Medical Forum / Diseases and Disorders / Cancer / January 2006
Vaginal cancer.
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turtill@hotmail.com - 05 Jan 2006 19:09 GMT Judy has to see the oncologist tomorrow. She is now on 350mg of MST morphine and liquid morphine top ups. She seems to be in more pain now then when she was at her worst last year. This time the cancer is visible just inside her vagina whereas last time it was high up inside her vagina. Her GP said it could be caused by radiotherapy but her last radiotherapy ended over a year ago:-( pete
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J - 05 Jan 2006 19:46 GMT > Judy has to see the oncologist tomorrow. She is now on 350mg of MST > morphine and liquid morphine top ups. She seems to be in more pain now [quoted text clipped - 3 lines] > last radiotherapy ended over a year ago:-( > pete I see you've got support from an RN on sci.med - your post 3 days ago about "bleeding". If it's not cancer, ask the oncologist about vaginal tears from lack of lubrication - radiation therapy can cause dryness, this we know.
You may wish to join both of the following, as well...that's where I refer people about gynae cancers. ACOR private lists http://www.acor.org/mailing.html?l=g click on gyn-onc, then "join", select digest mode for receiving. A list owner will email you how to and when you can send a message through. The other resource is http://www.eyesontheprize.org/ There's a discussion list there. And there's alt.support.chronic-pain (not alt.support.chronic.pain) Good luck with the upcoming swab results. J
turtill@hotmail.com - 05 Jan 2006 20:53 GMT >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST >> morphine and liquid morphine top ups. She seems to be in more pain now [quoted text clipped - 6 lines] >I see you've got support from an RN on sci.med - your post 3 days ago about >"bleeding". Maybe that post is not that clear but there is no mention of bleeding.
>If it's not cancer, ask the oncologist about vaginal tears from lack of >lubrication - radiation therapy can cause dryness, this we know. There has not been anything to cause tearing.
>You may wish to join both of the following, as well...that's where I refer >people about gynae cancers. [quoted text clipped - 5 lines] >And there's alt.support.chronic-pain (not alt.support.chronic.pain) >Good luck with the upcoming swab results. Thank you. pete
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J - 05 Jan 2006 21:28 GMT > >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST > >> morphine and liquid morphine top ups. She seems to be in more pain now [quoted text clipped - 8 lines] > > Maybe that post is not that clear but there is no mention of bleeding. My apology. It says "open wounds".
> >If it's not cancer, ask the oncologist about vaginal tears from lack of > >lubrication - radiation therapy can cause dryness, this we know. > > There has not been anything to cause tearing. I wouldn't know since I'm not there 24/7 to see what's going on.
> [...support resources] > >Good luck with the upcoming swab results. > > Thank you You're welcome. J
turtill@hotmail.com - 05 Jan 2006 23:18 GMT >> >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST >> >> morphine and liquid morphine top ups. She seems to be in more pain now [quoted text clipped - 10 lines] > >My apology. It says "open wounds". Yes as in burn wounds except there has not been anything to cause burns. pete
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J - 21 Jan 2006 20:06 GMT turtill@hotmail.Thu, 05 Jan 2006 23:18:09 com wrote:
> >> >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST > >> >> morphine and liquid morphine top ups. She seems to be in more pain now [quoted text clipped - 6 lines] > Yes as in burn wounds except there has not been anything to cause > burns. Hi Peter, I'm back up here, where you describe the wounds inside Judy.
Maybe the pain specialist is a good idea. If s(he) thinks cancer in the bones, (s)he can get the appropriate tests ordered or relay his/her opinion to the GP or oncologist.
An interesting thought is that radiation and/or cancer has been blamed for her pain and now I'm wondering how long these wounds have been there and whether she's had an infection from way back around the time of cancer treatment.
If infection has been the problem, then I cannot change my (remember non-expert) advice.
As to the source of who infected her, we don't know if hospital, the McMillan, you, herself, any of the doctors who touched/examined her, swabbed, treated (etc)
I know it's difficult getting lab reports in UK. i've seen mention of that, on other newsgroups. It's the only way of finding out which bacteria. In Canada, the lab (computer) prints out which (a list of) antibiotics that are best for the type(s) of bacteria. The doctor decides which brand and dose. Some doctors write a script for the brand that "works" for most of his/her other patients. I tell him/her, "I'm not your other patients". Some doctors prescribe what the pharmaceutical rep has just dropped off a pamphlet about (or a sample) - out of curiosty to try on a patient and/or because the name is fresh in his/her mind. That doesn't do it for me. The last time one did that, I had severe abdominal pain.
I've had to fight for copies of lab reports, at a cost. I've lost doctors due to that. I choose my battles. If I'm there and they flash the lab report before me, I ask for the values and write them down. If I forget, I call the reception nurse and ask for the details/values (over the phone) and write them down. If I had an infection again, I would fight for a copy of the lab report. That way, I can also see the recommended antibiotics and usually remember which ones caused me problems and ask for a different one.
Back to Judy, I wonder if she's had a version of Staphylococcal scalded skin syndrome (nside her) ? http://www.healthatoz.com/healthatoz/Atoz/ency/staphylococcal_scalded_skin_syndr ome.jsp
Ignore that if you don't think so. Either way, if she's got openings on the skin, inside the vagina, she has to use great care to not re-infect herself. My solution is staying away from doctors and not letting anyone inside, who might reinfect me. So if the onc's poking inside of her, I would avoid that. I was hoping to find a way for a cream to help heal inside her, along with the antibiotic.
http://www.greatvistachemicals.com/pharmaceutical_intermediates/clindamycin-hcl.html
<maybe print that one up?>
http://www.answers.com/topic/staphylococcus-aureus Staphylococcal infections can be spread through contact with pus from an infected wound, skin to skin contact with an infected person, and contact with objects such as towels, sheets, clothing, or athletic equipment used by an infected person. I'll let you read the rest of that web page.
But really, you won't know which infection(s) unless they tell her or she can get copy of lab reports.
You might want to get a recent book on pharmaceuticals. That list all the side effects for each. And start a list of which she has tried and which caused which problem. Might be useful, as time goes by, if this infection situation is chronic (neaning happens from time to time, again).
I have a standing order for my antibiotic. I explained to a gynaecologist (my situation and what happened with the antibiotics and which antibiotic worked) and he had no problem with that.
As I explained before, (just because one person did not understand), I was on it for mostly 7 months, 8 years ago. I've only had need for it (maybe) once since and only took it for 3 days. It's that powerful ! (yet for me no side effects). But I don't know if it would be effective for your wife, since we don't know what bacteria(s). Tip: I get information from the experts at the drugstore about medicines. They give us a printout of the most common side effects, but I'm not common. :) So I research at www.rxlist.com or in the book, if I have a bad side effect (usually not before), but if there's a known problem with one (or more) medicine, I have notes as to which to avoid. We can get in trouble not taking antibiotic for the recommended period of time, so if ever she has to stop one, because of side effects, she probably should be immediately put on another one. And that's probably what they just did. Then my non-expert understanding (from doctors) is it's best to wait at least 48 hours after stopping an antibiotic for a recheck to see if infection is still there.
