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Medical Forum / Diseases and Disorders / Cancer / January 2006

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Vaginal cancer.

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turtill@hotmail.com - 05 Jan 2006 19:09 GMT
Judy has to see the oncologist tomorrow. She is now on 350mg of MST
morphine and liquid morphine top ups. She seems to be in more pain now
then when she was at her worst last year. This time the cancer is
visible just inside her vagina whereas last time it was high up inside
her vagina. Her GP said it could be caused by radiotherapy but her
last radiotherapy ended over a year ago:-(
pete
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J - 05 Jan 2006 19:46 GMT
> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
> morphine and liquid morphine top ups. She seems to be in more pain now
[quoted text clipped - 3 lines]
> last radiotherapy ended over a year ago:-(
> pete

I see you've got support from an RN on sci.med - your post 3 days ago about
"bleeding".
If it's not cancer, ask the oncologist about vaginal tears from lack of
lubrication - radiation therapy can cause dryness, this we know.

You may wish to join both of the following, as well...that's where I refer
people about gynae cancers.
ACOR private lists http://www.acor.org/mailing.html?l=g click on gyn-onc,
then "join", select digest mode for receiving. A list owner will email you
how to and when you can send a message through.
The other resource is http://www.eyesontheprize.org/ There's a discussion
list there.
And there's alt.support.chronic-pain (not alt.support.chronic.pain)
Good luck with the upcoming swab results.
J
turtill@hotmail.com - 05 Jan 2006 20:53 GMT
>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
>> morphine and liquid morphine top ups. She seems to be in more pain now
[quoted text clipped - 6 lines]
>I see you've got support from an RN on sci.med - your post 3 days ago about
>"bleeding".

Maybe that post is not that clear but there is no mention of bleeding.

>If it's not cancer, ask the oncologist about vaginal tears from lack of
>lubrication - radiation therapy can cause dryness, this we know.

There has not been anything to cause tearing.

>You may wish to join both of the following, as well...that's where I refer
>people about gynae cancers.
[quoted text clipped - 5 lines]
>And there's alt.support.chronic-pain (not alt.support.chronic.pain)
>Good luck with the upcoming swab results.

Thank you.
pete

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J - 05 Jan 2006 21:28 GMT
> >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
> >> morphine and liquid morphine top ups. She seems to be in more pain now
[quoted text clipped - 8 lines]
>
> Maybe that post is not that clear but there is no mention of bleeding.

My apology. It says "open wounds".

> >If it's not cancer, ask the oncologist about vaginal tears from lack of
> >lubrication - radiation therapy can cause dryness, this we know.
>
> There has not been anything to cause tearing.

I wouldn't know since I'm not there 24/7 to see what's going on.

> [...support resources]
> >Good luck with the upcoming swab results.
>
> Thank you

You're welcome.
J
turtill@hotmail.com - 05 Jan 2006 23:18 GMT
>> >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
>> >> morphine and liquid morphine top ups. She seems to be in more pain now
[quoted text clipped - 10 lines]
>
>My apology. It says "open wounds".

Yes as in burn wounds except there has not been anything to cause
burns.
pete

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J - 21 Jan 2006 20:06 GMT
turtill@hotmail.Thu, 05 Jan 2006 23:18:09  com wrote:

> >> >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
> >> >> morphine and liquid morphine top ups. She seems to be in more pain now
[quoted text clipped - 6 lines]
> Yes as in burn wounds except there has not been anything to cause
> burns.

Hi Peter,
I'm back up here, where you describe the wounds inside Judy.

Maybe the pain specialist is a good idea. If s(he) thinks cancer in the bones,
(s)he can get the appropriate tests ordered or relay his/her opinion to the GP or
oncologist.

An interesting thought is that radiation and/or cancer has been blamed for her pain
and now I'm wondering how long these wounds have been there and whether she's had
an infection from way back around the time of cancer treatment.

If infection has been the problem, then I cannot change my (remember non-expert)
advice.

As to the source of who infected her, we don't know if hospital, the McMillan, you,
herself, any of the doctors who touched/examined her, swabbed, treated (etc)

I know it's difficult getting lab reports in UK. i've seen mention of that, on
other newsgroups.
It's the only way of finding out which bacteria.
In Canada, the lab (computer) prints out which (a list of) antibiotics that are
best for the type(s) of bacteria.
The doctor decides which brand and dose.  Some doctors write a script for the brand
that "works" for most of his/her other patients. I tell him/her, "I'm not your
other patients".   Some doctors prescribe what the pharmaceutical rep has just
dropped off a pamphlet about (or a sample) - out of curiosty to try on a patient
and/or because the name is fresh in his/her mind. That doesn't do it for me.  The
last time one did that, I had severe abdominal pain.

I've had to fight for copies of lab reports, at a cost. I've lost doctors due to
that. I choose my battles.
If I'm there and they flash the lab report before me, I ask for the values and
write them down.
If I forget, I call the reception nurse and ask for the details/values (over the
phone) and write them down.
If I had an infection again, I would fight for a copy of the lab report.  That way,
I can also see the recommended antibiotics and usually remember which ones caused
me problems and ask for a different one.

Back to Judy, I wonder if she's had a version of  Staphylococcal scalded skin
syndrome (nside her) ?
http://www.healthatoz.com/healthatoz/Atoz/ency/staphylococcal_scalded_skin_syndr
ome.jsp


Ignore that if you don't think so. Either way, if she's got openings on the skin,
inside the vagina, she has to use great care to not re-infect herself. My solution
is staying away from doctors and not letting anyone inside, who might reinfect me.
So if the onc's poking inside of her, I would avoid that.
I was hoping to find a way for a cream to help heal inside her, along with the
antibiotic.

http://www.greatvistachemicals.com/pharmaceutical_intermediates/clindamycin-hcl.html

<maybe print that one up?>

http://www.answers.com/topic/staphylococcus-aureus
Staphylococcal infections can be spread through contact with pus from an infected
wound, skin to skin contact with an infected person, and contact with objects such
as towels, sheets, clothing, or athletic equipment used by an infected person.
I'll let you read the rest of that web page.

But really, you won't know which infection(s) unless they tell her or she can get
copy of lab reports.

You might want to get a recent book on pharmaceuticals. That list all the side
effects for each.
And start a list of which she has tried and which caused which problem. Might be
useful, as time goes by, if this infection situation is chronic (neaning happens
from time to time, again).

I have a standing order for my antibiotic. I explained to a gynaecologist (my
situation and what happened with the antibiotics and which antibiotic worked) and
he had no problem with that.

As I explained before, (just because one person did not understand), I was on it
for mostly 7 months, 8 years ago. I've only had need for it (maybe) once since and
only took it for 3 days. It's that powerful ! (yet for me no side effects). But I
don't know if it would be effective for your wife, since we don't know what
bacteria(s).  Tip: I get information from the experts at the drugstore about
medicines.  They give us a printout of the most common side effects, but I'm not
common. :) So I research at www.rxlist.com or in the book, if I have a bad side
effect (usually not before), but if there's a known problem with one (or more)
medicine, I have notes as to which to avoid.  We can get in trouble not taking
antibiotic for the recommended period of time, so if ever she has to stop one,
because of side effects, she probably should be immediately put on another one. And
that's probably what they just did.  Then my non-expert understanding (from
doctors) is it's best to wait at least 48 hours after stopping an antibiotic for a
recheck to see if infection is still there.

