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Medical Forum / Diseases and Disorders / Cancer / April 2005help
I want to know about brain cancer and radiation. the effects, the longevity. this is devastating. -- > I want to know about brain cancer and radiation. > the effects, the longevity. this is devastating. > > -- Hello Morgan, My husband had a GBM4 brain tumour that was treated with chemo and radiotherapy, it was nineteen months ago now but my memories are still quite clear. What is is specifically that you want to know? Warm Hugs Alayne will you please email me privately, I need to ask questions but do not want to risk the person in question seeing these post. thanks morgan_jc@Hotmail.com. -- > > "Morgan" <morgan_jc@hotmail.com> wrote in message > news:_Kn3e.2317$uC2.12945@eagle.america.net... >> I want to know about brain cancer and radiation. >> the effects, the longevity. this is devastating. >> >> -- > Hello Morgan, > > My husband had a GBM4 brain tumour that was treated with chemo and > radiotherapy, it was nineteen months ago now but my memories are still quite > clear. What is is specifically that you want to know? > > Warm Hugs > > Alayne > > > will you please email me privately, I need to ask questions but do not > want to risk the person in question seeing these post. [quoted text clipped - 23 lines] > > > > Have done so Morgan - waiting to hear from you. Warm Hugs Alayne > "Morgan" <morgan_jc@hotmail.com> wrote in message > >Have done so Morgan - waiting to hear from you. Hello Alayne, There's probably hundreds, if not thousands of "Morgans" out there who have someone in their lives who have brain cancer. So there's no certainty that she would be ID'd here. Just think if everybody asked the same, there'd be no newsgroup and everybody would be asked to email one person or another. The reason for a newsgroup is that information shared in one instance, helps others in same situation, even if they don't post that they're waiting to read the answers. In addition, if someone doesn't tell us what it's about, if she later posts a question and you're not around and/or Steph or Mike need ot know more, we're in the dark here about what the situation is... so please update us and encourage her to keep it on newsgroup, please. Hugs J > > "Morgan" <morgan_jc@hotmail.com> wrote in message > > >Have done so Morgan - waiting to hear from you. [quoted text clipped - 13 lines] > Hugs > J Have already tried re-directing her back here J. I think she wanted to talk off-line to be anonymous from the person with the diagnosis but unfortunately I have no scope for her situation. Hugs Alayne > "J" <banish@anon.inv> wrote in message > [quoted text clipped - 8 lines] > off-line to be anonymous from the person with the diagnosis but > unfortunately I have no scope for her situation. Thanks Alayne, She can create a different ID with a different Yahoo email account and if she does not ID the person's name, city, doctor (unless it's a very rare type of brain tumour), there would be nothing specifically ID"ing. There's lots of people with brain tumors in the world... Email me, so I can see what it's about, if she ok's that. Hugs Alayne J > I want to know about brain cancer and radiation. > the effects, the longevity. this is devastating. > > -- Could you be a little more specific? Who has the tumor? Age? Where in the brain? Primary type of cancer? What stage? What kind of radiation therapy? These are some basic questions that will help answer your questions. Google is our friend, but watch out for quacks disguised as real people. I've had whole brain radiation and a Cyberknife treatment. SCLC mets to the brain. The WBR removed about 1/3 of my hair. Left me tired beyond belief. ( I got over it eventually) I didn't detect any side effects from the Cyberknife. It was a 1 time treatment as opposed to the WBR which was 13 treatments. NOBODY can accurately predict longevity. Too many variables. An educated guess is the best anyone can do. Twice I've been given life expectancy of a few months to a year. I'm about to celebrate my 2 year survival anniversary. Let us know some more details and we'll see what J will pull up for you. She's a great researcher, and has a jillion links at her fingertips.  SignatureMy software never has bugs. It just develops random features. Bob In Carmel, CA Hi Bob, Glad you're hanging in there. I was diagnosed with an egg sized low grade glioma 2 years ago come July that hasn't been treated because of its location. I'd be interested in hearing about your experience with WBR in greater detail as I was told when my time comes for treatment that radiation most likely will be primary option. Regards, Bill > Glad you're hanging in there. I was diagnosed with an egg sized low > grade glioma 2 years ago come July that hasn't been treated because of > its location. I'd be interested in hearing about your experience with > WBR in greater detail as I was told when my time comes for treatment > that radiation most likely will be primary option. Hi Bill, It's ben a year since my WBR the main side effect at the time was, of course, hair loss and extreme tiredness. I was offered PCI (Prophylactic Cranial Irradiation) which is about the same thing, but before any sign of cancer. My cancer (SCLC) tends to spread to the brain more easily than others. I declined the PCI because my cancer was discovered very early, no nodal involvement,and it responded so well to radiation. My first check-up showed that it had spread to my brain, so I got WBR. There seems to be a bit of memory loss associated with brain radiation. My My short term memory is not as sharp as I think it used to be. That could be from age also (I'm 62). Occasionally I will have a little problem with balance, but not very often. The radiation dried out my earwax to the point that I was removing boulders from my ears. That went away. I have some soreness in my jaw joint that antibiotics don't fix. Still trying to puzzle that one. My next MRI/CT scans are this coming Friday. Got my fingers crossed. The Dr assured me that the WBR would leave me permanently bald. I now have hair growth that is about 2/3 of the old growth. It looks like male pattern baldness. No hair on top, only on the sides and back. Before cancer, I looked like Willie Nelson. By far the most noticeable side effect is fatigue while in treatment (I had 13 sessions) and for 2 or 3 months afterward. I was tired ALL the time and nothing would help. If I had 10 hours of sleep. I would awake tired. 9 months later an MRI found a small tumor inside my brain. My oncologist sent me to Stanford Cancer Center for a treatment called CyberKnife. http://www.stanfordhospital.com/clinicsmedServices/COE/cyberknife/ckHome.htm It is similar to the Gamma Knife, but you wear a mask instead of being bolted into a metal frame. I don't know if it is an option for a tumor the size of yours, but it's something to be aware of. Bottom line WBR--No Big Deal, If you are a candidate, do it. SignatureMy software never has bugs. It just develops random features. Bob In Carmel, CA > I have some > soreness in my jaw joint that antibiotics don't fix. Still trying to > puzzle that one. My next MRI/CT scans are this coming Friday. Got my > fingers crossed. One of my jaw joints is dislocating. Also I have arthritis there. Sometimes it aches more when out in the cold. If they see nothing MRI/CT in the jaw area, see a dentist such as this one (random find) http://www.azarmehr.com/dental-services/tmj.htm The one I saw (hint: experienced) did _not_ need to do a bunch of fancy and expensive tests (which I saw mentioned on another similar webpage). He felt both jaw joints as he had me open/close my mounth, mimic chewing, slide upper/lower jaw side to side. He could see and feel the problem. Unless they see something else that needs adjusting, like grinding down some teeth which "lopside" your bite,A bite plate can be fashioned for your mouth . Sometimes it need only be worn during the day or during the night. (not both) It takes the strain off the jaw joint. J |
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