Medical Forum / Diseases and Disorders / Cancer / February 2006
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Emily - 10 Feb 2006 17:29 GMT Mother's just been on the phone. A sore spot inside her cheek has been biopsied to see whether it was the plate rubbing or what. Turns out to be 'what', so next week will be scans, scans and more scans to find out what sort of tumour she's dealing with this time. Oh joy. The surgeon wants to operate within about 3 weeks, and it all sounds extremely complicated. They'll remove the tumour (the easy part), and then do something on the neck (what?) followed by taking some skin from the abdomen to cover up whatever it is they're going to do on the neck, followed by (probably) radiotherapy to the neck and face. Great. She's worried about more disfigurement, as if that really matters, and has resigned herself to never eating steak again. Oh well, at least this time it's not Christmas...
Bother.
 Signature Emily
J - 10 Feb 2006 21:20 GMT > Mother's just been on the phone. A sore spot inside her cheek has been > biopsied to see whether it was the plate rubbing or what. Turns out to [quoted text clipped - 5 lines] > abdomen to cover up whatever it is they're going to do on the neck, > followed by (probably) radiotherapy to the neck and face. Sorry to hear that, Em. The types are here http://www.cancerhelp.org.uk/help/default.asp?page=13033 and the surgeries are (described) here http://www.cancerhelp.org.uk/help/default.asp?page=13136 neck dissection? Hugs J
Emily - 10 Feb 2006 22:41 GMT studras@anon.inv said...
> > Mother's just been on the phone. [...]
> > They'll remove the tumour (the easy part), and then do > > something on the neck (what?) followed by taking some skin from the [quoted text clipped - 6 lines] > http://www.cancerhelp.org.uk/help/default.asp?page=13136 > neck dissection? Thanks for that J. She'll be here tomorrow probably, so I'll let her have a look. Chances are it's squamous cell (the last one was and it seems to be the most common) so it's unlikely to be fatal unless I've misunderstood the information. She's got no idea why the shenanigins with the neck - presumably she'll find out next week when she's enduring waiting room after waiting room after waiting room after... Oh well, could be a lot worse I suppose.
 Signature Em
J - 11 Feb 2006 17:16 GMT > Chances are it's squamous cell (the last one was and it > seems to be the most common) so it's unlikely to be fatal unless I've > misunderstood the information. She's got no idea why the shenanigins > with the neck Presumably it's to find out if it has spread to the neck or stop the spread of to (the neck). Is the new cancer on the same side as the previous one? Is in the lower part of the cheek? J
Figgertoes - 11 Feb 2006 17:02 GMT Emily <me@privacy.net> wrote in news:MPG.1e56debf869835bc98ac76 @news.individual.net:
> Mother's just been on the phone. A sore spot inside her cheek has been > biopsied to see whether it was the plate rubbing or what. Turns out to [quoted text clipped - 5 lines] > abdomen to cover up whatever it is they're going to do on the neck, > followed by (probably) radiotherapy to the neck and face. Great. Oh, Em, I'm so sorry to read this, I wish the very best for her.
From your tone, you sound weary. If this is all too much for you just now, I hope you can get some help from other family members, your mother's friends/support system (church?). Raising 5 children, even with your loose style, while keeping up with everything else, can't be easy. I hope you get away with your sheddies soon for some rejuvination.
> She's > worried about more disfigurement, as if that really matters, Must matter to her, else maybe she's focusing on that rather than the real fear. Some treatment centers, rehab, etc, have sessions on disguising such with specialty makeup. Maybe you could see what might be available - or point her there - to give her hope. She may not want/need in the end. I don't think this sort of thing is available in department stores.
>and has > resigned herself to never eating steak again. Are you familiar with brining meats? My niece was talking about it Christmas & we have experimented with chicken, fish & pork chops with amazing results. 1/2 cup kosher salt, sugar if desired to cut salty taste, per 1 gallon of water. Can add herbs/spices. I like a bay leaf & once used sage - all good & flavor permeates. Put meat in container & cover with brine (I use maybe a quart/liter) for the day or overnight in fridge. Makes it fork-tender & very juicy, even when grilled. I don't care for salt, but this treatment didn't make meat overly so, not like jerky. Haven't tried with beef. Hugs to all of you, Fig
J - 11 Feb 2006 17:38 GMT > Emily <me@privacy.net> wrote in > [quoted text clipped - 4 lines] > I hope you can get some help from other family members, your mother's > friends/support system (church?). That would be difficult. Her mother lives 200 miles away and is fiercely independent.
