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Medical Forum / Diseases and Disorders / Cancer / December 2005

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Angie - 30 Dec 2005 13:44 GMT
Greetings

I have posted in the past while I was waiting for results.  Well here they
are:

CUP - cancer of unknown primary origin. They could not pin point cancer to
anywhere in my body - is this odd???

The PET scan found 3 pea size nodules (2 in left lung and 1 in right)  It
also picked up the 2 squamous cell carcinoma skin lesions on my back.

I will be starting chemo next weds ( My birthday) for some reason I found
that almost funny.........I will do Carboplatin and Palitaxel for the first
treatment.  Then only one for the following 2 wks, 1 wk off and 5th wk see
doc.

Anyone else here diagnosed with this sort of cancer?  I have read about it,
and what I found was minimal and didnt sound too promising.  I have decided
to quit reading things on the "NET"  I am switching dr.s The one that
diagnosed is not the one I preferred, and luckily I was able to see the
preferred one in passing in the hall, and was able to switch to him (he
treated my husband for colon cancer) The first dr told me that left
untreated I would be looking at 3-4 mos and treated 1 yr.  The preferred
said "we will talk"  He said he has patients in remission etc etc.

I am healthy, 43 yrs old, no symptoms except for the 4 lesions on my skin
that led a dermatologist to pursue things a bit further, thus finding the
internal stuff.

I am scared about starting the chemo, mostly it is out of not knowing what
to expect.  I am worried that his prognosis is accurate...........But one
thing I have determined, I am NOT giving up or giving into this.  Some have
said maybe the original origin is gone, from all the prayers and belief in
god.  I really do not question that, with the will of god and those around
me, I hope to beat this.................

I do find myself crying uncontrollably at times however.  Then I am a bit
better and I get angry and say to myself "put those tears to better use, use
them to fight this".  How have any of you dealt with these feelings, along
with the scared, depressed, hating, angry roller coaster ride I am
on............

Thanks for listening and sorry for the rambling..............
Emily - 30 Dec 2005 14:19 GMT
angiem@insight.rr.com.dontspamme said...
> CUP - cancer of unknown primary origin. They could not pin point cancer to
> anywhere in my body - is this odd???

It's not particularly odd, no.  Sometimes a tumour of some sort can be
found that doctors are convinced is a secondary tumour.  The primary
might never be found.  This happened to my aunt, who had an inoperable
carcinoid cancer of the liver.  My uncle was unhappy with the idea of an
autopsy, so the location of the primary cancer remains a mystery, and
now of course it doesn't really matter.
Signature

Emily, hoping that Angie will have a better outcome.

Pen - 30 Dec 2005 17:33 GMT
> Greetings
>
[quoted text clipped - 39 lines]
>
> Thanks for listening and sorry for the rambling..............

Hi Angie,

Just want to send out a hug to you and let you know that my thoughts and
prayers are with you. Everyone has different experiences with the chemo, for
me, I ended up changing from Cisplatin to Carboplatin as the side effects of
Cisplatin were to much. Did lose some hearing and developed neuropathy
(sp?).

I have lots of tears in between the  smiling and enjoying life so that is
normal. I just let it happen and then I get on with your fight, never stop
fighting. :)

I have dealt with it by writing in my blog and found it helps a lot! Lets me
get things out and then I can get on with things. I also have found it helps
a lot to write in here. A great group of people for support.

Hope to hear lots from you Angie.

Cheers,
Penny

My Blog: http://pensclc.blogspot.com/

Check out Aaron Walpole and the Band
www.aaron-walpole.com
J - 30 Dec 2005 23:50 GMT
> . Everyone has different experiences with the chemo, for
> me, I ended up changing from Cisplatin to Carboplatin as the side effects of
> Cisplatin were to much. Did lose some hearing and developed neuropathy
> (sp?).

Hi Penny, I'm sorry to read that food's getting stuck part way down and that RT
hasn't significantly improved the coughing. What does the radiation therapist
suggest is the problem?
Not enough radiation therapy? Esophagitis? (I forget if Steph has a magic mix
for that)
Hugs
J
Pen - 31 Dec 2005 00:14 GMT
>> . Everyone has different experiences with the chemo, for
>> me, I ended up changing from Cisplatin to Carboplatin as the side
[quoted text clipped - 8 lines]
> Hugs
> J

This just started in the past two or three days so I'm thinking it's just a
bye product of the radiation. The RT said the coughing would get worse
before it got better, said it would take about 2 weeks and I'm just at the
end of week one now. I do think it is improving a little though.

I see my Oncologist on January 10th for a follow up. We'll see where things
are then.

Hope you have a wonderful new years!

BTW, I'm hoping to get back stage passed to Colin James in London of January
22nd. Aaron and Chris are opening for him and Colin James is my sisters fav!
Want to fly her out there for it as a gift to her. Chris is going to get us
back stage and I'll get to see him and Aaron play again along with a visit
to see the grandkids. Hope I'm up to it! :)

Lots of hugs to J!
Penny
J - 31 Dec 2005 01:51 GMT
> This just started in the past two or three days so I'm thinking it's just a
> bye product of the radiation.

Hi Penny, Then try the Maalox and if that doesn't work, call the RT for the
other stuff that Steph mentioned.

> The RT said the coughing would get worse
> before it got better, said it would take about 2 weeks and I'm just at the
> end of week one now. I do think it is improving a little though.

Well, I forgot that it's only been a week.
However, the lung breathing could be improving but the side effects could
worsen, for a while, so try as Steph suggested. Don't wait for the 10th - call
and ask for the prep or prescriptions.

> I see my Oncologist on January 10th for a follow up. We'll see where things
> are then.
[quoted text clipped - 6 lines]
> back stage and I'll get to see him and Aaron play again along with a visit
> to see the grandkids. Hope I'm up to it! :)

Hope so, that's cool.:)

> Lots of hugs to J!
> Penny

Thanks for the hugs and the good wishes, Penny.
Here's hoping there's still lots of good (or at least, better) times for you in
2006.
Hugs
J
Steph - 31 Dec 2005 00:36 GMT
>> . Everyone has different experiences with the chemo, for
>> me, I ended up changing from Cisplatin to Carboplatin as the side effects
[quoted text clipped - 12 lines]
> Hugs
> J

Maalox is a good start. If that doesn't help, something with an anaesthetic
and nystatin would be sensible
Steph - 30 Dec 2005 18:37 GMT
> Greetings
>
[quoted text clipped - 6 lines]
> The PET scan found 3 pea size nodules (2 in left lung and 1 in right)  It
> also picked up the 2 squamous cell carcinoma skin lesions on my back.

Not so odd.
In women, 80% of CUP are from breast, lung, melanoma
In men 80% are lung, prostate or GI tract.

Sometimes the primary is never identified, and it usually doesn't affect
treatment
 
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