Medical Forum / Diseases and Disorders / Cancer / April 2005
Prostate cancer question (from an old alt.support.cancer poster)
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Jackie - 10 Mar 2005 10:50 GMT Just found out last month that I have prostate cancer. Went back the first of this month to my urologist and he gave me all the facts that he had gotten from the biopsy and my options which were about ten or so.
From the biopsy he told me that my Gleason was 6 (3+3) and that the cancer was on both sides of the gland. He showed me a graph of the cancer and how it would be inside the prostate but he emphasized that the core samples were very small and that his estimation that the cancer comprises about 5% of the total gland. I asked him if he thought the cancer had escaped the gland and he was very positive it had not given the Gleason score combined with a pre-biopsy psa of 3.3. I had had a biopsy with six core samples taken in Jan. 2003 that showed 'atypical cells' but was told that it was definitely not cancer at that time. My psa at that time was 2.7. Other events kept me from following up until this past month.
Since my oldest brother had prostate cancer and died in 2003 (along with my girlfriend whom I was a caregiver for as she fought and lost her battle with lung cancer) I decided that I wanted to have surgery instead of any of all the other options that he presented.
I have had an increasing problem with hip pain and my concern is that the cancer has spread but I am not sure if such pain would be from the cancer or from some problem with my back. When I mention this concern to my urologist he said that he believed that given my relatively low psa and the Gleason score he was confident that my pain was from my back.
I am 53 and suppose to have surgery on the 24th. Given my psa and the Gleason score, assuming that it is correct, what is the likelihood that my hip pain has anything to do with the cancer? I know that no one can give a definitive answer but I am really looking for some opinions on the likelihood that this could be the cause. Thanks.
(Jack)ie
Sinead - 10 Mar 2005 10:53 GMT > Just found out last month that I have prostate cancer. Went back the > first of this month to my urologist and he gave me all the facts that he [quoted text clipped - 29 lines] > > (Jack)ie Jackie
I am so sorry to hear your news, life must feel pretty damn scary at the moment. Keep checking in here, Steph and J will no doubt have good, trustworthy and relevant info for you soon.
Take care Sinead
J - 10 Mar 2005 13:22 GMT > I have had an increasing problem with hip pain and my concern is that the > cancer has spread but I am not sure if such pain would be from the cancer or [quoted text clipped - 7 lines] > definitive answer but I am really looking for some opinions on the > likelihood that this could be the cause. Hello (Jack)ie I'm sorry to hear that cancer woes have found you again and especially sorry to hear about your brother. I know you and Jewell had a tough time of it. I'm sure she's still sorely missed and your experience with both is especially worrisome for you.
It's true that prostate cancer "loves bone" Howerver, I would tend to agree with your urologist (for the same reasons that he gave you). Unless there was a marked jump in the PSA, the hip pain is likely coming from your back. I would see a sports medicine therapist. If you would feel better about it, you could ask your GP to order a CT scan of your spine or ask the sports medicine specialist to order up the test, in case there's disk problems there. Also start walking on a regular basis. This is 2-fold - weight loss (helps the hips/spine), firtness and preparation for the surgery.
In the meantime, you might want to try putting a pillow between your knees, while you sleep on your side. This aligns your knees with your hips and takes "drag" off your spine. There are many exercises for the back and hips. Too many to elaborate on here. Some use an exercise ball. Some do stretching and Piriformis Stretch http://www.spinecolorado.com/relieve.html Consistency is important. Also watch your posture at work or at the computer. If you sit one-sided at the computer, ( I do that and my right hip hurts) that puts more weight on one hip and pulls the other side, of the spine, out of whack, over time.. Remember, I'm not a doctor and don't have the ability to look into your body, so if you try any of these in the meatime, if it hurts (hurts more), stop. Do see a specialist.
Another important aspect is to immediately start Kegel exercises. How to (and why) is explained here <http://www.upmccancercenters.com/cancer/prostate/incontinence.htmlL>
After the surgery, there will be a pathology report. It will report whether the cancer has broken through the capsule (or not). If you feel better about this, bring it here and type what it says and perhaps Steph could tell you how it would be treated in his Province. There are a number of options, depending, as you've since realized. I see you'll be getting opinions on the prostate cancer newsgroup. Never hurts to get one from a specialist from Canada.
