hepatoblastoma

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Samantha Konwinski - 12 Feb 2006 02:52 GMT

Are there any survivors of hepatoblastoma reading this? I'd love to
talk with someone about their experience. Over time, I'm much better
health-wise than when I was younger, but after talking with people at
Dana Farber, other doctors, etc, the chemo I had may have led to
negative, lasting effects. Hoping maybe there's some suggestion to
building heart strength and immunity.

Samantha

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J - 12 Feb 2006 07:02 GMT

> Are there any survivors of hepatoblastoma reading this? I'd love to
> talk with someone about their experience. Over time, I'm much better
[quoted text clipped - 4 lines]
>
> Samantha

Hello Samantha,
I think you'll find others on the private ACOR list for PED-ONC survivors
http://www.acor.org/mailing.html?l=p
When you click on the list to "join", select digest mode (for receiving
messages).
The list owners will email you as to when you can send your first message
through (and access their archives).
Best wishes,
J

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Samantha Konwinski - 12 Feb 2006 15:29 GMT

Thanks so much for the lead!

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