I was recently, three weeks ago diagnosed with squamous cell carcinoma
of the tongue. Surgery has removed the tumor with clean margins as
well as all the lymph nodes on the right side of my neck.
Unforunately the cancer has metastastized to one of the lymph nodes.
I will be starting radiation and chemo at the end of this month. In
fact I meet the oncologist and radiologist tomorrow. Has anyone had
any experience with this type of cancer? Could anyone talk me through
what the radiation and chemo will be like? What problems are there
with a feeding tube or advice you can give?
This has been all very sudden for me, I am a thirty six year old man
with no risk factors, just bad genetics I guess. Any advice or
pointers would be great.
Thanks in Advance,
Chuck
LB@notmine.com - 05 Apr 2005 11:03 GMT
> I was recently, three weeks ago diagnosed with squamous cell carcinoma
> of the tongue. Surgery has removed the tumor with clean margins as
[quoted text clipped - 14 lines]
>
> Chuck
You may not find someone with the exact issue, BUT you are going to find
some caring folks in here who will try very hard to help you.
Good Luck and God's Speed.
LB (A caretaker who mostly lurks)
J - 05 Apr 2005 11:33 GMT
> I was recently, three weeks ago diagnosed with squamous cell carcinoma
> of the tongue. Surgery has removed the tumor with clean margins as
[quoted text clipped - 10 lines]
> with no risk factors, just bad genetics I guess. Any advice or
> pointers would be great.
Hello Chuck and welcome to alt.support.cancer
Willy posted this earlier.
http://ethesis.helsinki.fi/julkaisut/laa/kliin/vk/saarilahti/radiatio.pdf
I have been trying to wade through it ever since.
I'm sorry to rush it to you, but might be worth reading before your
appointment.
Willy found it for us. I put your type in the subject line, in case he
just watches for specific subject lines.
Em's mom only had surgery (jaw, I think).
I'll try to find you an ACOR mail list too.
But do stay with us and let us know how things are going.
Best,
J
Emily - 05 Apr 2005 22:23 GMT
banish@invalid.anon said...
> Em's mom only had surgery (jaw, I think).
Correct. No further treatment has been given other than the
removal of the tumour and subsequent attempt at retrieving the
plate after it wandered off. She hasn't had to have
chemotherapy or radiotherapy.

Signature
If you can keep your head when all around are losing theirs...
then you've failed to grasp some important aspect of the
situation.
J - 05 Apr 2005 11:41 GMT
> I was recently, three weeks ago diagnosed with squamous cell carcinoma
> of the tongue. Surgery has removed the tumor with clean margins as
[quoted text clipped - 10 lines]
> with no risk factors, just bad genetics I guess. Any advice or
> pointers would be great.
Hello Chuck,
H for Head/Neck http://www.acor.org/mailing.html
A lot of cancer patients join there and also post (or lurk) here.
J
Steph - 05 Apr 2005 15:56 GMT
>I was recently, three weeks ago diagnosed with squamous cell carcinoma
> of the tongue. Surgery has removed the tumor with clean margins as
[quoted text clipped - 14 lines]
>
> Chuck
You'll get the best info from your radiation oncologist tomorrow, if you ask
the questions.
J - 05 Apr 2005 21:10 GMT
> "Chuck Lasseter" <lasseter@earthlink.net> wrote in message
>
[quoted text clipped - 19 lines]
> You'll get the best info from your radiation oncologist tomorrow, if you ask
> the questions.
I wish you'd elaborate, Steph.
Was that a poke at what I posted? or a hint to Chuck as to who to listen to
about treatment choices or expected side effects of radiation therapy or none of
the above?
J
Steph - 06 Apr 2005 02:08 GMT
>> "Chuck Lasseter" <lasseter@earthlink.net> wrote in message
>>
[quoted text clipped - 28 lines]
> the above?
> J
No, it's just that if he's meeting the rad onc and med onc tomorrow, why
on earth would he expect to get the info here?
Chuck Lasseter - 06 Apr 2005 02:21 GMT
Because many of you have either experience this on the most personal
of levels, or had loved ones that went through this.
At this stage of the game I don't even know all the right questions to
ask. Someone who, say, went through chemo twice and experienced
radiation therapy might have some very useful insight for me.
As it stands I did get alot of useful information from the oncologist.
This isn't meant as a slam, just the realization that in the schem of
things I am still flying pretty much blind.
I go in for chest x-rays on the 19th and had bloodwork done. The
oncologist has already met with the radiologist and they are still
discussing whether they will give me chemo. It will depend on the
chest xrays, blood tests, and what the radiologist says after our
meeting.
Chuck
Reading On Wed, 06 Apr 2005 01:08:19 GMT, "Steph"
<steph@vancouvers.island> wrote:
>>> "Chuck Lasseter" <lasseter@earthlink.net> wrote in message
>>>
[quoted text clipped - 31 lines]
>No, it's just that if he's meeting the rad onc and med onc tomorrow, why
>on earth would he expect to get the info here?
Steph - 06 Apr 2005 06:03 GMT
> Because many of you have either experience this on the most personal
> of levels, or had loved ones that went through this.
[quoted text clipped - 14 lines]
>
> Chuck
Try here for starters - my "questions to ask"
http://tinyurl.com/4akk6
J - 07 Apr 2005 10:36 GMT
> "J" <banish@invalid.anon> wrote in message
> >
[quoted text clipped - 32 lines]
> No, it's just that if he's meeting the rad onc and med onc tomorrow, why
> on earth would he expect to get the info here?
Well, I think you're being too tough on him, FWIW
(seems to me that) The first thing a person wants to do when they get a
diagnosis, is "get with others" who've had the same diagnosis..to compare notes
and compile a list of questions to ask. You (and even I) may know exactly what
questions we'd ask, but to a patient, who has perhaps rarely seen a doctor
(he's young), that's a lot to expect.(one month or so).from wellness..to
diagnosis...to surgery to appointment with radiation therapist/oncologist. I
think you expect too much of patients and I don't have a clue why you're
picking on this specific one. Don't make me come there and take you out for a
lager..and talk your head off about meetings (as a patient/layperson ) with
doctors. <g> We'd close the place down and I'd still be talking on the way to
the subway or car.
Please, have mercy on the layperson, Steph.
J
Steph - 08 Apr 2005 05:58 GMT
>> "J" <banish@invalid.anon> wrote in message
>> >
[quoted text clipped - 59 lines]
> Please, have mercy on the layperson, Steph.
> J
Which is why I posted my "Questions to ask"
I'm not picking on him, but to post for opinions on the NG the day BEFORE
meeting the oncs seems a bit silly to me........
J - 04 May 2005 03:53 GMT
> I was recently, three weeks ago diagnosed with squamous cell carcinoma
> of the tongue. Surgery has removed the tumor with clean margins as
[quoted text clipped - 10 lines]
> with no risk factors, just bad genetics I guess. Any advice or
> pointers would be great.
Hello Chuck,
It's the end of the month.
How's it going?
Thinking of you,
J