitutes currently available on the UK market are
Glandosane, Luborant, Saliva Orthana and Oral Balance Saliva
Replacement Gel. The first three products are sprays; Glandosane relies
on sodium
carboxymethylcellulose (CMC) to provide viscosity and does not contain
fluoride. It has a pH of 5.06 and uses carbon dioxide as a propellant.
Luborant also contains CMC for viscosity but its pH is higher at 6.0 and
it contains 2 ppm fluoride. Saliva Orthana contains mucin manufactured
form
the gastric mucosa of the pig instead of CMC. Like Luborant it contains 2
ppm
fluoride and has a pH of 6.69.
An in vitro trial of all 3 sprays on tooth enamel showed that Saliva
Orthana and Luborant were potentially good remineralising agents. In
contrast
Glandosane produced subsurface demineralisation; the low pH and absence
of fluoride in this product means it should not be recommended for dentate
patients (Joyston-Bechal & Kidd 1987). Artificial saliva has been shown to
offer greater symptomatic relief than water (Duxbury et al 1989). A
comparison of CMC saliva and mucin saliva found that patients preferred
the mucin
saliva.
They complained that the CMC saliva felt sticky. Both types of saliva
improved denture retention. Mucin saliva tended to last longer and
therefore less
was required per day (Vissink A et al 1983). Saliva sprays are not
effective
unless used correctly; the whole of the oral mucosa should be coated by
several
spraysof the product.
The Oral Balance Dry Mouth System comprises Oral Balance Dry Mouth Saliva
Replacement Gel, Biotene Dry Mouth Anti-bacterial Toothpaste and Biotene
Mouthwash. This system contains lactoperoxidase, glucose oxidase and
lysozyme to mimic the salivary peroxidase system and thus improve oral
health. The
manufacturers recommend that Biotene toothpaste and mouthwash are used
with the gel as the presence of detergents and foaming agents in other
products can destroy the enzymes in the gel. There is evidence that these
products are
potentially beneficial, but none of the studies are conclusive
(Lenander-Lumikari et al 1993, Toljanic et al 1996). It has not been
compared
to other saliva substitutes to date.
------------------------------------------------------------------------
Emily - 20 Apr 2006 19:13 GMT
analyse@invalid said...
> Compiled from various sources (patients, webpages)
Blimey J, you've been busy! Thanks very much for that. I'll email it
all to mother, who'll hopefully see it over the weekend. She's
currently spending the week in the hotel attached to Guy's Hospital in
London to save all the travelling in overcrowded commuter trains.

Signature
Em
Araik Margarian - 24 Apr 2006 06:22 GMT
Thanks for good efforts, "J".
What is this? Facts for future faq?
Let me make my 2 cents-comments.
> Compiled from various sources (patients, webpages)
> Check with your doctors
[quoted text clipped - 6 lines]
> mouth, so if a person is sipping water and/or club soda, they
> may not need as much Biotene.
I can tell that if even consider it separate from accompanying symptoms, dry
mouth is still too annoying.
> http://www.dentist.net/biotene-oral-balance-gel.asp
> http://www.just4teeth.com/s.nl/sc.5/category.17/ctype.KB/it.I/id.153629/KB.248/.f
>
> Biotene Gum Dry Mouth FAQ - you might have to ask a pharmacist
> or local Wal-Mart to order it. a box of 16 pieces for about
> $1.59 US
I used Biotene oral balance, Toothpase and mouthwash and they are very
usefull products.
I still haven't hear/read somebody telling positively about Biotene Gum.
> Biotene Dry Mouth Toothpaste FAQ's
> Biotene Childrens Products FAQ's
[quoted text clipped - 9 lines]
> cans (maybe bottles) in grocery stores. Swill it, gargle it,
> spit it out
You see, by the notes of "J", Clifto, Steph, somehow I used
exclusively Canada dry club soda :) (most of the time - it works good)
By the way, is there any other health consideration in using
one of these - "soda water, carbonated water, sparkling water and Seltzer
water. "?
For sipping it.
What about mineral water?
> 3) pain
> Steph's mix (for pain)
[quoted text clipped - 13 lines]
> Ulcerease A 6 oz. bottle was about $6 US. It goes a long way,
> you don't need to use a lot of it to get the effect.
Ugh, I should find and try ulcerease.
BTW, the mentioned remedies I guess are for temporary relieving pain to
create
opportunity to eat.
> I liked Gelclair more but Biotene is more available.
Wow! My own immortal sentence :) it almost sounds like "Plato is my friend
but the truth is more expensive".
BTW, they are of different usage: Gelclair - to ease pain for trying to eat.
Biotene - we know already.
> Gelclair http://www.gelclair.com/ Pain relief from oral
> mucositis http://www.gelclair.co.uk/
[quoted text clipped - 18 lines]
> fluoride rinse for use at night; Consumes sugar remaining on
> teeth (tooth decay prevention)
I still wonder how to find and try a usefull gum for tooth protection and
dry mouth ( don't offer biotene).
> Nose Congestion:
> Ask doctor about using the 12-hour nasal spray; helps the
> nose, but it's a
>
> vasoconstrictor and might affect healing if it hits the wrong
> places.
Eucaliptus, lavender oils can be helpful too (with some type of inhaler).
> No matter how careful you are squirting this stuff up your
> nose, some of it will trickle down the back of your
[quoted text clipped - 68 lines]
> to other saliva substitutes to date.
> ------------------------------------------------------------------------
I used here in America Salivart spray which is not effective.
And Biotene Oral Balance too, sometimes not effective when your throat is in
pain.

Signature
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/
clifto - 24 Apr 2006 21:23 GMT
> I still haven't hear/read somebody telling positively about Biotene Gum.
Then you've missed me ranting about how great it works when I'm away
from home.