Back to my way of handling antbiotics: Doubtful a person can become resistant in
such a non-use way. I also have a standing order for antibiotic vag cream. That is
flagyl. It's too strong. If I have a local infection, I use half applicator of that
and half applicator of the premarin for a few days. Then back to the premarin.
Haven't needed that for years, my way.

I wish her well that the current antibiotic will "cure" this situation (without any
nasty side effects) and maybe even help reduce some of that long-standing pain.
There is mention of diarrhea with that medicine. That's where a bidet (if she's in
too much pain) for a shower or handheld sprayer in the shower, would be of use. If
she can use a handhelp sprayer in the shower (or tub) that would be helpful.

What works for me, may not work for your wife.

J
turtill@hotmail.com - 21 Jan 2006 20:30 GMT
>Hi Peter,
>I'm back up here, where you describe the wounds inside Judy.
[quoted text clipped - 97 lines]
>
>What works for me, may not work for your wife.

Thanks J. She is now on Clindamycin Hydrochloride. I am just hoping
she does get diarrhea and can stick the 14 day course. The hospital
stopped her Flagyl and she does have a shower type that can be used as
a bidet so now we have fingers crossed but really the big news was the
cancer hasn't returned.
pete

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J - 22 Jan 2006 10:52 GMT
> Thanks J. She is now on Clindamycin Hydrochloride. I am just hoping
> she does not <inserted by J> get diarrhea and can stick the 14 day course. The hospital
> stopped her Flagyl and she does have a shower type that can be used as
> a bidet so now we have fingers crossed but really the big news was the
> cancer hasn't returned.

Absolutely.
Best wishes to you both,
J
turtill@hotmail.com - 22 Jan 2006 13:33 GMT
>> Thanks J. She is now on Clindamycin Hydrochloride. I am just hoping
>> she does not <inserted by J> get diarrhea and can stick the 14 day course. The hospital
[quoted text clipped - 4 lines]
>Absolutely.
>Best wishes to you both,

Thank you J and everyone else who has helped me with advice and
support. I am unsubscribing now and hopefully the trolls will leave
with me. I hope I do not have reason to return but please be aware of
just how grateful I am for the help and support I received here.
pete

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Emily - 05 Jan 2006 22:39 GMT
turtill@hotmail.com said...
> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
> morphine and liquid morphine top ups. She seems to be in more pain now
> then when she was at her worst last year. This time the cancer is
> visible just inside her vagina whereas last time it was high up inside
> her vagina. Her GP said it could be caused by radiotherapy but her
> last radiotherapy ended over a year ago:-(

Oh, poor Judy.  Can radiotherapy cause such things?  Maybe Steph can
throw some light on that; meanwhile give her a {{{{{hug}}}}} from me.
Signature

Emily

turtill@hotmail.com - 05 Jan 2006 23:22 GMT
>turtill@hotmail.com said...
>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
[quoted text clipped - 6 lines]
>Oh, poor Judy.  Can radiotherapy cause such things?  Maybe Steph can
>throw some light on that; meanwhile give her a {{{{{hug}}}}} from me.

Hi Emily. It shouldn't be radiation orientated as the radiotherapy
ceased over a year ago. We are at a loss as Judy was doing so well up
until 3 weeks ago. In fact she saw he oncologist on December 21st and
he examined her internally and thought she was clear and looked
well??????
Judy says Hi and thanks for the hugs;-)
pete

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turtill@hotmail.com - 05 Jan 2006 23:32 GMT
>>turtill@hotmail.com said...
>>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
[quoted text clipped - 13 lines]
>well??????
>Judy says Hi and thanks for the hugs;-)

Correction it was the 9th December that she saw her oncologist.
pete

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matt weber - 06 Jan 2006 02:08 GMT
>turtill@hotmail.com said...
>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
[quoted text clipped - 6 lines]
>Oh, poor Judy.  Can radiotherapy cause such things?  Maybe Steph can
>throw some light on that; meanwhile give her a {{{{{hug}}}}} from me.

The one well understood hazard associated with ionizing radiation is
clear relationship between dose and subsequent tumor development. I
suggest you check what many early chemists and physicist who worked
with X-ray's, and Radium died of....

It is frankly a numbers game. Using radiation to kill tumors does
indeed increase the risk of subsquent cancers, but the risk is
considerably lower than 100%, however if you don't treat the cancer,
the risk of death without surger or radiation is often 100%....
Steph - 06 Jan 2006 06:56 GMT
>>turtill@hotmail.com said...
>>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
[quoted text clipped - 11 lines]
> suggest you check what many early chemists and physicist who worked
> with X-ray's, and Radium died of....

It's fairly well understood, but by no means linear. More dose does not mean
more cancers.

> It is frankly a numbers game. Using radiation to kill tumors does
> indeed increase the risk of subsquent cancers, but the risk is
> considerably lower than 100%,

Considerably lower than 1%..........
Steph - 05 Jan 2006 23:18 GMT
> Judy has to see the oncologist tomorrow. She is now on 350mg of MST
> morphine and liquid morphine top ups. She seems to be in more pain now
[quoted text clipped - 3 lines]
> last radiotherapy ended over a year ago:-(
> pete

If the "cancer" is visible "just inside the vagina", isn't the diagnosis
already clear?
pete - 06 Jan 2006 14:21 GMT
It is obvious now Steph. However we were living in hope until today. The
extent of the cancer is yet to be decided as Judy is too tender to be
examined and she goes to the hospital on Wednesday for and examination
while knocked out to see how far the cancer has spread. She was last
examined internally on the 9th December and given the all clear so this
is   quite surprising to say the least. Hopefully it will be dealt with
sucessfully again.
pete
Steph - 06 Jan 2006 17:44 GMT
> It is obvious now Steph. However we were living in hope until today. The
> extent of the cancer is yet to be decided as Judy is too tender to be
[quoted text clipped - 8 lines]
> Sent via Health Newsgroups
> http://www.healthnewsgroups.com

You should be careful of some of the stuff you see posted here, Pete.
Anything is possible, but common things are most probable.
Recurrence was always the likeliest diagnosis given the history, and it is
99% certain that this is the same cancer.
turtill@hotmail.com - 06 Jan 2006 19:04 GMT
>> It is obvious now Steph. However we were living in hope until today. The
>> extent of the cancer is yet to be decided as Judy is too tender to be
[quoted text clipped - 13 lines]
>Recurrence was always the likeliest diagnosis given the history, and it is
>99% certain that this is the same cancer.

