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Medical Forum / Diseases and Disorders / Cancer / November 2005

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Sexuality after cancer treatment:

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J - 23 Nov 2005 17:02 GMT
What women can expect
http://www.mayoclinic.com/health/cancer-treatment/SA00071
What men can expect
http://www.mayoclinic.com/health/cancer-treatment/SA00070
J - 23 Nov 2005 17:05 GMT
http://www.mayoclinic.com/health/cancer-treatment/CA00018

Feelings that can cause loss of libido

Cancer is a physical disease, but going through a cancer diagnosis and
treatment can be very emotional. You may worry about your future, stress
over your treatment decisions and find joy in the small triumphs in
overcoming your cancer. All of these emotions influence how you feel about
yourself and your attitude toward intimacy. Some common feelings that can
negatively affect your libido include:

Guilt
You may feel guilty because you feel previous sexual experiences caused
your cancer. Cancer can't be transmitted sexually. Although some cancers
are more likely in people who have human papillomavirus (HPV), which is
transmitted sexually, many people live with HPV and never develop cancer.
Other sexually transmitted viruses that put you at risk of cancer include
hepatitis C, HIV and Epstein-Barr virus.

Fear
You may fear that sexual activity can cause a recurrence of your cancer or
that you will pass your cancer on to your partner. Sexual activity has no
influence on whether you'll experience a cancer recurrence. Your doctor
can discuss your prognosis and chances for a cancer-free life. You can't
pass your cancer on to another person.

Depression
Sadness or feelings of worthlessness are common signs of depression, which
causes a loss of libido and decreases the pleasure you experience during
sex. People with cancer are more likely than others to experience
depression. Depression is treatable, so talk to your doctor about your
feelings.

Self-consciousness
Changes to your appearance after cancer treatment can make you feel
self-conscious. For instance, the loss of your hair from chemotherapy, the
loss of a limb, breast, or testicle, scars from surgery, and ostomies can
make you feel less attractive. Many people find that their partners aren't
as concerned about these changes as they are. Still, it takes time to
become comfortable with the changes in your appearance. Your doctor may
have suggestions to help you regain your self-confidence. Talk with other
cancer survivors for ideas on ways to make you feel more sexually
attractive.

Grief and loss
Feelings of grief and loss can result if you feel cancer treatment has
significantly changed your body. Some people might say they feel less
feminine or masculine. For instance, a woman who has a hysterectomy may
feel a sense of loss and perceive herself as less of a woman. A man may
feel he's less of a man if he has his testicles removed (orchiectomy). For
some people, treatments alter how they view themselves and make them very
dissatisfied with their bodies. Although some sense of grief and loss is
expected with the physical changes, you can and should feel satisfied with
your body and feel positive about yourself. Talk to your doctor about how
you feel. Ask him or her for a referral to a clinical health psychologist
if you have strong feelings of dissatisfaction with yourself and your
body.

Stress
Being diagnosed with cancer and beginning your treatment is stressful.
This makes it difficult to get into an intimate mood because your mind is
distracted. If you're in a relationship, stress can exacerbate any
pre-existing problems you may have had. Talk with your partner about how
you feel.

Anxiety
The thought of resuming sex after your cancer can cause anxiety. You might
be unsure of how you'll perform. If you have a partner, you might find
yourself avoiding all intimacy. If you're single, you might be hesitant to
date because you aren't sure how or when you'll reveal your cancer
experience to a new partner. Anxiety is common, and it may help to talk
through your feelings with your partner, your doctor or a clinical health
psychologist.

Consider your partner's feelings toward sex

Many times, cancer survivors say their partners go through cancer with
them — standing by them and supporting them from the first diagnosis
through the uncertainty of life after treatment. It's an emotional time
for your partner, too, and sometimes partners feel afraid or reluctant to
resume sex. Your partner may be afraid that he or she will hurt you or
that you'll interpret his or her advances as pressure to have sex. Your
partner's role as caregiver during your treatment can make him or her see
you as a vulnerable patient, rather than the partner you think of yourself
as.

