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Medical Forum / Diseases and Disorders / Cancer / January 2006Crescendos and the Blues - roll call to alt.support.cancer
Fig wants you to know that if you're playing classical music, some has crescendos that may cause anxiety or agitation. So if you're playing music for a loved one and they seem agitated, maybe it's a good idea to turn the music off or try something else, before jumping to conclusions. The Blues...come in and tell us what's on your mind. We accept good news as well. :-) PS I'm sorry about some of the troll posts here. It's typical of a regular day on this newsgroup, but for some reason, the holiday weeks are usually worse. Most of you skipped over them. Good for you. Don't let them scare you away. If you or a loved one has cancer, come on in, delete what I'm writing and fill in the blank space as to what's new or how you're doing. Laurie, if you're out there ( ( ( ( Laurie ) ) ) ) Posh Penny, come on in, let's talk about your elbows. The rest of you, please....come on in and let us know how you're doing. J > Fig wants you to know that if you're playing classical music, some has > crescendos that may cause anxiety or agitation. So if you're playing [quoted text clipped - 19 lines] > doing. > J Hello, hehehehe Elbows hey? hehehehe I'm doing okay, that's for asking J! :) Had a really tough week after Christmas, was pretty down knowing it was the last Christmas. Finally gave myself a couple of days to wallow in self pity, then picked it up and got back on the band wagon again. Feeling pretty good physically and mentally now. And, yes, it's the elbows that are bothering me the most. get sharp pains in them and they can hurt to the touch but nothing I can't live with. You know, after reading some of the posts here, I count myself lucky. So far I'm in pretty good shape and enjoying my time. It's gotten hard to believe that this Cancer is terminal. The radiation has helped the coughing a lot so I'm able to sleep much better. Very little side effects from it also. Was having a bit of a hard time eating for a while but that has gone away too. Speaking of the Blues....... off to see Aaron and the boys open for Colin James in London on the 22nd! Two of my sisters and I are flying out for the weekend. I'm so looking forward to having that time with them. These are things that are worth dwelling on, not all the other stuff. :) ((hugs)) Penny > > Posh Penny, come on in, let's talk about your elbows. > [quoted text clipped - 20 lines] > ((hugs)) > Penny Hello Penny, I'm not a mind-reader :) I peek in on your blog, from time to time, as I expect others here do as well. That's why I called you Posh Penny, because of where you'll be staying. :) I'm pleased to read that so much has improved with the radiation therapy. Is the elbow pain shooting upward toward (or down from) the shoulder? Occurs with movement. Or shooting up or down , elbow to wriist - carpal tunnel like (see lifting/ babies or computer use). Or is it at the tip of the elbow (bone)? bursitis - Michael could feel the tip when his hands are cool to see if he can feel heat there - steroid shot into the bursa really helps fast, within seconds. (not into the back area of the pointy tip - steroid can cause damage to the nerve there - I was told) Tennis elbow http://www.mckinley.uiuc.edu/Handouts/tennis_elbow/tennis_elbow.html from shopping and/or hugging too much and/or picking up grandkids or babies. <http://www.dynomed.com/encyclopedia/encyclopedia/elbow_and_forearm/Epicondylitis _(Tennis_Elbow).html> Better diagrams there and can cause pain to the tip as well. I must have both, but the bursitis causes a hot feeling and swelling at the tip of the elbow. The latter two usually improve with rest and ice and not leaning the elbows. But I see you're poking Michael out of the way to access laptop. <g> It would probably be a first (for me) to hear of bone mets in the elbow. My concern would be that it relates to the lung and could become something that a radiation therapist could assist with - that happened with Socks (Fig's hubby). So hopefully you and I (and Steph ) can maybe sort this out, if you can enlighten us a bit more with details.. I want to get you in shape for the 22nd. :) Hugs J >>> Posh Penny, come on in, let's talk about your elbows. >> [quoted text clipped - 41 lines] > into the back area of the pointy tip - steroid can cause damage to > the nerve there - I was told) It's right at the tip of the elbows and comes and goes. Usually happens when I'm just sitting watching TV. A sharp shooting pain. When I touch the elbow, it is tender right at the spot the pain usually shows up at. > Tennis elbow > http://www.mckinley.uiuc.edu/Handouts/tennis_elbow/tennis_elbow.html [quoted text clipped - 11 lines] > It would probably be a first (for me) to hear of bone mets in the > elbow. It may be part of the neuropathy, maybe? When I hold my arm straight and put pressue on the top and bottom of the arm by the elbow, that really hurts, like I have a bruise on the top and bottom where the elbow bends. The same thing in the same place on both arms. The tingling and tightness feeling in my hands