> > She's worried about more disfigurement, as if that really matters, > > Must matter to her, else maybe she's focusing on that rather than the real > fear. Some treatment centers, rehab, etc, have sessions on disguising such > with specialty makeup. It's inside her check and two years ago she had cancer surgery and reconstruction of her jaw. Now they're talking about a graft. They have to get it all (hence I think the worry about disfigurement) or the graft won't take. If the two areas overlap (I guess) they're cutting through scar tissue, but I'm not there to see what /where. Emily will at this visit (if her mother lets her look) :p J
persspolice@gmail.com - 11 Feb 2006 20:15 GMT Emily, My mother has cancer also. I sincerely prey for your mother, and ask you to followup and fight with it at any cost. Do not get discouraged. Give hope to your mother, and know that there is almost always ways to mitigate a situation. Sean
Emily - 12 Feb 2006 00:11 GMT studras@anon.inv said...
> > Emily <me@privacy.net> wrote in > > > > > Mother's just been on the phone. A sore spot inside her cheek has been > > > biopsied to see whether it was the plate rubbing or what. . > > > > From your tone, you sound weary. I am a bit, but that's probably because I'm currently a full time student on top of being a non housewife.
> > If this is all too much for you just now, > > I hope you can get some help from other family members, your mother's > > friends/support system (church?). She goes to a local cancer support group where she lives. I can't get help for her, but she can get it for herself.
> That would be difficult. Her mother lives 200 miles away and is fiercely > independent.
> > > She's worried about more disfigurement, as if that really matters, > > > > Must matter to her, else maybe she's focusing on that rather than the real > > fear. Some treatment centers, rehab, etc, have sessions on disguising such > > with specialty makeup. It's hard to know with her whether she's worried about the cancer or not. I learned tonight that she's also having a breast examined soon having found some tenderness where she had precancerous cells removed some years back.
> It's inside her check and two years ago she had cancer surgery and > reconstruction of her jaw. I'm not sure if the jaw was ever reconstructed, to be honest. I do know that it's very fragile and could break if anyone were to breathe on it...
> Now they're talking about a graft. > They have to get it all (hence I think the worry about disfigurement) or the > graft won't take. > If the two areas overlap (I guess) they're cutting through scar tissue, but I'm > not there to see what /where. > Emily will at this visit (if her mother lets her look) :p At the moment mother's not too sure herself what's in the wind. There'll be scans, scans and more scans to determine what's what, and presumably they'll sort out the treatment options from there. Presumably as well they'll tell her exactly what they're planning to do and why. Certainly if they don't tell her why she'll ask - and she'll expect to be told in graphic detail with all the medical terms thrown in for good measure. Knowing mother she'll probably ask for a video of the op as well, so she can regale unwary visitors with it. :-)
 Signature Em
J - 12 Feb 2006 16:39 GMT > studras@anon.inv said... > > [quoted text clipped - 7 lines] > I am a bit, but that's probably because I'm currently a full time > student on top of being a non housewife. That's only one job :p
> > > If this is all too much for you just now, > > > I hope you can get some help from other family members, your mother's > > > friends/support system (church?). > > She goes to a local cancer support group where she lives. I can't get > help for her, but she can get it for herself. She mentioned you getting support from your mother's friends; hence my answer (below).
> > That would be difficult. Her mother lives 200 miles away and is fiercely > > independent. [quoted text clipped - 9 lines] > having found some tenderness where she had precancerous cells removed > some years back. I imagine that they want the full picture, before treatment decisions.
> > It's inside her check and two years ago she had cancer surgery and > > reconstruction of her jaw. > > I'm not sure if the jaw was ever reconstructed, to be honest. My mistake. I think not. You refer to plate and I think reconstruction, but I now realize you mean denture.
> I do know > that it's very fragile and could break if anyone were to breathe on [quoted text clipped - 8 lines] > > At the moment mother's not too sure herself what's in the wind. Did she or did she not show you her mouth lesion/ tumor ?