Back to my way of handling antbiotics: Doubtful a person can become resistant in such a non-use way. I also have a standing order for antibiotic vag cream. That is flagyl. It's too strong. If I have a local infection, I use half applicator of that and half applicator of the premarin for a few days. Then back to the premarin. Haven't needed that for years, my way.
I wish her well that the current antibiotic will "cure" this situation (without any nasty side effects) and maybe even help reduce some of that long-standing pain. There is mention of diarrhea with that medicine. That's where a bidet (if she's in too much pain) for a shower or handheld sprayer in the shower, would be of use. If she can use a handhelp sprayer in the shower (or tub) that would be helpful.
What works for me, may not work for your wife.
J
turtill@hotmail.com - 21 Jan 2006 20:30 GMT >Hi Peter, >I'm back up here, where you describe the wounds inside Judy. [quoted text clipped - 97 lines] > >What works for me, may not work for your wife. Thanks J. She is now on Clindamycin Hydrochloride. I am just hoping she does get diarrhea and can stick the 14 day course. The hospital stopped her Flagyl and she does have a shower type that can be used as a bidet so now we have fingers crossed but really the big news was the cancer hasn't returned. pete
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J - 22 Jan 2006 10:52 GMT > Thanks J. She is now on Clindamycin Hydrochloride. I am just hoping > she does not <inserted by J> get diarrhea and can stick the 14 day course. The hospital > stopped her Flagyl and she does have a shower type that can be used as > a bidet so now we have fingers crossed but really the big news was the > cancer hasn't returned. Absolutely. Best wishes to you both, J
turtill@hotmail.com - 22 Jan 2006 13:33 GMT >> Thanks J. She is now on Clindamycin Hydrochloride. I am just hoping >> she does not <inserted by J> get diarrhea and can stick the 14 day course. The hospital [quoted text clipped - 4 lines] >Absolutely. >Best wishes to you both, Thank you J and everyone else who has helped me with advice and support. I am unsubscribing now and hopefully the trolls will leave with me. I hope I do not have reason to return but please be aware of just how grateful I am for the help and support I received here. pete
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Emily - 05 Jan 2006 22:39 GMT turtill@hotmail.com said...
> Judy has to see the oncologist tomorrow. She is now on 350mg of MST > morphine and liquid morphine top ups. She seems to be in more pain now > then when she was at her worst last year. This time the cancer is > visible just inside her vagina whereas last time it was high up inside > her vagina. Her GP said it could be caused by radiotherapy but her > last radiotherapy ended over a year ago:-( Oh, poor Judy. Can radiotherapy cause such things? Maybe Steph can throw some light on that; meanwhile give her a {{{{{hug}}}}} from me.
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turtill@hotmail.com - 05 Jan 2006 23:22 GMT >turtill@hotmail.com said... >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST [quoted text clipped - 6 lines] >Oh, poor Judy. Can radiotherapy cause such things? Maybe Steph can >throw some light on that; meanwhile give her a {{{{{hug}}}}} from me. Hi Emily. It shouldn't be radiation orientated as the radiotherapy ceased over a year ago. We are at a loss as Judy was doing so well up until 3 weeks ago. In fact she saw he oncologist on December 21st and he examined her internally and thought she was clear and looked well?????? Judy says Hi and thanks for the hugs;-) pete
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turtill@hotmail.com - 05 Jan 2006 23:32 GMT >>turtill@hotmail.com said... >>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST [quoted text clipped - 13 lines] >well?????? >Judy says Hi and thanks for the hugs;-) Correction it was the 9th December that she saw her oncologist. pete
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matt weber - 06 Jan 2006 02:08 GMT >turtill@hotmail.com said... >> Judy has to see the oncologist tomorrow. She is now on 350mg of MST [quoted text clipped - 6 lines] >Oh, poor Judy. Can radiotherapy cause such things? Maybe Steph can >throw some light on that; meanwhile give her a {{{{{hug}}}}} from me. The one well understood hazard associated with ionizing radiation is clear relationship between dose and subsequent tumor development. I suggest you check what many early chemists and physicist who worked with X-ray's, and Radium died of....
It is frankly a numbers game. Using radiation to kill tumors does indeed increase the risk of subsquent cancers, but the risk is considerably lower than 100%, however if you don't treat the cancer, the risk of death without surger or radiation is often 100%....
Steph - 06 Jan 2006 06:56 GMT >>turtill@hotmail.com said... >>> Judy has to see the oncologist tomorrow. She is now on 350mg of MST [quoted text clipped - 11 lines] > suggest you check what many early chemists and physicist who worked > with X-ray's, and Radium died of.... It's fairly well understood, but by no means linear. More dose does not mean more cancers.
> It is frankly a numbers game. Using radiation to kill tumors does > indeed increase the risk of subsquent cancers, but the risk is > considerably lower than 100%, Considerably lower than 1%..........
Steph - 05 Jan 2006 23:18 GMT > Judy has to see the oncologist tomorrow. She is now on 350mg of MST > morphine and liquid morphine top ups. She seems to be in more pain now [quoted text clipped - 3 lines] > last radiotherapy ended over a year ago:-( > pete If the "cancer" is visible "just inside the vagina", isn't the diagnosis already clear?
pete - 06 Jan 2006 14:21 GMT It is obvious now Steph. However we were living in hope until today. The extent of the cancer is yet to be decided as Judy is too tender to be examined and she goes to the hospital on Wednesday for and examination while knocked out to see how far the cancer has spread. She was last examined internally on the 9th December and given the all clear so this is quite surprising to say the least. Hopefully it will be dealt with sucessfully again. pete
Steph - 06 Jan 2006 17:44 GMT > It is obvious now Steph. However we were living in hope until today. The > extent of the cancer is yet to be decided as Judy is too tender to be [quoted text clipped - 8 lines] > Sent via Health Newsgroups > http://www.healthnewsgroups.com You should be careful of some of the stuff you see posted here, Pete. Anything is possible, but common things are most probable. Recurrence was always the likeliest diagnosis given the history, and it is 99% certain that this is the same cancer.
