Re: roll call -- Joe

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Joe-46er - 06 Apr 2005 02:09 GMT

Hi everybody.

Joe here -- CRC Stage 4 resection 11/03

Still doin' the chemo thing for 14 months now. I had to go to a new
hospital (Fox-Chase) and a new onc because of insurance problems. The
new onc took me off oxaliplatin and put me on irenotecan with the
previous avastin and F5U.

The side effects are quite tolerable ... would you believe a constant
runny nose?

I did however begin feeling sharp pains under my right rib cage which
concerns my onc so I've got a CT scan planned later this week. I'll
report on that when I get the results.

Actually I'm more concerned about my brother who has stomach cancer.
He was sent home from another nearby Philly hospital to hospice care
back in his home town. Was given 1 or 2 months. Man, I never thought
stomach cancer could be so aggressive. Web info said his had a higher
survival rate than mine, but it didn't turn out that way.

He told me that he first started having stomach problems 8 years ago
but his family doc just kept feeding him nexium and rolaids. Goes to
show that ya gotta be insistent when your body is complaining. Don't
depend on the docs.

_________________________________

"Take a little 5FU, leucovorin and irenotecan for thy stomach's sake." -- 1 Timothy 5:23 (adapted)

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mark (sixstringtheoryDOTcom) - 06 Apr 2005 03:37 GMT

> Hi everybody.
>
[quoted text clipped - 26 lines]
>
> "Take a little 5FU, leucovorin and irenotecan for thy stomach's sake." -- 1 Timothy 5:23 (adapted)

Joe,

Who is your oncologist at Fox Chase?

mark

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Joe-46er - 07 Apr 2005 01:55 GMT

>> Hi everybody.
>>
[quoted text clipped - 32 lines]
>
>mark

Mericore (or something sounding like that)

_________________________________

"Take a little 5FU, leucovorin and irenotecan for thy stomach's sake." -- 1 Timothy 5:23 (adapted)

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J - 07 Apr 2005 09:31 GMT

> Joe here -- CRC Stage 4 resection 11/03
>
[quoted text clipped - 9 lines]
> concerns my onc so I've got a CT scan planned later this week. I'll
> report on that when I get the results.

Good luck with the new regimen, Joe

> Actually I'm more concerned about my brother who has stomach cancer.
> He was sent home from another nearby Philly hospital to hospice care
[quoted text clipped - 6 lines]
> show that ya gotta be insistent when your body is complaining. Don't
> depend on the docs.

There is a tendency to "throw pills at a problem".
On the one hand, 9 times out of 10, it's probably not cancer; so if doctors ordered a test for each
"stomach trouble", they'd be accused of over-testing. On the other hand, it's fair, I think, to run an
upper GI test perhaps twice during that 8 year period...
On the other hand, I see some, on another newsgroup, who have gastro problems; only to discover later,
that it's the lower, causing the upper GI problem. So we'd all be getting tested "up and down the
wazoo"..

I'm truly sorry about your brother, Joe.
( ( ( Joe ) ) )
J

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