Will they treat it the same way Steph? This has come as a bit of a
shock and we still haven't got our heads around it yet but we have
been there before:-(
pete

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Steph - 07 Jan 2006 07:56 GMT
>>> It is obvious now Steph. However we were living in hope until today. The
>>> extent of the cancer is yet to be decided as Judy is too tender to be
[quoted text clipped - 18 lines]
> been there before:-(
> pete

I suspect some palliative radiotherapy or chemotherapy may be suggested
pete - 07 Jan 2006 18:51 GMT
Hi Steph, why do you say pallative? Am I reading you correctly? Will it
not be curative rediotherapy?
pete
Steph - 07 Jan 2006 20:11 GMT
> Hi Steph, why do you say pallative? Am I reading you correctly? Will it
> not be curative rediotherapy?
[quoted text clipped - 3 lines]
> Sent via Health Newsgroups
> http://www.healthnewsgroups.com

My understanding is that she has already had an attempt at curative
treatment? If so, it is very unlikely that further attempts at cure will be
possible. But of course only your oncologist and gynaecologist can answer
that for sure
turtill@hotmail.com - 07 Jan 2006 21:17 GMT
>> Hi Steph, why do you say pallative? Am I reading you correctly? Will it
>> not be curative rediotherapy?
[quoted text clipped - 8 lines]
>possible. But of course only your oncologist and gynaecologist can answer
>that for sure

Yes she had curative treatment 14 months ago and that consisted of 5
weeks of radiotherapy and chemo once a week for the 5 weeks. It
appeared to do the job as her oncologist thought she was clear and
didn't want to see her for 3 months. If this is a re-occurrence of the
same cancer can it be killed by the same treatment over again but
maybe more of it this time?  What would be the deciding factor that an
attempt to cure it again wouldn't work? If she could not be cured
could she still enjoy a quality of life with continuous palliative
treatment? Obviously you can only give a general picture as you have
never examined her so I am just asking a 'from your experience' type
of question Steph.
pete

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Steph - 08 Jan 2006 00:34 GMT
>>> Hi Steph, why do you say pallative? Am I reading you correctly? Will it
>>> not be curative rediotherapy?
[quoted text clipped - 22 lines]
> of question Steph.
> pete

Unfortunately, Pete, a second course of "curative" treatment is usually
impossible because the normal tissues in the area will not tolerate it.
It should be certainly possible to do palliative treatment aimed at quality
of life
J - 08 Jan 2006 01:38 GMT
> <turtill@hotmail.com> wrote in message
> >>
[quoted text clipped - 19 lines]
> Unfortunately, Pete, a second course of "curative" treatment is usually
> impossible because the normal tissues in the area will not tolerate it.

Especially, I would think, because she also had brachytherapy for 29 (I think
he said) hours

> It should be certainly possible to do palliative treatment aimed at quality
> of life

Should he ask for a chest CT ? - one web page says it can spread to the lungs.
And a bone scan? Because of her longstanding chronic pain to the hips and
sacroiliac?
J
turtill@hotmail.com - 08 Jan 2006 02:41 GMT
>> <turtill@hotmail.com> wrote in message
>> >>
[quoted text clipped - 22 lines]
>Especially, I would think, because she also had brachytherapy for 29 (I think
>he said) hours

Yes it was 29.5 hours.

>> It should be certainly possible to do palliative treatment aimed at quality
>> of life
>
>Should he ask for a chest CT ? - one web page says it can spread to the lungs.
>And a bone scan? Because of her longstanding chronic pain to the hips and
>sacroiliac?

She is also incontinent and has IBS and Hiatius Hernia as well as the
hip pains and of course the Oncologist did at one time think there was
a tumour in the sacroiliac joint which turned out to be incorrect or
rather was thought to be a bit of gristle rather than a tumour.
pete

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J - 08 Jan 2006 18:25 GMT
> >> <turtill@hotmail.com> wrote in message
> >> >>
[quoted text clipped - 28 lines]
> rather was thought to be a bit of gristle rather than a tumour.
> pete

Re:  gynaecologist
I dropped you a post on sci.med
Gather up info, talk about it, then decide whether it's worth pursuing.
J
turtill@hotmail.com - 09 Jan 2006 12:02 GMT
>> >> <turtill@hotmail.com> wrote in message
>> >> >>
[quoted text clipped - 32 lines]
>I dropped you a post on sci.med
>Gather up info, talk about it, then decide whether it's worth pursuing.

We are just back from the MRI scan. I argued for a full body scan
whereas they had instructions to only do a pelvic scan. I tried to get
hold of the surgeon but he wasn't in the hospital nor at home or at
the private hospital he works at and his mobile phone was turned off
or at least that is what I was told so as the biopsy is due to take
place on Wednesday we had to settle for the pelvic scan only. As a
matter of interest how much would it cost to have a full body scan
done privately in the UK? Does anyone know?
pete

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Steph - 09 Jan 2006 19:24 GMT
>>> >> <turtill@hotmail.com> wrote in message
>>> >> >>
[quoted text clipped - 51 lines]
> done privately in the UK? Does anyone know?
> pete

Why on earth would a full body scan be useful?
turtill@hotmail.com - 09 Jan 2006 19:57 GMT
>> We are just back from the MRI scan. I argued for a full body scan
>> whereas they had instructions to only do a pelvic scan. I tried to get
[quoted text clipped - 7 lines]
>
>Why on earth would a full body scan be useful?

I am trying to discover if the cancer has spread to her lungs/bones
etc. If it has I want the treatment for that to start before it gets
established elsewhere.
pete

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Steph - 09 Jan 2006 23:26 GMT
>>> We are just back from the MRI scan. I argued for a full body scan
>>> whereas they had instructions to only do a pelvic scan. I tried to get
[quoted text clipped - 12 lines]
> established elsewhere.
> pete

It's useless information, Pete
The indication for getting on with treatment is her symptoms
turtill@hotmail.com - 10 Jan 2006 02:38 GMT
>>>> We are just back from the MRI scan. I argued for a full body scan
>>>> whereas they had instructions to only do a pelvic scan. I tried to get
[quoted text clipped - 15 lines]
>It's useless information, Pete
>The indication for getting on with treatment is her symptoms

But this cancer has happened so quickly. I thought it  would be
sensible to check just how far it has spread and attack it before it
became established. I am particularly concerned about bone mets as her
hips hurt and of course there's a number of lymph nodes around the
area of the groin.
pete

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Steph - 10 Jan 2006 05:54 GMT
>>>>> We are just back from the MRI scan. I argued for a full body scan
>>>>> whereas they had instructions to only do a pelvic scan. I tried to get
[quoted text clipped - 22 lines]
> area of the groin.
> pete

It's already established
turtill@hotmail.com - 10 Jan 2006 13:51 GMT
>>>>>> We are just back from the MRI scan. I argued for a full body scan
>>>>>> whereas they had instructions to only do a pelvic scan. I tried to get
[quoted text clipped - 24 lines]
>
>It's already established

Steph I am lost here. Am I supposed to just sit back and do nothing?
Is there no hope for my wife or is she going to live a long time but
with continuous treatment? I do not understand. Is squamous cell
cancer that vicious?
pete

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Steph - 10 Jan 2006 18:25 GMT
> Steph I am lost here. Am I supposed to just sit back and do nothing?
> Is there no hope for my wife or is she going to live a long time but
> with continuous treatment? I do not understand. Is squamous cell
> cancer that vicious?
> pete

Pete,
if I understand the story you have given correctly, your wife has recurrent
(or persistent) scc of the vagina after attempted curative treatment for
what was a very advanced cancer.
Rather than casting around on this NG, why don't you go and sit down with
the oncologists and get some straight answers?
J - 10 Jan 2006 18:40 GMT
> if I understand the story you have given correctly, your wife has recurrent
> (or persistent) scc of the vagina after attempted curative treatment for
> what was a very advanced cancer.
> Rather than casting around on this NG, why don't you go and sit down with
> the oncologists and get some straight answers?