(Jack)ie, I lurk a lot on the prostate cancer newsgroup. Please don't be intimidated by that. Many do. If you've got questions, no subject's "sacred" over there. Ask your questions (ie don't mind me), get the best from the group.
Please come back and let us know how the surgery went. I'm sure all will go well, but do let us know. Good luck, J
Sinead - 10 Mar 2005 13:22 GMT >> I have had an increasing problem with hip pain and my concern is that >> the [quoted text clipped - 84 lines] > Good luck, > J Sorry J - I should have guessed you guys already knew each other. Cheers Sinead
J - 10 Mar 2005 18:54 GMT > Sorry J - I should have guessed you guys already knew each other. No problem, Sinead, You weren't "stepping on my toes" It's a newsgroup. Anybody can reply to a post. Peace :-) J
Steph - 11 Mar 2005 07:17 GMT > Just found out last month that I have prostate cancer. Went back the > first of this month to my urologist and he gave me all the facts that he [quoted text clipped - 29 lines] > > (Jack)ie It's possible, but unlikely.......... But discuss with your oncologist
Jackie - 11 Mar 2005 09:22 GMT >> Just found out last month that I have prostate cancer. Went back the >> first of this month to my urologist and he gave me all the facts that he [quoted text clipped - 33 lines] > It's possible, but unlikely.......... > But discuss with your oncologist Thanks for the quick replies. Steph I'm not seeing an oncologist, or at least not at this point. Been strictly between my urologist and myself as to the treatment, etc.
J will follow some of your advice and check out the web sites. I'm hoping that the pain is no more than my back or even my bad posture at the computer (yep, guilty of that also). Been using my treadmill almost daily trying to increase my strength before the surgery.
Again thanks for the advice and Sinead thanks for your reply. Will be checking back if everything goes ok and promise 'no opinions' on oncologists.
(Jack)ie
KCTom - 11 Mar 2005 23:00 GMT Try posting in alt.support.cancer.prostate. Lots of knowledgeable folks there. Tom
> Just found out last month that I have prostate cancer. Went back the > first of this month to my urologist and he gave me all the facts that he [quoted text clipped - 29 lines] > > (Jack)ie Jackie - 12 Mar 2005 01:29 GMT > Try posting in alt.support.cancer.prostate. Lots of knowledgeable folks > there. > Tom Thanks.
(Jack)ie
J - 12 Mar 2005 10:28 GMT > "KCTom" <mastint001@spamhawaii.rr.com> wrote in message > [quoted text clipped - 5 lines] > > (Jack)ie Still here eh (Jack)ie.. Are you educating yourself about prostate cancer? I want you to know the various pitfalls, know what questions to ask of a surgeon and possibly radiation oncologist, so there's no rants about them...hopefully your opinions will be based on knowing the potential pitfalls, having asked the right questions, surgeon skill. Then what followup treatment, if any, is the best one for your situation.
It's somewhat easier in Canada; one-stop shopping mostly, where the oncologist is also a radiation oncologist. But they also have to ask careful questions of the surgeon, so they know what to expect. I've seen mention of surgeons who are better at nerve-sparing. Ask them on the prostate cancer newsgroup (for your area/state/city).
I/we can't get into prostate cancer too much here, unless it's advanced/end stage cancer, so most of your information will likely come from the prostate cancer newsgroup. There's so many posters there, that it helps to start a new thread ..introductory. Same, if you have a new question. I suspect a lot just read and learn that way. Steve's the workhorse of that newsgroup, but there's Curtis, Alan (who hasn't been posting recently) and IP Freely. Wade on in and ask any questions.
There's at least one (in Texas) who had a pre-existing condition. He's in a wheelchair. Are you otherwise healthy (Jack)ie? I did go back and read as many as I could find of your posts (in the archives) but didn't see you mention much about yourself. Hence why I'm asking.. I suppose a treadmill is good. Wondering if walking outdoors is even better (lung expansion/fresh air) in preparation if there's general anesthetic. I forget now. More questions to ask. (I think I saw some say they only had a local, but not sure).
Keep in touch. You're welcome here, but I want to make sure you're well prepared and comfortably informed. Best, J
Jackie - 12 Mar 2005 11:40 GMT (J) Still here eh (Jack)ie... Of course.