turtill@hotmail.com - 06 Jan 2006 19:04 GMT >> It is obvious now Steph. However we were living in hope until today. The >> extent of the cancer is yet to be decided as Judy is too tender to be [quoted text clipped - 13 lines] >Recurrence was always the likeliest diagnosis given the history, and it is >99% certain that this is the same cancer. Will they treat it the same way Steph? This has come as a bit of a shock and we still haven't got our heads around it yet but we have been there before:-( pete
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Steph - 07 Jan 2006 07:56 GMT >>> It is obvious now Steph. However we were living in hope until today. The >>> extent of the cancer is yet to be decided as Judy is too tender to be [quoted text clipped - 18 lines] > been there before:-( > pete I suspect some palliative radiotherapy or chemotherapy may be suggested
pete - 07 Jan 2006 18:51 GMT Hi Steph, why do you say pallative? Am I reading you correctly? Will it not be curative rediotherapy? pete
Steph - 07 Jan 2006 20:11 GMT > Hi Steph, why do you say pallative? Am I reading you correctly? Will it > not be curative rediotherapy? [quoted text clipped - 3 lines] > Sent via Health Newsgroups > http://www.healthnewsgroups.com My understanding is that she has already had an attempt at curative treatment? If so, it is very unlikely that further attempts at cure will be possible. But of course only your oncologist and gynaecologist can answer that for sure
turtill@hotmail.com - 07 Jan 2006 21:17 GMT >> Hi Steph, why do you say pallative? Am I reading you correctly? Will it >> not be curative rediotherapy? [quoted text clipped - 8 lines] >possible. But of course only your oncologist and gynaecologist can answer >that for sure Yes she had curative treatment 14 months ago and that consisted of 5 weeks of radiotherapy and chemo once a week for the 5 weeks. It appeared to do the job as her oncologist thought she was clear and didn't want to see her for 3 months. If this is a re-occurrence of the same cancer can it be killed by the same treatment over again but maybe more of it this time? What would be the deciding factor that an attempt to cure it again wouldn't work? If she could not be cured could she still enjoy a quality of life with continuous palliative treatment? Obviously you can only give a general picture as you have never examined her so I am just asking a 'from your experience' type of question Steph. pete
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Steph - 08 Jan 2006 00:34 GMT >>> Hi Steph, why do you say pallative? Am I reading you correctly? Will it >>> not be curative rediotherapy? [quoted text clipped - 22 lines] > of question Steph. > pete Unfortunately, Pete, a second course of "curative" treatment is usually impossible because the normal tissues in the area will not tolerate it. It should be certainly possible to do palliative treatment aimed at quality of life
J - 08 Jan 2006 01:38 GMT > <turtill@hotmail.com> wrote in message > >> [quoted text clipped - 19 lines] > Unfortunately, Pete, a second course of "curative" treatment is usually > impossible because the normal tissues in the area will not tolerate it. Especially, I would think, because she also had brachytherapy for 29 (I think he said) hours
> It should be certainly possible to do palliative treatment aimed at quality > of life Should he ask for a chest CT ? - one web page says it can spread to the lungs. And a bone scan? Because of her longstanding chronic pain to the hips and sacroiliac? J
turtill@hotmail.com - 08 Jan 2006 02:41 GMT >> <turtill@hotmail.com> wrote in message >> >> [quoted text clipped - 22 lines] >Especially, I would think, because she also had brachytherapy for 29 (I think >he said) hours Yes it was 29.5 hours.
>> It should be certainly possible to do palliative treatment aimed at quality >> of life > >Should he ask for a chest CT ? - one web page says it can spread to the lungs. >And a bone scan? Because of her longstanding chronic pain to the hips and >sacroiliac? She is also incontinent and has IBS and Hiatius Hernia as well as the hip pains and of course the Oncologist did at one time think there was a tumour in the sacroiliac joint which turned out to be incorrect or rather was thought to be a bit of gristle rather than a tumour. pete
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J - 08 Jan 2006 18:25 GMT > >> <turtill@hotmail.com> wrote in message > >> >> [quoted text clipped - 28 lines] > rather was thought to be a bit of gristle rather than a tumour. > pete Re: gynaecologist I dropped you a post on sci.med Gather up info, talk about it, then decide whether it's worth pursuing. J
turtill@hotmail.com - 09 Jan 2006 12:02 GMT >> >> <turtill@hotmail.com> wrote in message >> >> >> [quoted text clipped - 32 lines] >I dropped you a post on sci.med >Gather up info, talk about it, then decide whether it's worth pursuing. We are just back from the MRI scan. I argued for a full body scan whereas they had instructions to only do a pelvic scan. I tried to get hold of the surgeon but he wasn't in the hospital nor at home or at the private hospital he works at and his mobile phone was turned off or at least that is what I was told so as the biopsy is due to take place on Wednesday we had to settle for the pelvic scan only. As a matter of interest how much would it cost to have a full body scan done privately in the UK? Does anyone know? pete
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Steph - 09 Jan 2006 19:24 GMT >>> >> <turtill@hotmail.com> wrote in message >>> >> >> [quoted text clipped - 51 lines] > done privately in the UK? Does anyone know? > pete Why on earth would a full body scan be useful?
turtill@hotmail.com - 09 Jan 2006 19:57 GMT >> We are just back from the MRI scan. I argued for a full body scan >> whereas they had instructions to only do a pelvic scan. I tried to get [quoted text clipped - 7 lines] > >Why on earth would a full body scan be useful? I am trying to discover if the cancer has spread to her lungs/bones etc. If it has I want the treatment for that to start before it gets established elsewhere. pete
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Steph - 09 Jan 2006 23:26 GMT >>> We are just back from the MRI scan. I argued for a full body scan >>> whereas they had instructions to only do a pelvic scan. I tried to get [quoted text clipped - 12 lines] > established elsewhere. > pete It's useless information, Pete The indication for getting on with treatment is her symptoms
turtill@hotmail.com - 10 Jan 2006 02:38 GMT >>>> We are just back from the MRI scan. I argued for a full body scan >>>> whereas they had instructions to only do a pelvic scan. I tried to get [quoted text clipped - 15 lines] >It's useless information, Pete >The indication for getting on with treatment is her symptoms But this cancer has happened so quickly. I thought it would be sensible to check just how far it has spread and attack it before it became established. I am particularly concerned about bone mets as her hips hurt and of course there's a number of lymph nodes around the area of the groin. pete
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Steph - 10 Jan 2006 05:54 GMT >>>>> We are just back from the MRI scan. I argued for a full body scan >>>>> whereas they had instructions to only do a pelvic scan. I tried to get [quoted text clipped - 22 lines] > area of the groin. > pete It's already established
turtill@hotmail.com - 10 Jan 2006 13:51 GMT >>>>>> We are just back from the MRI scan. I argued for a full body scan >>>>>> whereas they had instructions to only do a pelvic scan. I tried to get [quoted text clipped - 24 lines] > >It's already established Steph I am lost here. Am I supposed to just sit back and do nothing? Is there no hope for my wife or is she going to live a long time but with continuous treatment? I do not understand. Is squamous cell cancer that vicious? pete
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Steph - 10 Jan 2006 18:25 GMT > Steph I am lost here. Am I supposed to just sit back and do nothing? > Is there no hope for my wife or is she going to live a long time but > with continuous treatment? I do not understand. Is squamous cell > cancer that vicious? > pete Pete, if I understand the story you have given correctly, your wife has recurrent (or persistent) scc of the vagina after attempted curative treatment for what was a very advanced cancer. Rather than casting around on this NG, why don't you go and sit down with the oncologists and get some straight answers?