No, it was not advanced and the biopsy is tomorrow.
They'll have a wait for the results.
J
turtill@hotmail.com - 10 Jan 2006 20:35 GMT
>> if I understand the story you have given correctly, your wife has recurrent
>> (or persistent) scc of the vagina after attempted curative treatment for
[quoted text clipped - 4 lines]
>No, it was not advanced and the biopsy is tomorrow.
>They'll have a wait for the results.

The hospital have acted quicker this time than they did with the
original cancer but as you say we just have to take our turn and wait
for the results and decisions on what they are going to do. Hopefully
they will not take too long to act.
pete

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turtill@hotmail.com - 10 Jan 2006 20:28 GMT
>> Steph I am lost here. Am I supposed to just sit back and do nothing?
>> Is there no hope for my wife or is she going to live a long time but
[quoted text clipped - 8 lines]
>Rather than casting around on this NG, why don't you go and sit down with
>the oncologists and get some straight answers?

Steph it is not that easy. I will not get to see the oncologist for at
least a week. I thought something should be happening before then.
Judy had stage 2 vaginal cancer and we all thought it had been beaten
as the oncologist didn't want to see Judy for 3 months and within days
this had flared up again from seemingly nowhere. I didn't realise it
was a very advanced cancer as we were never told that.
pete

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Emily - 09 Jan 2006 22:26 GMT
Pete said said...
> As a
> > matter of interest how much would it cost to have a full body scan
> > done privately in the UK? Does anyone know?

Thousands.  My aunt had an abdominal scan done privately around 5 or 6
years ago.  This may have been an ultrasound, I'm not sure; either way I
think the figure of £4,000 was mentioned.  For everyone's sake I hope
I've got that wrong.
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turtill@hotmail.com - 09 Jan 2006 23:17 GMT
>Pete said said...
>> As a
[quoted text clipped - 5 lines]
>think the figure of £4,000 was mentioned.  For everyone's sake I hope
>I've got that wrong.

Boy oh boy. That is a load of bread:-(
pete

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Emily - 10 Jan 2006 16:22 GMT
turtill@hotmail.com said...

> >Pete said said...
> >> As a
[quoted text clipped - 7 lines]
>
> Boy oh boy. That is a load of bread:-(

Don't take my word for it, Pete - ask at your local BUPA hospital or
have a quiet word with... hang on...

Alayne, aren't you at Addenbrooke's?  You don't happen to know where to
find out the answer to this question, do you?
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turtill@hotmail.com - 10 Jan 2006 17:05 GMT
>turtill@hotmail.com said...
>>
[quoted text clipped - 15 lines]
>Alayne, aren't you at Addenbrooke's?  You don't happen to know where to
>find out the answer to this question, do you?

I have just spoken with our local Nuffield Hospital. A full body MRI
would not be suitable apparently as MRI is only used for scanning a
particular part of the body and is no good for lungs as they are
moving. The hospital recommended that if I wanted to look for cancer
mets I should go for a CT scan which they will do for £1200. However
they need a doctors letter first. Now that I have spoken to a lady who
does the MRI scans I understand better why Judy only had a pelvic scan
and hopefully when she is in hospital tomorrow I can get to speak with
her consultant about a CT scan or if not at least I will try when I
see him about the results of tomorrows biopsy.
pete

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Derek Hornby - 10 Jan 2006 20:12 GMT
> Alayne, aren't you at Addenbrooke's?  You don't happen to kno  where to
> find out the answer to this question, do you?

Come on Emily the answer is obvious.
Patient asks his her GP as a referral would have to be made.
And the GP would be aware of  costs in the local area.
Anyway non of this is  really relevant is it, see Steph's  views on
the issue of full bodyscan.

Derek
matt weber - 13 Jan 2006 08:33 GMT
>>Pete said said...
>>> As a
[quoted text clipped - 8 lines]
>Boy oh boy. That is a load of bread:-(
>pete
Price out a 2-3T MRI or high performance CT scanner sometime, and you
will understand why the price is so high. Medical equipment is dear to
begin with, but I guarantee you the price of 64 slice CT scanner, or
3T MRI will get your attention....
turtill@hotmail.com - 13 Jan 2006 19:56 GMT
>>>Pete said said...
>>>> As a
[quoted text clipped - 12 lines]
>begin with, but I guarantee you the price of 64 slice CT scanner, or
>3T MRI will get your attention....

Things have moved on today. I had to 'phone our GP this morning
because of the pain Judy was in and the liquid morphine wasn't working
so the GP put MACMILLAN nurse onto her. She has had her liquid
morphine does increased 600% + Paracetemal and now has to see a pain
specialist at the Hospice on Wednesday. The increased morphine is
working now.
pete

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Derek Hornby - 10 Jan 2006 13:05 GMT
> Thousands.  My aunt had an abdominal scan done privately around 5 or 6
> years ago.  This may have been an ultrasound, I'm not sure; either way I
> think the figure of £4,000 was mentioned.  For everyone's sake I hope
> I've got that wrong.

I think you have:
http://www.bupahospitals.co.uk/northcheshire/MRI%20-%20NCH1.asp?0%7C=&PID=40

Derek
J - 10 Jan 2006 16:32 GMT
> > Thousands.  My aunt had an abdominal scan done privately around 5 or 6
> > years ago.  This may have been an ultrasound, I'm not sure; either way I
[quoted text clipped - 5 lines]
>
> Derek

From:BUPA health factsheet  (above)
How much does it cost?

The guide price for an MRI scan ranges from £600 for a single body part scan and
from £900 for a multiple part scan.  For a personal quotation please contact the
MRI bookings department directly on 01925 215088.

*Prices correct at time of publication and subject to change.
turtill@hotmail.com - 10 Jan 2006 17:10 GMT
>From:BUPA health factsheet  (above)
>How much does it cost?
>
>The guide price for an MRI scan ranges from £600 for a single body part scan and
>from £900 for a multiple part scan.  For a personal quotation please contact the
>MRI bookings department directly on 01925 215088.

