Medical Forum / Diseases and Disorders / Cancer / November 2005
Sexuality after cancer treatment:
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J - 23 Nov 2005 17:02 GMT What women can expect http://www.mayoclinic.com/health/cancer-treatment/SA00071 What men can expect http://www.mayoclinic.com/health/cancer-treatment/SA00070
J - 23 Nov 2005 17:05 GMT http://www.mayoclinic.com/health/cancer-treatment/CA00018
Feelings that can cause loss of libido
Cancer is a physical disease, but going through a cancer diagnosis and treatment can be very emotional. You may worry about your future, stress over your treatment decisions and find joy in the small triumphs in overcoming your cancer. All of these emotions influence how you feel about yourself and your attitude toward intimacy. Some common feelings that can negatively affect your libido include:
Guilt You may feel guilty because you feel previous sexual experiences caused your cancer. Cancer can't be transmitted sexually. Although some cancers are more likely in people who have human papillomavirus (HPV), which is transmitted sexually, many people live with HPV and never develop cancer. Other sexually transmitted viruses that put you at risk of cancer include hepatitis C, HIV and Epstein-Barr virus.
Fear You may fear that sexual activity can cause a recurrence of your cancer or that you will pass your cancer on to your partner. Sexual activity has no influence on whether you'll experience a cancer recurrence. Your doctor can discuss your prognosis and chances for a cancer-free life. You can't pass your cancer on to another person.
Depression Sadness or feelings of worthlessness are common signs of depression, which causes a loss of libido and decreases the pleasure you experience during sex. People with cancer are more likely than others to experience depression. Depression is treatable, so talk to your doctor about your feelings.
Self-consciousness Changes to your appearance after cancer treatment can make you feel self-conscious. For instance, the loss of your hair from chemotherapy, the loss of a limb, breast, or testicle, scars from surgery, and ostomies can make you feel less attractive. Many people find that their partners aren't as concerned about these changes as they are. Still, it takes time to become comfortable with the changes in your appearance. Your doctor may have suggestions to help you regain your self-confidence. Talk with other cancer survivors for ideas on ways to make you feel more sexually attractive.
Grief and loss Feelings of grief and loss can result if you feel cancer treatment has significantly changed your body. Some people might say they feel less feminine or masculine. For instance, a woman who has a hysterectomy may feel a sense of loss and perceive herself as less of a woman. A man may feel he's less of a man if he has his testicles removed (orchiectomy). For some people, treatments alter how they view themselves and make them very dissatisfied with their bodies. Although some sense of grief and loss is expected with the physical changes, you can and should feel satisfied with your body and feel positive about yourself. Talk to your doctor about how you feel. Ask him or her for a referral to a clinical health psychologist if you have strong feelings of dissatisfaction with yourself and your body.
Stress Being diagnosed with cancer and beginning your treatment is stressful. This makes it difficult to get into an intimate mood because your mind is distracted. If you're in a relationship, stress can exacerbate any pre-existing problems you may have had. Talk with your partner about how you feel.
Anxiety The thought of resuming sex after your cancer can cause anxiety. You might be unsure of how you'll perform. If you have a partner, you might find yourself avoiding all intimacy. If you're single, you might be hesitant to date because you aren't sure how or when you'll reveal your cancer experience to a new partner. Anxiety is common, and it may help to talk through your feelings with your partner, your doctor or a clinical health psychologist.
Consider your partner's feelings toward sex
Many times, cancer survivors say their partners go through cancer with them standing by them and supporting them from the first diagnosis through the uncertainty of life after treatment. It's an emotional time for your partner, too, and sometimes partners feel afraid or reluctant to resume sex. Your partner may be afraid that he or she will hurt you or that you'll interpret his or her advances as pressure to have sex. Your partner's role as caregiver during your treatment can make him or her see you as a vulnerable patient, rather than the partner you think of yourself as.