> There'll be scans, scans and more scans to determine what's what, and > presumably they'll sort out the treatment options from there. [quoted text clipped - 3 lines] > for good measure. Knowing mother she'll probably ask for a video of the > op as well, so she can regale unwary visitors with it. :-) ROTFL, hopefully all will go well and we can still laugh about this later. Hugs J
Emily - 12 Feb 2006 21:50 GMT studras@anon.inv said...
> > > > From your tone, you sound weary. > > > > I am a bit, but that's probably because I'm currently a full time > > student on top of being a non housewife. > > That's only one job :p True, but I've been ill. Nothing major, but it hasn't helped.
J - 13 Feb 2006 00:31 GMT > True, but I've been ill. Nothing major, but it hasn't helped. Sorry, Em. Hope you feel beeter soon.
Emily - 13 Feb 2006 08:36 GMT studras@anon.inv said...
> > True, but I've been ill. Nothing major, but it hasn't helped. > > Sorry, Em. Hope you feel beeter soon. 'S OK thanks, I'm getting there. Sometimes I reckon the NHS is the best thing ever. Like when I can see a doctor and it doesn't cost me money, and when he can prescribe things that don't mean I have to take out a mortgage. I find myself wondering how 'ordinary' people in the US manage. I suppose I'd be covered by my husband's insurance, but not working myself I certainly don't have any income of my own to pay for such luxuries...
 Signature Em, not moving from the UK for anything.
alex - 13 Feb 2006 12:44 GMT Obviously, Em you are feeling much better since you can slam other healthcare systems. I am glad for that.
Ordinary Americans go to the doctor, pay a very small co-pay to the doc and the pharmacy. PLUS we have choices where we can get over healthcare, it is wonderful. When I had cancer, the treatment itself has no copays! Ditto for surgery....and I could choose from any hospital world wide ( that was the policy I had at the time). People who choose self employment, don't budget for healthcare, if they did it is pre taxed dollars meaning that it reduces your taxes many times the deduction washes out the cost of the taxes you pay. Many self employed people don't pay taxes, since there is not a money trail. I figure it out last night the case posted the man makes a good living 80K.....probably doesn't declare all the money he brings in, so his 80K is like 120k to some one who draws a paycheck like myself. Yet he choose not to pay health premiums.....I know my people with disabilities who work full times jobs with benefits. If they were truly poor, the health care would be free.
I worry, my son is going to England for College, if the NHS is as horrible as Australia, I worry since my daughter was denied treatment for a sprained ankle and now has to have surgery. Luck, my health insurance will fly him home ( does the NHS do that for it's citizens?). Any injury how small he is going to hop a plane back to the United States.
Emily - 13 Feb 2006 17:41 GMT alex@noemail.com said...
> Obviously, Em you are feeling much better since you can slam other > healthcare systems. I am glad for that. I didn't mean it like that, and I wasn't slamming systems I know not a lot about. I genuinely owe a lot to being able to get rapid free treatment recently with the NHS, and that was my only point.
Chris Ness - 14 Feb 2006 11:05 GMT > Obviously, Em you are feeling much better since you can slam other > healthcare systems. I am glad for that. [quoted text clipped - 4 lines] > wonderful. When I had cancer, the treatment itself has no copays! Ditto > for surgery...
> Obviously, Em you are feeling much better since you can slam other > healthcare systems. I am glad for that. [quoted text clipped - 4 lines] > wonderful. When I had cancer, the treatment itself has no copays! Ditto > for surgery... There is another reason for the co-pays and it is a very good one. It makes the people think about the importance of the visit. A self-chosen triage if you will. Do I consult the doctor for this sniffle or not? If it is not worth $15 dollars to me, why should it be worth $80 to the insurance company?
We see the redutio ad absurdum of this in our "poor" people and the emergency room. Go to the emergency room any evening and you will find people who shouldn't even be at a doctor's office. As far as I know, there is still no cure for the common cold. But the visit costs them nothing, so why not and you might even get some nice drugs to boot.
BTW, my cancer treatment did have co-pays. It varies by the conditions in the policy you choose; sort of like the deductible on car insurance. If I underwrite the first $500 of my auto insurance it will be cheaper than if I only want to be responsible for the first $250. The only exception is for some state mandated things. In my state, insurance must cover drug abuse treatment and certain female problems not limited to pregnancy. I have no choice when the government gets involved even though I will never be a drug user and I damn sure will never get pregnant. But if I do...I am covered.