I spoke to them too and they were not helpful at all and said the
prices were calculated on areas and they also didn't do full body
scans and even if they did the number of area would add up to more
than £900 but now I have spoken to Nuffield Hospitals I know a little
bit more about the issue and as Judys consultant also works at
Nuffield Hospital I may just wait until he says what he intends to do.
pete

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Steph - 10 Jan 2006 18:26 GMT
>>From:BUPA health factsheet  (above)
>>How much does it cost?
[quoted text clipped - 12 lines]
> Nuffield Hospital I may just wait until he says what he intends to do.
> pete

If it was necessary, it would be done at NHS cost (free)
turtill@hotmail.com - 10 Jan 2006 20:31 GMT
>>>From:BUPA health factsheet  (above)
>>>How much does it cost?
[quoted text clipped - 14 lines]
>
>If it was necessary, it would be done at NHS cost (free)

Things have changed a bit in the UK since you left Steph. We are over
60. Judy is a pensioner and classed as non-productive. We are at the
back of any queue these days and funds are not spent on us as easily
as with younger people.
pete
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Derek Hornby - 10 Jan 2006 21:48 GMT
> Things have changed a bit in the UK since you left Steph. We are over
> 60. Judy is a pensioner and classed as non-productive.

This hardly  makes  any  difference to the issue.

If  treatment  or tests are necessary then it is done fact.
The keyword is *necessary*
You  wrongly thought  that  a full body scan  would be of help, but you
proven wrong.

> We are at the  back of any queue these days and funds are not spent on us as
> easily  as with younger people.

Again this is incorrect.
Pensioners  receive more benefits than would an unemployed 19 year old!
UK Pensioners are very well cared for.
 free medical prescriptions, free  eye tests,  free flu jabs,
And even extra money  for winter heating.
Gosh I be glad when am over 60  so I get some freebees!
Anyway  there is always the option to have medical insurance, although of
course one needs to start cover before becoming ill.
There are  also ways  to raise  funds  like release  some capital form the
home.

Derek
Steph - 11 Jan 2006 06:30 GMT
>>>>From:BUPA health factsheet  (above)
>>>>How much does it cost?
[quoted text clipped - 20 lines]
> as with younger people.
> pete

All of that is irrelevant. If it was necessary, it would be done.
Derek Hornby - 11 Jan 2006 13:56 GMT
> All of that is irrelevant. If it was necessary, it would be done.

That's exactly what most here are agreeing with. It seems only the OP
isn't happy.

I think it's important we have accurate honest information here, and that's
why  I sometimes feel a need to correct.

Emily  has made fair point about NHS waiting times.  However, she made the
mistake of  comparing now, to 5 or so years ago. Waiting times  are lower
now. Of course any wait is always tooo long for those waiting.
Everyone would love to have treatment within hours  or days, but clearly
that's impossible!

The other mistake was to suggest it costs thousands of ponds to have
a  fuoll body scan simply because of what it costs 5 or so years
ago.  That is why I  posted the BUPA link to correct.

And I note the Op did follow-up the information from the link!
Derek
Steph - 11 Jan 2006 18:51 GMT
>> All of that is irrelevant. If it was necessary, it would be done.
>
[quoted text clipped - 17 lines]
> And I note the Op did follow-up the information from the link!
> Derek

There are waits for tests and procedures in every system.
I doubt the 30 million people in the States without health insurance have
better access to care than patients in the NHS
Chris Ness - 12 Jan 2006 00:53 GMT
> There are waits for tests and procedures in every system.
> I doubt the 30 million people in the States without health insurance have
> better access to care than patients in the NHS

Without getting into a massive political discussion about poverty, most of
the so-called poor people in the US are not really poor by world standards.
They have color TV's, computers, expensive clothing, and cars (often more
expensive than those who have to work for a living). Their food, lodging,
and medical expenses are provided by the taxpayers. It is the lower middle
class that has the least access to medical insurance. They make too much to
get Medicaid and are not employed high enough on the food chain for their
employers to provide it. But, even here it is a choice to buy expensive
toys and vacations rather than buy medical insurance. Medical insurance is
expensive and not as sexy as a wide screen TV, a 2005 SUV or $1600 of
spinning hubcaps (yes, that is what they cost). They have the money for
that. They make bad choices and they go uninsured.
Steph - 12 Jan 2006 01:18 GMT
>> There are waits for tests and procedures in every system.
>> I doubt the 30 million people in the States without health insurance have
[quoted text clipped - 14 lines]
> spinning hubcaps (yes, that is what they cost). They have the money for
> that. They make bad choices and they go uninsured.

I entirely agree, Chris.
I was simply making the point that every system has problems.
In my view, publicly funded systems like the European and Canadian ones
provide the best compromise between cost and efficacy.
Barbara - 21 Jan 2006 16:22 GMT
>They have color TV's, computers, >expensive clothing, and cars (often more
>expensive than those who have to work >for a living). Their food, lodging,
>and medical expenses are provided by >the taxpayers. It is the lower middle
>class that has the least access to >medical insurance. They make too much >to
>get Medicaid and are not employed high >enough on the food chain for their
>employers to provide it.

If you have a decent income and are self-employed, or work for a small
business that doesn't provide health insurance, you're in the "screwed"
category. Every business I know of makes health insurance available to
all their employees, they don't offer it the highly paid ones and not
offer it the lower paid one, however the copay may make the lower paid
workers decide to opt out, which is a bad idea.

Most states offer subsidized free or low cost insurance to individuals
and families below a certain income level. That level, where I live, is
$25,000.00 for 1 person and $50,000.00 for a family of four.

If you do not meet those qualifications then the MONTHLY insurance
premium for a decent name brand POS insurance plan purchased as an
individual ( equivalent of what a US government employee gets for free)
is about $1050.00 for one person and around $3200.00 for a family of
four- (based on Blue Cross Direct Pay POS/HMO for the NYC region) If
you do the math you can see how this is problematic for families that
have their priorities straight. Another alternative is the HMO only
plans, which I dislike because the choice of provider is seriouly
limited and they may not cover the providers you need for serious
illness. They are a little more than half the cost, about $600 for
single and just under $2000 for a family of 4....which still can be
prohibitive.

I am self-employed and make decent money and spent lots of time finding
and procuring insurance. My plan is a little cheaper than the "name
brand" plans, about $450.00 per month and I am not happy with it, it is
good for routine stuff but if I were to get a serious disease I might
have to dish out some serious money out of pocket to get the
specialists I want.......my plan lets me go to any doctor I want (POS)
but if they aren't on the list the deductibles and copays are high.

Even though the insurance system in the US is deeply flawed, I still
prefer what I have to socialized medicine, I prefer to take
responsibility for my own healthcare rather than have the government
act as my parent and crappy service is still crappy even if that's what
everyone gets.

When I hear about all the test delays in Canada and the UK, I think
about the day before Chris found out he had cancer, he went to 3
doctors for tests and procedures in the same day, the first doctor
wanted an ECRP so he called ahead and sent Chris to another doctor who
performed the test on the spot, who called ahead and sent him to
another doctor for some other test then he went back to doctor 1 for
the results. From what I understand, this kind of service doesn't
happen under the articfical supply shortage created by socialized
medicine.

Barbara
turtill@hotmail.com - 11 Jan 2006 20:10 GMT
>> Things have changed a bit in the UK since you left Steph. We are over
>> 60. Judy is a pensioner and classed as non-productive. We are at the
[quoted text clipped - 3 lines]
>
>All of that is irrelevant. If it was necessary, it would be done.