J - 10 Jan 2006 18:40 GMT > if I understand the story you have given correctly, your wife has recurrent > (or persistent) scc of the vagina after attempted curative treatment for > what was a very advanced cancer. > Rather than casting around on this NG, why don't you go and sit down with > the oncologists and get some straight answers? No, it was not advanced and the biopsy is tomorrow. They'll have a wait for the results. J
turtill@hotmail.com - 10 Jan 2006 20:35 GMT >> if I understand the story you have given correctly, your wife has recurrent >> (or persistent) scc of the vagina after attempted curative treatment for [quoted text clipped - 4 lines] >No, it was not advanced and the biopsy is tomorrow. >They'll have a wait for the results. The hospital have acted quicker this time than they did with the original cancer but as you say we just have to take our turn and wait for the results and decisions on what they are going to do. Hopefully they will not take too long to act. pete
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turtill@hotmail.com - 10 Jan 2006 20:28 GMT >> Steph I am lost here. Am I supposed to just sit back and do nothing? >> Is there no hope for my wife or is she going to live a long time but [quoted text clipped - 8 lines] >Rather than casting around on this NG, why don't you go and sit down with >the oncologists and get some straight answers? Steph it is not that easy. I will not get to see the oncologist for at least a week. I thought something should be happening before then. Judy had stage 2 vaginal cancer and we all thought it had been beaten as the oncologist didn't want to see Judy for 3 months and within days this had flared up again from seemingly nowhere. I didn't realise it was a very advanced cancer as we were never told that. pete
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Emily - 09 Jan 2006 22:26 GMT Pete said said...
> As a > > matter of interest how much would it cost to have a full body scan > > done privately in the UK? Does anyone know? Thousands. My aunt had an abdominal scan done privately around 5 or 6 years ago. This may have been an ultrasound, I'm not sure; either way I think the figure of £4,000 was mentioned. For everyone's sake I hope I've got that wrong.
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turtill@hotmail.com - 09 Jan 2006 23:17 GMT >Pete said said... >> As a [quoted text clipped - 5 lines] >think the figure of £4,000 was mentioned. For everyone's sake I hope >I've got that wrong. Boy oh boy. That is a load of bread:-( pete
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Emily - 10 Jan 2006 16:22 GMT turtill@hotmail.com said...
> >Pete said said... > >> As a [quoted text clipped - 7 lines] > > Boy oh boy. That is a load of bread:-( Don't take my word for it, Pete - ask at your local BUPA hospital or have a quiet word with... hang on...
Alayne, aren't you at Addenbrooke's? You don't happen to know where to find out the answer to this question, do you?
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turtill@hotmail.com - 10 Jan 2006 17:05 GMT >turtill@hotmail.com said... >> [quoted text clipped - 15 lines] >Alayne, aren't you at Addenbrooke's? You don't happen to know where to >find out the answer to this question, do you? I have just spoken with our local Nuffield Hospital. A full body MRI would not be suitable apparently as MRI is only used for scanning a particular part of the body and is no good for lungs as they are moving. The hospital recommended that if I wanted to look for cancer mets I should go for a CT scan which they will do for £1200. However they need a doctors letter first. Now that I have spoken to a lady who does the MRI scans I understand better why Judy only had a pelvic scan and hopefully when she is in hospital tomorrow I can get to speak with her consultant about a CT scan or if not at least I will try when I see him about the results of tomorrows biopsy. pete
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Derek Hornby - 10 Jan 2006 20:12 GMT > Alayne, aren't you at Addenbrooke's? You don't happen to kno where to > find out the answer to this question, do you? Come on Emily the answer is obvious. Patient asks his her GP as a referral would have to be made. And the GP would be aware of costs in the local area. Anyway non of this is really relevant is it, see Steph's views on the issue of full bodyscan.
Derek
matt weber - 13 Jan 2006 08:33 GMT >>Pete said said... >>> As a [quoted text clipped - 8 lines] >Boy oh boy. That is a load of bread:-( >pete Price out a 2-3T MRI or high performance CT scanner sometime, and you will understand why the price is so high. Medical equipment is dear to begin with, but I guarantee you the price of 64 slice CT scanner, or 3T MRI will get your attention....
turtill@hotmail.com - 13 Jan 2006 19:56 GMT >>>Pete said said... >>>> As a [quoted text clipped - 12 lines] >begin with, but I guarantee you the price of 64 slice CT scanner, or >3T MRI will get your attention.... Things have moved on today. I had to 'phone our GP this morning because of the pain Judy was in and the liquid morphine wasn't working so the GP put MACMILLAN nurse onto her. She has had her liquid morphine does increased 600% + Paracetemal and now has to see a pain specialist at the Hospice on Wednesday. The increased morphine is working now. pete
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Derek Hornby - 10 Jan 2006 13:05 GMT > Thousands. My aunt had an abdominal scan done privately around 5 or 6 > years ago. This may have been an ultrasound, I'm not sure; either way I > think the figure of £4,000 was mentioned. For everyone's sake I hope > I've got that wrong. I think you have: http://www.bupahospitals.co.uk/northcheshire/MRI%20-%20NCH1.asp?0%7C=&PID=40
Derek
J - 10 Jan 2006 16:32 GMT > > Thousands. My aunt had an abdominal scan done privately around 5 or 6 > > years ago. This may have been an ultrasound, I'm not sure; either way I [quoted text clipped - 5 lines] > > Derek From:BUPA health factsheet (above) How much does it cost?
The guide price for an MRI scan ranges from £600 for a single body part scan and from £900 for a multiple part scan. For a personal quotation please contact the MRI bookings department directly on 01925 215088.
