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Medical Forum / Diseases and Disorders / Cancer / January 2006Metastatic Disease in the Liver
Hi All, Update on Odie again. Metastatic Disease in the liver is what the Ultra Sound shows. My lesions were only 2.1 cm and 2.3 cm in October...they are now both in the high 6's. Started a new chemo yesterday it is called Altimta (Pemetrexed). Oncologist doesn't seem to optimistic. She didn't say anything, just gave me the look. I do know that it is not good because when I asked her if the liver was shooting out the cancer cells throughout the body, she said yes. I am still going to fight for all it is worth. The morphine she gives me helps with any pain. I had a wonderful day yesterday. Had I not had chemo I would have gone into work. Told the gang I would be there today, but here I am . Had the night sweats and chills last night and today a horrible headache. Thanks for being here for me, you don't know how much you all mean to me in such a short time. Odie "Odette \(AKA Odie\)" <oyuhas@cfl.rr.com> wrote in news:ZmpBf.21906$vG.18317@tornado.tampabay.rr.com: > Hi All, > Thanks for being here for me, you don't know how much you all mean to > me in such a short time. And you to me. Thinking of you... (((Odie))) Fig Hi Odie Your cancer sounds EXACTLY like my 42 yr old husband's. He was diagnosed last January with a 4 cm tumor in his left lobe that grew to 20 cm in 6 weeks plus metastasized to his bowels and diaphragm. However, I am afraid of the wolves lurking on this forum, so if you are interested in knowing some of the things he did to fight it and is now winning. Email Me: breemorgana@yahoo.com SS > Hi Odie > > Your cancer sounds EXACTLY like my 42 yr old husband's. He was > diagnosed last January with a 4 cm tumor in his left lobe that grew to > 20 cm in 6 weeks plus metastasized to his bowels and diaphragm. Odie's is a dfferent rarer type of lung cancer. Wish you'd get your story straight. Your first post said it was liver cancer, with mets to bowels and diaphragm. J read the top message, is she not saying she has liver cancer????? > read the top message, is she not saying she has liver cancer????? No. She has lung cancer spread to the liver. She's been posting here for months. I know her diagnosis. J Hi Odie Your cancer sounds EXACTLY like my 42 yr old husband's. He was diagnosed last January with a 4 cm tumor in his left lobe that grew to 20 cm in 6 weeks plus metastasized to his bowels and diaphragm. However, I am afraid of the wolves lurking on this forum, so if you are interested in knowing some of the things he did to fight it and is now winning. Email Me: breemorgana@yahoo.com SS Hi Odie Your cancer sounds EXACTLY like my 42 yr old husband's. He was diagnosed last January with a 4 cm tumor in his left lobe that grew to 20 cm in 6 weeks plus metastasized to his bowels and diaphragm. However, I am afraid of the wolves lurking on this forum, so if you are interested in knowing some of the things he did to fight it and is now winning. Email Me: breemorgana@yahoo.com SS Hi Odie Your cancer sounds EXACTLY like my 42 yr old husband's. He was diagnosed last January with a 4 cm tumor in his left lobe that grew to 20 cm in 6 weeks plus metastasized to his bowels and diaphragm. However, I am afraid of the wolves lurking on this forum, so if you are interested in knowing some of the things he did to fight it and is now winning. Email Me: breemorgana@yahoo.com SS sorry about the 4 messages, don't know what I did to send so many?? SS > Hi Odie > [quoted text clipped - 8 lines] > > SS The only wolves I've seen on this forum so far are those peddling snake oil for lots of $$$ claiming that it cures or aids cancer. There are plenty of wild theories by people who are not doctors and other total wastes of limited precious time. If a cure or remedy hasn't undergone a clinical trial that shows irrefutable results then it's just a quack remedy until it has. Does this clear up your misunderstanding? -- TT (well wishing lurker) > > Your cancer sounds EXACTLY like my 42 yr old husband's. He was > > diagnosed last January with a 4 cm tumor in his left lobe that grew to [quoted text clipped - 12 lines] > TT > (well wishing lurker) Desperate people do desperate things. J TT Why are you at this forum? To tell cancer victims the following: to avoid saving their own lives, to go home and DIE because that is what your doctor told you to do, that all NATURAL medicine is snake oil? I have to guess that you have a vested interest in pharmaceuticals. Maybe some stock? I saved my husband's life by researching Natural medicine and discovering HMS 90. He is also taking chemo( I had to convince oncologist to try it). Starting his 12th month of treatments. Natural and Modern medicine can work hand in hand. Thank GOD he listened to me because he is ALIVE and winning! I can only guess that if he was you, he would be DEAD. I am only trying to HELP the real victims of this horrific disease by sharing our story! We went through a year of hell, stress, depression, sorrow, sadness, pain, suffering, and now we are seeing the light. He is winning and all