J - 14 Feb 2006 20:45 GMT > We see the redutio ad absurdum of this in our "poor" people and the > emergency room. Go to the emergency room any evening and you will find > people who shouldn't even be at a doctor's office. As far as I know, there > is still no cure for the common cold. Some people don't know that and/or they need note for child's school to keep them home or for them to stay home with child or for them, if they're too sick to work. Get in touch with your federal rep (to use some research funds) for educational radio and TV campaign And a phone line manned by nurses to answer questions for such problems. J - hoping this nasty slamming of one or the other, will finally end.
> But the visit costs them nothing, so > why not and you might even get some nice drugs to boot. Figgertoes - 13 Feb 2006 14:56 GMT > studras@anon.inv said... >> [quoted text clipped - 9 lines] > working myself I certainly don't have any income of my own to pay for > such luxuries... There are so many different plans & situations in US.
I am self employed. I structured my corporation to cover all medical for myself & spouse, including premiums, making everything tax-deductible which effectively cuts all these stated charges roughly in half (slightly less). I pay a premium of $386.24/month for myself. This includes $1K/yr dental (fairly lousey but pd over $650 for recent surgery) & eye exams. There are no deductibles (annual out-of pocket before insurance kicks in). Dr visits are $15 including any diagnostics - xrays, bloodwork, etc. Specialists are $25/visit, also all-inclusive. Charges are per day, so multiple events are covered by 1 co-pay. After hours - $50. Emergency room $100. Hospital is $250/admittance including surgery, treatments, PT, everything (includes any re-admittance within 3 days). I am 100% covered world-wide at any available medical facility, even on a cruise ship. Prescriptions are $10 generic $15 brand. Socks's chemos were $25/treatment. His onc visits were all at specialist rate. So he saw specialist & had chemo for 1 $25 copay, making chemo virtually free. In the end, he was on disability medicare but administered through the same company as mine (his choice). His co-pays were similar but with $500 hospital copay.
I am completely satisfied with the care I receive. My wait time in doctor's office has never exceeded 10 minutes (very important as I lose billing hours by being there). Emergency rooms are another story - bring a good book - War & Peace a good choice :p.
We've had other plans with 20% co-insurance + deductibles - the trend is that these are getting higher & higher to save on premium. These are PIA IMO.
We pay medicare taxes but no other for medical.
Medical coverage is getting more & more expensive, eliminating more & more people from the market. There is no law requiring coverage. It's nothing I enjoy paying for, but there's also car insurance, home-owners' insurance, liablility insurance - on & on. One way or another, we all pay!
hth, Fig
alex - 13 Feb 2006 15:32 GMT I guess there are two issues, one is health care a basic human right ? In this US we do not believe it is, unless you are old, disabled, or a child, then the government will take care of you....if you are working you are expected to be responsible and provide for yourself. In England and Canada the citizens pay a tax for their healthcare, and the health policies are set by the government. The system seems to work well for them, but for the majority of Americans we don't want the government to tax us and to run our health care. The majority of the citizens think we can do a better job than the government.
There are obvious flaws in both. In the US people who do not plan ahead can get whacked with large health care bills. This people are in the minority, if the majority of Americans felt compelled we would have socialized medicine. In Canada and England you are dependent on the government to manage your healthcare and they majority of there citizens are happy with that system. Neither is perfect.
This leads to my second point, this is alt.support.cancer the place to discuss these issues? Em, who is not a cancer patient, although has been touch personally by cancer ,responded politically to an American poster, who buy the way does not have cancer about the wonderful non cancer treatment she just got.Is this relevant ? No wonder why the majority of the posters are not cancer patients. Of course she is entitled to her opinions and beliefs but what does this have to do with supporting cancer?
