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Medical Forum / Diseases and Disorders / Cancer / May 2005Where to Post a Cancer Story?
Hello, Almost exactly one year ago, I posted a question regarding my Mom's colon cancer treatment options. She died a few months later, and my brother and I have since written a case history of her cancer fight surrounding a summary of "Lessons Learned" that we hope might benefit other cancer patients, and colorectal cancer patients in particular. We had a long, difficult ride, but to get something positive out of the experience, we want to distill the key things we learned in case they can help someone else. We're curious if anyone has any good suggestions as to the best forum to post our treatise (it's about 20 average pages long). I might also just post it on a web page (we're creating a memorial web site for her) for anyone here to read and provide a critique in advance of any posting. It sure was useful over the past 2 years to read and learn from this group, and I appreciate the time and compassion both the patients and the experts here provide so that so many people dealing with cancer (as patients or caregivers) can not feel alone. Cheers, John > Almost exactly one year ago, I posted a question regarding my Mom's > colon cancer treatment options. She died a few months later, and my [quoted text clipped - 15 lines] > the experts here provide so that so many people dealing with cancer (as > patients or caregivers) can not feel alone. Hello John, My condolences on the death of your mother. I hope her passing was peaceful, surrounded by loved ones. I think the website idea is a good one. Then it can be posted to sci.med.diseases.cancer. There are some free web sites out there, but I would like to see how much advertising (and the type of) before posting such here. The "free" ones usually include advertising, over which you have no control, unless you are planning on buying your own domain, which (if I recall) costs 20-30$/year. Then Steph and I and possibly Peter, could have a look at it. Hopefully you won't have too much java. Some of us turn our "java" off, before checking a website, if there's warnings out about various viruses, which can affect browsers/our computers. That's quite a treatise. As I recall, you posted that your mother had an early recurrence in her liver, after aggressive chemo, and Steph and I tried to convince you that more /aggressive chemo would not be helpful. If you have details of where her cancer started (in the colon), that might be useful also. Some protocols may have since changed in regards to pretreating rectal cancer.(depending on the details). So Steph may have some input on what could have been done differently. I look forward to hearing more about "lessons to be learned" and hearing more about your mother. Thank you for asking ahead of time and doing this for all cancer patients. Best wishes to you and your brother. J > There are some free web sites out there, but I would like to see how > much advertising (and the type of) before posting such here. The > "free" ones usually include advertising, over which you have no > control, unless you are planning on buying your own domain, which (if > I recall) costs 20-30$/year. Then Steph and I and possibly Peter, > could have a look at it. I own several domains. I'll only comment on options there. Domain registration runs 5 USD to 15 USD per year. Avoid network solutions. I recommend pairnic first, then gandi or godaddy. Web space can be rented from pair.com for as little as 5 USD per month depending on what else you need. If you get both the web space and the domain registration from pair.com and its sister company pairnic there are some fee waivers that make that worthwhile. From the description of what will be needed, this might be the optimal solution. For free web space, without a domain name, try geocities or tripod. They have some bandwidth limits but I dont think that you will run afoul of them. I agree with the comments that are negative about java and/or javascript, although I use both myself on my own site for some minor stuff. 20 pages is a bit long. Include lots of photos to break up the text. My standard memorial site opens with an index.html that has a photo of the person on a black background with dates of birth and death along with an appropriate quote. I then use a META refresh tag to redirect to the opening page. My code is at http://oriez.org/home.html or http://oriez.org/postel.html Links on my page are busted at the moment because I am still alive, but a friend with web experience is ready to take care of the renames for me when needed. The jon postel site is 7 yrs old and some links are no longer valid.  SignatureSee NANAE kooks, including Barbara Schwarz: http://www.morningmist.org/nanae/kookfaq.html > <snipped a bunch - he's a web designer> > > I agree with the comments that are negative about java and/or > javascript, although I use both myself on my own site for some minor > stuff. Never had a problem with yours. But I must confess there's been no time to explore all your web page. But gad, I've run into some that drive me up a wall and can take forever to download due to java or javascript. Some have big butterflies and/or little pets floating around the text ..all this drags down my resources and I give up. Their loss IMO I can almost always tell a professionally designed webpage. Some don't want to hear it. <g> > 20 pages is a bit long. Yes, I guess 20 pages is a lot about one subject. But it need not all be on one "page". I forget what they call it. <h3><p><a href="linkname.html">linkname</a></h3> embedded links? links within the content of a webpage or hypertext document that are explicitly authored to lead to a relevant area. > Include lots of photos to break up the text. Photos are good. Whats the way to put small photos on, but make them clickable to enlarge? Easier/faster for us dial-upers to download the main page. Since it's medical in nature, he may also have pathoology reports, scan reports, lists of first line, 2nd line etc therapies. Breaks, trips, hoidays etc. Hard to know at this point what will be there and how it will be presented. > My standard memorial site opens with an index.html that has a photo of > the person on a black background with dates of birth and death along [quoted text clipped - 6 lines] > when needed. The jon postel site is 7 yrs old and some links are no > longer valid. Oh I see what you mean. "regular" doesn't go back to the main page. Yes, I see you're still alive and thinking ahead. Thanks Socks. This might also help others who are thinking of doing such a web page. While I'm here, I don't have a scanner, (TG!) but I do have photos on the computer, so I've uploaded them to a subfolder of my webpage. But. If I post them somewhere, I don't want accessibility to the main page. And at the top, it says Index of /~not saying/temps ("temps" is the subfolder Name Last modified Size Description Then below is "parent directory" then each photo/file listed below. if someone clicks on "parent directory" they get to the main page. How do I stop this, if you know? I've seen it in other situations (unless they truly did not have a main page). Permissions in my FTP client? If you know of a good easy to understand webpage to point me to, I'd appreciate it. Thanks J J (and Socks), Thanks for the helpful suggestions, as usual. You must be a wonderful people to be so compassionate and helpful to all the people on this board over the years. And yes, my Mom's death was peaceful and she was surrounded by those she loved. I neglected to mention that I own a web design firm, so designing and building a website is not a problem. :-) But building a web page does no good unless someone can FIND you. I will certainly put our treatise on the site we're developing for my Mom, but I was curious if there was some other site you knew of that provides info/support for colorectal cancer patients, or even people who are concerned about the possibility (perhaps patients who have just had polyps detected). As I said, we have taken our experience and tried to distill the advice which we feel is general enough to potentially help anyone. Of course we realize that medicine changes quickly, especially in treating/diagnosing cancer, so we have no interest in giving advice on procedures and drugs. But nobody gives you a manual when you start down this road, and at almost every step of the way we wished we had one. Cheers, John > J (and Socks), > Thanks for the helpful suggestions, as usual. You must be a wonderful [quoted text clipped - 17 lines] > down this road, and at almost every step of the way we wished we had > one. Hi John, I guess if you're a web designer, you won't need Socks' help eh? Websites, I expect you can find using a good search engine. I might have some other suggestions, but I'd sure like to see it first (on sci.med.diseases.cancer) I'll watch for your post there. Best, J |
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