In many cases, communication about how both of you feel can make situations like these easier. But many couples didn't spend much time discussing sex before, and adding cancer to the mix makes it all the more difficult. Couples therapy may help you open the lines of communication and better understand your situation. What you can do to regain your libido
If you've experienced a loss of libido, you may feel alone. You might not want to talk about your feelings, but you should. The problem won't resolve on its own. It will take cooperation between you, your partner and your health care team to ensure that you feel comfortable resuming sexual activity. Consider trying to:
* Talk with your doctor or nurse. If your doctor hasn't discussed sexuality, take the lead. Your doctor or nurse can help you find resources and refer you to a clinical health psychologist. * Talk with your partner. One of the best ways to improve libido is to open the lines of communication between you and your partner. For instance, your partner may fear hurting you during sex and may avoid initiating sexual activity. You may believe your partner is no longer interested in you. A conversation about the issue can clear the air and restore emotional and physical intimacy. * Talk with other cancer survivors. People who have had your same cancer and have endured your same treatment are likely experiencing the same loss of libido. Look for other cancer survivors in support groups in your area, or you may be more comfortable connecting with other survivors on Internet message boards. Contact the American Cancer Society for information. * Change your definition of sexual intimacy. Maybe you aren't ready for sex. Talk about this with your partner and look for other ways you can be intimate. Simply spending quality time together may help you reconnect and slowly move toward resuming sexual intimacy. * Track your desire. You might think you've lost all interest in sex, but you may have sexual thoughts throughout your day that you ignore. Make a note of times during the day when you think about sex. If you find certain times of the day or certain situations rouse your interest in sex, use those cues to help put you in the mood.
Loss of libido is common after cancer treatment, but that doesn't mean you can't regain the sexual intimacy you once enjoyed. Broaching the subject with your doctor, partner or even members of a support group may help you work through your emotions and enable you to resume a satisfying sexual relationship.
Pen - 23 Nov 2005 21:03 GMT Leave to J to find all the info needed! Thanks so much J, you are awesome!! It's nice to see that that is one of the side effects of chemo - there is hope for me yet. hehehehe
Penny
> http://www.mayoclinic.com/health/cancer-treatment/CA00018 > [quoted text clipped - 125 lines] > group may help you work through your emotions and enable you to > resume a satisfying sexual relationship. maryanne kehoe - 25 Nov 2005 06:05 GMT A good chemo doctor should discuss this and I know Ken's did with us.
henness@bellsouth.net - 26 Nov 2005 01:11 GMT Helpful link, but I wonder if any women have recommendations re: Pelvic Radiation and Vaginal Penetration Pain remedies.
The website recommended a dialator. My routine OB/GYN recommends estrogen therapy. (Declined HRT after Hysterectomy 4 years ago). I am reluctant to go on estrogen therapy, especially when a possible side effect in the package insert is cancer. : P My rectal cancer resulted in a colo-analosmosis.
Any Help will be greatly appreciated.
Lynn
>What women can expect >http://www.mayoclinic.com/health/cancer-treatment/SA00071 >What men can expect >http://www.mayoclinic.com/health/cancer-treatment/SA00070 Pen - 26 Nov 2005 15:57 GMT > Helpful link, but I wonder if any women have recommendations re: > Pelvic Radiation and Vaginal Penetration Pain remedies. [quoted text clipped - 3 lines] > reluctant to go on estrogen therapy, especially when a possible side > effect in the package insert is cancer. : P My girlfriend refuses to take estorgen therapy after her Hysterectomy for that exact reason. Penny
> My rectal cancer resulted in a colo-analosmosis. > [quoted text clipped - 6 lines] >> What men can expect >> http://www.mayoclinic.com/health/cancer-treatment/SA00070 J - 27 Nov 2005 07:55 GMT > Helpful link, but I wonder if any women have recommendations re: > Pelvic Radiation and Vaginal Penetration Pain remedies. [quoted text clipped - 8 lines] > > Lynn Hello Lynn, I don't know what a "colo-analosmosis" is and Google won't even guess, so it's hard to comment. In addition, don't know your age, your family history of breast cancer, whether you had chemo (re HRT risk).
