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Medical Forum / Diseases and Disorders / Cancer / April 2005

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Studor Pouch for Bladder Cancer

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Donna G. - 19 Mar 2005 07:56 GMT
My husband had this surgery 4 days ago for bladder cancer and had a
Studor Pouch made from his small intestine.  Anyone else on the board
had this surgery?  Thanks.  Donna
J - 21 Mar 2005 16:19 GMT
whats a Studor Pouch??
dgsam2@telusplanet.net - 22 Mar 2005 18:33 GMT
> whats a Studor Pouch??

Hi J - Apparently they have been doing this surgery for a few years and
it seems it is quite successful but can have lots of complications.
The surgeon removes the bladder and takes a piece of the small
intestine (bowel) and creates a "pouch" which he hooks up the urethea
to so instead of a bag to collect urine on the outside of the body,
there is a place inside the body like a bladder.  Of course, the pouch
won't have the nerves, etc. of the original bladder so new muscles need
to be trained to empty it and DH won't know when it is full so he will
have to empty it using gravity and the new muscles a few times a day.
But, it is like going to the bathroom normally.  He will have to set
the alarm a couple of times during the night so he doesn't leak from
the pouch being too full of fluid.  Apparently there is always some
leakage but he can wear Depends or whatever to ensure he doesn't go
through to his clothes.  It's not perfect, but for DH he was glad he
was able to get this done.  He's lucky to have a surgeon who is one of
the few that does it.

Donna
J - 01 Apr 2005 02:22 GMT
> My husband had this surgery 4 days ago for bladder cancer and had a
> Studor Pouch made from his small intestine.  Anyone else on the board
> had this surgery?  Thanks.  Donna

Hello Donna,
I see by your email account - another Canadian eh?
I'm from Ontario and Steph's (doctor/radiation oncologist) from BC
There's 2 "J"s on this newsgroup. the other is a pest who has been asked
to change his screen name but won't.
If you ever have questions, please do not hestitate to ask here.

Meantime, have you asked the same question at the ACOR private mail lists
under "B" for bladder?
http://www.acor.org/mailing.html?l=b
I think the way it works is you "join". they send confirmation by email
when you've been approved to send and receive messages.
Hope this helps and best wishes to you and your husband.
J
dgsam2@telusplanet.net - 01 Apr 2005 03:14 GMT
J, thank you for the ACOR site.  I will go and join.  Yes, we live in
Edmonton.   DH is out of hospital with a catheter and stint from his
kidneys.  Still don't have the final Pathology report so hope to hear
next week on that.  DH is weak but the surgery seems to have gone well.
   Donna
J - 03 Apr 2005 18:22 GMT
> J, thank you for the ACOR site.  I will go and join.  Yes, we live in
> Edmonton.   DH is out of hospital with a catheter and stint from his
> kidneys.  Still don't have the final Pathology report so hope to hear
> next week on that.  DH is weak but the surgery seems to have gone well.
>     Donna

Good Donna,
It takes time to recover from such surgery but I'm sure (and hope) that DH
recovers well.
the ACOR group might also point you here (or perhaps there's a book).
http://blcwebcafe.org/urinarydiversions.asp
But there's nothing like sharing tips with others who are in various stages
of adjustments to such surguries.
I've a friend on another newsgroup, also from AB. Her father had part of
his bladder removed in BC. Both parents are now moving close to her, since
he also has Alzheimers and she's just had surgery for a giant aneurysm in
her brain.
They're doing wonderful things with surgery in Canada.

Dad was partially paralyzed about 45 years ago and had problems with
urinary function thereafter.
Mom, had been a nurse (and us when we weren't being selfish kids) helped
him through this. Eventually he was "forced" to retire, but despite that.
he insisted on doing as much as possible of the old things he used to do.
He rigged his car to drive and got it approved by the authorities. We'd
drag logs he had cut; we'd help him to saw them into smaller.
He continuid his own physio, after they'd told him they'd done all they
could and eventually proved them wrong.
He found a way to shift his hips to make his leg muscles move in a way so
that he could "walk" in a fashion, with a cane (on good days). On bad days
he had to use a walker or a wheelchair.
Later in BC, he developed colon cancer/blockages..and eventually had some
type of a pouch too (but for colon, not bladder).

Dad went on to live 15 or so years longer, mostly on his own (he was 30'ish
years older than your DH) because by then Mom had died from lung cancer..
My point being, keep your chins up, even when things may look rough; if Dad
could do it, you and your DH will get through this with some adjustments.

Keep in touch as you are able and if you wish.
Best wishes to you both and I'll be thinking of you often.
J
 
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