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Medical Forum / Diseases and Disorders / Cancer / March 2006afraid of different treatment
Hi' everyone, I have bladder cancer and have another tumour. I used to have my cystoscopies at a hospital about 1 hour away. I live in a country area and now that surgeon has retired so I am being sent to another hospital a little further away as there are no urologist in my area now. The doctor phoned me yesterday and he said that he firstly gets his patients in and inserts a cystoscope that is "soft" or "flexible" I forget the exact words as I was confused and nervous about the change., then he said if he sees a tumour he calls the patient back and then they have general anaesthetic with a hard or rigid cystoscope to remove the tumour, he said he also puts a catheter in overnight and patient must stay in hospital overnight. However, as I already have a tumour I won't have to have the first test to see if there is one but I am very nervous about the future as I have always just had the general anaesthetic every 6 months to see if there is a tumour. I can't imagine being awake and having a cystoscope put into my bladder. the doctor said "some patients handle it quite well" but I would be so frightened. This is what will happen in the future. Does anyone know of this and if it really is very painful. I can stand a lot of pain but this sounds horrible. thank you for your patience. Casey. Casey schreef: > Does anyone know of this and if it really is > very painful. I can stand a lot of pain but this sounds horrible. > thank you for your patience. > Casey. > > A cystoscopy is not painful or horrible. Anne > then he said if he sees a tumour he > calls the patient back and then they have general anaesthetic with a hard or [quoted text clipped - 9 lines] > thank you for your patience. > Casey. Hello Casey and welcome. Well, I'm confused. You wrote that he's going to give you a general anesthetic for the rigid cystoscope and he's not doing the soft/fexible cystoscope, because the tumour location is already known. So I'm not understanding the concern. Maybe Anne can help sort it out. J Thank you for responding, sorry for the confusion. This new doctor was explaining what his procedure is if it's not know whether a tumour is present, he uses the soft cystoscope to look but, in my case he has the report from my previous urologist so he knows there is a tumour present. My concern is for the future and this soft/flexible scope as I have never had that before. My previous urologist has always given me general anaesthetic and I assume he used a rigid cystoscope. Also, he didn't put a catheter in or did I have to stay overnight, that won't really worry me it's just the thought of being awake whilst something is inserted into my bladder that worries me. But Anne said it's not painful, but still don't like the thought of it. I wonder if anyone else here has had this done. thank you. Casey. >> then he said if he sees a tumour he >> calls the patient back and then they have general anaesthetic with a hard [quoted text clipped - 25 lines] > Maybe Anne can help sort it out. > J > Thank you for responding, sorry for the confusion. This new doctor was > explaining what his procedure is if it's not know whether a tumour is [quoted text clipped - 9 lines] > thank you. > Casey. Oh I see, Casey. Thank you for explaining. The doctor sounds very caring to have called and explained it to you. I've had 2 done, over my lifetime, and I don't recall having pain. They were both done in hospital - no general anesthetic. I can remember painful things, in my life, but those aren't one of them. I hope between Anne and I, that reassures you and you get on with the tumour removal. Is it coming up soon? Please keep in touch and let us know, ok? Hugs J Hi' J, sorry for not coming back before this, I was not feeling very well, nothing to do with the cancer just a terrible headache that just won't go. I was surprised that the doctor phoned me too as I am a public patient. I really liked the sound of the doctor he sounded so caring. I am glad to hear that you didn't have any pain when you had your procedures. I'm not a baby at all as I too have had a lot operations that were pretty nasty but I don't know why this particular thing had me worried. I think probably I will be going soon for the tumour to be removed but have to wait to be notified by the hospital. I'll be back and many thanks for reassurance, regards, Casey. >> Thank you for responding, sorry for the confusion. This new doctor was >> explaining what his procedure is if it's not know whether a tumour is [quoted text clipped - 30 lines] > Hugs > J > Hi' J, sorry for not coming back before this, I was not feeling very well, > nothing to do with the cancer just a terrible headache that just won't go. I [quoted text clipped - 7 lines] > I'll be back and many thanks for reassurance, > regards, Casey Hello Casey, I'm sorry you've had a headache, I hope that improves soon. You don't sound like a baby, at all, to me. That's what we're here for, to relate out experiences and hopefully reassure. I'll be watching for your updates or your return from the hospital procedure and tumour removal. Please know there'll always be someone here for you. Take care and all my best, J Casey schreef: > I'm not a baby > at all as I too have had a lot operations that were pretty nasty but I don't > know why this particular thing had me worried. You're not the only one, but in retrospect everyone I know that is familiar with the procedure doesn't experience pain. For men it's a bit more uncomfortable than for women, but not painfull. Just try to relax or if you're extremely worried ask your familydoctor for a mild tablet to calm you down a bit. I toke seresta 10 mg an hour before I had my first cystiscopie + paracetamol, I also was scared and afraid, but really, there is not that much to it. It's more painful getting my teeth cleaned :-) Anne >Hi' everyone, >I have bladder cancer and have another tumour. I used to have my [quoted text clipped - 16 lines] >thank you for your patience. >Casey. The urethra is filled with an anesthetic jelly first, and the anesthestic is allowed toak effect. The cystoscope insertion isn't painful. I won't say it is very pleasant, but it doesn't hurt. (been there done that). With a rigid cystoscope, some trauma to the urethra is unavoidable, and that WILL hurt later. However I suspect there are problems running instruments through a flexible cystoscope. Thanks Matt, I'm glad they at least use some anaesthesia jelly. However, for my next procedure I will be asleep because I do have a tumour to be removed. Casey. >>Hi' everyone, >>I have bladder cancer and have another tumour. I used to have my [quoted text clipped - 32 lines] > and that WILL hurt later. However I suspect there are problems running > instruments through a flexible cystoscope. |
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