*Prices correct at time of publication and subject to change.
turtill@hotmail.com - 10 Jan 2006 17:10 GMT >From:BUPA health factsheet (above) >How much does it cost? > >The guide price for an MRI scan ranges from £600 for a single body part scan and >from £900 for a multiple part scan. For a personal quotation please contact the >MRI bookings department directly on 01925 215088. I spoke to them too and they were not helpful at all and said the prices were calculated on areas and they also didn't do full body scans and even if they did the number of area would add up to more than £900 but now I have spoken to Nuffield Hospitals I know a little bit more about the issue and as Judys consultant also works at Nuffield Hospital I may just wait until he says what he intends to do. pete
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Steph - 10 Jan 2006 18:26 GMT >>From:BUPA health factsheet (above) >>How much does it cost? [quoted text clipped - 12 lines] > Nuffield Hospital I may just wait until he says what he intends to do. > pete If it was necessary, it would be done at NHS cost (free)
turtill@hotmail.com - 10 Jan 2006 20:31 GMT >>>From:BUPA health factsheet (above) >>>How much does it cost? [quoted text clipped - 14 lines] > >If it was necessary, it would be done at NHS cost (free) Things have changed a bit in the UK since you left Steph. We are over 60. Judy is a pensioner and classed as non-productive. We are at the back of any queue these days and funds are not spent on us as easily as with younger people. pete
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Derek Hornby - 10 Jan 2006 21:48 GMT > Things have changed a bit in the UK since you left Steph. We are over > 60. Judy is a pensioner and classed as non-productive. This hardly makes any difference to the issue.
If treatment or tests are necessary then it is done fact. The keyword is *necessary* You wrongly thought that a full body scan would be of help, but you proven wrong.
> We are at the back of any queue these days and funds are not spent on us as > easily as with younger people. Again this is incorrect. Pensioners receive more benefits than would an unemployed 19 year old! UK Pensioners are very well cared for. free medical prescriptions, free eye tests, free flu jabs, And even extra money for winter heating. Gosh I be glad when am over 60 so I get some freebees! Anyway there is always the option to have medical insurance, although of course one needs to start cover before becoming ill. There are also ways to raise funds like release some capital form the home.
Derek
Steph - 11 Jan 2006 06:30 GMT >>>>From:BUPA health factsheet (above) >>>>How much does it cost? [quoted text clipped - 20 lines] > as with younger people. > pete All of that is irrelevant. If it was necessary, it would be done.
Derek Hornby - 11 Jan 2006 13:56 GMT > All of that is irrelevant. If it was necessary, it would be done. That's exactly what most here are agreeing with. It seems only the OP isn't happy.
I think it's important we have accurate honest information here, and that's why I sometimes feel a need to correct.
Emily has made fair point about NHS waiting times. However, she made the mistake of comparing now, to 5 or so years ago. Waiting times are lower now. Of course any wait is always tooo long for those waiting. Everyone would love to have treatment within hours or days, but clearly that's impossible!
The other mistake was to suggest it costs thousands of ponds to have a fuoll body scan simply because of what it costs 5 or so years ago. That is why I posted the BUPA link to correct.
And I note the Op did follow-up the information from the link! Derek
Steph - 11 Jan 2006 18:51 GMT >> All of that is irrelevant. If it was necessary, it would be done. > [quoted text clipped - 17 lines] > And I note the Op did follow-up the information from the link! > Derek There are waits for tests and procedures in every system. I doubt the 30 million people in the States without health insurance have better access to care than patients in the NHS
Chris Ness - 12 Jan 2006 00:53 GMT > There are waits for tests and procedures in every system. > I doubt the 30 million people in the States without health insurance have > better access to care than patients in the NHS Without getting into a massive political discussion about poverty, most of the so-called poor people in the US are not really poor by world standards. They have color TV's, computers, expensive clothing, and cars (often more expensive than those who have to work for a living). Their food, lodging, and medical expenses are provided by the taxpayers. It is the lower middle class that has the least access to medical insurance. They make too much to get Medicaid and are not employed high enough on the food chain for their employers to provide it. But, even here it is a choice to buy expensive toys and vacations rather than buy medical insurance. Medical insurance is expensive and not as sexy as a wide screen TV, a 2005 SUV or $1600 of spinning hubcaps (yes, that is what they cost). They have the money for that. They make bad choices and they go uninsured.
Steph - 12 Jan 2006 01:18 GMT >> There are waits for tests and procedures in every system. >> I doubt the 30 million people in the States without health insurance have [quoted text clipped - 14 lines] > spinning hubcaps (yes, that is what they cost). They have the money for > that. They make bad choices and they go uninsured. I entirely agree, Chris. I was simply making the point that every system has problems. In my view, publicly funded systems like the European and Canadian ones provide the best compromise between cost and efficacy.
Barbara - 21 Jan 2006 16:22 GMT >They have color TV's, computers, >expensive clothing, and cars (often more >expensive than those who have to work >for a living). Their food, lodging, >and medical expenses are provided by >the taxpayers. It is the lower middle >class that has the least access to >medical insurance. They make too much >to >get Medicaid and are not employed high >enough on the food chain for their >employers to provide it. If you have a decent income and are self-employed, or work for a small business that doesn't provide health insurance, you're in the "screwed" category. Every business I know of makes health insurance available to all their employees, they don't offer it the highly paid ones and not offer it the lower paid one, however the copay may make the lower paid workers decide to opt out, which is a bad idea.
Most states offer subsidized free or low cost insurance to individuals and families below a certain income level. That level, where I live, is $25,000.00 for 1 person and $50,000.00 for a family of four.
If you do not meet those qualifications then the MONTHLY insurance premium for a decent name brand POS insurance plan purchased as an individual ( equivalent of what a US government employee gets for free) is about $1050.00 for one person and around $3200.00 for a family of four- (based on Blue Cross Direct Pay POS/HMO for the NYC region) If you do the math you can see how this is problematic for families that have their priorities straight. Another alternative is the HMO only plans, which I dislike because the choice of provider is seriouly limited and they may not cover the providers you need for serious illness. They are a little more than half the cost, about $600 for single and just under $2000 for a family of 4....which still can be prohibitive.
I am self-employed and make decent money and spent lots of time finding and procuring insurance. My plan is a little cheaper than the "name brand" plans, about $450.00 per month and I am not happy with it, it is good for routine stuff but if I were to get a serious disease I might have to dish out some serious money out of pocket to get the specialists I want.......my plan lets me go to any doctor I want (POS) but if they aren't on the list the deductibles and copays are high.
Even though the insurance system in the US is deeply flawed, I still prefer what I have to socialized medicine, I prefer to take responsibility for my own healthcare rather than have the government act as my parent and crappy service is still crappy even if that's what everyone gets.
When I hear about all the test delays in Canada and the UK, I think about the day before Chris found out he had cancer, he went to 3 doctors for tests and procedures in the same day, the first doctor wanted an ECRP so he called ahead and sent Chris to another doctor who performed the test on the spot, who called ahead and sent him to another doctor for some other test then he went back to doctor 1 for the results. From what I understand, this kind of service doesn't happen under the articfical supply shortage created by socialized medicine.