Yes I have checked back on her notes and she has had CT scans
recently. However she is home now and the consultant wants to see her
on the 20th in his clinic. He said it is either a reoccurrence of the
cancer or radiation damage. We will not know anything until we see him
again on the 20th unless we are contacted earlier.
pete
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Mike Radcliffe - 15 Jan 2006 14:09 GMT
>> Things have changed a bit in the UK since you left Steph. We are over
>> 60. Judy is a pensioner and classed as non-productive. We are at the
>> back of any queue these days and funds are not spent on us as easily
>> as with younger people.
>> pete

I think you will find that a large and growing proportion of every western
health budget is spent on the over 60s
That's why they are all in crisis.
MIKE
turtill@hotmail.com - 15 Jan 2006 15:51 GMT
>>> Things have changed a bit in the UK since you left Steph. We are over
>>> 60. Judy is a pensioner and classed as non-productive. We are at the
[quoted text clipped - 5 lines]
>health budget is spent on the over 60s
> That's why they are all in crisis.

Yes of course that is true Mike because the over 60 get ill more. The
problem we have in the UK is that people no longer have more than 2
kids and sooner or later there will not be a big enough workforce to
pay the taxes necessary to fund medical care. In this country we have
loads of immigrants who would just love to work and pay taxes but they
are not allowed to until they have been through all the routines which
can take years.
pete

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Emily - 15 Jan 2006 17:43 GMT
turtill@hotmail.com said...
> >I think you will find that a large and growing proportion of every western
> >health budget is spent on the over 60s
[quoted text clipped - 7 lines]
> are not allowed to until they have been through all the routines which
> can take years.

It's not that long ago[1] that reaching and passing 60 was an
achievement.

You're right about the daft rules we have governing who can work and who
can't.[2]

I know quite a few people who've got more than two children though[3],
and with my five I can help to make up the numbers for those who
haven't...

[1] In the great scheme of things, that is.  Go back a couple of hundred
years, for instance.
[2] Stupid, isn't it.  Immigrants aren't allowed to work; however they
have to eat.  So the tax-payer feeds and clothes them but they're not
allowed to give anything back regardless of how much they might want to.  
And then we wonder why self-respect is diminishing amongst certain
groups of people.

[3] Round here it seems to linked to income.  The less you have the more
children you have seems to be the general rule.[4]

[4] I'm posh, I am.  I've only been married once; I didn't 'have to' get
married; all my children were born in wedlock to the same father; my
hushband wears a suit to work; I am buying my own house.  This seems to
put me in something of a small minority in this area :-(
turtill@hotmail.com - 15 Jan 2006 19:15 GMT
>It's not that long ago[1] that reaching and passing 60 was an
>achievement.
[quoted text clipped - 21 lines]
>hushband wears a suit to work; I am buying my own house.  This seems to
>put me in something of a small minority in this area :-(

I *had* to get married but it was planned as Judys parents wouldn't
let us other wise;-) We have 4 kids too and we own our ex-council
house and have been married 44 years come May. I am just back from the
clinic and they have given Judy, Erythromycin (500mg 4 times a day)
and Metronidazole (400mg 3 times a day) and that has cheered us both
up as we thought the swelling was the cancer whereas the nurse is sure
it is an infection from the biopsy.
pete

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Emily - 15 Jan 2006 20:01 GMT
turtill@hotmail.com said...
> I am just back from the
> clinic and they have given Judy, Erythromycin (500mg 4 times a day)
> and Metronidazole (400mg 3 times a day) and that has cheered us both
> up as we thought the swelling was the cancer whereas the nurse is sure
> it is an infection from the biopsy.

Has Judy had Erythromycin before?  Be aware that it can cause
indigestion and nausea - therefore any such feelings are not necessarily
bad and may just need a change of antibiotic.  Of course, if she's
allergic to Penicillin she may have to put up with any unpleasant side
effects...

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turtill@hotmail.com - 15 Jan 2006 21:45 GMT
>turtill@hotmail.com said...
>> I am just back from the
[quoted text clipped - 8 lines]
>allergic to Penicillin she may have to put up with any unpleasant side
>effects...

Thanks Emily. I will keep that in mind if any indigestion or nausea
happens. I was quite surprised about the penicillin allergy and so was
Judy. She mentioned to the nurse she had a reaction to Amoxolyn (sp)
and the nurse said that was penicillin so she was allergic to it. Judy
is very happy right now as she was convinced the cancer has taken
over.
pete

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Emily - 15 Jan 2006 22:26 GMT
turtill@hotmail.com said...
> >Has Judy had Erythromycin before?  Be aware that it can cause
> >indigestion and nausea - therefore any such feelings are not necessarily
[quoted text clipped - 8 lines]
> is very happy right now as she was convinced the cancer has taken
> over.

Ar.  Thankfully I can take penicillin; erythromycin made me feel rather
unwell immediately.  My husband's the other way around - he can't take
penicillin and erythromycin upset his stomach the only time he had it.  
His main option if nothing else will do is to grin and bear it on the
erythromycin.  Rather him than me :-(

Amoxycillin (may or may not be the same stuff as Judy had before but
it's certainly related) is known as 'the banana medicine' in most houses
with young children in.  It's yellow, liquid and tastes absolutely
/nothing/ like bananas - but why let a little thing like that get in the
way?  Ask any parent about the banana medicine and they'll know the one
you mean.  Oh, and it tastes foul.  But the littlies seem to like it...
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turtill@hotmail.com - 15 Jan 2006 23:19 GMT
>turtill@hotmail.com said...
>> >Has Judy had Erythromycin before?  Be aware that it can cause
[quoted text clipped - 22 lines]
>way?  Ask any parent about the banana medicine and they'll know the one
>you mean.  Oh, and it tastes foul.  But the littlies seem to like it...

That is strange. Judy is allergic to one strain of penicillin and not
another then.
pete

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Emily - 16 Jan 2006 18:33 GMT
turtill@hotmail.com said...
> Ask any parent about the banana medicine and they'll know the one
> >you mean.  Oh, and it tastes foul.  But the littlies seem to like it...
>
> That is strange. Judy is allergic to one strain of penicillin and not
> another then.

Where allergies are concerned I've learnt that nothing is impossible.  I
eat citrus fruit and banananananas (bother, never can work out where to
stop spelling that <g>); I am seriously allergic to raw apples[1],
pears, plums, peaches, blackberries and - wait for it - celery.  And
most other raw fruit or veg you care to mention.  Lettuce is OK
though...

[1] Cook it and put it in a pie and that's fine.  Just don't let me eat
it uncooked.
turtill@hotmail.com - 16 Jan 2006 18:55 GMT
>turtill@hotmail.com said...
>> Ask any parent about the banana medicine and they'll know the one
[quoted text clipped - 12 lines]
>[1] Cook it and put it in a pie and that's fine.  Just don't let me eat
>it uncooked.

