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Medical Forum / Diseases and Disorders / Cancer / March 2005

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schivo and cancer patients

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agent01413@my-deja.com - 23 Mar 2005 11:47 GMT
I've been staying in Florida where the Schivo case has been dominating
the news.

I know that the likelihood of a cancer patient like me is unlikely to
end up in a prolonged vegetative state. however, one of the problems in
the Schivo case is that she felt it unlikely that she would end up ina
prolonged vegetative state either and never said anything publicly.

I've been talking to my family members. Anyone who favors government
intervention on her behalf is being removed from any decision making
role in my living will.  If I end up in her shoes, my wife and the rest
of my immediate family knows that I want the plug pulled.  My aunt who
lives down here is likely to come to Colorado to be with Figgertoes and
me in my last days, and shares my view opposing extraordinary measures.
She was a hospice nurse, and saw first hand the cruelty of families
unable to let go who forced extra suffering on their dying relatives in
their last days.

This post is just one more piece of documentation telling Congress and
the courts to butt out of private medical decisions.  I expect Jerry
Nadler (Dem - Manhattan and a friend of mine) to defend my right to
check out peacefully without their interference when my time comes.  I
suggest anyone else in my shoes to add to this thread so that the
documentation exists if your loved ones need it.

And yeah, that might mean I won't have the chance to say a last good
bye here.  I want to do that if possible, but please understand if
things happen too quickly for that to be feasible.

All the best.
LB@notmine.com - 23 Mar 2005 16:04 GMT
> I've been staying in Florida where the Schivo case has been dominating
> the news.
[quoted text clipped - 26 lines]
>
> All the best.

Please do yourself a favor and learn about Hospice services.  They are
there to make you more comfortable.

LB
Emily - 24 Mar 2005 01:59 GMT
LB@notmine.com said...
> > And yeah, that might mean I won't have the chance to say a last good
> > bye here.  I want to do that if possible, but please understand if
[quoted text clipped - 4 lines]
> Please do yourself a favor and learn about Hospice services.  They are
> there to make you more comfortable.

I think you'll find that our resident moggy knows as much
about hospice as he needs to by now and is actually being
realistic rather than merely dramatic.  And FWIW I'm on his
side: I *never* want to be kept alive artificially after all
reasonable hope has gone, and I've made that quite clear to my
family.  And whilst as a mother I can understand that parents
wouldn't want to let go of a child (as in the Schivo case) I
also understand that we don't always get what we want.  As
heartbreaking as it must be to lose a child - even when that
'child' is an adult - I hope that should I ever be in that
situation I will at least be able to act sensibly.
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bj - 23 Mar 2005 17:27 GMT
According to reports I've heard, her parents have said that they would have
ignored even any *written* instructions she had left.

Not too many 20-somethings think anything like this could happen to them
*ever* let alone anytime soon.
bj

> I've been staying in Florida where the Schivo case has been dominating
> the news.
[quoted text clipped - 14 lines]
> their last days.
> ....
Emily - 24 Mar 2005 02:07 GMT
bjones44@bellatlantic.net said...

[The Schivo case]
> According to reports I've heard, her parents have said that they would have
> ignored even any *written* instructions she had left.

Unfortunately one of the hardest things to do for those we
love is to let them go; however at some point it will have
been or will be necessary for every one of us to do so.  It's
harder still when the one doing the leaving is of a younger
generation, but I believe that even so we have a duty of care
to carry out (as far as is practical) our loved one's final
wishes.

Signature

If you can keep your head when all around are losing theirs...
then you've failed to grasp some important aspect of the
situation.

Alayne - 24 Mar 2005 08:43 GMT
> bjones44@bellatlantic.net said...
>
[quoted text clipped - 9 lines]
> to carry out (as far as is practical) our loved one's final
> wishes.

Yes I agree it's a damn hard thing to do but letting someone go is the most
unselfish thing a person can do.  When it comes near to a persons end, it
must be quality of life that is the major consideration.  I agreed to Tony
being sedated when his suffering became too much and whilst it was
heartbreaking for me, it was the best course of action for him.