figgertoes - 14 Feb 2006 01:51 GMT > This leads to my second point, this is alt.support.cancer the place to > discuss these issues? Em, who is not a cancer patient, although has been [quoted text clipped - 3 lines] > are not cancer patients. Of course she is entitled to her opinions and > beliefs but what does this have to do with supporting cancer? Good grief! How can you say that when you also just posted this:
-begin quote- Ordinary Americans go to the doctor, pay a very small co-pay to the doc and the pharmacy. PLUS we have choices where we can get over healthcare, it is wonderful. When I had cancer, the treatment itself has no copays! Ditto for surgery....and I could choose from any hospital world wide ( that was the policy I had at the time). People who choose self employment, don't
budget for healthcare, if they did it is pre taxed dollars meaning that it reduces your taxes many times the deduction washes out the cost of the taxes you pay. Many self employed people don't pay taxes, since there is not a money trail. I figure it out last night the case posted the man makes a good living 80K.....probably doesn't declare all the money he brings in, so his 80K is like 120k to some one who draws a paycheck like myself. Yet he choose not to pay health premiums.....I know my people with disabilities who work full times jobs with benefits. If they were truly poor, the health care would be free. I worry, my son is going to England for College, if the NHS is as horrible as Australia, I worry since my daughter was denied treatment for a sprained ankle and now has to have surgery. Luck, my health insurance will fly him home ( does the NHS do that for it's citizens?). Any injury how small he is going to hop a plane back to the United States. -end quote-
True, I'm not following how medical payments made with pre-tax dollars result in a deduction many times over. And yes I do budget for health care & very carefully I might add. And my tax liability is not wiped out by that by a long shot. Most other employers, too, deduct insurance premiums as a cost of doing business. I operate as a C Corp. just like IBM & am subject to the same rules & audits. It's a lot of work. Every dollar I bring in is reflected on my returns & every deduction I take is legal & substantiated.
But more to the point, I fail to see how your negative views of self-employed people or your daughter's sprained ankle relate to cancer any more than Em's treatment & insurance concerns did. When I get to know people (through cancer or whatever brings us together), I often begin to care about them personally as I do for Emily & others here. We are multi-dimensional, compassionate human beings & thank God for that.
And if I happen to be the American you mentioned obliquely, I hope you are alone in forgetting that my husband died of cancer only 5 months ago. His life is still honored & celebrated here - & his death mourned.
Figgertoes
alex - 14 Feb 2006 02:53 GMT >> This leads to my second point, this is alt.support.cancer the place to >> discuss these issues? Em, who is not a cancer patient, although has been [quoted text clipped - 69 lines] > > Figgertoes I was referring to CASH businesses ( and the underground cash economy that exists) that don't pay taxes, not an upfront business woman like yourself. I had a long response but cut it short this discussion is supporting cancer patients and their caregivers. Alex
Alayne - 14 Feb 2006 09:53 GMT > This leads to my second point, this is alt.support.cancer the place to > discuss these issues? Em, who is not a cancer patient, although has been [quoted text clipped - 3 lines] > the posters are not cancer patients. Of course she is entitled to her > opinions and beliefs but what does this have to do with supporting cancer? I would say yes and no, it depends on your perspective. It certainly is a cancer support group and incredibly useful for finding help and advice but it could also be a group that provides a useful distraction from dealing with cancer. I remember when my Tony had his GBM, he absolutely longed for people to talk about every day stuff, he lived with his cancer every moment of every day and if someone struck up a conversation about something other than cancer it sidetracked him, if only slightly, from his pain.
You also get to "know" people on here and care about what happens to them so you are also interested in what goes on in their lives and want to offer help "as a whole".
I think that using the OT in the subject line is a good idea because it is an indication to members about the subject matter.
Hugs
Alayne
J - 14 Feb 2006 10:18 GMT > I would say yes and no, it depends on your perspective. It certainly is a > cancer support group and incredibly useful for finding help and advice but [quoted text clipped - 7 lines] > you are also interested in what goes on in their lives and want to offer > help "as a whole". We do; not sure how the others feel. Up to them to let us know.
> I think that using the OT in the subject line is a good idea because it is > an indication to members about the subject matter. Newsreaders are supposed to filter OT and mine probably does "if the subject line starts with " OT However, when we reply, the subject line says Re:OT, so then it's not filtered. We can go crazy trying to keep the OT at the beginning (of the line), but it's best at the beginning, rather than using "subject line contains OT", because then it would be filtering any word that contains OT (in my newsreader anyway).
