J, thank you for the ACOR site. I will go and join. Yes, we live in
Edmonton. DH is out of hospital with a catheter and stint from his
kidneys. Still don't have the final Pathology report so hope to hear
next week on that. DH is weak but the surgery seems to have gone well.
Donna
> J, thank you for the ACOR site. I will go and join. Yes, we live in
> Edmonton. DH is out of hospital with a catheter and stint from his
> kidneys. Still don't have the final Pathology report so hope to hear
> next week on that. DH is weak but the surgery seems to have gone well.
> Donna
Good Donna,
It takes time to recover from such surgery but I'm sure (and hope) that DH
recovers well.
the ACOR group might also point you here (or perhaps there's a book).
http://blcwebcafe.org/urinarydiversions.asp
But there's nothing like sharing tips with others who are in various stages
of adjustments to such surguries.
I've a friend on another newsgroup, also from AB. Her father had part of
his bladder removed in BC. Both parents are now moving close to her, since
he also has Alzheimers and she's just had surgery for a giant aneurysm in
her brain.
They're doing wonderful things with surgery in Canada.
Dad was partially paralyzed about 45 years ago and had problems with
urinary function thereafter.
Mom, had been a nurse (and us when we weren't being selfish kids) helped
him through this. Eventually he was "forced" to retire, but despite that.
he insisted on doing as much as possible of the old things he used to do.
He rigged his car to drive and got it approved by the authorities. We'd
drag logs he had cut; we'd help him to saw them into smaller.
He continuid his own physio, after they'd told him they'd done all they
could and eventually proved them wrong.
He found a way to shift his hips to make his leg muscles move in a way so
that he could "walk" in a fashion, with a cane (on good days). On bad days
he had to use a walker or a wheelchair.
Later in BC, he developed colon cancer/blockages..and eventually had some
type of a pouch too (but for colon, not bladder).
Dad went on to live 15 or so years longer, mostly on his own (he was 30'ish
years older than your DH) because by then Mom had died from lung cancer..
My point being, keep your chins up, even when things may look rough; if Dad
could do it, you and your DH will get through this with some adjustments.
Keep in touch as you are able and if you wish.
Best wishes to you both and I'll be thinking of you often.
J