Warm Hugs

Alayne
Socks the Whitehouse Cat - 25 Mar 2005 04:27 GMT
> According to reports I've heard, her parents have said that they would
> have ignored even any *written* instructions she had left.
>
> Not too many 20-somethings think anything like this could happen to
> them *ever* let alone anytime soon.

My aunt was a hospice nurse.  she had some first hand experience with
patients whose quality of life made them willing and ready to die, whose
family wouldn't let them go. One little old lady pleaded every night for
them to let her die and they wouldn't.

She doesnt have much sympathy for the parents here.  I was thinking of
adding her to my living will, since her attitude matched mine.

Sadly, the intervention of the state of Florida makes me have second
thoughts about heading there if it seems that moving to sea level from
where I am now (mile high is quite literally accurate), since Florida is
really my sole choice there.

Signature

"...Life is not a journey to the grave with the intention of arriving
safely in one pretty and well preserved piece, but to slide across the
finish line broadside, thoroughly used up, worn out, leaking oil, and
shouting GERONIMO!!!" -- Bill McKenna, date unknown

Emily - 24 Mar 2005 01:53 GMT
agent01413@my-deja.com said...
> And yeah, that might mean I won't have the chance to say a last good
> bye here.  I want to do that if possible, but please understand if
> things happen too quickly for that to be feasible.

{{{{{Hugs}}}}} to you and to Figgertoes.
Signature

If you can keep your head when all around are losing theirs...
then you've failed to grasp some important aspect of the
situation.

Socks the Whitehouse Cat - 25 Mar 2005 04:23 GMT
Emily <emily@privacy.net> wrote in news:MPG.1cac1fefd337ac3798be99
@news.individual.net:

> agent01413@my-deja.com said...
>> And yeah, that might mean I won't have the chance to say a last good
>> bye here.  I want to do that if possible, but please understand if
>> things happen too quickly for that to be feasible.
>>
> {{{{{Hugs}}}}} to you and to Figgertoes.

likewise.

This morning i thought the end was coming fast.  I was feeling really
debilitated, with some serious pain.  I was surprised that the cancer could
worsen this fast, and also wondered if returning to altitude could be
playing a part.

This afternoon I got an IM from my aunt whom figgertoes and I had stayed
with for a few days.  We'd had some wonderful oysters on the half shell for
lunch yesterday (two dozen for $6) before catching the plane for home.
Seems my aunt had a reaction to the oysters that pretty well matched mine.  
Also this afternoon the ill effects started to ease.

So, cat scan tomorrow and appt with the pain clinic on Tuesday. we'll see
what develops.

Signature

"...Life is not a journey to the grave with the intention of arriving
safely in one pretty and well preserved piece, but to slide across the
finish line broadside, thoroughly used up, worn out, leaking oil, and
shouting GERONIMO!!!" -- Bill McKenna, date unknown

Alayne - 25 Mar 2005 10:56 GMT
> Emily <emily@privacy.net> wrote in news:MPG.1cac1fefd337ac3798be99
> @news.individual.net:
[quoted text clipped - 21 lines]
> So, cat scan tomorrow and appt with the pain clinic on Tuesday. we'll see
> what develops.

Hoping all goes okay with your CAT scan Socks and that the pain clinic can
help ease matters.  I'm rooting for you buddy ;-)

Warm Hugs

Alayne
Emily - 25 Mar 2005 12:15 GMT
agent01413@my-deja.com said...
> So, cat scan tomorrow and appt with the pain clinic on Tuesday. we'll see
> what develops.

Keep me posted here please or in uk.rec.sheds where ROT13 is
acceptable if required (I post there as the ROTten version of
the shortened form of my real name) - I can't access email at
the moment until I've sorted a protocol problem on my
computer.  I hope to have that sorted by the end of today, but
I never promise anything where computers are concerned.
Signature

If you can keep your head when all around are losing theirs...
then you've failed to grasp some important aspect of the
situation.

 
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