Really helpful is bottom posting and snipping text, IMO and if somebody yells at us to stop OT's, we stop. It's their newsgroup, right? Hugs J
Barbara - 14 Feb 2006 22:02 GMT >I am self employed. I structured my corporation to cover all medical for >myself & spouse, including premiums, making everything tax-deductible [quoted text clipped - 4 lines] >kicks in). Dr visits are $15 including any diagnostics - xrays, >bloodwork, etc. Specialists are $25/visit, also all-inclusive. Wow, insurance is worse than the airlines, there is nothing nearly that good for the price available for the self-employed in the NYC region, there are 2 plans available to the self-employed for under $500 that I have found.....mine is the most expensive at $450.00 but has out-of-network co-insurance, which is important because while the plan has good primary doctors they don't have many oncologists and specialized surgeons.........so if I get seriously ill I may deplete my savings, insurance or no. Also I only get 50% co-insurnace for drugs.
If I wanted a decent "name-brand" policy, the kind large employers can buy for their employees at $300 a month or so, I would end up paying $900 to $1200 a month, which I can't afford.......and that is for an individual, a family of 4 will pay between $2500.00 and $4000.00 a month.
And it isn't just the numbers that are infuriating, it's the fact that I am relatively young and healthy yet only allowed to purchase the insurance products that are sold through employers at 3 to 4 times what they pay. I find this a huge failing of the insurance system. Poor people are covered by government programs and lower-middle class people can be eligible for means-tested subsidized insurance (every day I walk past a place that "sells" chap and good insurance that I am not allowed to buy). Yet more and more people are self-employed and there is no effort to make reasonably priced insurance available to them, while my high tax payments are being used to give health care to anyone but me.
Yet, despite this being my constant rant, I would rather have his system than socialized medicine. I am always astounded at the waits for tests, etc in these countries, I know when Chris was sick if he needed a scan or a test he always got it the same day or the next day.
Barbara
Emily - 14 Feb 2006 22:51 GMT me@privacy.net said...
> I learned tonight that she's also having a breast examined soon > having found some tenderness where she had precancerous cells removed > some years back. Well there's some good news from mother. She's had a mammagram and reports that all is clear. Apparently the tenderness she felt is probably at the site of a biopsy done at the time of her first cancer scare, which may have been affected by the radiotherapy that she had after the removal of precancerous cells. So, that's one worry out of the way - now she waits for the call to go for the scan/s to discover what sort of tumour is lurking in her mouth - and thus what can be done with it. She'll be treated at Guy's in London which is a major teaching hospital, so at least she should be in the best available hands
 Signature Em
figgertoes - 14 Feb 2006 23:02 GMT > Well there's some good news from mother. She's had a mammagram and > reports that all is clear. Em, I'm so glad to hear this good news too. Don't they come in 3s? Fig
J - 15 Feb 2006 07:24 GMT > Well there's some good news from mother. She's had a mammagram and > reports that all is clear. Excellent. Thanks for sharing. Hugs J
Figgertoes - 13 Feb 2006 01:21 GMT >> From your tone, you sound weary. If this is all too much for you >> just now, I hope you can get some help from other family members, >> your mother's friends/support system (church?). > > That would be difficult. Her mother lives 200 miles away and is > fiercely independent. I didn't mean to be confusing but perhaps was. What I meant to say was I hoped that if Em were too weary or overwhelmed at the moment that her mother had other support resources than Em. I don't really know much about Emily & her mother's relationship as I wasn't around when her mother's cancer was treated the first time.
No matter how Emily views her mothering style, she still has 7 people under that roof! I can't imagine a typical day. And then going to school full time on top of that! Makes me want to retire to a tub full of bubbles just imagining...
My beat wishes coming your way, Emily. I hope your mother's problem is easily diagnosed & resolved. Meanwhile, you need to taste these exquisite handmade Valentine chocolates, locally made....I said /taste/not the whole box! Oh, well, you deserved them...:-)
(((Emily)))
Fig
Salisha - 12 Feb 2006 08:11 GMT Oh Emily,
Just to let you know that you and your mom and family are in my prayers. Take care Salisha
Emily - 12 Feb 2006 14:23 GMT salishah@hotmail.com said...
> Oh Emily, > > Just to let you know that you and your mom and family are in my > prayers. Take care > Salisha Hello love, nice to see you again. Knowing mother I suspect she'll come through it all smiling, although I wouldn't put it past a certain person to give her something utterly stupid to 'aid her recovery' like he did last time she couldn't open her mouth further than about a millimeter. Such a complete prat - he gave her a box of Ferrero Rocher.
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