Astroglyde (or astroglide) contains mucin which is artificial saliva and as far as I know does not contain estrogens, but again since I don't know what "colo-analosmosis" is, I don't know if that would address your difficulty. J
Lynn - 27 Nov 2005 16:53 GMT Thanks J for the quick response! Colo-analosmosis is when the rectum is removed and the colon is attached directly to the anus. I currently have a temporary illeostomy bag, reversal will occur after I am finished with infusion chemo- which should be at the end of March 2006. I had radiation and chemo for 6 weeks prior to surgery to reduce the tumor...it successfully removed 90% of the cancer tumor. I was diagnosed with T3 NO...no evidence to date that it has matasized, only 1 out of 17 lymph nodes was infected.
I am 55 years old. Breast cancer family history...two half-aunts (same mothers)...one a 35+ years survivor and one deceased. No other known cancers. I had a non-cancerous lipoma in the thigh removed a few years ago. I had a total hysterectomy in 2001....irregular cells in uterus.
I truly appreciate all the help. Lynn
>Hello Lynn, >I don't know what a "colo-analosmosis" is and Google won't even guess, so >it's hard to comment. >In addition, don't know your age, your family history of breast cancer, >whether you had chemo (re HRT risk).
>J J - 27 Nov 2005 19:10 GMT > Thanks J for the quick response! Colo-analosmosis is when the rectum > is removed and the colon is attached directly to the anus. I [quoted text clipped - 4 lines] > was diagnosed with T3 NO...no evidence to date that it has matasized, > only 1 out of 17 lymph nodes was infected. Hello Lynn, Having never had that surgery, I would want the okay from the surgeon first. Have you been told it's okay to have sex now?
I just checked out an mIRC channel for ostomy folks and they're understanding of the situation. She posts here, on a regular basis to let others know of the resource.
One option we discussed is that the partner have an orgasm first, then pleasure you other ways for a whiile and try a softer erection (within an hour or so). Not every male is able to do so or sometimes can train themselves.
They also say that there's a post related to such (pain on penetration) on Jason's board, so I'll repost the information as to how to access both (below). If you have trouble, email her kathy-tas@nospam.autoimmunity.co.uk (remove the nospam and dot after it).
I hope this helps you connect with others who have suggestions and solutions. If you don't find help there, I would speak to an ostomy nurse who might know of good resources locally.
Let us know how it's going, please. Hugs J
Main Chat is Saturday 8pm UK Time which is 3pm EST ish.
All ostomists welcome, whatever the condition, whatever the age. Maybe you face a possible ostomy in the future? Or simply want more information? All are welcome.
Want to chat another time? The room is open 24/7 and is becoming increasingly busy.
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To join Ostomyland via java go to: http://www.ostomysupport.info/chat.html (Jason's page)
Or http://www.autoimmunity.co.uk/chat/ostomyland2.html (Kathy's back up page)
and join us in the ostomyland chat room from there. A free-to-use Java Client is embedded into the page that is dead easy to use. Nothing to download.
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If you use mIRC, or Besirc or some other IRC Chat Client, here's the server details you need to connect to Ostomyland:
Server: irc.zirc.org Port: 6667 Channel: #ostomyland
If you prefer a specially configured version of mIRC is now available which will take people directly to the new channel on the new server. Full details and the download link can be found at http://www.ostomysupport.info/mirc.html (This is my favourite - mIRC can do so much more!)
WebTV Users, you need to use your own TV based software to join us - included free as part of the WebTV browser software. Use the server and port and channel info when requested by your software to join.
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We often have members who have never been in a chatroom before. Please don't be nervous. These pages will show you exactly what to expect and what to do. If you're still unsure after you've looked at them, email me for help.
http://www.ostomylinks.co.uk/chathelp14.html
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The channel is open 24/7 for general chit chat or ostomy talk during the week, and are becoming very busy. If you drop by and it's quiet, stay a while - someone else may join the room soon.