I want to do is share a TRUE STORY with other victims. I do NOT want people LIKE YOU to sour our story. YES 'TT' our story is proven, is yours???? > TT > [quoted text clipped - 12 lines] > Starting his 12th month of treatments. Natural and Modern medicine can > work hand in hand. So why isn't it the chemo which is working? I am not saying it isn't. But if you recall from previous posts, All 4 of his doctors said there is NO HELP or CURE for liver cancer except surgery which they tried and stopped because of mets. There also is no chemo available for it. They told him to go home and prepare for death. We insisted that he try chemo. So they reluctantly offered 2 types (stomach or pancreas) we tried one for the Pancreas. Chemo may have stopped the mets, but tell me what stopped the side effects from chemo and what shrank his tumors?? Anyways, I did not come onto this forum to argue with skeptics. I wanted to tell a story about a survivor and how he got there. And POSSIBLY help others that truly want to try to do something for themselves instead of listening to what a doctor has to offer(possibly death). I work in the medical field and yes it has its place, but sometimes as in my husband's case they have NO solution. >I am not saying it isn't. Thank you > But if you recall from previous posts, All 4 of his doctors said there > is NO HELP or CURE for liver cancer except surgery which they tried and > stopped because of mets. There also is no chemo available for it. They > told him to go home and prepare for death. Probably still good advice. But what you've lerned is that doctors are pretty good at predicting survival of populations, but not individuals. > We insisted that he try chemo. So they reluctantly offered 2 types > (stomach or pancreas) we tried one for the Pancreas. Why did you insist if the advice was that it would probably do more harm than good? > Chemo may have stopped the mets, but tell me what stopped the side > effects from chemo and what shrank his tumors?? The chemo? What makes you think something else did? Because chemotherapy is unlikely to produce a response, it does not mean that it is impossible it will produce a response. He got gemcitabine, which is the chemotherapy drug which of all of them is least likely to cause side-effects. Most people on gemcitabine don't get nausea and vomiting. > Anyways, I did not come onto this forum to argue with skeptics. > I wanted to tell a story about a survivor and how he got there. And > POSSIBLY help others that truly want to try to do something for > themselves instead of listening to what a doctor has to offer(possibly > death). So let's see......A patient has a cancer with metastatic disease to the liver. He's given chemotherapy which has perhaps a 30-40% response rate in those circumstances, and he's give whey protein from milk, for which there is no data at all to suggest even a 1% response rate. He gets a response, and you convince yourself it's the whey? > I work in the medical field and yes it has its place, but sometimes as > in my husband's case they have NO solution. Whey is certainly not a solution. It sounds to me that he's had very good, though better than expected, palliation from a known chemo drug. It's seen every day in patients who aren't taing some silly alty nonsense. Snippet from Steph: He got gemcitabine, which is the chemotherapy drug which of all of them is least likely to cause side-effects. See web: http://www.drugs.com/mtm/gemcitabine.html · Serious side effects have been reported with the use of gemcitabine including: allergic reactions (difficulty breathing; closing of the throat; swelling of the lips, tongue, or face; or hives); decreased bone marrow function and blood problems (extreme fatigue; easy bruising or bleeding; black, bloody or tarry stools; fever or chills; or signs of infection); kidney failure; severe nausea, vomiting, diarrhea, and loss of appetite; and others. Talk to your doctor about the possible AND PEOPLE ACTUALLY LISTEN TO YOU?????!!!!!!!!!!!!!! > · Serious side effects have been reported with the use of > gemcitabine including: allergic reactions (difficulty breathing; [quoted text clipped - 6 lines] > > AND PEOPLE ACTUALLY LISTEN TO YOU?????!!!!!!!!!!!!!! A lot of those side effects can be caused by aspirin. Do you take aspirin?  SignatureIf John McCain gets the 2008 Republican Presidential nomination, my vote for President will be a write-in for Jiang Zemin. ANOTHER REASON TO SEEK ALTERNATIVE MEDICINE!!!! > ANOTHER REASON TO SEEK ALTERNATIVE MEDICINE!!!! There is nothing wrong with you that a cup of epson salts in a pint of water, consumed won't cure. get a life....... except weight loss. Clifto wrote A lot of those side effects can be caused by aspirin. Do you take aspirin? No I use natural medicine (dab lavender oil on temples)hahah Let me guess: All of the skeptics are actually pharmaceutical company spies!!! > Hi All, > [quoted text clipped - 17 lines] > > Odie Odie, we're here alongside you as you fight, we'll hold your hand, mop your brow on bad days and on the good we'll share a cuppa and a few choccies. Warm Hugs Alayne > Hi All, > [quoted