In many cases, communication about how both of you feel can make
situations like these easier. But many couples didn't spend much time
discussing sex before, and adding cancer to the mix makes it all the more
difficult. Couples therapy may help you open the lines of communication
and better understand your situation.
What you can do to regain your libido

If you've experienced a loss of libido, you may feel alone. You might not
want to talk about your feelings, but you should. The problem won't
resolve on its own. It will take cooperation between you, your partner and
your health care team to ensure that you feel comfortable resuming sexual
activity. Consider trying to:

   * Talk with your doctor or nurse. If your doctor hasn't discussed
sexuality, take the lead. Your doctor or nurse can help you find resources
and refer you to a clinical health psychologist.
   * Talk with your partner. One of the best ways to improve libido is to
open the lines of communication between you and your partner. For
instance, your partner may fear hurting you during sex and may avoid
initiating sexual activity. You may believe your partner is no longer
interested in you. A conversation about the issue can clear the air and
restore emotional and physical intimacy.
   * Talk with other cancer survivors. People who have had your same
cancer and have endured your same treatment are likely experiencing the
same loss of libido. Look for other cancer survivors in support groups in
your area, or you may be more comfortable connecting with other survivors
on Internet message boards. Contact the American Cancer Society for
information.
   * Change your definition of sexual intimacy. Maybe you aren't ready
for sex. Talk about this with your partner and look for other ways you can
be intimate. Simply spending quality time together may help you reconnect
and slowly move toward resuming sexual intimacy.
   * Track your desire. You might think you've lost all interest in sex,
but you may have sexual thoughts throughout your day that you ignore. Make
a note of times during the day when you think about sex. If you find
certain times of the day or certain situations rouse your interest in sex,
use those cues to help put you in the mood.

Loss of libido is common after cancer treatment, but that doesn't mean you
can't regain the sexual intimacy you once enjoyed. Broaching the subject
with your doctor, partner or even members of a support group may help you
work through your emotions and enable you to resume a satisfying sexual
relationship.
Pen - 23 Nov 2005 21:03 GMT
Leave to J to find all the info needed! Thanks so much J, you are awesome!!
It's nice to see that that is one of the side effects of chemo - there is
hope for me yet. hehehehe

Penny

> http://www.mayoclinic.com/health/cancer-treatment/CA00018
>
[quoted text clipped - 125 lines]
> group may help you work through your emotions and enable you to
> resume a satisfying sexual relationship.
maryanne kehoe - 25 Nov 2005 06:05 GMT
A good chemo doctor should discuss this and I know Ken's did with us.
henness@bellsouth.net - 26 Nov 2005 01:11 GMT
Helpful link, but I wonder if any women have recommendations re:
Pelvic Radiation and Vaginal Penetration Pain remedies.

The website recommended a dialator.  My routine OB/GYN recommends
estrogen therapy.  (Declined HRT after Hysterectomy 4 years ago). I am
reluctant to go on estrogen therapy, especially when a possible side
effect in the package insert is cancer. : P
My rectal cancer resulted in a colo-analosmosis.

Any Help will be greatly appreciated.

Lynn

>What women can expect
>http://www.mayoclinic.com/health/cancer-treatment/SA00071
>What men can expect
>http://www.mayoclinic.com/health/cancer-treatment/SA00070
Pen - 26 Nov 2005 15:57 GMT
> Helpful link, but I wonder if any women have recommendations re:
> Pelvic Radiation and Vaginal Penetration Pain remedies.
[quoted text clipped - 3 lines]
> reluctant to go on estrogen therapy, especially when a possible side
> effect in the package insert is cancer. : P

My girlfriend refuses to take estorgen therapy after her Hysterectomy for
that exact reason.
Penny

> My rectal cancer resulted in a colo-analosmosis.
>
[quoted text clipped - 6 lines]
>> What men can expect
>> http://www.mayoclinic.com/health/cancer-treatment/SA00070 
J - 27 Nov 2005 07:55 GMT
> Helpful link, but I wonder if any women have recommendations re:
> Pelvic Radiation and Vaginal Penetration Pain remedies.
[quoted text clipped - 8 lines]
>
> Lynn

Hello Lynn,
I don't know what a "colo-analosmosis" is and Google won't even guess, so
it's hard to comment.
In addition, don't know your age, your family history of breast cancer,
whether you had chemo (re HRT risk).