Judy is having a rough time with nausea atm. The Macmillan nurse has
been here this afternoon and at 5pm the Hospice doctor phoned and told
me to pick up a script from my GP. It is .5mg Haloperidol once at
night but carry on with the anti-biotics.
pete

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turtill@hotmail.com - 16 Jan 2006 22:36 GMT
>turtill@hotmail.com said...
>> I am just back from the
[quoted text clipped - 8 lines]
>allergic to Penicillin she may have to put up with any unpleasant side
>effects...

Judy has had a very bad day. Nausea so bad that when the Macmillan
nurse came in she decided Judy better have something for it. Strangely
it appears the Metronidazole is the cause rather than the
Erythromycin. The nurse phoned me at 5pm to go and pick up a script
for Haloperidol and I have just given her the first of them as she is
only allowed one a day. She is having her worst day ever today but I
have given her morphine concentrate and she is now resting a little:-(
pete

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turtill@hotmail.com - 20 Jan 2006 12:51 GMT
We are just back from the hospital and have the biopsy result. Judy is
clear of cancer:-))))))))

She has radiation trauma that has become infected and has been put on
another course of antibiotics and has to see the oncologist in 2 weeks
time and in the meantime the hospice will tackle the pain issue. I am
very happy indeed.
pete

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J - 20 Jan 2006 20:54 GMT
> We are just back from the hospital and have the biopsy result. Judy is
> clear of cancer:-))))))))
[quoted text clipped - 3 lines]
> time and in the meantime the hospice will tackle the pain issue. I am
> very happy indeed.

Well, that's awesome news.
Here's the formula I've developed it it was me.
1) Stay away from the oncologist, unless he's the only one allowed to
medicate for pain.
2a) Finish second course of antibiotics; then:
2b) Ask GP for broad spectrum antibiotic for at least six months. (one that
does not have the side effects that Judy's having). I've had those problems
before and settled with APO-norfloxacin for 7 months and only (subsequently)
upon definite infection, use it again.  So get GP to recheck for infections,
from to time, after the end of taking the 6-month antibiotic.
3) Ask loving husband to find the $$$ to buy and have a bidet installed for
easy cleaning of the area.
Talk to MacMillan female nurse for friendly and woman advice.
4) Ask GP for script for premarin cream (nightly) to estrogenize and soften
the area in the vagina that's had the damage.
5) Try weaning down on pain meds and Haloperidol, once the antibiotic has
been changed.
Try anti-inflammatory (taken with food) in case there's some arthritis
setting in (or inflammation involved)..
6) join PAIN-CAREGIVERS at ACOR http://www.acor.org/mailing.html?l=p  See if
there's others there who've had similar problems and read/print their
solutions; then think about before discussing with doctor(s)
7) do some walking to get some sunlight and Vitamin D. (even if 10 minutes).
So muscles don't stiffen up.
8) checkup with oncologist in 6 months
That's what I'd do, with the careful advice of my GP (minding drug
interactions and any warnings about sunlight).

Good luck to you and Judy.
J
turtill@hotmail.com - 20 Jan 2006 21:16 GMT
>> We are just back from the hospital and have the biopsy result. Judy is
>> clear of cancer:-))))))))
[quoted text clipped - 31 lines]
>That's what I'd do, with the careful advice of my GP (minding drug
>interactions and any warnings about sunlight).

I will get back to you more fully later J. Judy has just been taken
into hospital with a possible reaction to the antibiotics or something
she was given today. I am just here having a break and collecting
stuff for her stay in hospital. Hopefully just for the night. We were
just discussing how lucky we were and bingo:-(
pete

>Good luck to you and Judy.
>J

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turtill@hotmail.com - 20 Jan 2006 22:46 GMT
>> We are just back from the hospital and have the biopsy result. Judy is
>> clear of cancer:-))))))))
[quoted text clipped - 8 lines]
>1) Stay away from the oncologist, unless he's the only one allowed to
>medicate for pain.

Well the news was so awesome we didn't take enough care of the
medication. Judy is allerigic to Penicillin and as she has had 900mg
since 4-15pm it has knocked her out:-( I have taken her stuff to her
but the doctor hadn't seen her yet so I have come home as we expect
she will be kept in over night and it is only 2 miles away. The
oncologist was the one who killed the cancer J! He wants to see her
again in 2 weeks time.

>2a) Finish second course of antibiotics; then:

This is what we have to get sorted out now. The second course of
antibiotics.

>2b) Ask GP for broad spectrum antibiotic for at least six months. (one that
>does not have the side effects that Judy's having). I've had those problems
>before and settled with APO-norfloxacin for 7 months and only (subsequently)
>upon definite infection, use it again.  So get GP to recheck for infections,
>from to time, after the end of taking the 6-month antibiotic.

I have a feeling that is going to be hard to arrange but I will give
it my best shot.

>3) Ask loving husband to find the $$$ to buy and have a bidet installed for
>easy cleaning of the area.

I can arrange that OK if she will allow me to spend money on it.

>Talk to MacMillan female nurse for friendly and woman advice.

Yes that can be done.

>4) Ask GP for script for premarin cream (nightly) to estrogenize and soften
>the area in the vagina that's had the damage.

She already has some barrier cream.

>5) Try weaning down on pain meds and Haloperidol, once the antibiotic has
>been changed.

Yes once the infection has been taken care of that is the next target.

>Try anti-inflammatory (taken with food) in case there's some arthritis
>setting in (or inflammation involved)..

She has trouble with anti inflammatories because of her hiatius hernia
and IBS.

>6) join PAIN-CAREGIVERS at ACOR http://www.acor.org/mailing.html?l=p  See if
>there's others there who've had similar problems and read/print their
>solutions; then think about before discussing with doctor(s)

Yes that is my next task.

>7) do some walking to get some sunlight and Vitamin D. (even if 10 minutes).
>So muscles don't stiffen up.

Yes that can be taken care of OK.

>8) checkup with oncologist in 6 months

We have to see him in 2 weeks!

>That's what I'd do, with the careful advice of my GP (minding drug
>interactions and any warnings about sunlight).

I am slightly concerned Judy may have got a hospital infection. I just
hope it isn't one that is immune to antibiotics.

>Good luck to you and Judy.

Thank you J and thank you for all the terrific help you have given us
over the last 18 months or so. Hopefully I will not be back here again
and then the trolls that follow me around will not post here again
either;-)
pete

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J - 21 Jan 2006 01:39 GMT
> >4) Ask GP for script for premarin cream (nightly) to estrogenize and soften
> >the area in the vagina that's had the damage.
>
> She already has some barrier cream.

inside her ? Sounds like something that might trap bacteria inside her.
If something isn't working, try something different.

> >5) Try weaning down on pain meds and Haloperidol, once the antibiotic has
> >been changed.
[quoted text clipped - 3 lines]
>
> I am slightly concerned Judy may have got a hospital infection.

fever? or heat stroke?
see Haloperidol  http://www.rxlist.com/cgi/generic/haloper_ad.htm

Also morphine is an opiate.
Under DRUG INTERACTIONS
"It should be noted that HALDOL may be capable of potentiating CNS depressants
such as anesthetics, opiates, and alcohol."