.No rants here J concerning radiation oncologists. My girlfriend had a very good one that was not only willing to listen but didn't mind answering any question regardless of how stupid it may have sounded to someone that had seen so much and was in the profession. My only rant in the past was truly based on one medical oncolgist that just did not have my girlfriend's best interest in mind and she suffered as you may well know from my past posts unnecessarily from his lack of proper treatment but I promised not to rant about this person so I will stop here concerning that person.
Came here I guess because I felt comfortable in a sense after the many exchanges here during Jewell's illness. Always felt that even if there were difference of opinions at least those opinions were from those that truly cared (ie.you, Steph and others just to name a few).
My decision to post in both groups is that I have always thought that new ideas from as many sources as possible could be weighed and one could get a better understanding of this disease.
Have been reading as much as possible from the web sites that you have posted as well as a few from the other group. My urologist was very good on going over the many options as well and provided me with a rather large book on prostate cancer that has been helpful as well.
Intend to to continue to post as I go through this if I have some questions that might be abled to be answered from those that may have knowledge to the questions that I may need to pose. Hoping that after my surgery on the 24th that everything will go as routinely as possible and I will be fortunate enough to be able to put this behind me as soon as possible.
Education is indeed the key to understanding and I intend to avail myself of as much of it as possible. As far as my general health I would have to say that it is fair with problems with blood pressure, high lipid levels and not being being in as good of shape as I should be, hense the reason for the tradmill work, etc.
I've known my urologist for over 25 years and he will be doing the surgery which I feel comfortable with. He has done more than 800 and has experience in nerver sparring. Hopefully radiation will not become a factor but understand that anything is possible and if that becomes a need I will seek out the best radiation oncologist that I can find.
Thanks for your concern and suggestions as well as from those of others. Unless something comes up between now and surgery I will post again post surgery.
Again thanks for all the info you and others have provided.
(Jack)ie
>> "KCTom" <mastint001@spamhawaii.rr.com> wrote in message >> [quoted text clipped - 51 lines] > Best, > J J - 13 Mar 2005 10:21 GMT > (J) Still here eh (Jack)ie... Of course. I thought that perhaps you might be spending more time reading the prostate cancer newsgroup. That's part of why I asked and/or that you would be back after the surgery.
> Came here I guess because I felt comfortable in a sense after the many > exchanges here during Jewell's illness. Always felt that even if there were > difference of opinions at least those opinions were from those that truly > cared (ie.you, Steph and others just to name a few). I understand. Happens on other newsgroups too. I see some persons with cancer (or their relatives) stay on their "home" newsgroups. I also see that Steve posted about a relative, so I replied to him, but made suggestions as to other newsgroups.
> <snip>I've known my urologist for over 25 years and he will be doing the > surgery [quoted text clipped - 6 lines] > Unless something comes up between now and surgery I will post again post > surgery. Well, I'm comfortable that you've got lots of good resources there. So we'll hear from you after the surgery. Or anytime in between, if you should want to post.
Take good care of you. I want you to be a success story. :-) Best wishes, (Jack)ie. J
\(Jack\)ie - 29 Mar 2005 09:16 GMT > Keep in touch. You're welcome here, but I want to make sure you're well > prepared and comfortably informed. > Best, > J Got through the surgery and am now at home. Surgery went as expected and was the easiest part of the whole thing. Started to run some fevers because of a thrush like problem that still makes even drinking water painful but I am hopeful that the meds for that that I will be getting tomorrow will help. Was a little concerned that the doctor said that he couldn't get but one of the two lymph nodes removed but he said he wasn't too concerned with that. This Thursday will have the staples out and hopefully in a week or two will have the catheter removed although it hasn't been that much of a problem so far. Hoping that this will mean a "cure" to this prostate cancer !
(Jack)ie
J - 01 Apr 2005 01:50 GMT "(Jack)ie" wrote:
> Got through the surgery and am now at home. Surgery went as expected and > was the easiest part of the whole thing. Started to run some fevers because [quoted text clipped - 5 lines] > have the catheter removed although it hasn't been that much of a problem so > far. Hoping that this will mean a "cure" to this prostate cancer ! Glad all went fairly well, (Jack)ie The prostate cancer posters seem very optimistic about your prognosis. That's good :-) Keep in touch J
J - 12 Mar 2005 10:44 GMT > Try posting in alt.support.cancer.prostate. Lots of knowledgeable folks > there. > Tom He did..Thursday. That's why I didn't point him there. I saw his post there before I saw his post here. Thanks though. J
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