Astroglyde (or astroglide) contains mucin which is artificial saliva and
as far as I know does not contain estrogens, but again since I don't know
what "colo-analosmosis" is, I don't know if that would address your
difficulty.
J
Lynn - 27 Nov 2005 16:53 GMT
Thanks J  for the quick response!  Colo-analosmosis is when the rectum
is removed and the colon is attached directly to the anus.  I
currently have a temporary illeostomy bag, reversal will occur after I
am finished with infusion  chemo- which should be at the end of March
2006.  I had radiation and chemo for 6 weeks prior to surgery to
reduce the tumor...it successfully removed 90% of the cancer tumor.  I
was diagnosed with T3 NO...no evidence to date that it has matasized,
only 1 out of 17 lymph nodes was infected.  

I am 55 years old.  Breast cancer family history...two half-aunts
(same mothers)...one a 35+ years survivor and one deceased. No other
known cancers.  I had a non-cancerous lipoma in the thigh removed a
few years ago.  I had a total hysterectomy in 2001....irregular cells
in uterus.

I truly appreciate all the help.    Lynn

>Hello Lynn,
>I don't know what a "colo-analosmosis" is and Google won't even guess, so
>it's hard to comment.
>In addition, don't know your age, your family history of breast cancer,
>whether you had chemo (re HRT risk).

>J
J - 27 Nov 2005 19:10 GMT
> Thanks J  for the quick response!  Colo-analosmosis is when the rectum
> is removed and the colon is attached directly to the anus.  I
[quoted text clipped - 4 lines]
> was diagnosed with T3 NO...no evidence to date that it has matasized,
> only 1 out of 17 lymph nodes was infected.

Hello Lynn,
Having never had that surgery, I would want the okay from the surgeon first.
Have you been told it's okay to have sex now?

I just checked out an mIRC channel for ostomy folks and they're understanding
of the situation.
She posts here, on a regular basis to let others know of the resource.

One option we discussed is that the partner have an orgasm first, then
pleasure you other ways for a whiile and try a softer erection (within an hour
or so). Not every male is able to do so or sometimes can train themselves.

They also say that there's a post related to such (pain on penetration) on
Jason's board, so I'll repost the information as to how to access both
(below).
If you have trouble, email her kathy-tas@nospam.autoimmunity.co.uk (remove the
nospam and dot after it).

I hope this helps you connect with others who have suggestions and solutions.
If you don't find help there, I would speak to an ostomy nurse who might know
of good resources locally.

Let us know how it's going, please.
Hugs
J

Main Chat is Saturday 8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Want to chat another time? The room is open 24/7 and is becoming
increasingly busy.

=========

To join Ostomyland via java go to:
http://www.ostomysupport.info/chat.html (Jason's page)

Or http://www.autoimmunity.co.uk/chat/ostomyland2.html (Kathy's back up
page)

and join us in the ostomyland chat room from there. A free-to-use Java
Client is embedded into the page that is dead easy to use.
Nothing to download.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect to Ostomyland:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server and
port and channel
info when requested by your software to join.

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to expect
and what to do. If you're still unsure after you've looked at them, email
me for help.

http://www.ostomylinks.co.uk/chathelp14.html

=========

The channel is open 24/7 for general chit chat or ostomy talk
during the week, and are becoming very busy. If you drop by
and it's quiet, stay a while - someone else may join the room soon.

=========

Look forward to seeing you in the meeting Saturday night, the weekend or
later on
in the week.

