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Medical Forum / Diseases and Disorders / Cancer / April 2005

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A New Crossroad

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bc - 12 Mar 2005 02:58 GMT
Hello Again--

I guess I've been too busy trying to live whatever's left of this life to
spend a lot of time here absorbed in the disease.

I've had positive experiences with support groups--12 Step and such--
dealing with other issues. Somehow this is different. Maybe it's the
certain knowledge of the short fuse. Maybe it's denial. Or maybe I'd just
rather be someplace else doing something else--sucking up as much of life
as I can still get my arms around.

Nevertheless it feels good to be able to stop by a place where others are
grappling with cancer and offload some of the thoughts, doubts, feelings,
etc. with you who are likely traveling in or around the same space.

I've now completed four cycles of chemo--once every three weeks--
gemcitabine and carboplatin. A few bad days after each dose. But nothing
I couldn't handle

I am feeling well. A little short of breath now and then but I can walk
about a mile so long as it's flat ground. Long stairs are no fun. I live
in Brooklyn so the Subway--which is actually elevated here--is standard
transport. Just about the time I became ill last fall the subway gods
inaugurated a new elevator here at my stop, which eliminates a four-story
climb on steep stairs. So that was a happy coincidence.

Monday I see my oncologist. Friday it's the pulmonologist. So I guess
this is a time to examine the results of the chemo thus far and chart a
new course. There may be some radiotherapy on the agenda. I should know
more by the end of the week.

I'll drop by then and maybe run whatever the proposed treatment plan is
past you folks--maybe get some feedback.

Regards to all...

bc
Alayne - 12 Mar 2005 09:42 GMT
> Hello Again--
>
[quoted text clipped - 33 lines]
>
> bc

Hello bc, good to hear from you and glad to hear that you have been busy
living your life rather than dwelling on your illness, it's a good strategy.

I hope all goes well for you Monday.

Warm Hugs

Alayne
J - 13 Mar 2005 10:13 GMT
> I guess I've been too busy trying to live whatever's left of this life to
> spend a lot of time here absorbed in the disease.
[quoted text clipped - 24 lines]
> new course. There may be some radiotherapy on the agenda. I should know
> more by the end of the week.

Hello bc,

I second Alayne's comments and hope to read about you and other cycling
(bicycle) in the Spring.

Oh all right, since I seem to be a "romantic" of sorts, when I read about the
elevator, I picture you, standing outside, first nice warm day, with less
expensive flowers handing one each to people (male or female) who are heading
to the Subway (who look stressed or unhappy) and if they ask why, saying " I
have lung cancer, being treated, this is the first nice day and hope you will
stop and smell the flower and take a break from your woes".  If you decide it
might be an idea, don't do it, if it's a dangerous-type thing to do in your
area...because I really don't know what type of reaction(s) you might get.

Good on you, for trying the chemotherapy. I'm glad to hear that you're
tolerating it pretty good.
Thanks for the update. I look forward to hearing from you, when you have
time.
Best wishes,
J
Bob - 17 Mar 2005 22:32 GMT
bc:
       I, too, have been diagnosed and am dealing with chemo for NSCLC.  
Regarding the shortness of breath, I experienced the same and it was
simply anemia.  Although Procrit shots help some, the hematocrit level
does drop with carboplatin.  At one point, after I complained about the
shortness of breath again, my oncologist set me up for a blood
transfusion - that morning, I had to stop and rest after 5-6 steps, but
that night (after the transfusion), I could literally run up and down
the same steps.
       I'm not saying that a transfusion is the answer, just that the
shortness of breath may NOT be connected directly to the disease (which
I worried about), and is NOT necessarily a permanent condition.

       Best of luck!!

Cheers,
Bob

> Hello Again--
>
[quoted text clipped - 35 lines]
>
> bc
J - 18 Mar 2005 19:28 GMT
>         I, too, have been diagnosed and am dealing with chemo for NSCLC.
> Regarding the shortness of breath, I experienced the same and it was
[quoted text clipped - 7 lines]
> shortness of breath may NOT be connected directly to the disease (which
> I worried about), and is NOT necessarily a permanent condition.

Hello Bob and welcome.
Since we have another Bob, maybe I'll call you Scubob.
It helps me to remember the particulars of each person.

BC's seeing the pulmonologist sometime today.
I sure hope he doesn't get anemia. He had a late start with treatment and
had breathing problems long before.
It was found that he had pleural effusions; then after that was drained, he
was diagnosed with COPD and emphysema.
I think he still has little pools of effusions and is on broncodilaters.
He's had quite a rough time of it, I'm sorry to say.

The newsgroup is quiet these days; would you care to try to liven it up?
Perhaps a Roll Call post?
That way you could get to "meet" others and get to know them and perhaps
draw new lurkers in...
I usually tell them to delete what I wrote *in the Roll Call post) and put
their Type/Stage of cancer in the subject line.
Then tell us whatever they wish..treatment updates, family updates; trips;
moves..the good and the bad..