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Look forward to seeing you in the meeting Saturday night, the weekend or later on in the week.
Kathy :)
J - 27 Nov 2005 19:48 GMT > Thanks J for the quick response! Colo-analosmosis is when the rectum > is removed and the colon is attached directly to the anus. I [quoted text clipped - 10 lines] > few years ago. I had a total hysterectomy in 2001....irregular cells > in uterus. Hello Lynn, Thank you for all the information. I'm sorry I cut some of it off, but the rest of the (other) post was going to be long.
Doesn't sound to me that you're especially at high risk for breast cancer and since you've had a total hysterectomy, there's no risk there with HRT. My primary physician favored estradot (patches), or estrogel (a gel applied to the arms or legs) ..it's more expensive, unless your insurance covers such and/or estrogen vaginal cream/ usually before bedtime and then lubricants, during intimacy, such as I mentioned.
They're prabably not as effective as an HRT pill for general and severe menopause symptoms, but then there's various risks with the pills. I think another reason to take HRT is to reduce the risk of (or slow) osteoporosis. On the other hand, I think he was concerned about coronary heart disease. Have you had a bone mineral density test? If you live long and osteoporosis becomes a problem, fractures can be life-threatening.
Women are complicated and there's so much conflicting information/studies out there, I think that's why some offer an option and leave it to each female to decide based on the severity of their menopausal symptoms (or what one hopes to accomplish or prevent) combined with all the above familial and personal risks. I don't want to sway you one way or the other, so I cannot suggest anything either. J PS I think the spelling is Anastomosis (I had to look that one up, it's a beast to remember how to spell :)
Lynn - 29 Nov 2005 18:01 GMT Hello J....
RE: mineral bone density testing... no, I have not had one performed.
For approx l year,and I am still continuing this....I take one a day of a hi-potency Coral Calcium (O. Japan) with Vitamin D and Magnesium -TwinLab.
I will proceed with the great info you sent me... Cannot thank you enough for all your help. Talking to my chemo doctor Monday Dec 5 about referral to a gyn/oncologist for a second opinion. Will share my findings with both.
Will keep in touch, Lynn
>> Thanks J for the quick response! Colo-analosmosis is when the rectum >> is removed and the colon is attached directly to the anus. I [quoted text clipped - 39 lines] >PS I think the spelling is Anastomosis (I had to look that one up, it's a >beast to remember how to spell :) Lynn - 29 Nov 2005 18:07 GMT Hello J,
Thanks again for all the good info. I will research each of them.
No, I did not have a mineral bone density test performed yet; however I have been taking for the last year daily (Twinlab) hi-potency- Coral Calcium (O.Japan) with Vitamin D and Magnesium.
I will be talking to my Chemo Dr. on Monday, Dec 5 and will ask for a referral to see a gyn/oncologist for additional radiation side effects information as well. I will be bringing the research with me.
Will share update and keep in touch. Lynnl
>> Thanks J for the quick response! Colo-analosmosis is when the rectum >> is removed and the colon is attached directly to the anus. I [quoted text clipped - 39 lines] >PS I think the spelling is Anastomosis (I had to look that one up, it's a >beast to remember how to spell :) Steph - 27 Nov 2005 21:56 GMT > Thanks J for the quick response! Colo-analosmosis is when the rectum > is removed and the colon is attached directly to the anus. I Colo-anal anatomosis, I think.........
> currently have a temporary illeostomy bag, reversal will occur after I > am finished with infusion chemo- which should be at the end of March > 2006. I had radiation and chemo for 6 weeks prior to surgery to > reduce the tumor...it successfully removed 90% of the cancer tumor. I > was diagnosed with T3 NO...no evidence to date that it has matasized, > only 1 out of 17 lymph nodes was infected. Then it's T3 N1, not N0
> I am 55 years old. Breast cancer family history...two half-aunts > (same mothers)...one a 35+ years survivor and one deceased. No other [quoted text clipped - 3 lines] > > I truly appreciate all the help. Lynn
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