Signature
All relevant people are pertinent.
All rude people are impertinent.
Therefore, no rude people are relevant.
-- Solomon W. Golomb
Araik Margarian - 25 Apr 2006 04:27 GMT
>> I still haven't hear/read somebody telling positively about
>> Biotene Gum.
>
> Then you've missed me ranting about how great it works when
> I'm away from home.
Sorry to forget or miss your post;
Actually, writing at late-late night made me to make some over- humorous
and categoric statements.
But I tried to chew the gum 3 times. It make many mini pieces all over
my mouth, making nasty feeling and not helping at all. I heard in the
support group a few other patients saying that.
But maybe that's good ethic to not describe negative experience at all?
Best Wishes,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/
J - 25 Apr 2006 10:09 GMT
> >> I still haven't hear/read somebody telling positively about
> >> Biotene Gum.
[quoted text clipped - 9 lines]
> support group a few other patients saying that.
> But maybe that's good ethic to not describe negative experience at all?
Yes, I'm trying to a FAQ.
But what seems to work for one, does not work for other.
I wish you could try some of those UK products i just posted about.
Your immortal sentence did not make sense to me either, but you wrote it. :p
(> I liked Gelclair more but Biotene is more available.)
I guess I'll have to remove it.
That's weird about the gum; but if others experienced the same, it's valid to mention
it.
What do the others use?
More spray? More gel? or ?
I feel like I'm running a store and the store's giving me a headache. :)
So I hope finalize this FAQ soon.
J
clifto - 25 Apr 2006 14:55 GMT
> Your immortal sentence did not make sense to me either, but you wrote it. :p
> (> I liked Gelclair more but Biotene is more available.)
> I guess I'll have to remove it.
Someone posted that Gelclair is ridiculously priced, something like $65
for a 15 ml packet. From my experience, I'd use three or four packets
per day. So Biotene is MUCH more available because it's affordable.
I didn't find Gelclair to be preferable enough to seek it out, much less
to pay that kind of money for it.

Signature
All relevant people are pertinent.
All rude people are impertinent.
Therefore, no rude people are relevant.
-- Solomon W. Golomb
Araik Margarian - 26 Apr 2006 05:25 GMT
>>>> I still haven't hear/read somebody telling positively about
>>>> Biotene Gum.
[quoted text clipped - 16 lines]
> I wish you could try some of those UK products i just posted
> about.
I wish someone would prepare in such details what's available in USA.
I think the idea of chewing gum is the best, if it works for you.
> Your immortal sentence did not make sense to me either, but
> you wrote it. :p (> I liked Gelclair more but Biotene is more
> available.)
Clifto write about it on next message.
The point is, both parts of the sentence make sense and right.
So, if instead "but" there were just "." , then it's OK.
But the "but" give some nonsense to it as they used for different purposes.
May be I wrote and post the sentence again at late night :)
> I guess I'll have to remove it.
>
> That's weird about the gum; but if others experienced the
> same, it's valid to mention it.
> What do the others use?
> More spray? More gel? or ?
I don't recall much, but nothing unusual was mentioned that we already don't
know:
Biotene Oral Balance Gel - it's sure mentioned.
> I feel like I'm running a store and the store's giving me a
> headache. :)
> So I hope finalize this FAQ soon.
You see, it's not easy at all if you want to prepare a serious useful
document :)
> J

Signature
Regards,
Araik Margarian
http://journals.aol.com/aramargar1/MyAmericanDream/
J - 26 Apr 2006 21:27 GMT
> You see, it's not easy at all if you want to prepare a serious useful
> document :)
That's why I asked if someone would like to write it; nobody answered.
I'll try and pull it together (finalize, right) sometime in the next week.
Thanks for your input, Araik.
Best,
J
J - 29 Apr 2006 02:15 GMT
> I wish someone would prepare in such details what's available in USA.
On-line compounding pharmacies includes various blends of Magic (and other) Mouthwashes
http://saintjohnpharmacy.com/MouthSoars.html
http://www.thecompounder.com/painmouthwash.html
I'm not making an FAQ for each country, Araik.
J
J - 25 Apr 2006 09:12 GMT
> Compiled from various sources (patients, webpages)
> Check with your doctors
[quoted text clipped - 15 lines]
> Biotene OralBalance Dry Mouth FAQ's
> Biotene Dry Mouth Treatments
Mouth Cancer Forum - http://rdoc.org.uk/groupee/forums/a/tpc/f/26510549/m/570101147
..... the vast majority of things you need to help you through feeding, gels and
mouth washes are available via NHS prescription.
If you register and obtain a £32 NHS Certificate you can get most things for free
which includes, Ensure, packs of 27 at a time, a full range of products for
Xerostomia [dry mouth]
(Bioxtra Moisturising Gel; Glandosane; Luborant; Biotene Oralbalance Dry Mouth Saliva
Replacement Gel; Saliva Orthana; SST lozenges, Saliveze; Salivix).
Just ask your GP and get a three month certificate and stock up!
http://www.arc.org.uk/about_arth/booklets/6041/6041.htm
Luborant mouth spray is recommended for people with their own teeth because it
contains fluoride.
AS Saliva Orthana lozenges and Glandosane mouth spray can be used by people with
their own teeth but, because they contain no fluoride, care should be taken with
dental hygiene and a separate fluoride mouthwash should be used.
Chlorhexidine or linseed extract mouth rinses may help.
Chew non-sugar chewing gum, other dental care products, or lozenges (e.g. anhydrous
crystalline maltose). Gels containing xylitol may be useful, e.g. Biotene Oralbalance
and BioXtra (Molar).
Take proper care of dentures.