If not, that's okay. Perhaps I'll start one closer to the beginning of next
week
Regards,
J
bc - 21 Mar 2005 18:56 GMT
> bc:
>          
> Regarding the shortness of breath, I experienced the same and it was
> simply anemia.  Although Procrit shots help some

Bob--

Thanks for that insight on the breathing. I had chemo #5 last Tuesday
Gemzar/Carboplatin. I get the 3-day delayed reaction. So FR/SA/SU the
recoil peaked. Today I'm just short of breath and have a strange pain in
the back of my throat, which I also had after the last chemo.

Now they give me some tablets called EMEND which seem to diminish the
after-effects of the chemo. I'm also getting an injection for anemia
every two weeks. It's Procrit or something similar. I have to check on
that.

Also last week I had another CAT scan. I saw the pulmonologist on Friday.
He had the film even though the radiologist had yet to read it. His take
on the new film was that there very little change from January. Tumor
remains "small" +/- 3.5 cm diameter--no change.

The pleural effusion seems to be slightly smaller than in January--mostly
gathered in the lower cavity--but a small loculated pool higher up.
Opinion remains as in January that thoracentesis is not warranted at this
time.

I had pressed the issue of radio therapy with my medical oncologist last
week, which was why they did another CAT scan now. I haven't seen the
oncologist yet to pursue the radio question further. The CAT scan was
only done on Thursday.

I asked the pulmonologist for his opinion on the matter. He replied,
"tough call." Radio does nothing for the pleural effusion, which
contained malignant cells back in September--the basis of the diagnosis
and staging at IIIB.

What are the chemo/systemic options? Does radio targeting the tumor make
any sense? Which is the larger problem--the pleural effusion--the tumor?
Has there been further metastasis?

More questions than answers.

Thanks again for the earlier feedback. Any further comments/insights
would be welcomed.

Best to all...

bc
Steph - 22 Mar 2005 04:21 GMT
>> bc:
>>
[quoted text clipped - 45 lines]
>
> bc

I wouldn't go to a radiation oncologist for an opinion on chemotherapy.
I wouldn't go to a medical oncologist for an opinion on radiotherapy
Mike Radcliffe - 22 Mar 2005 17:24 GMT
>> Thanks for that insight on the breathing. I had chemo #5 last Tuesday
>> Gemzar/Carboplatin. I get the 3-day delayed reaction. So FR/SA/SU the
[quoted text clipped - 15 lines]
>> Opinion remains as in January that thoracentesis is not warranted at this
>> time.

>> I wouldn't go to a radiation oncologist for an opinion on chemotherapy.
> I wouldn't go to a medical oncologist for an opinion on radiotherapy

I would question the benefit of continuing chemo if there is no improvement
after two months treatment. (tumour same size and feeling no better)
MIKE
bc - 22 Mar 2005 18:35 GMT
>>> I wouldn't go to a radiation oncologist for an opinion on
>>> chemotherapy.
[quoted text clipped - 3 lines]
> improvement after two months treatment. (tumour same size and feeling
> no better) MIKE

Interesting observations. Thank you, Steph and Mike.

I like the suggestion to see a radiation oncologist. Makes sense to me. I
will pursue that.

I don't recall saying I feel no better since chemo started. With the
exception of the week or so following a chemo treatment I would say I do
feel better. Certainly my breathing has improved--not as breathless as
before.

I wonder if the fact that the tumor is no larger than it was 6 months ago
is not an indication that chemo may have been effective in preventing its
further growth. Similarly is the status quo/slight reduction in the
pleural effusion an indication that chemo has been helpful?

Generally I have been more comfortable with less pain since chemo started
than previously.

That said today happens to be an exception. Today I am experiencing pain
in my upper chest in the general area corresponding to the tumor. The
pain is mild when I'm sedentary. It is aggravated by deep breathing. It
intensifies with motion--especially bending or leaning forward as to pick
up something on the floor. The pain becomes quite intense at that point--
as though pressure or stress is being placed on a wound or injury.

I also experienced similar pain following the previous chemo about a week
after the treatment. Have others experienced pain at/near the site of the
tumor as a side effect of chemo--Gemzar/Carboplatin in my case?

Thanks again for feedback. Regards to all...

bc
J - 22 Apr 2005 08:25 GMT
> >>> I wouldn't go to a radiation oncologist for an opinion on
> >>> chemotherapy.
[quoted text clipped - 32 lines]
> after the treatment. Have others experienced pain at/near the site of the
> tumor as a side effect of chemo--Gemzar/Carboplatin in my case?

Hello bc, Perhaps you have to put the treatment in the subject line (to get
replies).

Soonds like the cancer wasn't responding to the treatment, if it wasn't
shrinking.
How are you doing now, bc and what's new?
Best,
J
 
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