and feet are still there which makes me think it's all connected. Still hurts to roll around in bed but the foamy we bought helped that a lot. Much more comfy as it is a softer surface to lay on. > My concern would be that it relates to the lung and could become > something that a radiation therapist could assist with - that > happened with Socks (Fig's hubby). > So hopefully you and I (and Steph ) can maybe sort this out, if you > can enlighten us a bit more with details.. > I want to get you in shape for the 22nd. :) > Hugs > J I'm going on the 22nd no matter what! All booked and ready to go. :) I kinda like the name Posh Penny! hehehe Pretty nice hotel hey? Cheers, Penny > >>> Posh Penny, come on in, let's talk about your elbows. > >> [quoted text clipped - 43 lines] > Cheers, > Penny I'm sorry Penny, I find it hard to believe that you would have tendinitis in both elbows. Heehee..unless you've been experimenting a lot with the secret message I sent you...heehee.. I can't quite tag (from your description) to what I've ever read (nor experienced) as to what the elbow pain might be from. Could be neuropathy, but further away from treatment, that should not be worsening. I also found, in the archives, one man who did have bone mets to the elbow. First time they x-rayed, they saw nothing. Some months later, they x-rayed again and saw bone mets in (one) elbow, spine and thigh. He described agony and promptly dealt with by radiation therapy. (but it was just one elbow) Maybe it's best to mention it to the radiation oncologst, while you have his attention ( are you still going there? - if not, ask the oncologist, on the 10th ). If it worsens, you might not feel like going back later and might require stronger pain meds. This way, if he thinks a few zaps might help, you get relief sooner and less pain later? And if he thinks it's not, then we've covered as much as possible. Yes, it looks posh, when I find an online picture. Also seems like it's just a few blocks from the venue. Re: venue: If they've a prep room upstairs (or are staying overnight upstairs), there's an entrance to a stairwell at the far end (corner).Usually a guard. Ask Chris to call you the room # or send you a "pass" (to the hotel), then blow right by the guard saying "we're with the band, we're expected". <g> Hugs J > I'm sorry Penny, > I find it hard to believe that you would have tendinitis in both > elbows. Heehee..unless you've been experimenting a lot with the > secret message I sent you...heehee.. Boy, do I wish it was from that! ;) > I can't quite tag (from your description) to what I've ever read (nor > experienced) as to what the elbow pain might be from. Could be [quoted text clipped - 14 lines] > and less pain later? > And if he thinks it's not, then we've covered as much as possible. I don't see the RO anymore so I will talk to the Oncologist on the 10th about it. > Yes, it looks posh, when I find an online picture. > Also seems like it's just a few blocks from the venue. [quoted text clipped - 4 lines] > then blow right by the guard saying "we're with the band, we're > expected". <g> We are going to Sound Check with Chris, he's going to pick us up at the hotel prior to. After which, we hope to go for lunch before the concert starts with everyone. That would be so much fun for my sisters! I'm really excited! Chris has been great to arrange everything for us. > Hugs > J Question that I will ask the Onc is what I should expect now. I feel so good that I really can't believe that I could not be here a couple of months from now. In fact, I could attribute everything that is going on with me to other things and could easily forget that I have cancer at the moment. Plus Michael's taken time off work, I wonder if it's the right time for him to have done this. But then again, better while I'm feeling so good and we can have quality time together rather than wait and all he's doing is looking after me. :) I've been feeling so good that even my parents are talking about going south for the rest of the winter again. They cancelled that previously but looks like they may go at the end of the month now. Glad for that as it is always so much fun for them! Hugs Penny > Boy, do I wish it was from that! ;) Ah well, it was fun to contemplate for a bit :) > [...] "we're with the band, we're expected". <g> > > We are going to Sound Check with Chris, he's going to pick us up at the > hotel prior to. After which, we hope to go for lunch before the concert > starts with everyone. That would be so much fun for my sisters! I'm really > excited! Chris has been great to arrange everything for us. Wonderful. I can just feel the excitement mounting. :) > I don't see the RO anymore so I will talk to the Oncologist on the 10th > about it. Well hopefully the oncologist will look, feel and listen to your description and refer you back to the RO if he feels it's in the bone, so you possibly get treatment before travelling - but do ask about downsides if there are any to the elbow/nerve area. And if there's a chance that's it's going to the bone, you want to stay connected, somehow have a faster way to get you in for (hopefully) prompt treament of