Kathy :)
J - 27 Nov 2005 19:48 GMT
> Thanks J  for the quick response!  Colo-analosmosis is when the rectum
> is removed and the colon is attached directly to the anus.  I
[quoted text clipped - 10 lines]
> few years ago.  I had a total hysterectomy in 2001....irregular cells
> in uterus.

Hello Lynn,
Thank you for all the information.
I'm sorry I cut some of it off, but the rest of the (other) post was going to
be long.

Doesn't sound to me that you're especially at high risk for breast cancer and
since you've had a total hysterectomy, there's no risk there with HRT.
My primary physician favored estradot (patches), or estrogel (a gel applied to
the arms or legs) ..it's more expensive, unless your insurance covers such
and/or estrogen vaginal cream/ usually before bedtime and then lubricants,
during intimacy, such as I mentioned.

They're prabably not as effective as an HRT pill for general and severe
menopause symptoms, but then there's various risks with the pills.  I think
another reason to take HRT is to reduce the risk of (or slow) osteoporosis. On
the other hand, I think he was concerned about coronary heart disease.
Have you had a bone mineral density test?  If you live long and osteoporosis
becomes a problem, fractures can be life-threatening.

Women are complicated and there's so much conflicting information/studies out
there, I think that's why some offer an option and leave it to each female to
decide based on the severity of their menopausal symptoms (or what one hopes
to accomplish or prevent) combined with all the above familial and personal
risks.  I don't want to sway you one way or the other, so I cannot suggest
anything either.
J
PS I think the spelling is Anastomosis (I had to look that one up, it's a
beast to remember how to spell :)
Lynn - 29 Nov 2005 18:01 GMT
Hello J....

RE: mineral bone density testing... no, I have not had one performed.

For approx l year,and I am still continuing this....I take one a day
of a hi-potency Coral Calcium (O. Japan) with Vitamin D and Magnesium
-TwinLab.

I will proceed with the great info you sent me... Cannot thank you
enough for all your help.   Talking to my chemo doctor Monday Dec 5
about referral to a gyn/oncologist for a second opinion.  Will share
my findings with both.

Will keep in touch, Lynn

>> Thanks J  for the quick response!  Colo-analosmosis is when the rectum
>> is removed and the colon is attached directly to the anus.  I
[quoted text clipped - 39 lines]
>PS I think the spelling is Anastomosis (I had to look that one up, it's a
>beast to remember how to spell :)
Lynn - 29 Nov 2005 18:07 GMT
Hello J,

Thanks again for all the good info.  I will research each of them.

No, I did not have a mineral bone density test performed yet; however
I have been taking for the last year daily (Twinlab) hi-potency- Coral
Calcium (O.Japan) with Vitamin D and Magnesium.

I will be talking to my Chemo Dr. on Monday, Dec 5 and will ask for a
referral to see a gyn/oncologist for additional radiation side effects
information as well.  I will be bringing the research with me.

Will share update and keep in touch.  Lynnl

>> Thanks J  for the quick response!  Colo-analosmosis is when the rectum
>> is removed and the colon is attached directly to the anus.  I
[quoted text clipped - 39 lines]
>PS I think the spelling is Anastomosis (I had to look that one up, it's a
>beast to remember how to spell :)
Steph - 27 Nov 2005 21:56 GMT
> Thanks J  for the quick response!  Colo-analosmosis is when the rectum
> is removed and the colon is attached directly to the anus.  I

Colo-anal anatomosis, I think.........

> currently have a temporary illeostomy bag, reversal will occur after I
> am finished with infusion  chemo- which should be at the end of March
> 2006.  I had radiation and chemo for 6 weeks prior to surgery to
> reduce the tumor...it successfully removed 90% of the cancer tumor.  I
> was diagnosed with T3 NO...no evidence to date that it has matasized,
> only 1 out of 17 lymph nodes was infected.

Then it's T3 N1, not N0

> I am 55 years old.  Breast cancer family history...two half-aunts
> (same mothers)...one a 35+ years survivor and one deceased. No other
[quoted text clipped - 3 lines]
>
> I truly appreciate all the help.    Lynn
 
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