Barbara
turtill@hotmail.com - 11 Jan 2006 20:10 GMT >> Things have changed a bit in the UK since you left Steph. We are over >> 60. Judy is a pensioner and classed as non-productive. We are at the [quoted text clipped - 3 lines] > >All of that is irrelevant. If it was necessary, it would be done. Yes I have checked back on her notes and she has had CT scans recently. However she is home now and the consultant wants to see her on the 20th in his clinic. He said it is either a reoccurrence of the cancer or radiation damage. We will not know anything until we see him again on the 20th unless we are contacted earlier. pete
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Mike Radcliffe - 15 Jan 2006 14:09 GMT >> Things have changed a bit in the UK since you left Steph. We are over >> 60. Judy is a pensioner and classed as non-productive. We are at the >> back of any queue these days and funds are not spent on us as easily >> as with younger people. >> pete I think you will find that a large and growing proportion of every western health budget is spent on the over 60s That's why they are all in crisis. MIKE
turtill@hotmail.com - 15 Jan 2006 15:51 GMT >>> Things have changed a bit in the UK since you left Steph. We are over >>> 60. Judy is a pensioner and classed as non-productive. We are at the [quoted text clipped - 5 lines] >health budget is spent on the over 60s > That's why they are all in crisis. Yes of course that is true Mike because the over 60 get ill more. The problem we have in the UK is that people no longer have more than 2 kids and sooner or later there will not be a big enough workforce to pay the taxes necessary to fund medical care. In this country we have loads of immigrants who would just love to work and pay taxes but they are not allowed to until they have been through all the routines which can take years. pete
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Emily - 15 Jan 2006 17:43 GMT turtill@hotmail.com said...
> >I think you will find that a large and growing proportion of every western > >health budget is spent on the over 60s [quoted text clipped - 7 lines] > are not allowed to until they have been through all the routines which > can take years. It's not that long ago[1] that reaching and passing 60 was an achievement.
You're right about the daft rules we have governing who can work and who can't.[2]
I know quite a few people who've got more than two children though[3], and with my five I can help to make up the numbers for those who haven't...
[1] In the great scheme of things, that is. Go back a couple of hundred years, for instance. [2] Stupid, isn't it. Immigrants aren't allowed to work; however they have to eat. So the tax-payer feeds and clothes them but they're not allowed to give anything back regardless of how much they might want to. And then we wonder why self-respect is diminishing amongst certain groups of people.
[3] Round here it seems to linked to income. The less you have the more children you have seems to be the general rule.[4]
[4] I'm posh, I am. I've only been married once; I didn't 'have to' get married; all my children were born in wedlock to the same father; my hushband wears a suit to work; I am buying my own house. This seems to put me in something of a small minority in this area :-(
turtill@hotmail.com - 15 Jan 2006 19:15 GMT >It's not that long ago[1] that reaching and passing 60 was an >achievement. [quoted text clipped - 21 lines] >hushband wears a suit to work; I am buying my own house. This seems to >put me in something of a small minority in this area :-( I *had* to get married but it was planned as Judys parents wouldn't let us other wise;-) We have 4 kids too and we own our ex-council house and have been married 44 years come May. I am just back from the clinic and they have given Judy, Erythromycin (500mg 4 times a day) and Metronidazole (400mg 3 times a day) and that has cheered us both up as we thought the swelling was the cancer whereas the nurse is sure it is an infection from the biopsy. pete
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Emily - 15 Jan 2006 20:01 GMT turtill@hotmail.com said...
> I am just back from the > clinic and they have given Judy, Erythromycin (500mg 4 times a day) > and Metronidazole (400mg 3 times a day) and that has cheered us both > up as we thought the swelling was the cancer whereas the nurse is sure > it is an infection from the biopsy. Has Judy had Erythromycin before? Be aware that it can cause indigestion and nausea - therefore any such feelings are not necessarily bad and may just need a change of antibiotic. Of course, if she's allergic to Penicillin she may have to put up with any unpleasant side effects...
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turtill@hotmail.com - 15 Jan 2006 21:45 GMT >turtill@hotmail.com said... >> I am just back from the [quoted text clipped - 8 lines] >allergic to Penicillin she may have to put up with any unpleasant side >effects... Thanks Emily. I will keep that in mind if any indigestion or nausea happens. I was quite surprised about the penicillin allergy and so was Judy. She mentioned to the nurse she had a reaction to Amoxolyn (sp) and the nurse said that was penicillin so she was allergic to it. Judy is very happy right now as she was convinced the cancer has taken over. pete
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Emily - 15 Jan 2006 22:26 GMT turtill@hotmail.com said...
> >Has Judy had Erythromycin before? Be aware that it can cause > >indigestion and nausea - therefore any such feelings are not necessarily [quoted text clipped - 8 lines] > is very happy right now as she was convinced the cancer has taken > over. Ar. Thankfully I can take penicillin; erythromycin made me feel rather unwell immediately. My husband's the other way around - he can't take penicillin and erythromycin upset his stomach the only time he had it. His main option if nothing else will do is to grin and bear it on the erythromycin. Rather him than me :-(
Amoxycillin (may or may not be the same stuff as Judy had before but it's certainly related) is known as 'the banana medicine' in most houses with young children in. It's yellow, liquid and tastes absolutely /nothing/ like bananas - but why let a little thing like that get in the way? Ask any parent about the banana medicine and they'll know the one you mean. Oh, and it tastes foul. But the littlies seem to like it...
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turtill@hotmail.com - 15 Jan 2006 23:19 GMT >turtill@hotmail.com said... >> >Has Judy had Erythromycin before? Be aware that it can cause [quoted text clipped - 22 lines] >way? Ask any parent about the banana medicine and they'll know the one >you mean. Oh, and it tastes foul. But the littlies seem to like it... That is strange. Judy is allergic to one strain of penicillin and not another then. pete
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Emily - 16 Jan 2006 18:33 GMT turtill@hotmail.com said...
> Ask any parent about the banana medicine and they'll know the one > >you mean. Oh, and it tastes foul. But the littlies seem to like it... > > That is strange. Judy is allergic to one strain of penicillin and not > another then. Where allergies are concerned I've learnt that nothing is impossible. I eat citrus fruit and banananananas (bother, never can work out where to stop spelling that <g>); I am seriously allergic to raw apples[1], pears, plums, peaches, blackberries and - wait for it - celery. And most other raw fruit or veg you care to mention. Lettuce is OK though...