various pain areas, as they occur. > Question that I will ask the Onc is what I should expect now. I feel so good > that I really can't believe that I could not be here a couple of months from [quoted text clipped - 9 lines] > like they may go at the end of the month now. Glad for that as it is always > so much fun for them! Onward with the quality of life, hopefully for a long time. I'll be thinking of you all, Penny. Hugs J Saw my Onc yesterday. First visit that I had not been scanned. I'm now a little over 2 1/2 years from DX of SCLC. DR listened to lungs and took BP etc. and said "looks good." Scheduled for next MRI & CT late March. BTW I turned 63 yesterday. Bob's History Dx SCLC May 29,2003 Carboplatin&VP-16 6 rounds 3 week cycle Concurrent RT to chest Transfusion 2 units July 15 2003 Transfusion 2 units date unknown NED October 20,2003 Mets in cerebellum January 13,2004 Whole Brain Radiation NED January 22,2004 NED April 23, 2004 NED July 26,2004 Mets in hipocampus Nov 4, 2004 Referred to Stanford Nov 10, 2004 CyberKnife Treatment Nov 16, 2004 <http://www.stanfordhospital.com/clinicsmedServices/COE/cyberknife/ckHome.ht ml> Brain MRI Jan 7 2005 NED Jan 10, 2005 NED April/14, 2005 Bone Scan April 28, 2005 NED May 2,2005 MRI, CT July 8,2005 NED July 13,2005 MRI, CT Oct 14, 2005 NED Oct 17, 2005  Signature*But what if I'm a figment of MY imagination? Bob in Carmel, CA > Saw my Onc yesterday. First visit that I had not been scanned. I'm now a > little over 2 1/2 years from DX of SCLC. DR listened to lungs and took BP > etc. and said "looks good." Scheduled for next MRI & CT late March. > > BTW I turned 63 yesterday. Happy Belated birthday, Bob. You ok Bob? You seem remote lately. I would appreciate your input, if you have any about the newsgroup or me. We managed to get through Christmas without a top-posting argument thread :p J > The rest of you, please....come on in and let us know how you're > doing. > J Bonnie (liver mets from gallbladder) had her first SIRT treatment on Dec. 22. She was pretty miserable for a few days, but by afternoon of the 26th she was feeling much improved. Now she says she feels better than she has in months. She is scheduled for a PET/CT on the 13th and we have a consult on the 20th. They will do the other lobe of her liver sometime the last week of January. After another scan we'll talk about where we go from there (wherever there is). We got to see our twin granddaughters, which was nice even though she couldn't hold them on her lap because of the radiation within her. Kind of bizarre really. I was supposed to stay 3 feet away from her for the first 3 days after the implantation. They even gave us a piece of paper with her geiger counter readings! Quite a road. Jeff > Bonnie (liver mets from gallbladder) had her first SIRT treatment on > Dec. 22. She was pretty miserable for a few days, but by afternoon of [quoted text clipped - 13 lines] > > Jeff Hello Jeff, What a Christmas present ! A geiger counter reading <g> I'm so pleased to read that Bonnie tolerated the treatment well. Happy New Year and thank you for answering the roll call. Hugs to you and Bonnie from J > The Blues...come in and tell us what's on your mind. We accept good > news as well. :-) [quoted text clipped - 5 lines] > on in, delete what I'm writing and fill in the blank space as to > what's new or how you're doing. Thanks Fig for the 411 on classical (and all) music. I'd never thought about it much, and it is something that should be taken into consideration. The group should calm down a little, school is back in session. Have you ever noticed that the troll traffic increases during school vacations? The next major wave should be around Easter with a minor wave around President's day. We're doing ok. I got all A's in school, and start a new semester on the 11th. My son Mike and daughter's boyfriend, Jim, also did ok. No F's and they are determined to do even better this semester. Mike's lap top did a hard drive melt down because one of the cats got mad at Mike, and expressed her displeasure on it. Needless to say, Mike has learned not to leave his computer where an elderly, grouchy, old girl cat can pee on it, and is much better about making sure that her highness is fully taken care of. He's going to be spending the better part of the next few days re-loading programs on his laptop. Rob had an MRI on Dec 19th, we haven't heard any news about it, so are taking it as a sign that everything is ok. Womack is still playing musical oncologists, so it is hard to get any other than emergency care right now. He is taking American Sign Language (ASL) part 2, starting the 10th. He really looks forward to those classes, and we'll do whatever we can to get him through them. Just don't ask me to translate for him, as I know very little ASL. I'm thinking kind and healthy thoughts for you all and asking my cats to purr for you to have good health in the coming year. Love to all, Pam S. >> The Blues...come in and tell us what's on your mind. We accept good >> news as well. :-) [quoted text clipped - 9 lines] > thought about it much, and it is something that should be taken into > consideration. Hi, Pam, Well, a