text clipped - 17 lines] > > Odie That a girl Odie! Keep fighting. I'll be fighting along with you and for you!! Lots of hugs Penny > Update on Odie again. Metastatic Disease in the liver is what the Ultra > Sound shows. My lesions were only 2.1 cm and 2.3 cm in October...they are [quoted text clipped - 3 lines] > I asked her if the liver was shooting out the cancer cells throughout the > body, she said yes. Hello Odie, It's good the onc is honest with you and giving you important details. That way, if the lesions continue to grow, or don't shrink, you'll know if Aliimta is helping (or not). What's the treatment schedule, please? Maybe if it's easier to tolerate, you can get back to work or at least, visit the gang at work and maybe go out for a fun dinner with them, some evening? We'll be here, whatever you decide, we'll support. Many hugs J snippet We'll be here, whatever you decide, we'll support. Many hugs J I hardly believe YOU would support any alternative medicine! > snippet > We'll be here, whatever you decide, we'll support. [quoted text clipped - 3 lines] > I hardly believe YOU would support any alternative medicine! >You are correct. J would not. Neither would I. Neither would most LOGICAL, INTELLIGENT PEOPLE. That's why it is non-mainstream. But, who cares if there has been no peer-reviewed testing. What the heck, might as well try green cheese. There's always someone out there willing to make a buck off the backs of desperate, ill people by selling their dubious wares Mel When did I ask you for a penny????? > When did I ask you for a penny????? Who? SignatureIf John McCain gets the 2008 Republican Presidential nomination, my vote for President will be a write-in for Jiang Zemin. Like I said "DO YOU NOT READ PREVIOUS POSTS clifto??????" OR do you just look for MY INITIALS and chew me up like the wolves you are???? That's why it is non-mainstream. But, who cares if there has been no peer-reviewed testing. What the heck, might as well try green cheese. There's always someone out there willing to make a buck off the backs of desperate, ill people by selling their dubious wares Mel ___________________________ Green cheese??????? Here is an IN VITRO study on glutathione. HMS 90 provides this to your cells. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=9 261526&dopt=Abstract Hi J. I don't get another dose for 3 weeks. She wants to see me before I get the dose. My body is taking it okay, but now have night sweats. No fever though. I can't wait to get back to work, I need those folks around me. Thanks so much for being there! Odie >> Update on Odie again. Metastatic Disease in the liver is what the Ultra >> Sound shows. My lesions were only 2.1 cm and 2.3 cm in October...they are [quoted text clipped - 20 lines] > Many hugs > J > I don't get another dose for 3 weeks. She wants to see me before I get the > dose. My body is taking it okay, but now have night sweats. No fever > though. I can't wait to get back to work, I need those folks around me. > > Thanks so much for being there! hello Odie, I was just reading about Alimta and it says that Folic Acid and B12 injections are given. Are they giving you some or did they? I'm just curious, because I think you're the first one here to have this chemo. I did not see side effects about night sweats, but it is good that you are monitoring for fever. They do say to do so. Perhaps if the side effects aren't too difficult for you, you will be back to work, during treatment. Not that I want you away from here, just want you to be where you feel comfortable and happy, so we'll see how it goes. Take care, Hugs from me, J Hi J Yes, I am taking Folic Acid and my husband is giving me the shots of B12. Tried to go to work again today but with no avail. I am tossing my cookies this morning! The Oncologist said this is a new chemo, so I guess she was telling me the truth. I am so darned tired as well. Guess I will just sleep today, which isn't so bad. Thanks again for being here for me! Odie >> I don't get another dose for 3 weeks. She wants to see me before I get >> the [quoted text clipped - 22 lines] > Hugs from me, > J > Yes, I am taking Folic Acid and my husband is giving me the shots of B12. > Tried to go to work again today but with no avail. I am tossing my cookies > this morning! The Oncologist said this is a new chemo, so I guess she was > telling me the truth. I am so darned tired as well. Guess I will just > sleep today, which isn't so bad. oh yuck ! I'm sorry to hear that. Rest Odie, but tell your onc. Hugs J Night sweats ARE NOT side effects, they are part of the disease. TUT TUT TUT > Night sweats ARE NOT side effects, they are part of the disease. > TUT TUT TUT Talking in your sleep, or just forget to address this to a particular person? SignatureIf John McCain gets the 2008 Republican Presidential nomination, my vote for President will be a write-in for Jiang Zemin. Snippett from J I did not see side effects about night sweats, but it is good that you are monitoring for fever Night sweats are NOT SIDE EFFECTS they are part of the disease. TUT TUT TUT |
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