I got nausea (only - not vomiting - although I've never been a "vomiter" ) with
antibiotics. It was either rashes or thrush or diarrhea. Antibiotics are a
nuisance so I do everything I can to avoid infections - haven't had one in 8
years now.

How large is her hiatal hernia?  Needs surgery?
I have a hiatal hernia, but it's small - just wondering if it's part of her
vomiting problem.

Too many meds are hard to manage. I wish Mike was here in case there's better
nausea medication.
Or maybe they can find a different antibiotic that won't have those side effects.
That was my goal with my suggestion.
J
.
Emily - 21 Jan 2006 02:02 GMT
studras@anon.inv said...
> > I am slightly concerned Judy may have got a hospital infection.
>
> fever? or heat stroke?

Or MRSA?  Unfortunately it's rife in British hospitals, and equally
unfortunately there's not a lot we can do about it :-(
turtill@hotmail.com - 21 Jan 2006 17:23 GMT
>studras@anon.inv said...
>> > I am slightly concerned Judy may have got a hospital infection.
[quoted text clipped - 3 lines]
>Or MRSA?  Unfortunately it's rife in British hospitals, and equally
>unfortunately there's not a lot we can do about it :-(

Yes that is a great fear Emily. I was infected when I was in intensive
care but no lasting damage occurred. I noticed they didn't isolate
Judy but she has just told me the lady opposite her in hospital had
it. This is in an open ward!!!!!
pete

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turtill@hotmail.com - 21 Jan 2006 17:20 GMT
>> >4) Ask GP for script for premarin cream (nightly) to estrogenize and soften
>> >the area in the vagina that's had the damage.
[quoted text clipped - 6 lines]
>> >5) Try weaning down on pain meds and Haloperidol, once the antibiotic has
>> >been changed.

Judy is home now. They have taken away her flagyl tabs and the
penicillin and given her Clindamycin Hydrocloride 150mg capsules, 2 x
4 times a day. I cannot understand why they have taken the flagyl
away!

>> >That's what I'd do, with the careful advice of my GP (minding drug
>> >interactions and any warnings about sunlight).
>>
>> I am slightly concerned Judy may have got a hospital infection.

Yes I was concerned about that but they never isolated her and nor
have they said anything about MRSA.

>fever? or heat stroke?
>see Haloperidol  http://www.rxlist.com/cgi/generic/haloper_ad.htm

She is going to stop taking these as she is not feeling nauseaous now.
(could have been the flagyl causing that?)

>Also morphine is an opiate.
>Under DRUG INTERACTIONS
[quoted text clipped - 5 lines]
>nuisance so I do everything I can to avoid infections - haven't had one in 8
>years now.

I believe Judy has similar problems but unfortunately she has to take
what the oncologist or her doctor tells her to take.

>How large is her hiatal hernia?  Needs surgery?
>I have a hiatal hernia, but it's small - just wondering if it's part of her
>vomiting problem.

She has had it for years and no mention has ever been made of surgery.
She takes Zoton tablets for it and without them she is ill.

>Too many meds are hard to manage. I wish Mike was here in case there's better
>nausea medication.
>Or maybe they can find a different antibiotic that won't have those side effects.
>That was my goal with my suggestion.

Well she has Clindamycin Hydrocloride now. I have 'phoned NHS direct
for information about why the flagyl has been stopped and they are so
busy they cannot ring me back for about 3-4 hours. A complete waste of
time that set up with it's premium rate telephone number. However I
shall bow out of here quite soon now J as it seems the cancer has been
killed. She does have to see the oncologist in 2 weeks but I am hoping
that is a routine visit. Thanks for your help J.
pete

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matt weber - 22 Jan 2006 04:25 GMT
>>> >4) Ask GP for script for premarin cream (nightly) to estrogenize and soften
>>> >the area in the vagina that's had the damage.
[quoted text clipped - 59 lines]
>that is a routine visit. Thanks for your help J.
>pete

Flagyl is generally for very specific types of infections (giardia
etc), and let me assure you it is NOT an innocuous drug, in fact it is
a known tumor promoter, and in the 1970's when I worked for the
manufacturer, we had some research people who were pretty certain it
was probably a carcinogen as well.  Long term use is definitely NOT
recommended.
alex - 21 Jan 2006 13:39 GMT
Bidet us not necessary ( but would be a great luxury) the Macmillan nurse
can show Judy or you how to do Peri Care.  Why the Macmillan Nurse if the
cancer has not recurred?  I have had a hard time following your wife's care,
she had cancer was treated, question of it recurring, and now terminal?
Most doctors shouldn't prescribe long term use of antibiotics that is a
recipe for disaster unless absolutely necessary. If the need for long term
antibiotics is needed I would see an infectious disease specialist.

The most challenging cases, as a RN have been when the patient self directs
care, and the physician to avoid confronting gives in. Patients and
advocates  need to remind patients of their history and have healthy
discussions but the Physician and Nurses are the experts are should direct
the plan of care. That is why doctors and nurses are often the worst
patients!
Derek Hornby - 21 Jan 2006 16:26 GMT
> Bidet us not necessary ( but would be a great luxury) the Macmillan nurse
> can show Judy or you how to do Peri Care.  Why the Macmillan Nurse if the
> cancer has not recurred?  I have had a hard time following your wife's care,

Hardly surprising given the way he seems to be confused  about what is,
or isn't  been  done and why!

> she had cancer was treated, question of it recurring, and now terminal?
> Most doctors shouldn't prescribe long term use of antibiotics that is a
[quoted text clipped - 3 lines]
> The most challenging cases, as a RN have been when the patient self directs
> care, and the physician to avoid confronting gives in.

Exactly, yes.
If readers  take a close look at all posts from OP, it's surly
obvious that he is  either  winding you all up, or is one very very
confused  man!

Lets not forget  he is not the patient, so will not have rights to same
or more, information than the patient.

And if he is telling the truth, it's  very that he uses words like:
"I"  rather ten "We"

His last 6 days of posts are on google.
Derek
turtill@hotmail.com - 21 Jan 2006 18:09 GMT
>> Bidet us not necessary ( but would be a great luxury) the Macmillan nurse
>> can show Judy or you how to do Peri Care.  Why the Macmillan Nurse if the
[quoted text clipped - 23 lines]
>
>His last 6 days of posts are on google.

This troll actually uses his real name and ISP to follow me around
Usenet. That is why he has suddenly re-appeared in the cancer group
because he saw from google that I was having to post here again. Just
what reason he thinks I have for *pretending* my wife has cancer I do
not know. This is one sick troll and I would advise folks suffering
with cancer or supporting a cancer sufferer to just ignore him.
pete

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bob - 21 Jan 2006 19:01 GMT
In my opinion those are rather cruel comments to make mr. hornby,
especially in a very sensitive room like this. Cancer is no joke, I can
tell you.   regards, Bob.
Derek Hornby - 21 Jan 2006 20:49 GMT
> In my opinion those are rather cruel comments to make mr. hornby,

I don't think so.
Lets look more closely  what I said in reply to Alex.

Alex said:
"Bidet us not nece