[1] Cook it and put it in a pie and that's fine. Just don't let me eat it uncooked.
turtill@hotmail.com - 16 Jan 2006 18:55 GMT >turtill@hotmail.com said... >> Ask any parent about the banana medicine and they'll know the one [quoted text clipped - 12 lines] >[1] Cook it and put it in a pie and that's fine. Just don't let me eat >it uncooked. Judy is having a rough time with nausea atm. The Macmillan nurse has been here this afternoon and at 5pm the Hospice doctor phoned and told me to pick up a script from my GP. It is .5mg Haloperidol once at night but carry on with the anti-biotics. pete
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turtill@hotmail.com - 16 Jan 2006 22:36 GMT >turtill@hotmail.com said... >> I am just back from the [quoted text clipped - 8 lines] >allergic to Penicillin she may have to put up with any unpleasant side >effects... Judy has had a very bad day. Nausea so bad that when the Macmillan nurse came in she decided Judy better have something for it. Strangely it appears the Metronidazole is the cause rather than the Erythromycin. The nurse phoned me at 5pm to go and pick up a script for Haloperidol and I have just given her the first of them as she is only allowed one a day. She is having her worst day ever today but I have given her morphine concentrate and she is now resting a little:-( pete
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turtill@hotmail.com - 20 Jan 2006 12:51 GMT We are just back from the hospital and have the biopsy result. Judy is clear of cancer:-))))))))
She has radiation trauma that has become infected and has been put on another course of antibiotics and has to see the oncologist in 2 weeks time and in the meantime the hospice will tackle the pain issue. I am very happy indeed. pete
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J - 20 Jan 2006 20:54 GMT > We are just back from the hospital and have the biopsy result. Judy is > clear of cancer:-)))))))) [quoted text clipped - 3 lines] > time and in the meantime the hospice will tackle the pain issue. I am > very happy indeed. Well, that's awesome news. Here's the formula I've developed it it was me. 1) Stay away from the oncologist, unless he's the only one allowed to medicate for pain. 2a) Finish second course of antibiotics; then: 2b) Ask GP for broad spectrum antibiotic for at least six months. (one that does not have the side effects that Judy's having). I've had those problems before and settled with APO-norfloxacin for 7 months and only (subsequently) upon definite infection, use it again. So get GP to recheck for infections, from to time, after the end of taking the 6-month antibiotic. 3) Ask loving husband to find the $$$ to buy and have a bidet installed for easy cleaning of the area. Talk to MacMillan female nurse for friendly and woman advice. 4) Ask GP for script for premarin cream (nightly) to estrogenize and soften the area in the vagina that's had the damage. 5) Try weaning down on pain meds and Haloperidol, once the antibiotic has been changed. Try anti-inflammatory (taken with food) in case there's some arthritis setting in (or inflammation involved).. 6) join PAIN-CAREGIVERS at ACOR http://www.acor.org/mailing.html?l=p See if there's others there who've had similar problems and read/print their solutions; then think about before discussing with doctor(s) 7) do some walking to get some sunlight and Vitamin D. (even if 10 minutes). So muscles don't stiffen up. 8) checkup with oncologist in 6 months That's what I'd do, with the careful advice of my GP (minding drug interactions and any warnings about sunlight).
Good luck to you and Judy. J
turtill@hotmail.com - 20 Jan 2006 21:16 GMT >> We are just back from the hospital and have the biopsy result. Judy is >> clear of cancer:-)))))))) [quoted text clipped - 31 lines] >That's what I'd do, with the careful advice of my GP (minding drug >interactions and any warnings about sunlight). I will get back to you more fully later J. Judy has just been taken into hospital with a possible reaction to the antibiotics or something she was given today. I am just here having a break and collecting stuff for her stay in hospital. Hopefully just for the night. We were just discussing how lucky we were and bingo:-( pete
>Good luck to you and Judy. >J
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turtill@hotmail.com - 20 Jan 2006 22:46 GMT >> We are just back from the hospital and have the biopsy result. Judy is >> clear of cancer:-)))))))) [quoted text clipped - 8 lines] >1) Stay away from the oncologist, unless he's the only one allowed to >medicate for pain. Well the news was so awesome we didn't take enough care of the medication. Judy is allerigic to Penicillin and as she has had 900mg since 4-15pm it has knocked her out:-( I have taken her stuff to her but the doctor hadn't seen her yet so I have come home as we expect she will be kept in over night and it is only 2 miles away. The oncologist was the one who killed the cancer J! He wants to see her again in 2 weeks time.
>2a) Finish second course of antibiotics; then: This is what we have to get sorted out now. The second course of antibiotics.
>2b) Ask GP for broad spectrum antibiotic for at least six months. (one that >does not have the side effects that Judy's having). I've had those problems >before and settled with APO-norfloxacin for 7 months and only (subsequently) >upon definite infection, use it again. So get GP to recheck for infections, >from to time, after the end of taking the 6-month antibiotic. I have a feeling that is going to be hard to arrange but I will give it my best shot.
>3) Ask loving husband to find the $$$ to buy and have a bidet installed for >easy cleaning of the area. I can arrange that OK if she will allow me to spend money on it.
>Talk to MacMillan female nurse for friendly and woman advice. Yes that can be done.
>4) Ask GP for script for premarin cream (nightly) to estrogenize and soften >the area in the vagina that's had the damage. She already has some barrier cream.
>5) Try weaning down on pain meds and Haloperidol, once the antibiotic has >been changed. Yes once the infection has been taken care of that is the next target.
>Try anti-inflammatory (taken with food) in case there's some arthritis >setting in (or inflammation involved).. She has trouble with anti inflammatories because of her hiatius hernia and IBS.
>6) join PAIN-CAREGIVERS at ACOR http://www.acor.org/mailing.html?l=p See if >there's others there who've had similar problems and read/print their >solutions; then think about before discussing with doctor(s) Yes that is my next task.
>7) do some walking to get some sunlight and Vitamin D. (even if 10 minutes). >So muscles don't stiffen up. Yes that can be taken care of OK.
>8) checkup with oncologist in 6 months We have to see him in 2 weeks!
>That's what I'd do, with the careful advice of my GP (minding drug >interactions and any warnings about sunlight). I am slightly concerned Judy may have got a hospital infection. I just hope it isn't one that is immune to antibiotics.
>Good luck to you and Judy. Thank you J and thank you for all the terrific help you have given us over the last 18 months or so. Hopefully I will not be back here again and then the trolls that follow me around will not post here again either;-) pete
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J - 21 Jan 2006 01:39 GMT > >4) Ask GP for script for premarin cream (nightly) to estrogenize and soften > >the area in the vagina that's had the damage. > > She already has some barrier cream. inside her ? Sounds like something that might trap bacteria inside her. If something isn't working, try something different.
> >5) Try weaning down on pain meds and Haloperidol, once the antibiotic has > >been changed. [quoted text clipped - 3 lines] > > I am slightly concerned Judy may have got a hospital infection. fever? or heat stroke? see Haloperidol http://www.rxlist.com/cgi/generic/haloper_ad.htm
Also morphine is an opiate. Under DRUG INTERACTIONS "It should be noted that HALDOL may be capable of potentiating CNS depressants such as anesthetics, opiates, and alcohol."