friend told me about her experience when her visiting brother over-enjoyed her classical music collection over the holidays. There are many passages that give the feeling that 'something terrible is about to happen.' Not my favorite pieces. My friend said she kept getting up from reading her book thinking she needed to DO something - before realizing the cause of her anxiety - the music. That started me thinking about possibe effects on unsuspecting cancer patients. I have some 'high energy' CDs I put together & I know they work for me in a positive way. So I can imagine the opposite is true. So open those curtains & let the sunshine in & play those uplifting tunes, I say! Hey, I just got back from Big D & am told I brought a little drawl back with me. Shucks! And then I almost forgot the blackeyed peas. Finally found a can just in time. We all need those on New Years, raaaight? Glad to hear you're all doing OK, but sorry to hear about the computer. Ours leave the computers alone, but we once had a kitty with a thing for/against stereos. Wasn't pretty. Hugs, Fig Pamela Shirk wrote: > Thanks Fig for the 411 on classical (and all) music. I'd never thought > about it much, and it is something that should be taken into consideration. [quoted text clipped - 3 lines] > next major wave should be around Easter with a minor wave around President's > day. Yes and people get together with their friends or relatives and come up with/share quack cures.. Then they just have to share them with us <g> > We're doing ok. I got all A's in school, and start a new semester on the > 11th. My son Mike and daughter's boyfriend, Jim, also did ok. No F's and [quoted text clipped - 16 lines] > I'm thinking kind and healthy thoughts for you all and asking my cats to > purr for you to have good health in the coming year. Goodness me ! The cat peed on the computer. I can catch the urine in a container when my cat pees. Might be an idea to do that and take to vet to check for infection. Antibiotic might be called for. Coold also be that she's slowing and too lazy to get up and go or something in her brain, but it's fairly cheap to get check and treat for infection. Hope all continues going well during the New Year, Pam. Hugs J > Pamela Shirk wrote: > [quoted text clipped - 4 lines] > get up and go or something in her brain, but it's fairly cheap to get > check and treat for infection. If you rule out infection & other med probs, it could be electronic attraction. I had 2 kitties who were attracted to electronics that way - stereo, electric typewriter. We had to make sure they were denied access, kept computer room door closed, put stereo in cabinet 'above the tail.' Fig >> Goodness me ! The cat peed on the computer. >> I can catch the urine in a container when my cat pees. Might be an [quoted text clipped - 7 lines] > stereo, electric typewriter. We had to make sure they were denied access, > kept computer room door closed, put stereo in cabinet 'above the tail.' And there's always just downright orneriness. Rocky (RIP) used to pee on the bed at odd intervals. When I put my mind to figuring out why, it became obvious that he was peeing on the bed immediately after coming to both of us for some attention and being blown off with a pat and a howdedoo. We made it a point to take ten seconds to give him attention when he asked for it, and he never again soiled the bed. SignatureIf John McCain gets the 2008 Republican Presidential nomination, my vote for President will be a write-in for Jiang Zemin. >> If you rule out infection & other med probs, it could be electronic >> attraction. I had 2 kitties who were attracted to electronics that way - [quoted text clipped - 9 lines] > made it a point to take ten seconds to give him attention when he asked > for it, and he never again soiled the bed. One of Mike's jobs is to clean the litter boxes. Guess what he didn't do. Worse, he didn't have one in her area, though we'd told him that she would want one, and had added another litter box to our bedroom knowing that the Christmas season brings added stress. Personally, I think she was pissed off, so she pissed on his lap top. Needless to say, he now keeps the litter boxes clean and the lap top and printer in a desk drawer. Tanada has forgiven him and is back to sleeping on his bed again. She's a grouchy old womancat, and tends to like things done the way she likes them. I can't complain much, I'm a grouchy old woman and like things done the way I like them. As I've told the kids, how would you like to have to sit in your own by product in order to go to the bathroom. Pam S. >>> If you rule out infection & other med probs, it could be electronic >>> attraction. I had 2 kitties who were attracted to electronics that [quoted text clipped - 13 lines] > One of Mike's jobs is to clean the litter boxes. Guess what he didn't > do. How I'd love to hand that job off! My 22 year old cat gets a bit messy. Sometime's he's in the box, but his business goes outside. Other times, I just don't know... My sister suggested I get puppy puddle pads for around/under the boxes I did & peace is restored. Fig |
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