I got nausea (only - not vomiting - although I've never been a "vomiter" ) with antibiotics. It was either rashes or thrush or diarrhea. Antibiotics are a nuisance so I do everything I can to avoid infections - haven't had one in 8 years now.
How large is her hiatal hernia? Needs surgery? I have a hiatal hernia, but it's small - just wondering if it's part of her vomiting problem.
Too many meds are hard to manage. I wish Mike was here in case there's better nausea medication. Or maybe they can find a different antibiotic that won't have those side effects. That was my goal with my suggestion. J .
Emily - 21 Jan 2006 02:02 GMT studras@anon.inv said...
> > I am slightly concerned Judy may have got a hospital infection. > > fever? or heat stroke? Or MRSA? Unfortunately it's rife in British hospitals, and equally unfortunately there's not a lot we can do about it :-(
turtill@hotmail.com - 21 Jan 2006 17:23 GMT >studras@anon.inv said... >> > I am slightly concerned Judy may have got a hospital infection. [quoted text clipped - 3 lines] >Or MRSA? Unfortunately it's rife in British hospitals, and equally >unfortunately there's not a lot we can do about it :-( Yes that is a great fear Emily. I was infected when I was in intensive care but no lasting damage occurred. I noticed they didn't isolate Judy but she has just told me the lady opposite her in hospital had it. This is in an open ward!!!!! pete
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turtill@hotmail.com - 21 Jan 2006 17:20 GMT >> >4) Ask GP for script for premarin cream (nightly) to estrogenize and soften >> >the area in the vagina that's had the damage. [quoted text clipped - 6 lines] >> >5) Try weaning down on pain meds and Haloperidol, once the antibiotic has >> >been changed. Judy is home now. They have taken away her flagyl tabs and the penicillin and given her Clindamycin Hydrocloride 150mg capsules, 2 x 4 times a day. I cannot understand why they have taken the flagyl away!
>> >That's what I'd do, with the careful advice of my GP (minding drug >> >interactions and any warnings about sunlight). >> >> I am slightly concerned Judy may have got a hospital infection. Yes I was concerned about that but they never isolated her and nor have they said anything about MRSA.
>fever? or heat stroke? >see Haloperidol http://www.rxlist.com/cgi/generic/haloper_ad.htm She is going to stop taking these as she is not feeling nauseaous now. (could have been the flagyl causing that?)
>Also morphine is an opiate. >Under DRUG INTERACTIONS [quoted text clipped - 5 lines] >nuisance so I do everything I can to avoid infections - haven't had one in 8 >years now. I believe Judy has similar problems but unfortunately she has to take what the oncologist or her doctor tells her to take.
>How large is her hiatal hernia? Needs surgery? >I have a hiatal hernia, but it's small - just wondering if it's part of her >vomiting problem. She has had it for years and no mention has ever been made of surgery. She takes Zoton tablets for it and without them she is ill.
>Too many meds are hard to manage. I wish Mike was here in case there's better >nausea medication. >Or maybe they can find a different antibiotic that won't have those side effects. >That was my goal with my suggestion. Well she has Clindamycin Hydrocloride now. I have 'phoned NHS direct for information about why the flagyl has been stopped and they are so busy they cannot ring me back for about 3-4 hours. A complete waste of time that set up with it's premium rate telephone number. However I shall bow out of here quite soon now J as it seems the cancer has been killed. She does have to see the oncologist in 2 weeks but I am hoping that is a routine visit. Thanks for your help J. pete
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matt weber - 22 Jan 2006 04:25 GMT >>> >4) Ask GP for script for premarin cream (nightly) to estrogenize and soften >>> >the area in the vagina that's had the damage. [quoted text clipped - 59 lines] >that is a routine visit. Thanks for your help J. >pete Flagyl is generally for very specific types of infections (giardia etc), and let me assure you it is NOT an innocuous drug, in fact it is a known tumor promoter, and in the 1970's when I worked for the manufacturer, we had some research people who were pretty certain it was probably a carcinogen as well. Long term use is definitely NOT recommended.
alex - 21 Jan 2006 13:39 GMT Bidet us not necessary ( but would be a great luxury) the Macmillan nurse can show Judy or you how to do Peri Care. Why the Macmillan Nurse if the cancer has not recurred? I have had a hard time following your wife's care, she had cancer was treated, question of it recurring, and now terminal? Most doctors shouldn't prescribe long term use of antibiotics that is a recipe for disaster unless absolutely necessary. If the need for long term antibiotics is needed I would see an infectious disease specialist.
The most challenging cases, as a RN have been when the patient self directs care, and the physician to avoid confronting gives in. Patients and advocates need to remind patients of their history and have healthy discussions but the Physician and Nurses are the experts are should direct the plan of care. That is why doctors and nurses are often the worst patients!
Derek Hornby - 21 Jan 2006 16:26 GMT > Bidet us not necessary ( but would be a great luxury) the Macmillan nurse > can show Judy or you how to do Peri Care. Why the Macmillan Nurse if the > cancer has not recurred? I have had a hard time following your wife's care, Hardly surprising given the way he seems to be confused about what is, or isn't been done and why!
> she had cancer was treated, question of it recurring, and now terminal? > Most doctors shouldn't prescribe long term use of antibiotics that is a [quoted text clipped - 3 lines] > The most challenging cases, as a RN have been when the patient self directs > care, and the physician to avoid confronting gives in. Exactly, yes. If readers take a close look at all posts from OP, it's surly obvious that he is either winding you all up, or is one very very confused man!
Lets not forget he is not the patient, so will not have rights to same or more, information than the patient.
And if he is telling the truth, it's very that he uses words like: "I" rather ten "We"
His last 6 days of posts are on google. Derek
turtill@hotmail.com - 21 Jan 2006 18:09 GMT >> Bidet us not necessary ( but would be a great luxury) the Macmillan nurse >> can show Judy or you how to do Peri Care. Why the Macmillan Nurse if the [quoted text clipped - 23 lines] > >His last 6 days of posts are on google. This troll actually uses his real name and ISP to follow me around Usenet. That is why he has suddenly re-appeared in the cancer group because he saw from google that I was having to post here again. Just what reason he thinks I have for *pretending* my wife has cancer I do not know. This is one sick troll and I would advise folks suffering with cancer or supporting a cancer sufferer to just ignore him. pete
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bob - 21 Jan 2006 19:01 GMT In my opinion those are rather cruel comments to make mr. hornby, especially in a very sensitive room like this. Cancer is no joke, I can tell you. regards, Bob.
Derek Hornby - 21 Jan 2006 20:49 GMT > In my opinion those are rather cruel comments to make mr. hornby, I don't think so. Lets look more closely what I said in reply to Alex.
Alex said: "Bidet us not nece
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